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From Diagnosis to From Diagnosis to Self-ActualizationSelf-Actualization
Jodee Crace, MAJodee Crace, MACindy Lawrence, MA-CCC-ACindy Lawrence, MA-CCC-A
March 4, 2005March 4, 2005EHDI ConferenceEHDI Conference
Atlanta Atlanta
IntroductionIntroduction
Purpose of presentation: A paradigm shift Purpose of presentation: A paradigm shift
from the from the medical modelmedical model of diagnosing of diagnosing
hearing loss to an hearing loss to an educational/humaneducational/human
relations modelrelations model of identity formation of identity formation
Fundamental Principle:Fundamental Principle:
““People are People are internally compelledinternally compelled to to respondrespond to situationsto situations in ways that will in ways that will support support or be consistent with or be consistent with their their beliefsbeliefs.”.”
Point: Point: Humans have the unique ability Humans have the unique ability to define their to define their identityidentity, choose their , choose their valuesvalues and establish their and establish their beliefsbeliefs..
VALUESVALUES
““A principle that promotes A principle that promotes well-being or prevents harm”well-being or prevents harm”
““Our guidelines for success”Our guidelines for success” ““Our paradigm about what is Our paradigm about what is
acceptable”acceptable”
Our Challenge:Our Challenge:
How will UNHS-EHDI support the How will UNHS-EHDI support the VALUES that will support the journey VALUES that will support the journey of parents/families becoming self-of parents/families becoming self-actualized?actualized?
How will these processes create How will these processes create Deaf/HH babies who become self-Deaf/HH babies who become self-actualized individuals?actualized individuals?
Self-ActualizationSelf-Actualization
What?What?
How?How?
Why?Why?Point:Point: When the will and the emotions When the will and the emotions
are in conflict, the emotions most often are in conflict, the emotions most often win. win. (American Psychologist: William James)(American Psychologist: William James)
How do Providers Shape How do Providers Shape Families’ Responses:Families’ Responses:
The meaning of “diagnosis” The meaning of “diagnosis” ObjectiveObjective Use of equipment to measureUse of equipment to measure ScientificScientific Medically oriented: presence or Medically oriented: presence or
absence of sound absence of sound
The meaning of “diagnosis”The meaning of “diagnosis”
Diagnosis Diagnosis Medicine.Medicine. The act or process of identifying or determining The act or process of identifying or determining
the nature and cause of a the nature and cause of a diseasedisease or or injury injury through evaluation of patient history, through evaluation of patient history, examination, and review of laboratory data. examination, and review of laboratory data.
The opinion derived from such an evaluation. The opinion derived from such an evaluation. A critical analysis of the nature of something. A critical analysis of the nature of something. The conclusion reached by such analysis. The conclusion reached by such analysis.
Diagnosis Diagnosis Biology.Biology. A brief description of the distinguishing characteristics of A brief description of the distinguishing characteristics of
an organism, as for an organism, as for taxonomic classificationtaxonomic classification..
Medical Provider Image of the Medical Provider Image of the Baby: Baby: (Study - “1 in 5 (Study - “1 in 5
doctors”)doctors”)
AuditorySociety
ObjectiveMedical
Condition
Disability
Disease
Diagnosis
Explanation of ResultsExplanation of Results
Tone, Attitude, Comfort LevelTone, Attitude, Comfort Level 4 Approaches (Marion Downs, 1978)4 Approaches (Marion Downs, 1978)
Hit and RunMinimize the Problem
ObjectivityAction Oriented
Start with Diagnosis? or Start with Diagnosis? or Identification?Identification?
Accuracy of informationAccuracy of information Identification of Identification of
A disability, A disability, medical condition,medical condition, or state of being?or state of being?
Medical diagnosis typically to Medical diagnosis typically to determine treatment, fixing or cure. determine treatment, fixing or cure.
DefinitionsDefinitions
Identify Identify v.v. tr.tr. To establish the identity of. To establish the identity of. To ascertain the origin, nature, or definitive To ascertain the origin, nature, or definitive
characteristics of. characteristics of. To consider as identical or united; equate. To consider as identical or united; equate. To associate or affiliate (oneself) closely with a To associate or affiliate (oneself) closely with a
person or group. person or group. To establish an identification with another or others.To establish an identification with another or others. Medieval Latin identific re, Medieval Latin identific re, to make to resembleto make to resemble : :
Late Latin identit s, Late Latin identit s, identityidentity; see ; see identityidentity + Latin - + Latin -fic re, fic re, -fy-fy.] .] i·den ti·fi a·blei·den ti·fi a·ble adj.adj.
Key Points from Definition of Key Points from Definition of IDENTIFY:IDENTIFY:
to associate or affiliateto associate or affiliate psychological empathypsychological empathy has become common has become common
jargonjargon
The Koinonia ConnectionThe Koinonia Connection
““The coming together in a solidified The coming together in a solidified one-ness in an atmosphere of one-ness in an atmosphere of openness, honesty, trust, affirmation, openness, honesty, trust, affirmation, support and encouragement.” support and encouragement.” Greek term coined by Dave Weber , Greek term coined by Dave Weber , author of author of Sticks and Stones ExposedSticks and Stones Exposed
Parents’ Image of the BabyParents’ Image of the Baby
Self defeated
Burden
IsolationUnknown territory
Culturallyunaccepted
New parent Stress
Imperfect Child
Parents
Providing Messages Providing Messages
FearFear MythsMyths Cultural “incompetence”Cultural “incompetence” Disability modelDisability model Hearing perception of hearing societyHearing perception of hearing society
OROR
Self analysis, our view of Deaf peopleSelf analysis, our view of Deaf people
How do our feelings set a tone and send How do our feelings set a tone and send messages to parentsmessages to parents
Understanding the self actualization Understanding the self actualization process is critical to delivering the newsprocess is critical to delivering the news
Self-Actualization Self-Actualization
Survival
Security
Social Acceptance
Self Esteem
SA
Traits of Self-Actualized Traits of Self-Actualized PersonPerson
Knowing who you are and your beliefsKnowing who you are and your beliefsComfortable with yourselfComfortable with yourself
Views learning and experience as an ongoing processViews learning and experience as an ongoing processEmpoweredEmpoweredConfidentConfidentInsightfulInsightfulValuableValuable
High Self-respectHigh Self-respectHigh Self-esteemHigh Self-esteem
IndependentIndependent
How can a Deaf/HH Person be How can a Deaf/HH Person be Self-Actualized?Self-Actualized?
Confidence instilled at birthConfidence instilled at birthEncouragement from healthy othersEncouragement from healthy others
Ongoing process of learningOngoing process of learningAccepting mistakesAccepting mistakes
Taking risksTaking risksHaving role modelsHaving role models
Exposure to many opportunities/experiencesExposure to many opportunities/experiencesBeing balancedBeing balancedFeeling WholeFeeling Whole
Confidence is instilled at birthConfidence is instilled at birthFeeling Proud as a Deaf/HH Person Feeling Proud as a Deaf/HH Person
Self Determination of one’s own life plansSelf Determination of one’s own life plans
Transition from:Transition from: Diagnosis to Ability Model Diagnosis to Ability Model
Parents benefit from:Parents benefit from: Support in “letting go” of predetermined Support in “letting go” of predetermined
imageimage Time to grieve in natural healthy wayTime to grieve in natural healthy way Replacing old vision with new hopeReplacing old vision with new hope Strategies to help them feel capable as Strategies to help them feel capable as
parents of this childparents of this child
EMPOWERMENT***SELF AWARENESS***EMPOWERMENT***SELF AWARENESS***SELF-ACTUALIZATIONSELF-ACTUALIZATION
From Diagnosis to Self-Actualized From Diagnosis to Self-Actualized PersonPerson
Medical ModelMedical Model Failed screeningFailed screening DiagnosisDiagnosis Audiogram and Audiogram and
ABR show hearing ABR show hearing loss/impairment: loss/impairment: such as mild, such as mild, moderate, severe, moderate, severe, profound profound
Self Actualized ModelSelf Actualized Model ReferRefer IdentificationIdentification Audiogram of Audiogram of
familiar sounds familiar sounds shows hearing shows hearing levels and ranges levels and ranges of hearingof hearing
From Diagnosis to Self-Actualized From Diagnosis to Self-Actualized PersonPerson
Medical ModelMedical Model
Prescribes Prescribes technology/surgerytechnology/surgery
Prescribes Prescribes treatment plantreatment plan
Self Actualized ModelSelf Actualized Model
Fits amplificationFits amplification
Teams with parents Teams with parents to find/investigate to find/investigate resourcesresources
From Diagnosis to Self-Actualized From Diagnosis to Self-Actualized PersonPerson
Medical ModelMedical Model Clinic-directed therapy Clinic-directed therapy
for the childfor the child
Dependent on Dependent on technologytechnology
Enables parent Enables parent (therapist/teacher)(therapist/teacher)
Self Actualized ModelSelf Actualized Model Relationship based Relationship based
service providing service providing unbiased supportunbiased support
Technology enhances Technology enhances skills and abilitiesskills and abilities
Empowers family Empowers family (mentors, role models (mentors, role models as resources)as resources)
From Diagnosis to Self-Actualized From Diagnosis to Self-Actualized PersonPerson
Medical ModelMedical Model
Exclusionary/Exclusionary/isolationisolation
Transmission of Transmission of informationinformation
Make “either/or” Make “either/or” choiceschoices
Self Actualized ModelSelf Actualized Model
Collaborative/Collaborative/community sense community sense Interactive- Interactive-
experiential learningexperiential learning
Comprehensive Comprehensive opportunitiesopportunities
From Diagnosis to Self-Actualized From Diagnosis to Self-Actualized
Person Person
Medical ModelMedical Model DisabilityDisability
Sub-CultureSub-Culture
Vocationally limitedVocationally limited
Self Actualized ModelSelf Actualized Model IdentityIdentity
DiversityDiversity
Unlimited lifelong Unlimited lifelong potentialpotential
Take Home Points:Take Home Points:
Self Analysis of our valuesSelf Analysis of our values Understanding the hierarchy of human Understanding the hierarchy of human
needsneeds Identify as “deaf” or Identify “hearing levels Identify as “deaf” or Identify “hearing levels
vs. diagnosis and impairment”vs. diagnosis and impairment” Check your messages/tone: “pass/refer” Check your messages/tone: “pass/refer”
(not fail); “hearing levels” (not loss or (not fail); “hearing levels” (not loss or impairment)impairment)
How do you identify with parents?How do you identify with parents? How do you help parents “identify with” How do you help parents “identify with”
their deaf or hard of hearing baby?their deaf or hard of hearing baby?
More take home points…More take home points…
Work with Deaf communityWork with Deaf community Gain tools for teaming with members Gain tools for teaming with members
of the Deaf Communityof the Deaf Community How are parents introduced to deaf How are parents introduced to deaf
and or hard of hearing adults? What and or hard of hearing adults? What are the messages and comfort are the messages and comfort levels?levels?
From Diagnosis to From Diagnosis to Self-ActualizationSelf-Actualization
Thank you for coming to our presentation! For further Thank you for coming to our presentation! For further inquiries and/or discussion opportunities about this inquiries and/or discussion opportunities about this topic:topic:
Email – Email – JCrace@isfd.state.in.usJCrace@isfd.state.in.us CLawrence@isfd.state.in.usCLawrence@isfd.state.in.us
Websites: Websites: http://www.performance-unlimited.com/samain.htmhttp://www.performance-unlimited.com/samain.htm
http://www.performance-unlimited.com/whyaffir.htmhttp://www.performance-unlimited.com/whyaffir.htm