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Prof. Ninoslav Mimica, MD, PhDPresident
Alzheimer CroatiaVlaška 24, HR-10000 Zagreb, Croatia
E-mail: alzheimer@xnet.hr
ALZHEIMER CROATIAOUR FIRST 16 YEARS
9th Panhellenic Interdisciplinary Conference on Alzheimer’s Disease & Related Disorders &1st Mediterranean on Neurodegenerative Diseases
Thessaloniki, Greece14 – 17 May, 2015
Content of presentation
ALZHEIMER CROATIA (AC) About us Our activities Future plans
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ALZHEIMER CROATIA (AC)
NGO, founded in 1999 in Zagreb Hrvatska udruga za Alzheimerovu bolest
(Alzheimer Hrvatska) Aim: Help people with dementia (PWD) Help families and carers Fight stigma Bring education to target and general population
Almost whole work is done by volunteers (Secretary 4 h/day)
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ALZHEIMER CROATIA – full member ofAlzheimer’s Disease International & Alzheimer Europe
ADI - 84 country members
AC – 2005 – provisional member2006 – full member
AC – 2009 – provisional member2012 – full member
AE – 31 country members
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The estimated number of PWD and carers in Croatia
Republic of Croatia4.29 million people
>85 000 people with dementia in Croatia+
215 000 informal carers
Total about 300 000 people involved(PWD + informal carers)
Number of persons with dementia in the World
Number of persons with dementia in Croatia
In Croatia every 3 hours new case of dementia
Alzheimer Croatia officein Vlaška 24, Zagreb working since 2009
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ALZHEIMER CROATIAinformation / advise / contact
Stationary phone line: +385 1 5601 500
Mobile line: SOS (help-line 24/7/365)
+385 91 569 16 60At disposition to members andeverybody interested
E-mail address: alzheimer@xnet.hr
Web site: www.alzheimer.hr
Alzheimer Croatiaon internet
Portal: alzheimer.hr Blog: blog.alzheimer.hr
ALZHEIMER CROATIAREGULAR ACTIVITIES
Counselling: For familly members and all other interested In our office (Vlaška 24, Zagreb) 2 x weekly
Self-help group: for careers
In our office (Vlaška 24, Zagreb) 1-2 x weekly
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ALZHEIMER CROATIAEducation
4 booklets published Large number of copies Distributed in public many times Distributed in almost every Old peoples Home
in Croatia Sent to all GP’s Sent to all members of AC and their families
Printed popular educative materials in Croatian
Journal “Medix”Special topic of this number:
Alzheimer’s disease and other dementias
Number 101/2012 84 pages 14 articles 29 authors
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Promote healthy life style to reduce the risk of dementia
ALZHEIMER CROATIAMedia
Board members of AC have been presentin media for numerous occasions: TV Radio NewspapersMagazines Round tables Etc.
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ALZHEIMER CROATIARaising awareness on AD - public events
World Alzheimer’s Day (WAD)Zagreb, Cvjetni plac, September 21, 2006 & 2007
“Work locally think globally”
ALZHEIMER CROATIAWorld Alzheimer Day (WAD)
September 21, 2008, Jelačić plac, Zagreb
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ALZHEIMER CROATIAWAD 2009 - Zagreb
Signing the ADI Global Dementia Charter and Petition on AD
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ALZHEIMER CROATIAWAD – September 21, 2011, Zagreb
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ALZHEIMER CROATIAWAD 2012
Guillermo Nagore in ZagrebLa Memoria es el Camino
Walking for AD 7500 km fromSantiago de Campostela to Jerusalem
Pupils from Nursing Schoolworking as volunteers on AC stand
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ALZHEIMER CROATIAWAD 2013 & First Alzheimer’s Café
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September – World Alzheimer Month
Since 2014
ALZHEIMER’S MEETINGS IN CROATIAprofessional-research meetings
Three Symposiums onPsychogeriatrics (Rab)Seven Congresses on AD Zagreb 2004 Zagreb 2005 Brijuni 2006 Island St. Andrew 2008 Zadar 2010 Primošten 2012 Brela 2014
Numerous public lectures
3rd Croatian Congress on Alzheimer’s Diseasewith international participation
Congress participantsholistic approach
Psychiatrists Neurologist Neuroscientists Psychologists Social workers Nurses Occupation therapists Journalists
AC members (PWD,family members, carers)
Pharmacists Rehabilitation proffesionals Lawyers GP’s/Family doctors Students & others
CROATIAN ALGORITHM FORPSYCHOPHARMACOLOGICALTREATMENT OFALZHEIMER’S DISEASE
3rd Croatian Congress on Alzheimer’s DiseaseBrijuni, 7-10 Sept 2006
PROF. VERA FOLNEGOVIĆ-ŠMALC, MD, PhDNINOSLAV MIMICA, MD, PhDGORDAN MAKARIĆ, MDANTE SILIĆ, MDROBERT VARDA, MD, MSc
ALZHEIMER CROATIALetter to Croatian Health Insurance Agency asking thatantidementia drugs should be reimbursed according to
Croatian pharmacological algorithm for AD
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ANTIDEMENTIA DRUGS ARE STANDARD THERAPY FOR ALZHEIMERDISEASE AND SHOULD BE AVAILABLE TO ALL PWD
donepezil
rivastigmin
galantamin
1992. g.
2000. g.
1996. g.
memantin
2003. y.
2000. y.
1996. y.
2001. y.
31Antidementia drugs are only
partially reimbursed
EXPERIMENTAL (POTENTIALY INOVATIVE)TRETAMENT OF ALZHEIMER’S DISEASE
International multicentre clinical studies ofantidementia drugs should be performedin Croatia:
TauRx (LMTX)(3 studies ongoing)
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ALZHEIMER CROATIAShowcase at ADI Conference 2006
ADI ConferencePerth 2015
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ALZHEIMER CROATIAPosters on various Conferences
ALZHEIMER CROATIAArt against stigma of AD
Exhibitions of sculptures, paintings &photos on AD
Exibitions of drawings of PWD Humanitarian public happenings & eventsMovie presentationsMusic concerts Fashion shows
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ALZHEIMER CROATIAArt programme – Brijuni 2006
Exhibition of sculpture constructs due to 100thanniversary of disease recognition under title: “In Honour of Alois Alzheimer”
(doc. dr. sc. Eduard Pavlović)
ALZHEIMER CROATIAExibitions of paintings and drawings
Prim. dr. sc. Ljubomir Radovančević2008
Zvonko Ozmec, PWD2010
ALZHEIMER CROATIAExibition of photos
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International Day of Older PersonsOctober 1st, 2014
ALZHEIMER CROATIAOpen-air concert & retro fashion show
Zagreb, 2007 & 2008
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President of Croatia Ivo Josipovićvisiting stand of Alzheimer Croatia
Zagreb 2012
PROJECTAlzheimer Café in Croatia
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Zagreb
First Memory Walk in Croatia, Sept. 21, 2014Zagreb, World Alzheimer’s Day
with Major in front of Alzheimer Croatia office
CROCAD-14, BRELAMEMORY WALK
ACTION FOR DEMENTIA
Alzheimer CroatiaState award for best volunteer 2011
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Alzheimer CroatiaAnnual award of Town Zagreb for 2012
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ALZHEIMER CROATIAConclusion & plan for near future
Alzheimer’s disease is public-health priority of 21st century
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Mediterranian Alzheimer Alliance
ALZHEIMER CROATIADEMAND
Due toWHO DEMENTIA REPORT
Croatia should ASAPdevelop the
NATIONAL DEMENTIA ACTION PLAN
The role of Croatian Alzheimer Alliance
Croatian Alzheimer Alliance
What we need to achive in Croatia*TIMELYDIAGNOSES•Developementof RegionalCentres fordiagnostics andtreatment(Zagreb, Osijek,Rijeka, Split)
SUPPORTRESEARCH•Basic•Clinical•Social•Translational
ESTABLISHED REGISTEROF PEOPLE WITHALZHEIMER’S DISEASE
SOCIAL SUPPORTAND FINANCIALSUPPORT TOCAREGIVERS
DEVELOPMENT OFSOCIAL CAREFACILITIES (DAY CARECENTRES, NURSINGHOMES)
DEVELOPEPALIATIVE CARE
RAIISING AWARENESS ANDFIGHT AGINST STIGMA• Support Alzheimer Croatia
STANDARDTREATMENT WITHANTIDEMENTIADRUGS• Fully reimbursed
*Mimica N, Kušan Jukić M. Neurol. Croat. 2014;63(Suppl. 2):159-167.
Round table “National Strategy on AD”Brela, October 4, 2014
Zagreb, October 10, 2014Zagreb, December 15, 2014Zagreb, January 26, 2015Zagreb, March 24, 2015
According to WHO Dementia ReportCroatia should in 2015 develop the
national strategy / planfor fight against Alzheimer’s Disease
and other dementias
Thank you for your attention!