HELLO TO ADULTSPresented by Joanne Burke (RGN RSCN)

(ANP for Haemophilia)

11th December 2015

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Transition at OHTCComprehensive Care Centre1200 patients with bleeding

disorders Haemophilia, VWD, Rare Disorders

Children & Adults together at OHTC until June 2015

No formal transition process June 2015 commenced RSG &

Hello Programme

MULTIDISCIPLINARY TEAM: 3 Adut Consultants 2 Paediatric Consultants 1 Haematology SpR (on rotation) 1 FY2 (on rotation) 2.8 Adult nurse specialists 2 Children’s nurse specialists 1 Research Nurses 1 adult physio 0.6 children’s physio 0.8 Nursing Assistant Lab Staff

Staff Education Programme

Presentation to adult & children’s teams – Transition & RSG

Presentation to other nurses in the Trust

Adolescent Health Programme – RCPCH e learningwww.e-lfh.org.uk/programmes/adolescent-health/more-information

Dr. Deborah Christie - Consultant Clinical Psychologist in Paediatric & adolescent health

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HELLO TO ADULTS QUESTIONNAIRE

Parents Hello to Adults Questionnaire

Progress Notes

Age 18 yrs. 7mnths

fXIII deficiency – diagnosed age 1/12

Lives with parents and younger brother

Treated monthly with fXIII concentrate

Transferred from DGH

Unable to self treat

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Case Study 1

CASE STUDY 1 QUESTIONNAIRE

CASE STUDY 1 PARENT QUESTIONNAIRE

PROGRESS CASE STUDY 1

Age 20 yrs 6 mnths

Severe Haemophilia A – strong family history

Lives with girlfriend & her family

Self treats with fVIII concentrate daily

Care always at OHTC

Case Study 2

CASE STUDY 2 QUESTIONNAIRE

PROGRESS CASE STUDY 2

PATIENT EDUCATION

http://hemophilia.aboutkidshealth.ca/En/Pages/default.aspx

Keeping in Touch

Open access

Haemtrack

Telephone follow up between clinic appts.

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QUESTIONS?