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Hungarian Pancreatic Study Group – Magyar Hasnyálmirigy Munkacsoport
4th Conference of the Hungarian & 2nd Conference of the Eastern and Central European Pancreatic Study Groups
INTRODUCTION OF GENERAL REGISTRY
Péter Hegyi
on behalf ofthe Hungarian Pancreatic Study Group
Chair of HPSGSZEGED, HUNGARY
INTRODUCTION
Hungarian Pancreatic Study Group – Magyar Hasnyálmirigy Munkacsoport
4th Conference of the Hungarian & 2nd Conference of the Eastern and Central European Pancreatic Study Groups
INTRODUCTION OF GENERAL REGISTRY
INTRODUCTION OF GENERAL REGISTRY
Péter Hegyi
on behalf ofthe Hungarian Pancreatic Study Group
Chair of HPSGSZEGED, HUNGARY
Hungarian Pancreatic Study Group – Magyar Hasnyálmirigy Munkacsoport
GENERAL REGISTRY
ACUTE PANCREATITIS
CHRONIC PANCREATITIS
PANCREATIC CANCER
AUTOIMMUNE PANCRETITIS
CLINICAL DATA + BLOOD FOR GENETIC TESTING
4th Conference of the Hungarian & 2nd Conference of the Eastern and Central European Pancreatic Study Groups
INTRODUCTION OF GENERAL REGISTRY
Hungarian Pancreatic Study Group – Magyar Hasnyálmirigy Munkacsoport
4th Conference of the Hungarian & 2nd Conference of the Eastern and Central European Pancreatic Study Groups
INTRODUCTION OF GENERAL REGISTRY
Single centre, small number of patients, retrospective and
insufficient data analyses
Hungarian Pancreatic Study Group – Magyar Hasnyálmirigy Munkacsoport
4th Conference of the Hungarian & 2nd Conference of the Eastern and Central European Pancreatic Study Groups
INTRODUCTION OF GENERAL REGISTRY
Single centre, small number of patients, retrospective and
insufficient data analyses
Hungarian Pancreatic Study Group – Magyar Hasnyálmirigy Munkacsoport
4th Conference of the Hungarian & 2nd Conference of the Eastern and Central European Pancreatic Study Groups
INTRODUCTION OF GENERAL REGISTRY
Single centre, small number of patients, retrospective and
insufficient data analyses
Hungarian Pancreatic Study Group – Magyar Hasnyálmirigy Munkacsoport
4th Conference of the Hungarian & 2nd Conference of the Eastern and Central European Pancreatic Study Groups
INTRODUCTION OF GENERAL REGISTRY
Single centre, small number of patients, retrospective and
insufficient data analyses
Hungarian Pancreatic Study Group – Magyar Hasnyálmirigy Munkacsoport
4th Conference of the Hungarian & 2nd Conference of the Eastern and Central European Pancreatic Study Groups
INTRODUCTION OF GENERAL REGISTRY
Single centre, small number of patients, retrospective and
insufficient data analyses
Hungarian Pancreatic Study Group – Magyar Hasnyálmirigy Munkacsoport
4th Conference of the Hungarian & 2nd Conference of the Eastern and Central European Pancreatic Study Groups
INTRODUCTION OF GENERAL REGISTRY
What do we offer?
Hungarian Pancreatic Study Group – Magyar Hasnyálmirigy Munkacsoport
4th Conference of the Hungarian & 2nd Conference of the Eastern and Central European Pancreatic Study Groups
INTRODUCTION OF GENERAL REGISTRY
The data belong to those who uploaded.
Investigators can seeonly there own data.
Nobody can see yourdata.
However, if you have an idea you write a page
summary and will circulateamong us.
Hungarian Pancreatic Study Group – Magyar Hasnyálmirigy Munkacsoport
4th Conference of the Hungarian & 2nd Conference of the Eastern and Central European Pancreatic Study Groups
INTRODUCTION OF GENERAL REGISTRY
The data belong to those who uploaded.
Investigators can seeonly there own data.
Nobody can see yourdata.
However, if you have an idea you write a page
summary and will circulateamong us.
Prospectively collected data, multicentre collection,
high numbers
Hungarian Pancreatic Study Group – Magyar Hasnyálmirigy Munkacsoport
4th Conference of the Hungarian & 2nd Conference of the Eastern and Central European Pancreatic Study Groups
INTRODUCTION OF GENERAL REGISTRY
Prospectively collected data, multicentre collection,
high numbers
Single centre, small number of patients, retrospective and
insufficient data analyses
SAME AMOUNT OF
WORK
Hungarian Pancreatic Study Group – Magyar Hasnyálmirigy Munkacsoport
4th Conference of the Hungarian & 2nd Conference of the Eastern and Central European Pancreatic Study Groups
INTRODUCTION OF GENERAL REGISTRY
GENETIC STUDIES
3 other studies are running…..
Hungarian Pancreatic Study Group – Magyar Hasnyálmirigy Munkacsoport
GENERAL REGISTRY
LONGITUDINAL STUDIES
2015
2020
AP
AP
CP
CP-AP
CP-AP
PC
4th Conference of the Hungarian & 2nd Conference of the Eastern and Central European Pancreatic Study Groups
INTRODUCTION OF GENERAL REGISTRY
Hungarian Pancreatic Study Group – Magyar Hasnyálmirigy Munkacsoport
4th Conference of the Hungarian & 2nd Conference of the Eastern and Central European Pancreatic Study Groups
INTRODUCTION OF GENERAL REGISTRY
UNIFORM DATA COLLECTION IS
CRUCIAL!
Thank you for your attention!
THE HUNGARIAN PANCREATIC STUDY GROUPIS COMMITTED TO IMPROVING
THE LIVES OF PATIENTS SUFFERING FROM PANCREATIC DISEASES!
www.pancreas.huHungarian Pancreatic Study Group – Magyar Hasnyálmirigy Munkacsoport
4th Conference of the Hungarian & 2nd Conference of the Eastern and Central European Pancreatic Study Groups
INTRODUCTION OF GENERAL REGISTRY