Improving Health & LivesLearning Disabilities Observatory

www.ihal.org.uk

Improving Health & LivesTwo new DH funded initiatives Learning Disabilities ObservatoryConfidential InquiryThree-year projects (years two & three dependant on review & resources being available)

We AreNorth East Public Health ObservatoryCentre for Disability Research National Development Team for Inclusion

Observatory AimsImprove the health of (and reduce health inequalities experienced by) people with learning disabilities in England Helping people who commission services make better use of information

Making Information More Easily Available

WebsiteSpecial reports (plus summaries, media engagement)

Making Information More Easily Available

Special reports (plus summaries, media engagement)Defining ‘learning disabilities’ Uptake of annual health checksOverview of health inequalitiesEffectiveness of health checksEstimating local needUse of learning disabilities registersAnnual overview

Working Toward Having Better Information

Measuring disability in large-scale health & social surveysIncluding markers for disability in administrative data setsHospital Episode StatisticsCancer registriesPractice-based registers

Helping People Make Better Use of Information

Working with partners in six pilot sitesCalderdaleCornwallKentNottinghamshireWestminster

People with Challenging Behaviours

‘Priority group’Not identified in most existing information systems (?registers?)Specific projects?

www.ihal.org.uk