TECHNOLOGY-POWERED GRASSROOTS EMPOWERED

PATIENT MOVEMENT via “Health Care Social Media” “#HCSM”

Presented by:

Michael A. Weiss / www.HospitalPatient.com “Partnership with Patients Summit”Society for Participatory Medicine

September 21-23, 2012 / Kansas City, MO

CD is a form of “Inflammatory Bowel Disease.”

It is a “Broad Spectrum,” Autoimmune Disease that is Chronic and Incurable.

•

Strategy for using HCSM Platforms:

1. Reference Tools2. Community Building of Similar “Souls”

3. Healthcare/Personal Interactivity

Diversify HCSM PlatformsStart with Broad Platforms

Setup Technology to bring the info to YOUSubscribe to Blogs and PodcastsEngage in Interactive Platforms

Become Assertive & Empowered Patient!!!!!

Wikipedia – Search “Crohn’s Disease”Good BROAD STARTING POINT

Crohn’s & Colitis Foundation – “CCFA”Find the National “Foundation” – if any

Healthcare “Portal” WebsitesGot a question?

WebMD is better than Wikipedia!!!!

Social Networking @ Virtual Mayo Clinic!!!

Yahoo! Groups “Living with Crohn’s Disease”

Setup Technology to have info come to YOU; emailed Daily Digests;Become a part of Virtual Community.

Google Alert – “Crohn’s Disease”Use Technology to keep YOU up-to-date w/ News & the Web

Subscribe to Blogs via “RSS” FeedsReally Simple Syndication – Outlook, Google Reader, email, etc.

Use Free RSS Aggregator Programs - NO SPAM

Subscribe to Podcasts/VlogsUsing HCSM to get more “Specific,” Automated & PREPARED

Crohn’s/Medical VIDEO YouTube Vlog: “The Medical Minute”

Sports AUDIO iTunes Podcast to comfort me in Hospital: “The BS Report”

Facebook Groups/CommunitiesCrohn’s-Specific or Patient-Specific

Instantaneous Engagement – “Who’s had success using the drug

“#Humira” 4 #Crohns?”

Twitter using “TweetDeck”

Maximizing Twitter 4 #HealthcareHashtags & Tweetchats

Hashtags organize Tweets by keyword

HealthCare TweetChat Schedule#HCSM – 9 PM EST, Sunday Night

Best 60 Minutes on Sunday Night!Now, Twitter MEETUPS!!!!!

Popular “Hashtags” #Crohns – catch-all for Crohn’s Disease tweets #Crohnie – person with Crohn’s Disease #Crohnology – member of Virtual Crohn’s

Community #IBD – tweets related to Inflammatory Bowel

Disease #health20 - tweets related to the next phase

of health delivery, Health 2.0 #mhealth - tweets related to mobile health #hcr - issues related to health care reform #hcsm - tweets about “health care social

media” #hcsmeu – tweets about hcsm in Europe #hcsmanz - tweets about hcsm in

Australia/New Zealand #hcIT - tweets related to health care

technology

Virtual Patient CommunitiesConnect, Learn & Commiserate

Crohnology.com –Crohnies

Rheumatoid Arthritis Folks

Interact w/ other Crohn’s Patients

Google+ Crohn’s Disease “Hangouts” & Support Groups

Join a Linkedin “Group”“Professionals w/ Crohn’s”

Free-form Blog & NetworkingWords, Pictures and Healthcare “Tags”

Adding Equipment Attachments to Mobile Phones to make them Medical Devices

Utilizing Mobile Phone Applications

mHealth activities can be seen everywhere in public health, across the public and private sectors and developed and developing countries. Examples of successful mHealth interventions include:

◦ Diagnostic technologies such as EKGs, microscope attachments to camera cell phones

◦ SMS (texting) platforms that send reminders and educational messages designed to help smokers quit

◦ Mobile Locator Applications that use mapping technology to provide information about the nearest locations providing health services

mHealth – Using Mobile Phone 4 Healthcare

The “CellScope” Result of Equipment Attachment to a camera-enabled

mobile phone that can take detailed images & analyse them to diagnose/monitor infectious diseases such as

Tuberculosis.

Mobile Phone Applications “ZocDoc” – Traveling in Big City & Need Doctor

“Lostit!” – Keep eye on Calories & Exercise Time

More Productive Doctors Time Efficient & Cost Effective Healthcare

“Transactions” Less Gross Inefficiencies in Hospitals Better Healthcare for more People Healthcare Insurance Cos. no longer Oil

Cartels!!!!!!

Result of HCSM Patient Grassroots Movement

The Empowered & Assertive Patient