Post on 19-Mar-2017
transcript
Partnering with
Patients:
A Bed’s Eye View
Tiffany Christensen
Where we’re going…
A “Hybrid Patient” Perspective
• PFCC/PFE/PX
• Patient Activation
• Kelly Clarkson
A Bed’s Eye View
Diagnosed
at 6 months
old with the
gift
of cystic
fibrosis
I had a relatively normal childhood
I had my first
hospital stay at
Age 12
I had three weeks
of intravenous
antibiotics and got
my first taste for
the need to be an
advocate
This was just
the beginning…
There would be
countless more
days spent in
the hospital
during my
lifetime
By age 21, I was sick almost all
of the time.
I was attending the North
Carolina School of the Arts and
I just couldn’t keep up.
I had to give up my Hollywood
dreams and drop out.
I was on
oxygen getting
tube feedings.
The doctors
put me on the
list for a
bilateral lung
transplant.
I waited 4 years for my “call”
I was 95 pounds and
my lung function was
25% of capacity
Facing Medical Error
April 4th, 2000
I was healthier and puffier than
ever before!
In June of 2002,
my lung function
started to drop.
I was diagnosed
with my second
terminal illness 6
months later.
I had Chronic
Rejection.
Within two years, my lung
function had dropped to 10% of
capacity.
I was 73 pounds.
I was dying and the doctors
gave me 6 more months to live.
I asked my
doctors if I
could have a
second lung
transplant.
They said no.
After the stages of grief…the
soft arms of acceptance
We got a new
transplant
coordinator.
On March 28, 2004
Despite my
team’s
concern, the
recovery was
easier than
the first time.
Unlike after the first time, I was
not confused about what to do
with my life.
I felt a strong calling to reach
out to others touched by illness.
I wanted to share what I had
learned…
Duke PAC
Is Partnership Possible?
Overall, I saw other people…
So much to
learn about
something I
thought I
already
knew!
From the IPFCC:
…grounded in
mutually
beneficial
partnerships
From the IOM re PFE:
…patient values guide
all clinical decisions
Person Centered
defined by IHI:
…genuine
partners in their
care
PFE = Kelly Clarkson
Approach 1:
Better infusion of PFAs into
(important) daily operations
PFAC Table
Task Groups/Speaking within organization
Peer Rounding, “Secret Shopping”
Interviewing
PFAs in RCAs
PFAs at the board level
PFAs as lay navigators or “activation coaches” in the community
Approach 2:
Build Authentic Partnership
through PFE at the bedside
(Bedside Shift Report, Shared
Decision Making, etc.)
Current State: How are we doing with co-designing care?
S TRENGTHS
W EAKNESSES
O PPORTUNITIES
T HREATS
Negative
Internal
factors
External
factors
Positive
We trust the education and skills of the
provider. Now it’s time for the provider
to help the patient trust him/herself.
What is Patient Activation?
Patient activation is a
behavioral concept…
It is defined as 'an
individual's
knowledge, skill, and
confidence for
managing their health
and health care'
(Hibbard et al 2005).
May 7, 2014
Staying the course even under stress
Taking action to maintain
and improve one’s health
Having necessary
confidence & knowledge to take action
Believing the patient role is
important
Adapted from Patient Activation Measure (PAM)
Patient Activation
Passive
Advocates
Activated Dictate Care
Consider pt. input
Co-Design
Care
Patients & Families Healthcare Providers
Improved adherence
Improved safety
Reduced readmissions
Reduced ED visits
Improved overall outcomes
Optimization of Care
Activation addresses many of today’s most
pressing concerns
A bird sitting on a tree
is never afraid of the
branch breaking
because her trust is not
on the branch,
but on her own wings.
Before any of that mattered…
I had to admit something.
First, I had to understand
my state of being
• Emotional exhaustion
• Depersonalization
• Inefficacy
(I now know these are the
top 3 signs of burnout)
All of the symptoms of burnout
block partnership
Teressa’s story
Find an outlet…stories, honesty
Thank you!!
Tiffany Christensen
Patient & Family
Engagement Specialist,
(919) 677-4119
www.sickgirlspeaks.com
Find me on Facebook:
“Tiffany Christensen is
Sick Girl Speaks”