2014 Midterm Elections Update - Harry Sporidis & Tim Perrin
Polsinelli LLP NAIC Action Alert - Joel White, Horizon Government
Affairs Achieving a Better Life Experience (ALBE) Act - Ginny
Sessions, National Down Syndrome Society Newborn Screening Saves
Lives Re-Authorization Act - Natasha Bonhomme, Genetic Alliance FDA
Seeking Patient Input in Drug and Device Approvals Jennifer
Bernstein Gabriella Miller Kids First Research Act Appropriations -
Max Bronstein, EveryLife Foundation Caucus Briefing Action Alert -
Andy Russell, RDLA
Slide 4
Polsinelli PC. In California, Polsinelli LLP The 2014 Midterm
Congressional Elections Impact, Analysis and Outlook November 6,
2014 | Washington, D.C. Polsinelli Public Policy Group
Slide 5
real challenges. real answers. sm The 113 th Congress: What
Once Was 4 United States House of Representatives United States
Senate
Slide 6
real challenges. real answers. sm 2014 Midterm Election Results
5
Slide 7
real challenges. real answers. sm 2014 Midterm Election Results
6 Political gridlock is synonymous with todays legislative
(in)action Even with political gridlock, measureable results are
still possible A more focused, nuanced approach is necessary
Slide 8
real challenges. real answers. sm Factors Impacting 2014
Midterm Elections Obama Approval /Public Opinion Makeup of Midterm
Electorate /Voter Turnout Higher GOP Motivation Economy Senate Map
favoring GOP Affordable Care Act Ebola Response /Foreign
Affairs
Slide 9
real challenges. real answers. sm 8 2014 Midterm Election
Results: The United States House of Representatives The House has
gone from 233 Republicans to 243 Republicans The House has gone
from 199 Democrats to 178 Democrats The Republicans keep Majority
of the House of Representatives The are currently 17 undecided
races
Slide 10
real challenges. real answers. sm 2014 Midterm Election
Results: The United States House of Representatives 9 United States
House of Representatives United States House of Representatives 113
th Congress 114 th Congress
Slide 11
real challenges. real answers. sm 10 114 th Congress: House
Leadership Speaker of the House: Rep. John Boehner (R-OH) Majority
Leader: Rep. Kevin McCarthy (R-CA) Majority Whip: Rep. Steve
Scalise (R-LA) Republican Conference Chairman: Rep. Cathy McMorris
Rodgers (R-WA) Republican Policy Committee Chairman: TBD Democratic
Leader: Rep. Nancy Pelosi (D-CA) Democratic Whip: Rep. Steny Hoyer
(D-MD) Assistant Democratic Leader: Rep. James Clyburn (D-SC)
Democratic Conference Chairman: Rep. Xavier Becerra (D-CA)
Slide 12
real challenges. real answers. sm 11 114 th Congress: Possible
House Committee Leadership CommitteePossible ContendersAnticipated
ChairmanAnticipated Ranking AgricultureConawayMichael Conaway
(R-TX)Collin Peterson (D-MN) AppropriationsHarold Rogers (R-KY)Nita
Lowey (D-NY) Armed ServicesThornberry, ForbesMac Thornberry
(R-TX)Adam Smith (D-WA) BudgetPriceTom Price (R-GA)Chris Van Hollen
(D-MD) Ed and WorkforceKline, FoxxJohn Kline (R-MN)Bobby Scott
(D-VA) Energy and Commerce Eshoo, Pallone for RankingFred Upton
(R-MI)TBD Natural ResourcesBishopRob Bishop (R-UT)TBD Oversight
& Govt Reform Issa, Chaffetz, Turner, Jordan, Mica Jason
Chaffetz (R-UT)Elijah Cummings (D-MD) Small BusinessChabot, Tipton,
Hanna, CollinsSteve Chabot (R-OH)Nydia Velazquez (D-NY)
Transportation and Infrastructure Bill Shuster (R-PA)Peter DeFazio
(D-OR) Veterans AffairsMiller, Bilirakis, Lamborn, Roe, Flores Jeff
Miller (R-FL)Corrine Brown (D-FL) Ways & MeansRyan, BradyPaul
Ryan (R- WI)Sander Levin (D-MII) IntelligenceNunes, King,
PompeoDevin Nunes (R-CA)C.A. Dutch Ruppersberger (D-MD)
Slide 13
real challenges. real answers. sm 12 2014 Midterm Election
Results: The United States Senate The Senate has gone Republican
Red! The Senate has gone from 45 to 52 Republican Seats For the
First time since the 109 th Congress (2005-07) the Senate Majority
is the Republican Party. The Senate now stands at 52-R, 44-D, 2-I
and 2 undecided races. The Senate has gone from 53 Democrats to 44
Democrats
Slide 14
real challenges. real answers. sm 2014 Midterm Election
Results: The United States Senate 13 113 th Congress 114 th
Congress United States Senate
Slide 15
real challenges. real answers. sm 14 114 th Congress: Senate
Leadership President Pro Tempore: Sen. Orrin Hatch (R- UT) Majority
Leader: Sen. Mitch McConnell (R-KY) Majority Whip: Sen. John Cornyn
(R-TX) Republican Conference Chair: Sen. John Thune (R- SD)
Minority Leader: Sen. Harry Reid (D- NV) Minority Whip: Sen.
Richard Durbin (D-IL) Democratic Policy Committee Chair: Sen. Chuck
Schumer (D-NY)
Slide 16
real challenges. real answers. sm 15 114 th Congress: Possible
Senate Committee Leadership CommitteeAnticipated
ChairmanAnticipated Ranking Armed ServicesJohn McCain (R-AZ)Jack
Reed (D-RI) AppropriationsThad Cochran (R-MS)Barbara Mikulski
(D-MD) Banking, Housing and Urban Affairs Richard Shelby
(R-AL)Sherrod Brown (D-OH) BudgetJeff Sessions (R-AL)Sheldon
Whitehouse (D-RI) Commerce, Science and Transportation John Thune
(R-SD)Bill Nelson (D-FL) Energy and Natural Resources Lisa
Murkowski (R-AK)Mary Landrieu (D-LA) (Depending on the LA runoff
election) Environment and Public Works James Inhofe (R-OK)Barbara
Boxer (D-CA) FinanceOrrin Hatch (R-UT)Ron Wyden (D-OR) HELPLamar
Alexander (R-TN)Patty Murray (D-WA) Homeland Security and
Governmental Affairs Ron Johnson (R-WI)Thomas Carper (D-DE)
Veterans AffairsJohnny Isakson (R-GA)Bernard Sanders (I-VT)
IntelligenceRichard Burr (R-NC)Dianne Feinstein (D-CA) Committee on
AgingSusan Collins (R-ME)Bob Casey (D-PA)
Slide 17
real challenges. real answers. sm 2014 Midterm Election
Results: Legislative Agenda Outlook 16 Legislation Agenda Lame Duck
114 th Congress Affordable Care Act Appropriations Debt Ceiling
Energy EPA Regs Export-Import Bank FCC Legislation Agenda Lame Duck
114 th Congress Foreign Policy Highway Trust Fund Immigration
Online Sales Tax SGR Tax Extenders Tax Reform Trade Unlikely Up for
Debate Must Pass
Slide 18
real challenges. real answers. sm 2014 Midterm Election
Results: Impact on 2015 and Beyond 17 House Dynamics Remain Same
Budget Battles Cooperatio n between House and Senate Increased
Oversight White House/ Congress Dynamic Legislative Winners and
Losers
Slide 19
real challenges. real answers. sm 2014 Midterm Election
Results: All Eyes on 2016 18 Jeb Bush (R-FL) Chris Christie (R-NJ)
Rand Paul (R-KY) Hillary Clinton (D-NY) Joe Biden (D-DE) Elizabeth
Warren (D-MA)
Slide 20
real challenges. real answers. sm Questions and Answers:
Challenges, Impact and Opportunities
Slide 21
real challenges. real answers. sm Polsinelli provides this
material for informational purposes only. The material provided
herein is general and is not intended to be legal advice. Nothing
herein should be relied upon or used without consulting a lawyer to
consider your specific circumstances, possible changes to
applicable laws, rules and regulations and other legal issues.
Receipt of this material does not establish an attorney-client
relationship. Polsinelli is very proud of the results we obtain for
our clients, but you should know that past results do not guarantee
future results; that every case is different and must be judged on
its own merits; and that the choice of a lawyer is an important
decision and should not be based solely upon advertisements. 2013
Polsinelli PC. In California, Polsinelli LLP. Polsinelli is a
registered mark of Polsinelli PC
Slide 22
During the November 2014 Midterm Elections the Rare Disease
Congressional Caucus lost 2 elections to the House: Bruce Braley
(D) IA-1 Carol Shea-Porter (D) NH-1 8 members did not seek
re-election to the House: Spencer Bachus (R) AL-6 Phil Gingrey (R)
GA-11 Tim Griffin (R) AR-2 Rush Holt (D) NJ-12 Tom Latham (R) IA-3
Jon Runyan (R) NJ-3 Henry Waxman (D) CA-33 Frank Wolf (R) V-10 To
see complete election results of all Caucus Members & incoming
Representatives go to: -
Rareadvocates.org/CaucusElectionResults
Slide 23
NAIC Action Alert Joel White Horizon Government Affairs
[email protected]
Slide 24
ACHIEVING A BETTER LIFE EXPERIENCE (ABLE) ACT (H.R. 647/S.313)
Ginny Sessions Manager, Grassroots and Development Programs
National Down Syndrome Society [email protected]
FDA Seeking Patient Input in Drug and Device Approvals Jennifer
Bernstein
Slide 27
OPEN ACT: Incentives for Drug Development Dr. Emil Kakkis
Slide 28
Max G. Bronstein, EveryLife Foundation
Slide 29
Diverts funding from public campaign fund to pediatric cancer
research at NIH Authorized ~$12 million/year for 10 years
Slide 30
Slide 31
Former Majority Leader Eric Cantor (R-VA)
Slide 32
Slide 33
Program has been authorized Challenge is to get it appropriated
Government is currently funded by a continuing resolution, expiring
Dec. 11 Our goal: get the funding appropriated during Lame Duck,
before holiday recess
Slide 34
Sign-on letter to Congressional Appropriations Committees Email
[email protected] to get your organization
signed-on
Slide 35
Rare Disease Legislative Advocates and EB Research Partnership
in coordination with Rare Disease Congressional Caucus Co-Chairs
Representatives Leonard Lance (R-NJ) and Joe Crowley (D-NY), will
host a briefing on: "Creating Economic Incentives to Spur the
Development of Treatments for Ebola and Other Life-Threatening Rare
Diseases" Thursday, November 13, 2014 12:00 noon 1:30 pm Rayburn
House Office Building, Room: B-318 Lunch will be provided by event
sponsors Shire, Alexion, Novartis & Sarepta Help us spread the
word and participate in our action alert!
Slide 36
The EveryLife Foundation will convene the first Community
Congress meeting to bring rare disease stakeholders together to
help work on urgent policy and science issues. Community Congress
is a membership-based program dedicated to bringing patient
organizations, industry leaders, and other rare disease stakeholder
organizations together. Current planned working groups include
Public Policy, Science/Regulatory Policy, and Newborn Screening.
Date: Thursday, November 13, 8:30am-11:00am, Breakfast Provided
Location: Darlington House, 1610 20 th St, NW Washington, DC 20009
More info at:
Slide 37
The 3 rd Annual RareVoice Awards Gala will honor rare disease
advocates, congressional leaders, and top agency officials. This
no- cost, widely attended event will include a celebrity guest!
Please join us to recognize and honor these distinguished
advocates. Date: Thursday, November 13, 6:00pm-9:00pm, Drinks &
Food Provided Location: Arena Stage, 1101 Sixth St SW, Washington
DC 20024 More info at www.rarevoiceawards.org