Disability Rights Expanding Accessible Markets Kick-off Meeting 23 rd -25 th November, 2011...

transcript

Disability Rights Expanding Disability Rights Expanding Accessible Markets Accessible Markets

Kick-off Meeting23rd -25th November, 2011

Brussels, Belgium

Dimitris Skempes, PT, MPHDisability Policy GroupSwiss Paraplegic Research and Dept. of Health Sciences & Health PolicyUniversity of Lucerne, Switzerlanddimitrios.skempes@paranet.ch

“Quantitative or qualitative factor or variable that provides a simple and reliable means to measure achievement, to reflect the changes connected to an intervention, or to help assess the performance of a development actor.” (OECD Development Assistance Committee)

“Indicators are data used by analysts or institutions and organizations to describe situations that exist or to measure changes or trends over a period of time. They are communicative descriptions of conditions or of performance that may provide insights into matters of larger significance beyond what is actually measured.” (Andersen and Sano, 1998)

What is an indicator?

Why do we need indicators?

Performance measurement(Millennium Development Goals)

Performance measurement(Millennium Development Goals)Effectiveness &

Effectiveness &

EfficiencyEfficiency

Compliance measurement ( UN CRPD)

Compliance measurement ( UN CRPD)Accountability

Accountability

Planning Tool( EU Disability Strategy 2010-2020)

Evidence based Policy

Despite the fact that 18 out of the 27 EU member states have ratified the UN CRPD we still not have a valid, reliable and comparable set of indicators to assess compliance with obligations and monitor the progress towards implementation of the Convention

The problem

The overall aim

To develop operationally feasible measurement tools (indicators) to monitor the implementation of Articles 25 and 26 of UN CRPD in Europe Article 25 - HealthStates Parties recognize that persons with disabilities have the right to the enjoyment of the highest attainable standard of health without discrimination on the basis of disability. States Parties shall take all appropriate measures to ensure access for persons with disabilities to health services that are gender-sensitive, including health-related rehabilitation

Article 26 – Habilitation & RehabilitationStates Parties shall take effective and appropriate measures, including through peer support, to enable persons with disabilities to attain and maintain maximum independence, full physical, mental, social and vocational ability, and full inclusion and participation in all aspects of life.

The specific objectives

1. To identify European disability data sources relevant to articles 25 and 26 and review the prevalent practices in human rights indicators development and use

2. To discuss the appropriateness of the data sets available for the development of human rights based indicators

1st Report

3. To develop a valid and reliable set of core indicators to monitor State compliance with articles 25 and 26 of the Convention

2nd Report

4. To produce evidence based guidelines and recommendations on the adoption of the set produced into existing European and National data collection practices

3rd Report

Research Methods

• Report 1: Systematic Literature Review• Report 2:

– Nominal group of experts will propose the technical criteria that indicators must fulfill (academics, NGO representatives, Int’l organizations and statistical agencies officials)

– Delphi technique will be employed as a method to validate the proposed set of indicators

• Report 3: The 3A’s approach to policy recommendations (Adopt, Adapt, Act)

Research Barriers

• Indicators Development Process: – 2 stage process with expert consensus panels

(qualitative, expensive and maybe time consuming)– The most common approach to developing

indicators in the literature– Alternative methods that would cover the evidence

based criterion (feasibility-pilot study?)

• Placement to be completed by the end of 2nd year the latest (PhD interrupted)

Secondment

Disability and Rehabilitation Team (DAR)

Department of Violence and Injury Prevention and Disability

World Health Organization HQ

Geneva, Switzerland

Spring semester 2013

Proposed Timeline

DREAMWork Package 3.4Project Schedule

Sep Feb Mar Sep Oct Mar Apr Sep Oct Feb Mar Aug Sep2011 2012 2012 2012 2012 2013 2013 2013 2013 2014 2014 2014 2014

Project Start First Report

Placement at WHO

Evaluation From DREAM Supervisory Board and SPF

end Sept., 2012

Second ReportEnd Sep, 2013

Major Report

End of Project

Final Report

March 2014

Research Plan

1-10 March, 2012

Presentation to DAR TeamSep 2013 (tentative)Sep 1, 2011