Taking EHDI’s Pulse: Conferences as Strategic

Change Agents

National EHDI 2007 Conference

Salt Lake City, UT

March 26, 2007

Nicole Brown, MSN,PHN, CPNP

Molly Crawford, MS

Penny Hatcher, RN, MSN, DrPH, PHN

Faculty Disclosure Information

In the past 12 months, I have not had a significant financial interest or other relationship with the manufacturer(s) of the product(s) or provider(s) of the service(s) that will be discussed in my presentation.

This presentation will not include discussion of pharmaceuticals or devices that have not been approved by the FDA or if you will be discussing unapproved or "off-label" uses of pharmaceuticals or devices.

The Minnesota Summit

The Minnesota Summit

Objectives: Identify and implement at least 2 skills to

provide culturally appropriate services.

Develop a regional action plan to address 1-3-6 in local communities.

Develop relationships among state, regional, and local partners and families.

Articulate the current status of EHDI in MN—especially strengths and areas for improvement.

Minnesota’s Background

~70,500 Births Annually

Voluntary Hearing Screening– 108 birthing hospitals (100%)– Results reporting (85%)– ~87% Screened

EHDI/UNHSI program funded by grants from MCHB and CDC

Minnesota’s Background

Integrated with bloodspot screening

Borders ND, SD,IA, WI

16 Regional EHDI teams– D/HH Teacher, Audiologist, Special Ed.

Teacher– Build local capacity for EHDI – State EHDI workgroup (Depts. of

Education, Human Services, Health)

Minnesota’s EHDI Challenges

Decentralized education system– Part C eligibility criteria revision

Localized public health system

Limited data sharing (HIPAA, FERPA, etc.)

Lack of pediatric specialists

Moving EHDI to the Next Level

Focus shifting from screening to follow up

Need for further collaboration from multiple partners– Duplication of efforts– Gaps in statewide surveillance system

Legislation

Why A Minnesota Summit ?

Available Funding

Good strategy to bring together decentralized and localized partners

Efficient tool to convey information to varied audiences

Created an organized and systematic approach to move forward

Taking EHDI’s pulse

Why A Minnesota Summit ?

Available Funding

Good strategy to bring together decentralized and localized partners

Efficient tool to convey information to varied audiences

Created an organized and systematic approach to move forward

Taking EHDI’s pulse

Strategy to Bring Together Partners

150 Attendees• Health professionals• Parents• Educators• Early interventionists

Offered continuing education for 6 disciplines

Border state incentives

Why A Minnesota Summit ?

Available Funding

Good strategy to bring together decentralized and localized partners

Efficient tool to convey information to varied audiences

Created an organized and systematic approach to move forward

Taking EHDI’s pulse

Information to Varied Audiences

– Key messages & common goals– Recognition dinner & full-day conference

– Vendors and exhibitors (23)– National & local speakers (32)

Information to Varied Audiences

Speakers presented:– Up-to-date information about hearing loss– Collaboration among professional specialties– Early medical and educational interventions– Genetics– Financial assistance and other resources– New technology– Next steps for MN newborn screening

Why A Minnesota Summit ?

Available Funding

Good strategy to bring together decentralized and localized partners

Efficient tool to convey information to varied audiences

Created an organized and systematic approach to move forward

Taking EHDI’s pulse

An Approach to Move Forward

– Provided insight for future education and awareness activities

• EHDI Regional Teams

Why A Minnesota Summit ?

Available Funding

Good strategy to bring together decentralized and localized partners

Efficient tool to convey information to varied audiences

Created an organized and systematic approach to move forward

Taking EHDI’s pulse

Taking EHDI’s Pulse

Incorporated measurement tools– On-site evaluations (81)– Pre-test on-site (80)– Post-test survey on Zoomerang (61)– Long-term evaluation on Zoomerang (36)

Incorporated follow up– “Call-to-action” form on-site (72)

“Call to Action” Unique Reminder

Triplicate form helped to share goals and follow up participants’ actions:– Fostered responsibility and accountability for

EHDI success locally and statewide.

– Highlighted and reinforced 16-regional teams as framework for local partnerships.

– Provided a take-away action plan.

Lessons Learned

Online registration and detailed Web information

Lessons Learned

Online evaluation and surveys – E-mail reminders with links.

Marketing – MDs/PNPs need at least one-year

notice

On-site helpers are critical– student workers

Lessons Learned

A mixture of offerings is important

– Social, educational, & informational

– high-level & family-focused

Tips for Conference Planning

Look for funding opportunities– CDC Public Health Conference Support

Grant– Sponsorships—public and private

• health care organizations and insurers• Manufacturers - donate equipment and prizes

– Lions and Sertoma Clubs– Education reserves

Tips for Conference Planning

Look to partners for funding and shared sponsorship– Education, Part C funds– Human Services

Tips for Conference Planning

Look for existing opportunities– Add a pre or post-conference event or

activity to an existing conference or annual event

– Market your event through existing mailing lists, organizations, Internet list serves, word of mouth

Tips for Conference Planning

Incorporate effective measurement tools.– Consider online tools

• Survey Monkey, Zoomerang, etc.

Incorporate tools to continue the momentum.– Encourage continued relationships by providing

participants with contact info for other participants, speakers, exhibitors

– Provide participants with tools for follow-up– Outline next steps

The Minnesota Summit

More Information

MDH web site: www.health.state.mn.us/newbornscreening

Contact:

Nicole Brown, MSN, PHN, CPNP

UNHSI Program Coordinator

651-201-3737 (phone)

nicole.brown@health.state.mn.us.

THANK YOU!THANK YOU!