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01 02 03 04 - Vitality · Endomondo, MapMyFitness, RunKeeper, Strava In July 2015, Vitality,...

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Guidelines for Personalized Health Technology Guidelines focus on the responsible design and deployment of PHT and the appropriate stewardship of personal health data 01 Build health technologies informed by science 02 Scale affordable health technologies 03 Guide interpretation of health data 04 Protect and secure health data 05 Govern the responsible use of health technology and data 010101010101010 010010101010011 010101010101010 010101010110101 001001010101010 010101010101010 Personalized Health Technology: Responsible Innovation for Individual and Societal Benefit Gillian Christie [email protected] @gchristie34 | @VitalityUSA | #TrustTech www.thevitalityinstitute.org/ELSI Who has access to your data? If your data are accurate, reliable, and trustworthy? If your data are sold, rented, or shared with third pares for markeng or adversing purposes? If your data are protected from cybercriminals? Could consumers use PHT to beer understand their health and modify their health behaviors? Could data from PHT be used to create personalized medicines that are unique to an individual’s genec composion and lifestyle? Could the health of populaons across disparate demographics be beer understood through the aggregaon and analysis of anonymous data from PHT? Dismissing data concerns as non-issues poses challenges to the health and technology industries. Widespread use of PHT may be hindered and few advancements to health will be realized if society or the media are unconvinced by the devices. A proacve approach to targeng ethical, legal, and social implicaons of PHT is required by industry leaders. DO YOU KNOW WITH CERTAINTY… THE PROMISE: Data, Data, Data THE PITFALL: Data, Data, Data OBSTACLES AHEAD WEARABLES: Fitbit, Jawbone, Microsoſt Band, Xiaomi SMARTWATCHES: Apple Watch, Garmin, Polar, TomTom MOBILE HEALTH APPLICATIONS: Endomondo, MapMyFitness, RunKeeper, Strava In July 2015 , Vitality, Microsoſt, and the Qualcomm Instute published an arcle in the Journal of Health Communicaon that described ethical, legal, and social implicaons with PHT. C all to acon was a 90-day global public consultaon on a draſt set of guidelines for PHT. Input from public and private sector stakeholders : Naonal Academy of Medicine, HIMSS Personal Connected Health Commiee, and Vitality Instute Commissioners. HEALTH What are PERSONALIZED TECHNOLOGIES (PHT) ? CONSULTATION GLOBAL PUBLIC What: Vitality and partners to launch finalized guidelines at HIMSS16. When: Wednesday, March 2, 2016 at 7:30-9:00am Where: The Venean, San Polo Room 3405, Las Vegas 2 MARCH HIMSS16 EVENT July 2015 July - October 2015 March 2016 Onward Perspective Published in Journal of Health Communication Global Public Consultation to identify Best Practices Launch of Finalized Guidelines at HIMSS16 Pilot and implementation of Guidelines with Partners
Transcript

Guidelines for Personalized Health Technology

Guidelines focus on the responsible design and deployment of PHT and the appropriate stewardship of personal health data

01

Build health technologies informed

by science

02

Scale affordable health technologies

03

Guide interpretation of health data

04

Protect and secure health data

05

Govern the responsible use of health

technology and data

0101010101010101010010101010011001010101010101010101010101101010100100101010101010101010101010101

Personalized Health Technology: Responsible Innovation for Individual and Societal BenefitGillian Christie [email protected] @gchristie34 | @VitalityUSA | #TrustTech www.thevitalityinstitute.org/ELSI

Who has access to your data?

If your data are accurate, reliable, and trustworthy?

If your data are sold, rented, or shared with third parties for marketing or advertising purposes?

If your data are protected from cybercriminals?

Could consumers use PHT to better understand their health and modify their health behaviors?

Could data from PHT be used to create personalized medicines that are unique to an

individual’s genetic composition and lifestyle?

Could the health of populations across disparate demographics be better understood

through the aggregation and analysis of anonymous data from PHT?

Dismissing data concerns as non-issues poses challenges to the health and technology industries.

Widespread use of PHT may be hindered and few advancements to health will be realized if society or the media are unconvinced by the devices.

A proactive approach to targeting ethical, legal, and social implications of PHT is required by industry leaders.

DO YOU KNOW WITH CERTAINTY…

THE PROMISE: Data, Data, Data

THE PITFALL: Data, Data, Data

OBSTACLES

AHEAD

WEARABLES: Fitbit, Jawbone, Microsoft Band, Xiaomi

SMARTWATCHES: Apple Watch, Garmin, Polar, TomTom

MOBILE HEALTH APPLICATIONS: Endomondo, MapMyFitness, RunKeeper, Strava

In July 2015, Vitality, Microsoft, and the Qualcomm Institute published an article in the Journal of Health Communication that described ethical, legal, and social implications with PHT.

Call to action was a 90-day global public consultation on a draft set of guidelines for PHT.

Input from public and private sector stakeholders: National Academy of Medicine, HIMSS Personal Connected Health Committee, and Vitality Institute Commissioners.

HEALTHWhat are PERSONALIZED

TECHNOLOGIES (PHT) ?

CONSULTATIONGLOBAL PUBLIC

What: Vitality and partners to launch finalized guidelines at HIMSS16.

When: Wednesday, March 2, 2016 at 7:30-9:00am

Where: The Venetian, San Polo Room 3405, Las Vegas

2MARCHHIMSS16 EVENT

July 2015 July - October 2015 March 2016 Onward

Perspective Published in Journalof Health Communication

Global Public Consultationto identify Best Practices

Launch of FinalizedGuidelines at HIMSS16

Pilot and implementationof Guidelines with Partners

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