Post on 15-Dec-2015
transcript
The Fund’s Mission
To find effective treatments
and a cure for Fanconi anemia and
to provide education and support services to
affected families worldwide.
History of the Fund
The Fanconi Anemia Research Fund was founded in 1989 by Dave and Lynn Frohnmayer, who lost two daughters to the disease. Their third daughter, Amy, also has Fanconi anemia.
Today:
16 genes responsible for FA have been identified, five of them are related to breast cancer susceptibility.
Scientists from around the world attend the Fund’s
annual scientific symposia to discuss the latest in FA research findings.
Today:
FA patients are living longer—due, in large part, to advances in bone marrow transplant protocols spearheaded byFund-supported research.
Today:
Much Work Remains
The Fund is working to help develop:
• A better understanding of bone marrow failure.
• Effective treatments for the cancers developed by FA patients.
FA patients are hundreds to thousands of times more likely to develop certain cancers—and at a much younger age.
More than 90% of the Fund’s annual budget comes from private
donations.
Private DonationsGrants, etc.
To Learn More• Visit www.fanconi.org
• Look for the Fanconi Anemia Research Fund on Facebook and Twitter