AIDSVu: Mapping HIV Surveillance Data and Promoting HIV Testing

Jennifer Taussig

Patrick Sullivan

Rollins School of Public Health

Emory University

August 15, 2011

What is AIDSVu?

A new mapping tool to make U.S. HIV prevalence data widely accessible and locally relevant

Concept originated with the desire to find a way to expand the reach, impact and utility of HIV surveillance data

Target audience includes researchers, advocates, public health officials, youth, policymakers, and other members of the general public

AIDSVu Goals

Make U.S. HIV prevalence data widely accessible, locally relevant, and easy to understand by providing users with a visual way to connect with the data on a national and local level

Motivate viewers to take action on an individual and community level including locating HIV testing sites in their community

Generate traditional and non-traditional stakeholder interest and position AIDSVu as a trusted resource for HIV data and information

AIDSVu Technical Advisory Group Emory University

– Patrick Sullivan – Jennifer Taussig

Gilead Sciences, Inc. – Kacy Hutchison

HIV Surveillance Coordinators – Eve Mokotoff, Michigan – Nanette Benbow, Chicago – Debbie Wendell, Louisiana – Angelique Griffin, D.C.

State HIV/AIDS Director

– Thomas Liberti, Florida

Centers for Disease Control and Prevention – Luke Shouse

Kaiser Family Foundation – Jennifer Kates

National Alliance of State and

Territorial AIDS Directors (NASTAD) – Natalie Cramer

University of Medicine & Dentistry

of New Jersey – Patricia Fleming

AIDSVu Guiding Principles

Integrity of the data is paramount

Establish the site as an ongoing, reliable, trusted source of information

Work in partnership with surveillance staff at the local, state, and federal levels

Present data in a way that makes it accessible to a broader audience

Pair data with other relevant information to help users contextualize the data and take action

www.AIDSVu.org

Let’s tour the site!

Pre-Launch Preparation

AIDSVu and message testing

– Test the AIDSVu experience and key takeaways

Empower states to leverage AIDSVu

– Brief state AIDS directors, surveillance coordinators and media teams

– Develop Public Education Resource Kit and other PR support

Stakeholder previews

– Preview of site with key influencers

Promotion of AIDSVu Web Site

Traditional Media Outreach

– News bureaus

Social Media/Online Advertising

– Twitter

– Facebook

– YouTube

Strategic Partnership Activity

– Corporate

– HIV-related media networks

– Conferences

– State and local HIV planning groups

Highlights of Website Launch on June 1

Many With HIV Don't Know They Have It "The USA TODAY analysis relied on CDC data supplied by Emory

University's AIDSVu project, an effort designed to make HIV visible to the public by presenting state- and county-level

infection rates on a user friendly map. AIDSVu reinforces the reality of AIDS in your own community."

AIDS in America: 30 Years In, New Map Shows Epidemic Still Widespread

"The data that tell us about how many people are living with an HIV diagnosis and how that's distributed across the country tells

us a really strong story about how we can best address the epidemic." Read more.

HIV Google Map Gives New Perspective on Epidemic

"[AIDSVu] may be the most thorough geographical depiction of HIV ever created."

Highlights of Website Launch on June 1

Unique visitors to website: 112,050 since June 1

Total page views: 204,007 individual page views

Top Referring Sites – Huffington Post

– Wired.com

– USA Today

Top State/City Visitors

AIDSVu Visitors by State, June 1 – August 9, 2011

AIDSVu Visitors by City, June 1 – August 9, 2011

How can AIDSVu be a resource? Individual Level

– Inform users about epidemic

– Motivate users to take action on an individual and community level

– Find places to get tested for HIV

Community/Structural Level

– Social media outreach and promotion

– Increased awareness of highly impacted areas leading to greater focus on prevention, care, etc.

– Broader % of community knowing their HIV status

Organizational/Policy Level

– Assist planning processes and allocation of resources

– Provide data for grant applications, reports, lobbying

– Identify gaps in services (e.g. HIV testing sites)

Challenges/Limitations

Incomplete data for county-level view

Possible inflation of county-level rates and case counts because of correctional facilities

Residence at diagnosis vs. current address

Meet the needs/interests of diverse users

Testing sites not exhaustive

Future Direction of AIDSVu

Research-facing side to the website

Mobile app

Data at finer geographic levels– city and zip code

Display other HIV prevention, care and treatment resources

Transmission risk category data

Overlay of correctional facilities

AIDSVu Contacts

Patrick Sullivan, Principal Investigator

(404) 727-2038; pssulli@emory.edu

Jennifer Taussig, Project Director

(404) 712-8950; jatauss@emory.edu

www.aidsvu.org

AIDSVu: Homepage

AIDSVu Map: Overall HIV Prevalence Rate at County Level

AIDSVu Map: Overall HIV Prevalence Rate at State Level

AIDSVu: County Pop-Up Balloon, Prince George’s, MD

AIDSVu Map: HIV Prevalence Rate at County Level, Florida

AIDSVu Map: HIV Prevalence Rate at County Level Overlaid with

Poverty Rate, Florida

AIDSVu Map: HIV Prevalence Rate at County Level Overlaid with

HIV Testing Center Locations, Florida

AIDSVu Map: NIH-Funded HIV Prevention and Vaccine Trials Sites

AIDSVu Map: HIV Prevalence Rate at Zip Code-level, Washington, D.C.

AIDSVu State Profile Page, Florida

AIDSVu: Three Things You Can Do

AIDSVU: HIV Testing Site Locator