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transcript
G.ImNmI.'S FOURTH INTERNATIONAL
POLIO & INDEPENDENT LMNG CONFEWNCE
Thursday, June 4,1985 9:00 a.m. through
Sunday, June 5 1987,4:00 p.m.
Sheraton St. Louis Hotel St. Louis, Missouri
ORGANIZED AND SPONSORED BY
Gazette International Networking Institute (G.I.N.I.)
4502 Maryland Avenue, St. Louis, Missouri 63108 U.S.A. 3141361-0475
IN COOPERATION WITH Disabled Peoples' International
International Polio Network National Council of Independent Living
Rehabilitation International Roosevelt Warm Springs Foundation
World Rehabilitation Fund, Inc.
AGENDA
WEDNESDAY, JUNE 3 7:OO-9:30 PM Welcome Reception East Ballroom, Third Floor 4:30-9:30 PM Registration Ballroom Foyer, Third Floor
THURSDAY, JUNE 4 8:00 AM-5:00 PM Registration Ballroom Foyer, Third Floor
Ballroom, Third Floor LATE EFFECTS OF POLIO: SYMPTOMS 9:00 AM Welcome: Gini Laurie, William Landau, MD
9:15-10:45 AM Muscle Weakness Moderator/Discussant: David Wiechers, MD Panelists: Roberta Simon: RN - polio survivor, James Agre, MD, Neil Cashman, MD, Marinos Dalakas, MD, Pat Andres, RPT
10:45-11: 15 AM Break 11 : 15 AM-12:30 PM Fatigue
Moderator/Discussant: Frederick Maynard, MD Panelists: Lauro Halstead: MD - polio survivor, Neil Cashman, MD, Richard Owen: MD, William Waring, MD
12:30-2:00 PM Lunch 2:OO-3:30 PM Pain
Moderator/Discussant: Richard Owen?; MD Panelists: Nancy Carter* - polio survivor, Marny Eulberg?; MD, Frederick Maynard, MD, Peggy Portwood, MD, Laura Smith, PT, PhD
3:30-3:45 PM Break 3:45-5:15 PM Sleep, Breathing, and Swallowing Problems
ModeratorIDiscussant: Geoffrey Spencer, OBE, MB, BS, FFARCS Panelists: Joyce Tepley?; MSW - polio survivor, Augusta Alba, MD, Redento Ferranti, MD, D. Armin Fischer, MD, Ernest Johnson, MD, Hugh Newton-John, MD, Oscar Schwartz, MD, Susan Sortor, RRT
5:30-6:30 PM Cash Bar Ballroom Foyer, Third Floor 6:30-8:00 PM Dinner Ballroom 8:OO-9:30 PM Section 504: Past, Present, and Future Ballroom Moderator: Judy Heumann*
Eunice Fiorito?; Ed Roberts?; Phyllis Rubenfeld: EdD, Max Starkloff*
FRIDAY, JUNE 5 8:00 AM-5100 PM Registration Ballroom Foyer, Third Floor
Ballroom, Third Floor LATE EFFECTS OF POLIO: TREATMENT & RESEARCH 9:OO-10:30 AM Exercise~Weight Control
Moderator/Discussant: Stanley Yarnellf MD Panelists: Dorothy Woods Smith: RN -polio survivor, Rubin Feldman, MD, Annette Hise, RD, Richard Owen: MD, Jacquelin Perry MD
10130-11:OO AM Break
AGENDA (continued)
FRIDAY, JUNE 5 (continued)
11 :00 AM-12:30 PM Bracing, Mobility, & Seating ModeratorIDiscussant: Jacquelin Perry MD Panelists: Jane Dummer* -polio survivor, Glenn Ham-Rosebrock: C.O., Ann Hueter, PT, Virginia Nelson, MD, Laura Smith, PT, PhD
4:OO-5:00 PM Boulevard A
Lunch Speaker: William Rea: MD - "Environmental Influences" ResearchIPolio Immunization ModeratorIDiscussant: Lauro Halstead: MD Panelists: Phillip Baker, MD, Mazher Jaweed, PhD, Li Qi-Hong, MD, Michael McQuestion, Jonathan Ramlow, MPH, Rev. Robert Ronald: SJ, Geoffrey Spencer, OBE, MB, BS, FFARCS, Anthony Windebank, MD Patricia Outland, PhD candidate, Adelphi University Interviews with polio survivors for new study of age at onset. Volunteers needed who contracted polio before age 6 OR after age 12.
4:OO-5:00 PM Workshop: Face Masks and Ventilatory Adaptations Boulevard B 6:OO-10130 PM Shuttle Buses To and From St. Louis Union Station Sheraton Entrance
SAJZTRDAY, JUNE 6 8:00 AM-5:00 PM Registration Ballroom Foyer, Third Floor 8:30-10:OO AM Complimentary Continental Breakfast, Courtesy of International Polio Network Ballroom Foyer, Third Floor 8:30-10:OO AM Workshop: Post-Polio Clinic Physicians & Staff Boulevard A&B Moderator: Stanley Yarnell: MD
8:30-10:OO AM East Ballroom
Workshop: Post-Polio Support Group Leaders Moderator: Jack Burney*
Ballroom COPING Psychology of Disability Moderator/Discussant: Irving Zola: PhD Charlene Bozarth: OTR, Carol Gill: PhD, Caroline KaufmannT PhD, Phyllis, Rubenfeld: EdD
11:15 AM-12:30 PM Workshops: Coping Relationships Boulevard A, Boulevard B, Coping Relationships: Spouses Lee Room, Eads Room Field Room Coping Relationships: Parents Laclede Room Coping Relationships: AttendantsIFriends 12:30-2100 PM Lunch Ballroom Speaker: Roberta Trieschmann, PhD - 'Aging and Disability"
Coping with StressIStress Management Paul Duckro, PhD Break Coping with EmploymentIUnemployment Moderator/Discussant: Robert Crowe Panelists: Jane DummerT Hank Graden, Susan Suter*
5:OO-6:00 PM Pat Outland, PhD candidate, Adelphi University Interviews continued *disabled
( AGENDA (continued)
SATURDAY, JUNE 6 (continued)
5:30 PM Hosp. Suite 410
6:30'7:30 PM Ballroom Foyer 7:30 PM Ballroom 9:30-Midnight Ballroom
Roman Catholic Mass
Reception for Justin Dart, Jr., Ted Kennedy Jr., and Tamara Tretyakova Cash Bar Banquet
Disco
SUNDAY, JUNE 7 8:00 AM-Noon Registration Ballroom Foyer 8:OO-9:00 AM Ballroom Foyer
Complimentary Continental Breakfast, Courtesy of lnternational Polio Network
Ballroom 9:OO-10:OO AM
4:00 PM 6:30-9:00 PM Hosp. Suites 410,414
INDEPENDENT LIVING Lessons from American Experiences with European Independent Living World Rehabilitation Fund Fellows Moderator/Discussant: Adolf Ratzka: PhD Gerben DeJong, PhD, Jack Genskow: PhD, Gini Laurie, Marilyn Saviola* Cultural Attitudes Toward Disability & Independent Living Worldwide Moderator: Eileen Giron* Representatives from the following countries: Australia England South Africa Laurie Alsop* Patricia Rock* Friday Mavuso* Michelle Castagna* Germany Michael DuToit* Wilma Davies* Uwe Frehse* Sweden Austria Japan . Adolf RatzkaT PhD Gottfried Wetzel Akiko Saito Taiwan Brazil Lesotho Rex Bob Ronald: SJ Marisa Do Nascimento Paro* hot so Petje* USA Canada Mauritius Marca BristoT RN Henry Enns* Zohra Rajah* Ramona Garcia: RN China Netherlands Diana Medicine Stone Liu Zhirui, MD Geurt Heykamp * Judge Anderson* Denmark New Zealand June Kailes* Bente Madsen* Phillipa Morrison* Zaire El Salvador Pakistan Lwambwa Tshany* Eileen Giron* Farhat Rashid Zimbabwe
Joshua Malinga* Break Cultural Attitudes (continued) Moderator: Patricia Rock* Lunch Cultural Attitudes ( continued) Moderators: Henry Enns* and Marca BristoT RN
-
-
i
Adjournment Farewell Buffet
*disabled
James Agre, MD, PhD University of Wisconsin Hospitals Madison, Wisconsin
Augusta Alba, MD Goldwater Memorial Hospital New York, New York Laurie Alsop* Disability Advisory Council of Australia Petersham, New South Wales, Australia Judge Anderson 111* St. Louis, Missouri Patricia Andres, RPT New England Medical Center Boston, Massachusetts Philip Baker, MD Napier Hospital Napier, New Zealand Charlene Bozarth, OTR* Michigan Polio Network Lansing, Michigan
Marca Bristo, RN* National Council on Independent Living Chicago, Illinois
G. Jackson Burney* Charlotte Polio Survivors Association Davidson, North Carolina
Nancy Carter* Nebraska Polio Survivors Association Omaha, Nebraska Neil Cashman, MD Montreal Neurological Institute Montreal, Quebec, Canada Michele Castagna* Disabled Persons Bureau Alice Springs, Northern Territory
Australia
Robert Crowe Attorney at Law St. Louis, Missouri Marinos Dalakas, MD National Institutes of Health Bethesda, Maryland
Justin Dart, Jr.* Commissioner, Rehabilitation
Services Administration Washington, DC Gerben DeJong, PhD National Rehabilitation Hospital Washington, DC
Paul Duckro, PhD St. Louis University Medical Center St. Louis, Missouri
Jane Dummer* Social Security Administration Baltimore, Maryland
Michael DuToit* Self Help Association of Paraplegics Orlando, South Africa
Henry Enns* Disabled Peoples' International Winnipeg, Manitoba, Canada
Marny Eulberg, MD* Mercy Medical Center Denver, Colorado
Rubin Feldman, MD University of Alberta Hospitals Edmonton, Alberta, Canada Redento Ferranti, MD Gaylord Hospital Wallingford, Connecticut
Eunice Fiorito* Rehabilitation Services Administration Washington, DC
D. Armin Fischer, MD Rancho Los Amigos Medical Center Downey California Frank* and Florence Frisina PolioEpic Tucson, Arizona
Uwe Frehse* Stiftung Pfennigparade Munich, West Germany
Ramona Garcia, RN* . Resources for Independent Living
Sacramento, California
Jack Genskow, PhD* Sangamon State University Springfield, Illinois
Carol Gill, PhD* Clinical Psychologist Sherman Oaks, California Eileen Giron* Grupo Independiente Pro
Rehabilitacion Integral San Salvador, El Salvador Hank Graden, MEd Div. of Vocational Rehabilitation Raleigh, North Carolina Lauro Halstead, MD* National Rehabilitation Hospital Washington, DC Glenn Ham-Rosebrock, CO* Los Angeles, California
Judy Heumann* World Institute on Disability Berkeley California
Geurt Heykamp* FOKUS Ten Boer, The Netherlands
Annette Hise, RD Gaylord Hospital Wallingford, Connecticut
Ann Hueter, RPT Mercy Medical Center Denver, Colorado Mazher Jaweed, PhD Thomas Jefferson University Hospital Philadelphia, Pennsylvania Ernest Johnson, MD Ohio State University Hospital Columbus, Ohio
June Kailes* Westside Center for Independent Living Los Angeles, California
Caroline Kaufmann, PhD* University of Pittsburgh Pittsburgh, Pennsylvania Ted Kennedy, Jr.* Facing the Challenge, Inc. Boston, Massachusetts
William Landau, MD Barnes Hospital St. Louis, Missouri Gini Laurie Gazette International Networking
Institute (G.I.N.I.) St. Louis, Missouri Li Qi - Hong, MD Beijing, Peoples' Republic of China Liu Zhirui, MD Beijing, Peoples' Republic of China Bente Madsen* Copenhagen, Denmark
Joshua Malinga* Bulawayo, Zimbabwe
Friday Mavuso* Self Help Association of Paraplegics Orlando, South Africa Frederick Maynard, MD University of Michigan Medical Center Ann Arbor, Michigan
Michael McQuestion Rotary International Evanston, Illinois
*disabled
FACUIX'Y (continued)
Diana Medicine Stone Edward Roberts* Susan Suter* Mandan Center for Independent Living World Institute on Disability Illinois Department of Rehabilitation Mandan, North Dakota Berkeley California Services Phillipa Morrison* Patricia Rock* Springfield, Illinois Napier, New Zealand Community Aide Programme Joyce Tepley, MSW* Virginia Nelson, MD London, England Houston, Texas University of Michigan Medical Center Allison Roller* Roberta Trieschrnann, PhD Ann Arbor, Michigan Post-Polio Research & Training Scottsdale, Arizona Edward Newrnan, PhD Program Lwambwa Tshany* Temple University Ann Arbor, Michigan Regional de la Ligue pour 1'Integration Philadelphia, Pennsylvania Rev. Robert Ronald, SJ* Sociale des Handicapes et Invalides Hugh Newton-John, MD, FRACP Operation De-Handicap Physiques Fairfield Infectious Diseases Hospital Taipei, Taiwan Lubumbashi, Zaire Fairfield, Victoria, Australia Phyllis Rubenfeld, EdD* William Waring, MD Richard Owen, MD* Hunter College University of Michigan Medical Center Sister Kenny Institute New York, New York Ann Arbor, Michigan Minneapolis, Minnesota Akiko Saito Gottfried Wetzel Marisa do Nascimento Paro* Tokyo, Japan Salzburg, Austria Sao Paulo, Brazil Richard Saltzstein, MD* David Wiechers, MD Jacquelin Perry, MD Curative Rehabilitation Center Ohio State University Hospital Rancho Los Amigos Medical Center WauwatOsal Columbus, Ohio Downey California Marilyn Saviola* Anthony Windebank, MD Khotso Petje* Center for Independence of the Mayo Clinic Lesotho National Association of Disabled in New York Rochester, Minnesota
Disabled New York, New York Stanley Yarnell, MD* Maseru, Lesotho Oscar Schwartz, MD St. Mary's Hospital and Medical Center Peggy Portwood, MD St. Mary's Health Center San Francisco, California Sacramento Medical Rehabilitation St. Louis, Missouri Irving Kenneth Zola, PhD*
Group Roberta Simon, RN* Brandeis University Sacramento, California Polio Network of Illinois Waltham, Massachusetts Zorah Rajah* Darien, Illinois Fraternit6 Mauricienne des Malades Dorothy Woods Smith, RN*
& Handicapes Maine Polio Network Quatre Bornes, Mauritius Westbrook, Maine Jonathan Ramlow, MPH Laura Smith, PT, PhD University of Pittsburgh The Institute for Rehabilitation Pittsburgh, Pennsylvania and Research Farhat Rashid Houston, Texas
Rehabilitation Centre for Physically Susan Sortor, RRT Disabled Dallas Rehabilitation Institute
Peshawar, Pakistan Dallas, Texas Adolf Ratzka, PhD* Geoffrey Spencer, OBE, MB, BS, FFARCS Royal Institute of Technology St. Thomas' Hospital Stockholm, Sweden South Western Hospital Judith Raymond London, England International Polio Network Max Starkloff* St. Louis, Missouri Paraquad William Rea, MD* St. Louis, Missouri
Environmental Health Center Dallas, Texas
*disabled
ACKNOWLEDGEMENTS
Conference Coordinators Gini Laurie Judith Raymond
Planning Committee Augusta Alba, MD Susan Armbrecht* Charlene BozarthT OTR Doris Brennan* G. Jackson Burney* Marca BristoT RN Penny & Tanner Chrisler Henry Enns* Jack GenskowT PhD Richard Coodwin* D. Armin Fischer, MD Judy Heumann* Joseph Kaufert, PhD Caroline KaufmannT PhD Joseph Leone Frederick Maynard, MD Mickie McCrawT ATR Andrea Rathbone Phyllis RubenfeldT EdD Oscar Schwartz, MD Max Starkloff* Martha Stitt, ATR
Honorary Advisory Committee Justin Dart, Jr.* The Rt. Hon. The Earl of Dunraven* Ted Kennedy Jr. * Itzhak Perlman* James Roosevelt Albert Sabin, MD Jonas Salk, MD Geoffrey Spencer, OBE, MB, BS, FFARCS
Banquet Committee Chair: Joseph Leone Penny & Tanner Chrisler Gloria Gerich Joan and Robert O'Reilly Leslie & Michael Webb
Farewell Buffet The Chrisler Family
I ExhibitIAdvertising , Tanner Chrisler
Fundraising Chair: E Howard Manning Ed Finkelstein Arthur Hoffman Oscar Schwartz. MD
Publicity Ed Finkelstein, Unicom Group Susan Purvis, Unicom Group
Photography Korky Buhr
Registration Chair: Joan O'Reilly Nancy Caverly* Robin Christenson* Anna Maria Chura Richard Deverell Susan Donne11 Jane Dummer* Gloria Gerich Sister Pat Hottinger Ellie Kavanagh Joseph Leone Robert O'Reilly I1 Andrea Rathbone Harriet Switzer Telephone Pioneers of America Kay Thurman* Jan White*
Translators Marcus Allen, PhD Sr. Ann Cornet, S.H. Tshiswaka Kayembe, MD B.C. Lesslie Bryce Mouw Albert L. Schweitzer I11
Transportation Chair: Larry Fletcher, Missouri Easter
Seal Society Korky Buhr, Victorious Missionaries Sheldon Caldwell, St. Louis Society
for Crippled Children Ronda O'Farrell, Project S.T.A.R.T. Colleen Starkloff, Paraquad
St. Louis Union Station The Caverly Family Mary Kaiser Ronda O'Farrell Telephone Pioneers of America
Special Patrons Mickie Martin Cammerer CITICORP General American Life Roosevelt Warm Springs Foundation Southwestern Bell Unicom Group Gertrud Weiss
Special Thank You . . . Ellen Conant Earl Crenshawe, Telephone Pioneers
of America Don Faustich, Joseph Witek Florist Tom Kelly Heritage Communications Burt Knip, Telephone Pioneers of
America John Lodato & Dan Long, Sheraton
St. Louis Hotel Ned Maniscalco, AT&T Joe Neels, Home Health Care
Equipment Services Tim North, Hoover Audio-Visual Sheryl Prater, Just Your Type Dale Rohman, George Waldbart Florist Ann C. Sheehan Ann Y Sheehan Jim Sweet Robin Tate, Contemporary Productions Jean Wells, Montclair Travel
Amigo Mobility International BOOTH 10
LIFECARE BOOTH 5
6693 Dixie Highway 655 Aspen Ridge Bridgeport, MI 48722 Lafayette, CO 80026
Terri Smith, National SaleslAdvertising Coordinator Geoff Waters, National Sales Manager Product: Amigo Standard, Amigo RWD, Levo Product: Ventilators
Bear Medical Systems, Inc. BOOTH 8 2085 Rustin Ave. Riverside, CA 92507 Larry Ten Eyck, Product Manager Product: BEAR 33 Volume Ventilator
The Braun Corp. BOOTH 4 1014 S. Monticello St. Winimac, IN 46996 Don Reid, Regional Sales Manager Product: Lift Vans
Electric Mobility Corp. BOOTH 6 # 1 Mobility Plaza Sewell, NJ 08080 Doug Baynes, Regional Sales Manager Product: 3-Wheeled Electric Vehicles
Everest & Jennings, Inc. BOOTH 2
3233 E. Mission Oaks Blvd. Camarillo, CA 93010 Janice Hopkins, Sales Product: Lightweight Wheelchairs
Gazette International Networking Institute (G.I.N.I.) BOOTH 9
Prentke-Romich Co. BOOTH 1 1022 Hey1 Rd. Wooster, OH 44691 Jim Fiss, Teri Madak, Sales Product: Augmentative Communication Aids1
Environmental Control Systems
Puritan-Bennett Corp. BOOTH 3 4302 Clayton Ave. St. Louis, MO 63110 David Stewart, Branch Manager Product: VentilatorsIOxygen Systems
Target Industries, Inc. BOOTH 7 PO. Box 657 E. Windsor, CT 06088 Robert Brophy Sales Product: Lift Vans and Van Conversions
Round the clock ventilator service courtesy of Jim Campbell, Bruce Harrell, Geoff Waters, and Jim Seeley, LIFECARE.
4502 Maryland Ave. St. Louis, MO 63108 Wheelchair repair service courtesy of Joe Neels Product: Polio and Independent Living Publications and Home Health Care Equipment Services.
Metric Size Description 137 x 32 Michelin Grey 200 x 44 LHR Grey
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NOTE: 24" tubes fit all sizes of 24" pneumatic tires. X-Small 90-07-005 X-Small 90-07-000 Small 90-07-006 Small 90-07-001
Large 90-07-008 Large 90-07-003 X-Large 90-07-009 X-Large 90-07-004
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68-01.000 $199.95 EA 24 Inch-Fits E & J spoked wheeis and all Magnesium Mag wheels. Does not fit E & J Nylon Mag wheels.
68-01.200 $199.95 EA Valor Kevlar Be l ted Grey
24 Inch-Fits Quick~e, Quadra Stainless, E & J Nylon wheels and most other chairs. Does not fit E & J spoked wheeis.
Valor Kevlar Be l ted Grey
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please add 65% sales tax. Sorry. no C.0 D.'s.
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