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National Blood Clot AllianceNational Blood Clot Alliance
National Survey About Deep Vein Thrombosis National Survey About Deep Vein Thrombosis and Pulmonary Embolism and Pulmonary Embolism
Awareness, Information, Prevention, Adherence
Key Survey Findings for Key Survey Findings for Healthcare Professionals Healthcare Professionals
in Oncologyin Oncology
Made Possible By a Grant From Ortho McNeil™, a Division of Ortho-McNeil-Janssen Pharmaceuticals, Inc.
National Blood Clot Alliance
Patient GoverningPatient GoverningBoardBoard
Volunteer based, patient led
Science Science drivendriven
Medical & Scientific Medical & Scientific Advisory BoardAdvisory Board
www.stoptheclot.org
Dedicated to the prevention & quality treatment of blood clots
and clotting disorders
Awareness
Advocacy
Stop Stop the the ClotClot®®
National Blood Clot Alliance
www.stoptheclot.org
A Call To Action
www.stoptheclot.org
Public Health Perspectives: Morbidity, Mortality
Perspectives in Oncology
Overview: The NBCA DVT/PE Awareness Survey
Methodology
Methodology
AwarenessAwareness
General Public 500General Public 500
• Cancer Dx within 12 mos• 67% Dx or Tx within 6
mos• Mean age 57.84• 64 female
ProphylaxisProphylaxis
InformationInformation
AdherenceAdherence
Inpatients 206Inpatients 206
Outpatients Outpatients 294294
Oncology 500
Survey Participants: Cancer Diagnoses Included
n=500 cancer patients
DVT/PE Awareness
24%36%
24%15%
p=<.05% p<.05%
DVT/PE Awareness
Health Literacy: “Blood Clot” Awareness
Risk Factor Awareness Among Oncology Patients
Signs and Symptoms Awareness
Provision of Information by MDs, Other HCPs
p=<.05%
44%
27%
Patient-Reported VTE Prophylaxis Experiences
35%
p=<.05% p=<.05% p=<.10% p=<.05% p=<.05%
28%
21%
16%
52%
31% 38%39%
52%
31%
Key Findings: Inpatient Versus Outpatient Disparity
Inpatient Outpatient
AwarenesAwarenesss
InformatioInformationn
ProphylaxiProphylaxiss
Joint Commissio
nCMS
Additional Findings: Adherence Among Oncology Patients
Additional Findings: Information and Education
Additional Findings: Oncology Patient Preferences
Conclusions and Future Directions
Improve patient awareness of DVT/PE, simplify terms
Optimize education programs/ prophylaxis among patients
Research new therapies to address treatment barriers
Improve patient/MD dialogue about risks & prevention
• Risk ≠ awareness• “Blood clot” resonates
• Information gaps exists• Outpatients: significantly
greater
• Treatment barriers identified• Patients report adherence
• Prophylaxis varies• Underutilized among outpatients
Awareness
Information
Prophylaxis
Adherence
www.stoptheclot.org
Reduced risksReduced risksand reducedand reduced
complicationscomplications
Improved Improved DVT/PE DVT/PE
understanding understanding and prophylaxisand prophylaxis
Decreased Decreased morbidity, morbidity,
mortality, costsmortality, costs
Imperatives Moving Forward
www.stoptheclot.org
Thank You for Your Commitment
The National Blood Clot Alliance thanks you for your commitment toDVT/PE education and prevention,
and for your ongoing efforts to help us
Stop the Clot®
www.stoptheclot.org
Jack E. Ansell, MD - Steering Committee ChairChairman, Department of Medicine, Lenox Hill Hospital, Professor of Medicine, New York University School of Medicine, New York, NY
Alan P. Brownstein, MPHChief Executive Officer, National Blood Clot Alliance, Tarrytown, NY
Richard J. Friedman, MD, FRCSCChairman, Department of Orthopaedic Surgery, Roper Hospital,
Clinical Professor of Orthopaedic Surgery, Medical University of South Carolina, Charleston, SC
Greg A. Maynard, MD, MSc, SFHMChief, Division of Hospital Medicine, University of California, San Diego, CA
Frederick R. Rickles, MD Professor of Medicine, Pediatrics and Pharmacology and Physiology, The George Washington University, Washington, DC
Elizabeth A. Varga, MS, CGCCertified Genetic Counselor, National Children’s Hospital, Clinical Assistant Professor of Pediatrics, The Ohio State University,
Columbus, OH
www.stoptheclot.org
The National Blood Clot Alliance extends its appreciation to members of the NBCA DVT/PE Awareness Survey Steering Committee
www.stoptheclot.org
LF&A, Inc.Lisa Fullam, President, Scottsdale, AZ
Dry Heat Productions, Inc.Scottsdale, AZ
Communications and Production Services
www.stoptheclot.org
The NBCA DVT/PE Awareness SurveyWas Made Possible by a Grant From
For More Information, Contact the National Blood Clot Alliance
On the Web: www.stoptheclot.org
On Facebook: www.facebook.com/stoptheclot
By phone: 877.4NO.CLOT 877.466.2568
©NBCA 2011