Post on 28-Dec-2015
transcript
Valerie J. Bradley, PresidentJon Fortune, Senior Policy AnalystHuman Services Research InstituteND 2011
System trajectory is unsustainable We can’t afford legacy systems States will need to do more with less Collective consciousness is fading Funding methods will change Self advocacy needs support
CHALLENGES: Wait lists growing More families in
crisis and more adults living at home
Not enough direct support staff
Old models too expensive
OPPORTUNITIES: Develop triage for
wait lists Work with case
managers re: family dynamics
Help train DSPs Disseminate
information on best practices
CHALLENGES: Public institutions still
a factor in some states
More people in sheltered workshops than employed
Need to use current downturn to focus on what works
OPPORTUNITIES: Build the case for
institutional closures Identify barriers to
employment Conduct cost
analyses of trade-offs between legacy and person-centered services
CHALLENGES: Shrinking staff at
the central level Community system
has grown rapidly Pressure to manage
systems based performance data
OPPORTUNITIES: Assist states to
analyze and trend data
Participate in the collection of NCI data
Assist states with risk management efforts (e.g., mortality review, etc.)
CHALLENGES: Baby boom
generation retiring Loss of institutional
memory Need to develop
new leadership
OPPORTUNITIES: Conduct leadership
training initiatives Do a history of the
state system Work to instill values
in UCED trainees
CHALLENGES: Current level of
funding for some services can’t be supported
Funding needs to reflect individual need
Use of individual budgets should be expanded
OPPORTUNITIES: Assist states to align
funding with functional capabilities
Train individuals and families to use individual budgets
Evaluate self-direction
CHALLENGES: Self-advocacy groups
experiencing generational changes
Hard to organize when people aren’t in conventional settings
Self-advocacy groups need mentors and organizational support
OPPORTUNITIES: Sponsor self-
advocacy leadership opportunities
Include self-advocates in participatory research
Use self advocates as trainers and lecturers