Beyond Prevention Care and Support for Children with Birth ...€¦ · for Children with Birth...

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“Uniting human diversity, with diversity intact”

Beyond Prevention – Care and Support for Children with Birth Anomalies

Chapal Khasnabis

Disability and Rehabilitation Team khasnabisc@who.int

“Uniting human diversity, with diversity intact”

Beyond prevention

• Disability arises from the interaction between health conditions and contextual factors, both personal and environmental;

• Disability is a reality – invest in enhancement of functioning and inclusion to improve the lives of persons with disabilities;

• Language and imagery used in preventive campaigns should not denigrate existing children and adults with disabilities.

“Uniting human diversity, with diversity intact”

Tanni Grey-Thompson

….from much honoured 16-medal Paralympian… to cross bench peer in UK House of Lords…

“Uniting human diversity, with diversity intact”

Developing countries

“Poverty is the worst form of violence” Mahatma Gandhi

“Uniting human diversity, with diversity intact”

Developing countries

“Uniting human diversity, with diversity intact”

Poverty Disability

“Uniting human diversity, with diversity intact”

The Millennium Development Goals (MDG) & CBR

MDG Countries CBR Countries

Source: UNDP

“Uniting human diversity, with diversity intact”

Community-Based Rehabilitation Guidelines

“Uniting human diversity, with diversity intact”

Targets 4 key development sectors to be inclusive Empower people with disabilities, families and communities

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CBR

Empowerment

“Uniting human diversity, with diversity intact”

CBR: a multisectoral comprehensive

community-based strategy to

facilitate equality and good quality of life by making most use of available local resources .

Prevention

Promotion

Medical

/surgical care

Rehabili- tation

Inclusion

“Uniting human diversity, with diversity intact”

Why CBR?

• Addresses primary problem first, then secondary problems or both at a same time – twin-track approach

• Goes to people instead of waiting for people to come

“Uniting human diversity, with diversity intact”

Self-help groups (SHG) are the foundations of

many CBR programmes

“Uniting human diversity, with diversity intact”

Primary problem first Microfinance or Savings & credit

“Uniting human diversity, with diversity intact”

Prevention

“Uniting human diversity, with diversity intact”

Prevention

“Uniting human diversity, with diversity intact”

Promotion

“Uniting human diversity, with diversity intact”

Promotion

“Uniting human diversity, with diversity intact”

Promotion

“Uniting human diversity, with diversity intact”

Medical/surgical care

“Uniting human diversity, with diversity intact”

Rehabilitation

“Uniting human diversity, with diversity intact”

Rehabilitation

“Uniting human diversity, with diversity intact”

Rehabilitation to Inclusion

“Uniting human diversity, with diversity intact”

Rehabilitation to Inclusion

“Uniting human diversity, with diversity intact”

Rehabilitation to Inclusion

“Uniting human diversity, with diversity intact”

CBR – Beyond prevention (addressing important missing links)