every age has its own lever.

ours is data.

1. how do we change the way we gather data?

centered around authenticated individuals at authenticated institutions

gathering pre-determined data from pre-determined

phenotypes

there is no center, and what is authentication?

“just record everything and figure out significance later”

2. it’s about cheap data,

not big data.

cheap data changes the way we justify our beliefs.

OPS = AB(H + BB + HBP) + TB(AB + BB + SF + HBP) / AB(AB + BB + SF + HBP)

cheap data = better decisions

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assume 1,000,000 downloadsassume 10% false positive rate

100,000 doctor visits$1000 per biopsy

$900,000,000 per app?

3. how might we connect cheap data, research, and health systems?

sharing by small but coherent groups can

create asymmetrically valuable resources.

“When Campos contacted the company for the first time, Medtronic spokesman Steve Cragle said that the patient services rep didn’t understand that Campos wanted the raw data.”

if i want to give it away, i have to understand the gift.

terms in blue pop up definitions

volunteer must click to proceed

all boxes must be checked

volunteer cannot skip video

real-time genotype sharing:

http://opensnp.org/users/615

http://files.snpedia.com/reports/promethease_data/genome_jtw_ui2.html

“Also there is no suggestion of consanguinity in your pedigree.”

http://www.ianlogan.co.uk/

a relief, but no insight.

4.cheap data to insight

via open systems.

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accessibility

adaptability

leverage

easeof mastery

accessibility

adaptability

leverage

easeof  mastery

0

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THREE  OPTIONS  TO  DOWNLOADNO  CLEAR  LICENSEPRIVACY  RESTRICTIONSMETADATA

which patients have tumor and normal samples amidst a group of celfiles?

accessibility

adaptability

leverage

easeof  mastery

IMPACT  OF  PRIVATE  INTERVENTION

free as in speech or free as in beer?

john.wilbanks@sagebase.govwilbanks@nitrd.gov

@wilbanks