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Pilot project We Empower u S bH Better career opportunities for people with Spina bifida and Hydrocephalus Methodical toolkit Instrument 4: Information, tips and hints for employers Released by: project partnership „We empower uS bH“ This project is conducted with the financial support of the European Commission. The responsibility for the contents of this publication lies solely with the author; the Commission is not liable for any further use of the information therein. Josefsheim Bigge
Transcript

Pilot project We Empower uS bH Better career opportunities for people with Spina bifida and Hydrocephalus

Methodical toolkit

Instrument 4:

Information, tips and hints for employers

Released by: project partnership „We empower uS bH“

This project is conducted with the financial support of the European Commission.

The responsibility for the contents of this publication lies solely with the author;

the Commission is not liable for any further use of the information therein.

Josefsheim

Bigge

Released by: Project partnership „We empower uS bH“

Asociatia Romana Spina Bifida si Hidrocefalie (ARSBH) Strada Piata Amzei Nr. 10-22 Bloc B, Ap. 8, Sector 1 RO - 010345 Bucharest www.arsbh.ro

Arbeitsgemeinschaft Spina Bifida and Hydrocephalus e. V. (ASBH) Bundesgeschäftsstelle Grafenhof 5 DE - 44137 Dortmund www.asbh.de

The Cedar Foundation Malcom Sinclair House 31 Ulsterville Avenue BT9 7AS Belfast Northern Ireland / United Kingdom www.cedar-foundation.org

Josefsheim gGmbH Heinrich-Sommer-Straße 13 DE - 59939 Olsberg www.josefsheim-bigge.de

REA-College Pluryn Kerkenbos 1003 NL - 6546 Nijmegen www.pluryn.nl

Schweizerische Vereinigung zugunsten von Personen mit SPINA BIFIDA UND HYDROCEPHALUS Geschäftsstelle SBH-Schweiz Aehrenweg 6 CH – 8317 Tagelswangen www.spina-hydro.ch

SRH Berufsbildungswerk Neckargemünd Im Spitzerfeld 25 DE - 69151 Neckargemünd www.bbw-neckargemünd.de

Technische Universität Dortmund Fakultät Rehabilitationswissenschaften Emil-Figge-Straße 50 DE - 44221 Dortmund www.tu-dortmund.de

Imprint This handbook was developed within the framework of the Leonardo „We Empower uS bH“ project. Project internet platform: www.we-empower-us.eu Project management: Martin Künemund, Josefsheim Bigge, Germany This Instrument 4 was developed by the project team of Cedar Foundation in Northern Ireland. The authors as well as the members of staff who helped organise the curriculum for the project are listed below: Joanne Barnes, Deputy Manager Training Services Peter Wilson, Deputy Head of Supported Employment Solutions Stella Maguire, Head of Organisational and Service Development Rosie McNaughton, Head of Children and Young People’s Services Carrianne Rainey, Deputy Manager Children and Young People’s Services Contact: The Cedar Foundation Stella Maguire Malcom Sinclair House 31 Ulsterville Avenue BT9 7AS Belfast Northern Ireland / United Kingdom E-mail: [email protected] Internet: www.cedar-foundation.org

Status: April 2013

Foreword Better professional opportunities for disabled people – this was the aim of the European project partnership as part of the "We empower uS bH" project. The project partners are focusing on a specific target group: young people with Spina bifida and/or Hydrocephalus. People with these disabilities were involved in all project activities as experts. Eight partners from five countries developed the seven tools of the support framework over two and a half years. The basis of this work is a fundamental attitudewhich focuses on empowerment. The special feature of the project partnership was the collaboration between professional rehabilitation facilities from Germany, Northern Ireland and the Netherlands and self-help associations in Germany, Romania and Switzerland. The Technical University of Dortmund provided scientific support for the project. We are publishing the results of our work in this handbook and the attached CD-ROM, making materials for the use of the seven support tools available to specialists in professional rehabilitation, those from self-help associations and disabled people. We wish you every success and pleasure in your day to day work. We all wish that more young people with spina bifida and/or hydrocephalus had the chance to train for the profession of their choice and then be able to find and keep the job they want. We wish to thank everyone involved in our project: a big thank you to all of the participants in the future workshop. The international collaboration and exchange of experiences in this small European community was a real pleasure and motivation for everyone involved, both disabled people and non-disabled people. We would like to thank the large number of people with spina bifida and hydrocephalus who wrote their professional biographies for us and were open about all of the highs and lows of their educational and professional journeys. We would also like to thank the experts who were available for interviews and took part in written questionnaires and the testing of the tools. We also wish to recognise the disabled people and specialists who actively took part in the large number of project activities in particular. Without their involvement in the analysis of need, our project would not have been able to proceed as everyone wished. We wish to thank the employees and members of the three self-help associations ASBH in Germany, ARSBH in Romania and the Swiss Association for their intensive cooperation, good advice and competent support. We wish to thank Andrea Nobs and Prof. Horst Biermann from the Faculty of Rehabilitation Sciences at the Technical University of Dortmund for their scientific support on the project. We also wish to thank our partners' project workers, who developed the learning content of the support tools and made contributions to this handbook.

The LEONARDO-Projekt "We empower uS bH" and the printing of this handbook were made possible through financial support from the European Commission. Olsberg, April 2013 Martin Künemund Project Manager JG Group - Josefsheim Bigge www.we-empower-us.eu

We E

mp

ow

er

uS

bH

– In

form

ati

on

Tip

s a

nd

Hin

ts f

or

Em

plo

ye

rs –

La

nd

ing

Pag

e

Gen

era

l In

form

ati

on

T

he

info

rmatio

n p

rovid

ed

with

in t

his

pu

blic

atio

n is o

ffe

red

as

ge

ne

ral gu

ida

nce

an

d a

s e

ach

pe

rson

with

Sb

H is a

n in

div

idu

al

no

t a

ll in

form

ation

will

be

rele

va

nt to

eve

ryo

ne

. In

all

insta

nce

s it

is a

dvis

ab

le t

ha

t em

plo

ye

rs w

ork

with

em

plo

ye

es o

n a

n

ind

ivid

ua

l b

asis

.

Wh

y e

mp

loy s

om

eo

ne w

ith

Sb

H?

Wh

at

is S

pin

a B

ifid

a a

nd

Hyd

rocep

halu

s?

F

req

uen

tly a

ske

d q

uesti

on

s (

FA

Q)

Skil

ls a

nd

ab

ilit

ies

B

en

efi

ts t

o t

he e

mp

loyer

Makin

g i

t W

ork

W

hat

I n

eed

to

kn

ow

F

or

the E

mp

loyer

·

Su

pp

ort

ed

E

mp

loym

en

t P

rog

ram

mes

·

Str

uctu

red

S

up

po

rt P

ackag

e

·

Dis

ab

ilit

y

Aw

are

ness

Tra

inin

g

·

Fin

an

cia

l S

up

po

rt

Fo

r th

e E

mp

loyee

·

Fo

cu

s o

n a

bil

ity

·

Co

-wo

rker

su

pp

ort

s

·

Sett

ing

tasks a

nd

p

rovid

ing

fe

ed

back

·

Part

of

the t

eam

·

Eq

uip

men

t an

d

ad

justm

en

ts

Leg

al

req

uir

em

en

ts

Facto

rs t

o C

on

sid

er

Case S

tud

ies

Case S

tud

y O

ne

C

ase S

tud

y T

wo

Gen

era

l In

form

ati

on

W

hat

is S

pin

a B

ifid

a a

nd

Hyd

rocep

halu

s?

S

pin

a B

ifid

a

Spin

a B

ifid

a m

eans s

plit

spin

e a

nd is a

con

ditio

n w

hic

h a

ffects

the d

evelo

pm

ent

of

the s

pin

al cord

(and o

ften B

rain

) of unborn

babie

s.

The s

pin

al cord

is a

‘tu

be’ of

nerv

es in t

he b

ack w

hic

h p

rovid

e a

ll th

e c

onnections b

etw

een t

he b

rain

an

d b

od

y,

for

sensation

, contr

ol of

movem

ent

and c

ontr

ol of

bla

dder.

D

uring p

reg

nancy if

the tis

sue t

hat becom

es the s

pin

al cord

fails

to form

into

a c

om

ple

te ‘tu

be’ it

lea

ves a

n a

rea o

f undevelo

ped n

erv

e t

issue w

hic

h d

oes n

ot

pro

vid

e t

he n

ecessary

conn

ections b

etw

een t

he b

rain

and t

he b

od

y.

The

vert

ebra

e (

backbo

nes)

surr

ound

ing t

his

aff

ecte

d a

rea d

o n

ot

clo

se f

ully

to p

rovid

e a

pro

tective r

ing a

rou

nd t

he u

nd

evelo

ped n

erv

e t

issue;

this

is t

he s

pilt

refe

rred to in t

he n

am

e.

Possib

le e

ffects

:

Mob

ility

issues –

indiv

iduals

may r

equ

ire w

alk

ing a

ids a

nd in s

om

e c

ases w

hee

l cha

irs.

B

ladder

& B

ow

el pro

ble

ms

P

oor

circula

tio

n a

nd loss o

f skin

sensation

Hyd

roc

ep

halu

s

Every

one p

rod

uces a

flu

id in t

he b

rain

calle

d c

ere

bro

-spin

al fluid

(C

SF

). T

his

liq

uid

flo

ws a

rou

nd t

he b

rain

an

d s

pin

al cord

and into

the

blo

odstr

eam

, but

in c

ases w

here

a p

ers

on h

as H

ydro

ceph

alu

s t

he f

luid

becom

es t

rapped insid

e s

paces w

ithin

the b

rain

. A

s t

he b

rain

is

enclo

se

d w

ithin

the s

kull,

pre

ssure

ris

es a

nd p

eople

becom

e ill

unle

ss t

he

y g

et

treatm

ent. T

he tre

atm

ent

is u

sually

the insert

ion o

f a t

ube

(shunt)

to d

rain

the f

luid

to a

noth

er

part

of

the b

od

y. W

hen a

shunt

has b

een insert

ed it

is a

n inte

rnal unseen p

rocess.

Possib

le E

ffects

:

Difficultie

s w

ith w

ork

ing m

em

ory

or

short

term

mem

ory

Concentr

atio

n

R

eason

ing

Org

anis

ation

Co-o

rdin

ation

G

en

era

l In

form

ati

on

Fre

qu

en

tly a

ske

d q

uesti

on

s (

FA

Q)

Ho

w s

ho

uld

I s

up

po

rt a

n e

mp

loye

e w

ith

Sb

H i

n t

he w

ork

pla

ce?

C

onsult w

ith t

he ind

ivid

ual to

identify

an

y s

upp

ort

needs t

hey m

ay h

ave in r

ela

tion t

o t

heir job r

ole

. S

om

e e

mplo

yees w

ith S

bH

may f

ind it

help

ful to

:

Have t

asks a

ssig

ned o

ne

at

a t

ime

Have r

ealis

tic t

arg

ets

and

appro

priate

tim

e f

ram

es s

et in

rela

tion t

o t

asks

Have a

n e

sta

blis

hed a

nd

str

uctu

red w

ork

ing r

outine (

daily

/ w

eekly

basis

) H

ave n

atu

ral su

pport

s in w

ork

pla

ce –

mento

r or

budd

y.

A

re t

here

tra

dit

ion

al jo

b t

yp

es t

hat

peo

ple

wit

h S

bH

are

su

ited

to

?

No.

All

people

are

tre

ate

d a

s indiv

idua

ls a

nd w

ill h

ave p

revio

us e

xperi

ence a

nd q

ualif

ications t

o m

eet th

e r

equirem

ents

of

ma

ny

job r

ole

s.

There

are

many p

eople

with S

bH

wh

o c

om

ple

te u

ntr

aditio

na

l ro

les.

Wh

at

hap

pen

s if

there

is a

pro

ble

m in

th

e w

ork

pla

ce?

There

are

support

org

anis

ations t

hat

can h

elp

with a

ssis

tance a

nd g

uid

ance.

Each c

ountr

y h

as p

rogra

mm

es that

are

deliv

ere

d t

o s

upport

em

plo

yers

and indiv

idua

ls t

o r

eta

in t

heir jobs.

F

am

ily m

em

bers

are

a g

ood p

oin

t of

conta

ct

should

oth

er

help

not

be a

vaila

ble

. Is

th

ere

fin

an

cia

l assis

tan

ce f

or

the e

mp

loye

r?

T

his

will

vary

betw

een c

ountr

ies in E

uro

pe.

Som

e c

ountr

ies h

ave p

rog

ram

mes to h

elp

with t

rave

l and r

easo

nab

le a

dju

stm

ents

as

we

ll as p

hysic

al re

sourc

es.

Furt

her

info

rmation o

n f

inancia

l supp

ort

s is a

vaila

ble

by f

ollo

win

g t

he lin

k.

Wh

y E

mp

loy S

om

eo

ne w

ith

Sb

H

Skil

ls a

nd

Ab

ilit

ies

People

with S

bH

can b

e e

ffective e

mplo

ye

es.

An info

rmed k

no

wle

dg

e o

f th

e c

onditio

n w

ill e

nab

le y

ou identify

the indiv

idual’s s

kill

s a

nd

abili

ties a

nd o

ffer

a s

upport

ive w

ork

en

viro

nm

ent.

P

eople

with S

bH

:

·

Respon

d w

ell

to s

tructu

red r

outines

·

Are

eff

ective a

t com

ple

ting r

epetitive t

asks

·

Are

enth

usia

stic in t

heir a

ppro

ach t

o w

ork

·

Work

well

with c

lear

guid

ance a

nd instr

uction

·

Are

usually

pu

nctu

al an

d h

ave lo

w r

ate

s o

f absente

eis

m

Ben

efi

ts t

o E

mp

loyers

B

y e

mplo

yin

g s

om

eone w

ith S

bH

, em

plo

yers

ca

n:

·

Adva

nce t

heir C

orp

ora

te S

ocia

l R

esp

onsib

ility

agen

da;

by e

mplo

yin

g a

pers

on w

ith S

bH

you w

ill b

e s

ee

n a

s a

n e

mplo

yer

com

mitte

d t

o r

ecru

itin

g a

div

ers

e w

ork

forc

e t

hat re

flects

the local com

munity.

·

Incre

ase t

heir

custo

mer

base;

an e

mplo

yer

wh

ose w

ork

forc

e m

irro

rs the local com

munity m

ay incre

ase t

heir c

usto

mer

base a

s it

has b

een p

roven t

hat

people

react fa

voura

bly

to b

usin

esses t

hat

recru

it p

eople

with d

isabili

ties.

·

Gain

access t

o c

om

mitte

d a

nd e

nth

usia

stic e

mplo

yees w

ho u

sua

lly h

ave g

ood p

unctu

alit

y a

nd

lo

w r

ate

s o

f absente

eis

m.

·

Gain

access t

o s

tatu

tory

and v

olu

nta

ry s

ecto

r support

and g

uid

ance.

·

Impro

ved t

heir w

ork

forc

e m

ora

le;

by e

mplo

yin

g s

om

eone w

ith a

dis

abili

ty y

ou a

re d

em

onstr

ating t

o y

our

work

forc

e t

hat you a

re a

caring e

mplo

yer,

inte

reste

d in t

he h

ealth a

nd w

ellb

ein

g o

f your

sta

ff m

em

bers

.

Wh

at

I n

eed

to

Kn

ow

L

eg

al

Req

uir

em

en

ts

The U

N C

on

ventio

n o

n t

he R

ights

of

Pers

ons w

ith D

isabili

ties A

rtic

le 2

7:

Wo

rk a

nd

em

plo

ym

en

t sta

tes that

people

with d

isabili

ties

ha

ve t

he r

ight

to w

ork

in

clu

din

g t

he r

ight

to w

ork

in a

n e

nvironm

ent

that

is o

pen,

inclu

siv

e a

nd a

ccessib

le.

It

stipula

tes t

hat

countr

ies

must ta

ke a

ppro

priate

ste

ps t

o p

rom

ote

em

plo

ym

en

t opport

unitie

s a

nd c

are

er

ad

vancem

ent fo

r people

with d

isab

ilities.

T

here

are

als

o s

pecific

la

ws w

ith

in e

ach m

em

ber

sta

te a

nd f

urt

her

info

rmation c

an b

e a

ccessed f

rom

We E

mpow

er

pa

rtner

org

anis

ations

or

from

the E

uro

pean U

nio

n o

f S

upport

Em

plo

ym

ent.

W

e E

mpo

wer

Part

ner

Org

anis

ations

Germ

any -

m.k

uenem

und@

josefs

heim

-big

ge.d

e

Rom

ania

- o

ffic

e@

ars

bh.r

o

Sw

itzerl

and

– g

eschaeft

sste

lle@

spin

a-h

ydro

.ch

and h

ttp:/

/ww

w.s

pin

a-h

ydro

.ch

U

nited K

ing

dom

– info

@cedar-

foundatio

n.o

rg a

nd w

ww

.ced

ar-

foundation.o

rg

Euro

pea

n U

nio

n o

f S

upport

ed E

mplo

ym

ent

htt

p:/

/ww

w.e

use.o

rg

A U

sefu

l Website f

or

Dutc

h E

mplo

yers

w

ww

.uw

v.n

l

Facto

rs t

o C

on

sid

er

Facto

rs t

o c

on

sid

er – d

o n

ot

be a

fraid

to

dis

cu

ss d

isab

ilit

ies w

ith

po

ten

tial

em

plo

yees:

ad

dre

ssed

sen

sit

ively

an

d w

ith

em

path

y,

mo

st

peo

ple

will

ap

pre

cia

te y

ou

r ti

me a

nd

eff

ort

to

en

su

re a

sm

oo

th in

du

cti

on

in

to y

ou

r b

usin

ess o

r co

mp

an

y.

Pra

cti

cal

Arr

an

gem

en

ts

1.

Health a

nd S

afe

ty

Em

plo

yers

should

consid

er

wheth

er

the w

ork

ing

are

a a

ssig

ne

d t

o t

he e

mplo

yee w

ith d

isabili

ty is s

uitable

for

exam

ple

, e

quip

ment

they

need t

o u

se,

their

desk o

r w

ork

bench h

eig

ht,

the c

hair t

hey w

ill u

se o

r w

heth

er

space f

or

a w

heel chair is r

eq

uired.

A w

ork

pla

ce a

ssessm

ent

will

identify

if

a w

ork

space is s

uited t

o t

he u

ser.

It should

consid

er

specia

lised e

quip

ment,

ease o

f use o

f m

achin

ery

an

d s

afe

work

ing p

ractices.

This

check c

an b

e u

sed t

o e

nsure

the a

rea is c

lear

and o

bsta

cle

fre

e f

or

all

sta

ff t

o e

limin

ate

ris

k.

Work

pla

ce a

ssessm

ents

can b

e c

om

ple

ted in p

art

ners

hip

with s

tatu

tory

or

volu

nta

ry s

ecto

r spe

cia

lists

.

Lik

e a

ny o

ther

em

plo

ye

e,

the p

ers

on w

ith

SbH

will

ne

ed t

o h

ave a

n u

nders

tandin

g o

f health a

nd s

afe

ty p

olic

ies a

nd p

rocedure

s.

People

w

ith S

bH

may h

ave c

og

nitiv

e issues w

hic

h c

an im

pact

on the

ir a

bili

ty t

o p

rocess a

nd r

eta

in info

rmation. T

o h

elp

addre

ss t

his

, re

gula

r drills

an

d c

hecklis

ts s

ho

uld

be in p

lace t

o a

id t

he p

ers

on.

There

may b

e m

obili

ty issues t

hat

nee

d t

o b

e a

ddre

ssed f

or

health a

nd s

afe

ty,

evacuatio

n a

nd a

ccess.

2.

Access

Physic

al -

It is im

port

ant to

revie

w t

he a

ccessib

ility

and s

uitabili

ty o

f your

build

ing,

both

inte

rna

lly a

nd e

xte

rnally

. T

his

in

clu

des t

he

park

ing f

acili

ties,

lifts

and s

tairs,

the w

ork

are

a a

nd t

he t

oile

ts.

As m

any p

eop

le w

ith S

bH

ha

ve m

obili

ty issues t

he

y m

ay u

se w

heelc

hairs

and w

alk

ing a

ids.

Info

rmation

- P

eople

with S

bH

ha

ve t

he r

ight

to a

ccess t

he s

am

e info

rmation a

s o

ther

em

plo

yee

s.

This

may n

eed t

o b

e in a

n a

ltern

ative

form

at or

layout

but

sho

uld

use c

lear

and s

imple

langu

age.

3.

Reason

able

adju

stm

ents

Where

reasonable

adju

stm

ents

have b

een p

ut

in p

lace,

they s

hould

be r

evie

we

d a

t th

e e

nd o

f th

e e

mplo

ye

e’s

in

ductio

n a

nd p

rob

ationary

periods.

Reg

ula

r on

-goin

g r

evie

ws w

ill h

elp

to identify

wheth

er

arr

an

ge

ments

are

work

ing a

nd a

re s

till

suitable

.

Issu

es t

o C

lari

fy

Every

pers

on w

ith S

bH

is d

iffe

rent and indiv

idua

l and t

he im

pact

of

their d

isabili

ty w

ill d

iffe

r. T

here

fore

people

with S

bH

are

expert

s o

n

their o

wn n

ee

ds a

nd a

bili

ties a

nd it

is b

est

that

the

y a

re c

onsulte

d o

n t

he s

upport

s o

r adju

stm

ents

they m

ight

require.

Issu

es t

hat

an

em

plo

yer

may n

eed t

o s

eek c

larification o

n inclu

de:

·

Concentr

atio

n –

does t

he e

mplo

ye

e f

ind it

difficult t

o c

oncentr

ate

in a

nois

y o

r b

usy e

nvironm

ent?

·

Fatigue –

does t

he e

mplo

yee t

ire e

asily

and r

eq

uire e

xte

nde

d o

r m

ore

regula

r bre

aks?

·

Perc

eption a

nd O

rienta

tion –

does t

he e

mplo

ye

e n

eed h

elp

to n

avig

ate

the

ir w

ay a

roun

d t

he w

ork

pla

ce?

·

Pers

onal C

are

– d

oes t

he indiv

idu

al nee

d a

ny a

dju

stm

ents

to t

heir w

ork

ing r

outine o

r access t

o s

pecific

facili

ties.

Confidentialit

y

It is im

port

ant to

respect

an e

mplo

yee

’s r

ight

to c

onfidentialit

y a

bo

ut

their im

pairm

ent and a

ny n

eeds r

ela

tin

g t

o it.

Eve

ryo

ne is e

ntitled t

o

pers

ona

l in

form

ation b

ein

g k

ept

private

. P

eople

with d

isabili

ties o

ften h

ave v

ery

bad e

xperie

nce

s o

f pers

onal in

form

ation b

ein

g s

hare

d

about

them

and t

his

has s

om

etim

es r

esulted in h

ara

ssm

ent

and a

buse.

So e

mplo

yers

should

thin

k v

ery

care

fully

ab

ou

t w

hat

info

rmation

they n

eede

d t

o k

no

w,

ho

w m

uch n

eeds t

o b

e s

hare

d w

ith o

ther

em

plo

yees a

nd h

ow

to r

espect

peop

le’s

confidentia

lity.

Dis

ab

ilit

y E

tiq

uett

e

If y

ou t

hin

k t

hat

an e

mplo

yee

may n

eed a

ssis

tance,

ask t

hem

befo

re y

ou d

o a

nyth

ing.

Alw

ays a

sk t

he e

mplo

yee

what

is t

he b

est

wa

y t

o h

elp

, and lis

ten c

are

fully

. •

Never

talk

do

wn t

o o

r b

e p

atr

onis

ing t

o a

n e

mplo

yee w

ho h

as a

dis

abili

ty.

Never

lean o

n o

r gra

b a

pers

on’s

whe

elc

ha

ir w

ithout

their p

erm

issio

n.

Rem

em

ber

to a

lwa

ys t

alk

to a

n e

mplo

yee w

ith a

dis

abili

ty d

irectly,

not

to t

heir c

o-w

ork

ers

. •

Don’t lab

el som

eone b

y t

heir d

isabili

ty o

r con

ditio

n

Don’t u

se t

erm

s that

are

com

monly

used t

o c

au

se o

ffence, even if

they a

re c

orr

ect

by d

efinitio

n

Respect

the e

mplo

ye

e’s

pre

fere

nce

Ten

th

ing

s n

ot

to s

ay t

o a

Dis

ab

led

Pers

on

1.

It’s

okay,

I’ve w

ork

ed w

ith t

he d

isable

d

2.

Is y

our

wife d

isable

d t

oo?

3.

Was it

an a

ccid

ent

or

were

yo

u b

orn

lik

e t

his

?

4.

If I b

ecam

e d

isable

d I

thin

k I

’d k

ill m

yself

5.

I sa

w t

his

gre

at

thin

g o

n T

V that

would

really

help

you.

6.

There

’s a

dis

ab

led p

ers

on liv

es d

ow

n m

y s

treet.

7.

I had a

friend lik

e y

ou o

nce b

ut

he w

as a

bit w

ors

e.

8.

It m

ust be n

ice t

o g

et

out.

9.

I th

ink y

ou’re b

rave.

10. I

really

adm

ire y

ou t

he w

ay y

ou p

rete

nd t

here

is n

oth

ing w

ron

g.

Makin

g i

t W

ork

- F

or

the E

mp

loye

r S

up

po

rte

d E

mp

loym

en

t P

rog

ram

mes

P

rogra

mm

es o

f support

ed e

mplo

ym

ent

have b

een u

sed a

cro

ss E

uro

pe t

o f

acili

tate

the e

mplo

ym

ent

of

people

with d

isabili

ties f

or

more

th

an t

wo d

ecades.

Sup

port

ed E

mplo

ym

ent

assis

ts p

eople

with s

ignific

ant

dis

abili

ties (

ph

ysic

al, inte

llectu

al, p

sychia

tric

, sensory

and

hid

den)

to a

ccess r

eal e

mplo

ym

ent

opport

unitie

s,

of

their o

wn c

hoic

e,

in a

n inte

gra

ted s

ett

ing w

ith a

ppro

pri

ate

on

-goin

g s

upport

to

becom

e e

conom

ically

and s

ocia

lly a

ctive in t

heir

ow

n c

om

munitie

s.

The m

odel is

applie

d w

ith

in e

ach m

em

ber

sta

te t

hro

ugh a

rang

e o

f sta

tuto

ry a

nd v

olu

nta

ry s

ecto

r pro

gra

mm

es a

nd s

erv

ices.

The E

uro

pean U

nio

n o

f S

upport

ed E

mplo

ym

ent

(EU

SE

) w

as e

sta

blis

he

d in 1

993 t

o f

acili

tate

the d

evelo

pm

ent

of

Support

ed E

mplo

ym

ent

thro

ugho

ut

Euro

pe.

T

his

org

anis

ation s

upp

lies info

rmation o

n t

he s

upp

ort

ed e

mplo

ym

ent

serv

ices a

va

ilab

le in t

he m

ajo

rity

of

mem

ber

sta

tes

htt

p:/

/ww

w.e

use.o

rg .

E

US

E h

as d

evelo

ped a

com

pre

hensiv

e t

oolk

it o

n s

upport

ed e

mplo

ym

ent

and t

his

is a

vaila

ble

on t

he E

US

E

we

bsite.

In 2

012 E

US

E e

ngage

d in a

Euro

pean

pro

ject

to c

usto

mis

e the t

oolk

it t

o m

em

ber

sta

tes a

nd t

o o

ther

gro

ups d

isad

va

nta

ged in

the labour

mark

et.

Info

rmation o

n t

he s

upport

ed e

mplo

ym

ent

pro

gra

mm

es a

vaila

ble

within

the c

ountr

ies o

f th

e W

e E

mpo

wer

part

ners

hip

can b

e a

ccessed

thro

ugh t

he f

ollo

win

g lin

ks.

We E

mpo

wer

Part

ners

G

erm

any -

m.k

uenem

und@

josefs

heim

-big

ge.d

e

Rom

ania

- o

ffic

e@

ars

bh.r

o

Sw

itzerl

and -

gesch

aeft

sste

lle@

spin

a-h

ydro

.ch

and h

ttp:/

/ww

w.s

pin

a-h

ydro

.ch

U

nited K

ing

dom

– info

@cedar-

foundatio

n.o

rg a

nd w

ww

.ced

ar-

foundation.o

rg

Euro

pea

n a

nd N

ational U

nio

ns o

f S

upport

ed E

mplo

ym

ent

Euro

pea

n -

htt

p:/

/ww

w.e

use.o

rg

Germ

any -

htt

p://w

ww

.bag-u

b.d

e/

T

he N

eth

erlan

ds -

htt

p://w

ww

.nvsu

pport

.nl/

Sw

itzerl

and -

htt

p:/

/ww

w.s

up

port

edem

plo

ym

ent-

sch

weiz

.ch/

U

nited K

ing

dom

- h

ttp://b

ase-u

k.o

rg/

(Engla

nd),

htt

p://w

ww

.niu

se.o

rg.u

k/

(Nort

hern

Ire

land),

htt

p:/

/ww

w.s

usescotlan

d.c

o.u

k/

(Scotland)

Str

uctu

red

Su

pp

ort

Pa

ckag

e

The E

uro

pean U

nio

n o

f S

upport

ed E

mplo

ym

ent

(EU

SE

) in

its

Positio

n P

aper

on W

ork

ing w

ith E

mplo

yers

recom

mends t

hat

serv

ice

pro

vid

ers

shou

ld b

e a

ware

that

em

plo

yers

may h

ave a

dd

itio

na

l n

eeds o

ther

than

sim

ply

the r

ecru

itm

ent

of

labour

reso

urc

es.

Th

ese c

an

in

clu

de d

isa

bili

ty a

ware

ness t

rain

ing,

kno

wle

dg

e o

f govern

ment

support

/fundin

g p

rogra

mm

es a

nd p

ractical solu

tio

ns t

o h

ealth,

safe

ty a

nd

dis

abili

ty

em

plo

ym

ent

issues.

More

over,

em

plo

yers

oft

en

require

assis

tance

with

de

velo

pin

g

an

d

intr

oducin

g

good

pra

ctice

an

d

em

plo

ym

ent

polic

ies c

oncern

ing e

mplo

yees a

nd a

pplic

ants

with d

isab

ilities.

We E

mpo

wer

part

ners

and

oth

er

volu

nta

ry secto

r org

anis

atio

ns acro

ss E

uro

pe w

ork

in

p

art

ners

hip

w

ith em

plo

yers

to

secure

w

ork

pla

cem

ents

and e

mplo

ym

ent

opport

unitie

s f

or

people

with d

isab

ilities.

The s

upport

availa

ble

to

em

plo

yers

inclu

des:

§

Fre

e,

targ

ete

d s

erv

ice p

rovid

ing a

ne

w s

ourc

e o

f skill

s a

nd t

ale

nt;

§

Support

and a

dvic

e t

hro

ugho

ut fr

om

experie

nce

d s

upport

sta

ff a

nd ‘on

-the job’ support

if

required;

§

Dis

abili

ty E

qualit

y T

rain

ing a

nd A

dvic

e;

§

Secure

Good P

ublic

ity;

§

Corp

ora

te S

ocia

l R

esp

onsib

ility

- o

pp

ort

unity f

or

part

ners

hip

an

d e

nha

ncin

g r

eputa

tio

n o

f com

pan

y;

§

Advic

e a

nd p

ractica

l su

pport

on p

ositiv

e a

ctio

n;

§

Advic

e o

n e

mplo

yer

gra

nts

and f

inancia

l assis

tance;

§

Support

and a

dvic

e o

n r

easona

ble

adju

stm

ents

, fo

r serv

ice

users

taken o

n a

s n

ew

em

plo

ye

es,

or

exis

tin

g s

taff

who

ha

ve

acqu

ire

d

an illn

ess o

r dis

abili

ty.

Dis

ab

ilit

y A

ware

ness T

rain

ing

Fin

an

cia

l S

up

po

rts

T

he f

inancia

l su

pport

s a

va

ilab

le t

o e

mplo

yers

who a

re e

mplo

yin

g a

pers

on w

ith a

dis

ab

ility

vary

fro

m m

em

ber

sta

te t

o m

em

ber

sta

te.

Furt

her

info

rmation o

n the a

rrang

em

ents

in p

lace in e

ach m

em

ber

sta

te c

an b

e a

ccessed b

y c

onta

cting m

em

bers

of

the W

e E

mpow

er

part

ners

hip

or

from

the E

uro

pea

n U

nio

n o

f S

upport

ed E

mplo

ym

ent

(EU

SE

).

We E

mpo

wer

Part

ners

G

erm

any -

m.k

uenem

und@

josefs

heim

-big

ge.d

e

Rom

ania

- o

ffic

e@

ars

bh.r

o

Sw

itzerl

and

- g

esch

aeft

sste

lle@

spin

a-h

ydro

.ch

and h

ttp:/

/ww

w.s

pin

a-h

ydro

.ch

U

nited K

ing

dom

– info

@cedar-

foundatio

n.o

rg a

nd w

ww

.ced

ar-

foundation.o

rg

Euro

pea

n U

nio

n o

f S

upport

ed E

mplo

ym

ent

htt

p:/

/ww

w.e

use.o

rg

Makin

g i

t W

ork

- F

or

the E

mp

loye

e

Fo

cu

s o

n A

bil

ity

D

isable

d e

mplo

yees g

enera

lly s

tay in t

he

ir job f

or

longer

than t

he

ir n

on

-dis

able

d c

ounte

rpart

s.

They h

ave a

str

ong c

om

mitm

ent to

work

, as w

ell

as g

oo

d p

unctu

alit

y r

ecord

s a

nd lo

w a

bsente

e r

ate

s.

As a

n e

mplo

yer

it is e

ssential th

at

you c

oncentr

ate

on t

he

ab

ilities o

f your

dis

able

d e

mplo

yee a

nd t

he a

ttribute

s t

hat

they b

ring t

o t

he p

ost

and y

our

org

anis

ation,

rath

er

than o

n t

he c

halle

nges t

hat

their d

isabili

ty

may b

ring.

D

iscuss w

ith y

our

dis

able

d e

mplo

yees t

he s

upport

that

yo

u c

an p

rovid

e t

o e

nable

them

to

do t

heir job.

You c

ould

in

vite n

ew

em

plo

ye

es t

o look a

rou

nd y

our

pre

mis

es b

efo

re t

hey b

egin

work

in o

rder

to a

ssess w

hat

adju

stm

ents

mig

ht

be r

equire

d.

When c

om

munic

ating w

ith a

pers

on w

ith d

isa

bili

ty,

treat

the p

ers

on w

ith t

he s

am

e r

espect

you w

ould

oth

er

people

. T

he focus s

hould

be

on inte

racting w

ith t

he p

ers

on a

nd n

ot

their d

isa

bili

ty.

People

with d

isab

ility

are

usu

ally

exp

ert

s in t

heir o

wn n

ee

ds,

so if

yo

u h

ave a

ny

questions a

bout

what

will

make t

hem

most com

fort

able

, ask t

hem

first.

S

om

e e

mplo

ye

rs m

ay feel in

tim

idate

d o

r uncom

fort

able

about

ho

w t

o a

ddre

ss d

isa

ble

d p

eop

le f

or

fear

of

sayin

g t

he w

rong t

hin

g.

Tip

s o

n

usin

g t

he r

ight

langua

ge

inclu

de:

·

not

definin

g a

dis

ab

led p

ers

on b

y t

heir im

pairm

ent

and f

ocusin

g o

n t

he

abili

ties a

nd t

he a

ttribute

s t

hat

they b

ring t

o t

he

job

·

addre

ssin

g d

isa

ble

d e

mplo

yees in t

he s

am

e w

ay a

s y

ou w

ou

ld a

ddre

ss a

ll oth

er

em

plo

ye

es

·

com

munic

ating d

irectly w

ith y

our

dis

ab

led e

mplo

yees,

even if

accom

panie

d b

y a

n inte

rpre

ter

or

com

panio

n

·

not

att

em

pting t

o s

peak f

or

- or

finis

h t

he s

ente

nce o

f -

a d

isable

d e

mplo

ye

e t

hat

you a

re c

om

munic

atin

g w

ith

Co

-wo

rker

Su

pp

ort

s

Co-w

ork

er

supp

ort

has r

eceiv

ed a

n incre

asin

g a

mount

of

attention r

ecently d

ue t

o t

he p

ositiv

e e

ffects

it can h

ave in t

he w

ork

pla

ce.

It c

an

incre

ase job s

atisfa

ction a

nd h

as b

ee

n f

ound t

o h

elp

red

uce w

ork

str

ess.

Men

tori

ng

can e

ncoura

ge a

nd s

up

port

care

er

develo

pm

ent

and c

an b

e p

art

icula

rly u

sefu

l in

build

ing c

onfidence a

nd e

xplo

rin

g t

rain

ing o

r de

velo

pm

ent needs c

on

fidentially

. M

ento

rs c

an

off

er

indiv

idua

ls w

ith S

bH

guid

ance o

n a

ppro

priate

inte

rpers

onal skill

s a

nd w

ork

beha

vio

urs

, assis

t w

ith o

ne

-on-o

ne job t

rain

ing a

t th

e w

ork

site,

pro

ble

m-s

olv

e a

s n

eed

ed,

and h

elp

acclim

atise t

he indiv

idual to

the

work

pla

ce.

It

may b

e b

eneficia

l fo

r a d

isable

d e

mplo

ye

e t

o b

e m

ento

red b

y a

colle

ague w

ho is a

lso d

isab

led,

perh

aps w

here

that

pers

on h

as d

irect

experie

nce o

f care

er

pro

gre

ssio

n.

A b

ud

dy s

yste

m is a

no

ther

type o

f m

ento

ring,

wh

ere

on

e e

mplo

ye

e is a

ssig

ne

d t

o look o

ut

for

anoth

er.

This

could

inclu

de w

ork

ing

alo

ngsid

e s

om

eone w

hile

learn

ing t

he job o

r pro

vid

ing s

om

eone t

o g

o t

o if

there

is a

pro

ble

m. T

his

can b

e a

usefu

l ty

pe

of

su

pport

syste

m -

both

in t

he s

hort

and t

he longer

term

. T

he s

upport

should

be r

egula

rly r

evie

we

d w

ith a

vie

w t

o p

lanne

d w

ithdra

wal if a

nd w

hen it

is n

o longer

requ

ired.

When w

ork

ing w

ith a

co-w

ork

er

with d

isa

bili

ty,

it is im

port

ant to

consid

er

their g

oals

, str

ength

s,

skill

s a

nd r

esourc

es r

ath

er

than t

heir d

isab

ility

.

Sett

ing

Tasks a

nd

Pro

vid

ing

Fe

ed

bac

k

Som

e t

actics t

hat

help

people

with S

bH

learn

ho

w t

o d

o a

job

inclu

de:

• bre

akin

g t

he job d

ow

n into

separa

te t

asks

• pro

vid

ing instr

uctio

ns in a

form

at

accessib

le t

o t

he p

ers

on

• checkin

g t

hat

the p

ers

on h

as u

nd

ers

tood a

nd,

if n

ecessary

, re

peating instr

uctions

• sho

win

g s

om

eone h

ow

to d

o a

task

• checkin

g t

hat

the p

ers

on

has u

nd

ers

tood a

nd,

if n

ecessary

, sho

win

g t

hem

again

. S

upport

fro

m lin

e m

anagers

or

superv

isors

can t

ake t

he f

orm

of

giv

ing instr

uctions m

ore

than o

nce,

checkin

g t

hat

som

eone h

as

unders

too

d s

om

eth

ing a

nd/o

r checkin

g m

ore

fre

que

ntly t

hat

the

y h

ave c

arr

ied

out

the t

ask c

orr

ectly.

Lin

e m

anagers

or

superv

isors

need t

o m

onitor

arr

angem

ents

to e

nsure

the

y a

re w

ork

ing w

ell

for

dis

able

d e

mplo

yees.

In p

art

icula

r lin

e

managers

or

superv

isors

need t

o m

onitor

the a

dju

stm

ents

made t

o e

nsure

they a

re r

esponsiv

e t

o t

he d

isable

d p

ers

on’s

curr

ent

needs.

N

eeds c

an c

ha

nge a

nd a

dju

stm

ents

made s

hould

be f

lexib

le.

Part

of

the T

ea

m

The b

eha

vio

ur

of

work

colle

agues a

nd lin

e m

anagers

can b

e t

he c

rucia

l fa

cto

r in

wheth

er

som

eone w

ith S

bH

rem

ain

s in e

mplo

ym

ent.

Negative a

nd u

nh

elp

ful att

itudes w

ill u

nderm

ine a

n e

mplo

yee

’s c

onfidence a

nd m

ake it difficult f

or

them

to d

em

onstr

ate

their

com

pete

nce.

The d

evelo

pm

ent

of

natu

ral supp

ort

fro

m w

ork

colle

agues w

ill n

ee

d t

o b

e n

urt

ure

d.

This

is s

om

eth

ing t

hat

an e

mplo

ym

ent

support

w

ork

er,

or

a g

ood m

anager,

can d

o in t

he e

arl

y d

ays o

f som

eone’s

em

plo

ym

ent.

Most

org

an

isations h

ave ‘un

writt

en r

ule

s’ abo

ut

inte

raction b

etw

ee

n c

olle

ag

ues (

like w

ho m

akes t

he c

off

ee a

nd

where

peop

le s

it a

t bre

aks).

Som

e p

eople

will

com

e into

a w

ork

pla

ce a

nd p

ick t

hese r

ule

s u

p q

uic

kly

an

d e

asily

; oth

ers

will

fin

d it m

ore

difficult.

Som

etim

es a

taken

-for-

gra

nte

d w

ork

pla

ce p

ractice c

an p

ut

a p

ers

on w

ith

SbH

at

a d

isad

vanta

ge.

It w

ill b

e im

port

ant

in these

circum

sta

nces t

o r

ecognis

e t

hat

an a

dju

stm

ent is

required,

rath

er

than b

lam

ing t

he p

ers

on f

or

not

bein

g a

ble

to f

it in.

Wo

rk-r

ela

ted

so

cia

l even

ts a

re a

n im

port

ant

part

of

develo

pin

g a

healthy w

ork

en

vironm

ent. S

ocia

l e

ve

nts

do n

ot

just re

fer

to t

he

annu

al C

hristm

as p

art

y o

r th

e f

am

ily p

icnic

da

y,

but

inclu

de t

hin

gs lik

e F

riday n

ight

drinks a

nd s

port

ing g

rou

ps.

Just

like a

ny o

ther

em

plo

yee,

co

-work

ers

with S

bH

should

be inclu

ded in t

hese e

vents

, w

ith c

onsid

era

tions m

ade t

o e

nsure

that

the e

vent

facili

ties a

re f

ully

accessib

le t

o p

eo

ple

with d

isa

bili

ty.

For

exam

ple

, park

ing is a

vaila

ble

for

a c

o-w

ork

er

in a

whee

lcha

ir,

ram

ps o

r lif

ts a

re

availa

ble

rath

er

than s

tairs o

nly

.

Don’t a

ssum

e that

a p

ers

on c

annot

or

does n

ot

wa

nt

to b

e involv

ed s

imply

because t

he

y h

ave a

dis

abili

ty;

adju

stm

ents

can a

lmost

alw

ays b

e m

ade s

o t

hat every

one c

an b

e inclu

ded.

Eq

uip

me

nt

an

d A

dju

stm

en

ts

Em

plo

yees w

ith S

bH

may r

eq

uire s

pecific

adju

stm

ents

or

specia

lised e

quip

ment

to e

nable

them

to d

o t

heir job o

r to

com

ple

te r

equired

tasks m

ore

easily

. T

ypic

al equip

ment

and a

dju

stm

ents

are

lis

ted b

elo

w.

Equip

ment

·

Various k

eybo

ard

s –

siz

e,

weig

ht,

layout

·

Dic

tapho

nes

·

Ele

ctr

onic

note

takin

g

·

Clip

board

s

·

Tim

er

set

soft

ware

(ta

sk m

anagem

ent)

·

Non s

lip m

ats

/ d

esk s

urf

aces

·

Outlook c

ale

nd

ar

Adju

stm

ents

·

Adequate

desk /

chair h

eig

ht

·

Auto

matic d

oors

to b

uild

ings a

nd r

oom

s

·

Park

ing –

dis

able

d /

allo

cate

d s

paces a

vaila

ble

near

the e

ntr

ance

·

Appro

pri

ate

toile

t fa

cili

ties a

nd a

ccess

·

Build

ing a

ccess –

altern

ative e

ntr

ance,

goo

d lig

hting,

ram

p,

shallo

w s

teps a

nd h

an

dra

ils

·

Rest

room

·

Access t

o lunch /

sta

ff r

oom

s / c

ante

ens

·

Positio

n w

ithin

the b

uild

ing e

.g.

gro

und a

s o

ppo

sed t

o f

irst floor

·

Fle

xib

ility

– t

ime a

llocate

d f

or

appoin

tments

(dis

abili

ty r

ela

ted),

sta

rt a

nd e

nd t

imes

·

Regula

r bre

aks

·

Reallo

cation o

f ta

sks w

here

pro

ven d

ifficult

·

Sta

ff tra

inin

g

Case S

tud

ies

Germ

an

y

The J

OS

EF

S B

rew

ery

was f

ounde

d in 2

00

0 a

s a

n I

nte

gra

tion F

irm

(th

ese a

re S

ocia

l E

nte

rprise

s in G

erm

any w

hic

h e

mplo

y a

hig

h

perc

enta

ge o

f dis

able

d p

eop

le).

Initia

lly,

Josefs

heim

Big

ge o

pera

ted t

he c

om

pany a

s a

subsid

iary

of

its

Sheltere

d W

ork

shop b

ut,

sin

ce

1st J

anuary

2004,

JO

SE

FS

Bre

wery

has b

ee

n r

un a

s a

n ind

epen

dent,

non

-pro

fit,

lim

ited lia

bili

ty c

om

pany.

The J

OS

EF

S B

rew

ery

was s

et

up t

o s

uit t

he n

eeds o

f dis

able

d p

eople

and w

as a

barr

ier-

free b

rew

ery

rig

ht

from

the s

tart

. F

or

this

purp

ose,

all

machin

es a

nd e

quip

ment

were

custo

m-b

uilt

by t

he m

anufa

ctu

rer,

the f

irm

Kaspar

Schulz

in B

am

berg

, G

erm

any.

Accord

ing

to K

aspar

Schulz

, th

e J

OS

EF

S B

rew

ery

is t

he o

nly

bre

wery

in t

he w

orl

d t

hat

cate

rs t

o the n

eeds o

f dis

able

d e

mplo

ye

es.

The c

om

pany

describes its

elf a

s t

he f

irst

and,

to d

ate

, only

ba

rrie

r-fr

ee b

rew

ery

in E

uro

pe.

The b

rew

ery

opera

tion c

urr

ently e

mplo

ys e

ight

peop

le w

ith d

isa

bili

ties a

s w

ell

as t

hre

e p

eo

ple

with

out

dis

ab

ilities (

Man

ager,

Maste

r

Bre

wer,

Mechatr

onic

s T

echnic

ian).

They a

re a

ll em

plo

ye

d w

ith f

ull

socia

l in

sura

nce –

as o

ppose

d t

o e

mplo

yees in a

she

ltere

d w

ork

sho

p,

wh

o a

re s

upp

ort

ed b

y s

ocia

l fu

ndin

g,

in t

his

case, fr

om

regio

nal socia

l agencie

s.

The s

pectr

um

of

dis

abili

ties is w

ide (

physic

al, m

enta

l,

sensory

and le

arn

ing d

isabili

ties).

The e

mplo

yees o

f th

e b

rew

ery

pro

duce f

our

sort

s o

f JO

SE

FS

bra

nd b

eer

and e

ight

sort

s o

f alc

ohol-fr

ee b

evera

ges f

or

the J

osy b

ran

d.

The b

evera

ges h

ave b

een s

uccessfu

lly p

laced o

n t

he m

ark

et

in N

ort

h R

hin

e-W

estp

halia

as w

ell

as in t

he n

earb

y G

erm

an F

edera

l S

tate

s

of

Low

er

Saxon

y,

Hesse,

Thuringia

an

d R

hin

ela

nd

-Pala

tinate

. T

he m

id-r

ange g

oal is

to incre

ase t

he n

um

ber

of

em

plo

yees w

ith

dis

abili

ties t

o 1

6.

Ralf (

dis

abili

ty:

Spin

a b

ifid

a a

nd H

ydro

cep

halu

s)

has w

ork

ed in t

he J

OS

EF

S B

rew

ery

fro

m the s

tart

, sin

ce A

ugust

2000.

He is e

mplo

yed

full

tim

e a

nd w

ork

s 3

8.5

hours

per

week.

In t

he p

roductio

n p

rocess,

he is r

esponsib

le f

or

the f

inal in

spectio

n o

f th

e p

roducts

and,

in

additio

n,

for

the s

ale

of

the p

roducts

to c

usto

mers

fro

m the J

osefs

heim

. B

efo

re h

e c

hanged jobs t

o w

ork

in t

he b

rew

ery

, he w

ork

ed in t

he

Sheltere

d W

ork

shop o

f th

e J

osefs

heim

.

Ralf t

ravels

to w

ork

(ab

out

20 K

ilom

etr

es e

ach w

ay)

in h

is o

wn c

ar.

His

car

has b

een a

da

pte

d t

o h

is d

isabili

ty a

nd is e

quip

ped w

ith a

manual contr

ol to

accele

rate

and b

rake a

s w

ell

as a

n a

uto

matic g

earb

ox.

Both

the J

OS

EF

S B

rew

ery

an

d R

alf c

onsid

er

the c

oopera

tio

n t

o b

e t

horo

ugh

ly p

ositiv

e.

Ma

nag

er

Ste

fan M

eng

e is v

ery

satisfied w

ith t

he

perf

orm

ance o

f his

em

plo

yee.

Ralf d

escribes h

imself a

s a

pers

on w

ho lik

es t

o f

ace c

halle

ng

es.

Due t

o h

is d

isab

ility

, R

alf is n

ot

able

to

perf

orm

all

the jobs in t

he b

rew

ery

, fo

r exam

ple

: physic

al w

ork

as a

packer.

But,

accord

ing t

o S

tefa

n M

enge,

these w

ork

sta

tions c

ould

, if

the n

eed a

rises,

be a

da

pte

d a

nd t

here

by m

ade m

ore

accessib

le.

Ro

man

ia

A c

all

centr

e c

om

pany h

ired o

ve

r 40 p

ers

ons w

ith d

isabili

ties inclu

din

g t

wo w

ho h

ave s

pin

a b

ifid

a.

The c

all

centr

e a

ppro

ached

the

go

vern

ment

to a

sk if

they h

ire

d m

any p

eop

le w

ith d

isabili

ties t

hat

they c

ould

rece

ive

the t

ax f

rom

the c

om

panie

s w

ho d

on’t w

ant

to h

ire

peop

le w

ith d

isa

bili

ties.

This

was t

he ince

ntive t

o e

nsure

pe

ople

with d

isabili

ties w

ere

hire

d.

The c

all

centr

e,

and a

ll co

mpanie

s w

ho h

ire

peop

le w

ith d

isa

bili

ties is p

aid

and h

ave a

tax r

eduction f

rom

the s

tate

. F

urt

herm

ore

, th

e g

overn

ment

is n

ot

payin

g t

he s

ocia

l he

lp f

or

peop

le w

ith d

isa

bili

ties w

ho a

re in e

mplo

ym

ent.

Un

ited

Kin

gd

om

an

d N

ort

hern

Ire

lan

d

John is 2

5 y

ears

of

age a

nd h

as s

pin

a b

ifid

a a

nd h

ydro

ceph

alu

s.

He u

ses a

wh

eelc

hair.

John

was u

nem

plo

yed a

nd e

ngag

ed w

ith

Cedar’s N

ew

Deal fo

r D

isable

d P

eople

pro

gra

mm

e; a g

overn

ment fu

nded s

upport

ed e

mplo

ym

ent

initia

tive.

A s

upport

work

er

enga

ged w

ith J

ohn t

o initia

te a

job f

indin

g p

rogra

mm

e,

work

ing w

ith h

im to c

om

ple

te a

pplic

ation f

orm

s a

nd t

o d

eve

lop

his

inte

rvie

w s

kill

s.

John w

as s

uccessfu

l in

securing a

job w

ithin

a c

all

centr

e,

subje

ct

to s

uccessfu

l com

ple

tion o

f a t

wo w

eek t

rain

ing

pro

gra

mm

e.

Befo

re t

his

sta

rted,

John a

nd h

is s

upp

ort

work

er

met

with t

he e

mplo

yer

to c

onsid

er

what

reaso

nable

adju

stm

ents

neede

d t

o b

e m

ade.

The t

rain

ing w

as d

ue t

o b

e d

eliv

ere

d o

n t

he f

irst floor

of

the p

rem

ises a

nd t

he e

mplo

yer

agre

ed t

o p

urc

hase e

vacuation c

hairs f

or

use

during t

his

in

itia

l peri

od.

Nom

inate

d s

taff

were

als

o t

rain

ed

to p

rovid

e s

upport

to J

ohn in t

he e

vent

of

an e

merg

ency.

John s

uccessfu

lly c

om

ple

ted h

is t

rain

ing a

nd h

is e

mplo

yer

ensure

d t

ha

t he w

as b

ase

d in a

tea

m that

was locate

d o

n t

he g

roun

d f

loor.

T

he e

mplo

yer

has a

lso o

ffere

d t

o facili

tate

John

to w

ork

fro

m h

om

e w

he

n n

ecessary

. John’s

supp

ort

work

er

assis

ted h

im t

o take u

p the e

mplo

ym

ent

by a

dvo

cating o

n h

is b

ehalf,

by p

rovid

ing a

ssis

tance t

o s

ort

out

his

nationa

l in

sura

nce n

um

ber,

by e

xpla

inin

g h

is t

erm

s a

nd c

onditio

ns a

nd f

acili

tating t

he r

e-s

tructu

ring o

f his

socia

l security

ben

efits

. John h

as s

uccessfu

lly r

eta

ined h

is e

mplo

ym

ent fo

r over

a y

ear

and h

is e

mplo

yer

is v

ery

satisfied w

ith h

is p

erf

orm

ance.

Dis

ab

ilit

y E

qu

ality

Tra

inin

g f

or

Em

plo

yers

We E

mp

ow

er

uS

bH

We E

mpo

wer

uS

bH

is a

Eu

rope

an

pro

ject

invo

lvin

g s

even

pa

rtn

ers

fro

m G

erm

any,

Nort

he

rn

Ire

land

, R

om

ania

an

d S

witzerl

and

. T

he p

roje

ct

aim

s t

o e

xch

ang

e k

now

ledge

and

experi

en

ce

of

the

vocation

al tr

ain

ing a

nd e

mplo

ym

ent

of

pe

op

le

sp

ina b

ifid

a a

nd/o

r h

yd

roce

ph

alu

s;

resultin

g in t

he

too

lbo

x o

f in

str

um

en

ts w

hic

h p

rom

ote

and

facili

tate

econ

om

ic in

clu

sio

n.

This

on

line t

rain

ing r

eso

urc

e

is p

art

of

the

In

form

ation

, H

ints

an

d T

ips f

or

Em

plo

ye

rs T

ool.

Dis

ab

ilit

y E

qu

ali

ty T

rain

ing

•U

nd

ers

tan

din

g d

isa

bil

ity

in

so

cie

ty

•B

arr

iers

fa

ced

by

pe

op

le w

ith

dis

ab

ilit

ies

•T

he

le

ga

l co

nte

xt

•D

isa

bil

ity

eti

qu

ett

e –

wo

rkin

g w

ith

em

plo

ye

es

wit

h d

isa

bil

itie

s

•G

ett

ing

th

e m

ost

fro

m e

mp

loye

es

wit

h

dis

ab

ilit

ies

Un

ders

tan

din

g D

isab

ilit

y in

So

cie

ty

•M

od

els

of

Dis

ab

ilit

y

Un

ders

tan

din

g D

isab

ilit

y in

So

cie

ty -

Med

ica

l M

od

el

•T

raditio

na

l vie

w o

f dis

abili

ty.

•D

isa

ble

d p

eop

le a

re s

ee

n a

s t

he

pro

ble

m.

They

ne

ed

to

cha

ng

e a

nd

ad

ap

t to

circum

sta

nce

s.

•T

here

is n

o s

ug

ge

stio

n t

ha

t socie

ty n

eed

s t

o

ch

an

ge

.

Un

ders

tan

din

g D

isab

ilit

y in

So

cie

ty -

So

cia

l M

od

el

•T

he S

ocia

l M

od

el se

es the

pe

rson

as d

isa

ble

d b

y

so

cie

ty.

‘The

im

pa

irm

ent

is n

ot

in its

elf a

pro

ble

m,

even

tho

ugh

it

may p

roduce a

ne

ed f

or

a d

iffe

rent se

t

of

livin

g r

eq

uir

em

en

ts.’

Un

ders

tan

din

g D

isab

ilit

y in

So

cie

ty -

So

cia

l M

od

el

Co

nseq

ue

nces a

re t

here

are

ba

rrie

rs to:

•E

mplo

ym

ent

•E

du

ca

tion

•P

ub

lic tra

nsp

ort

•Liv

ing

indep

end

ently a

nd

liv

e their o

wn

lifesty

le

Inte

rven

tions

•R

em

ove the d

isablin

g b

arr

iers

and

rein

sta

te

citiz

enship

rig

hts

EN

VIR

ON

ME

NTA

L

Ho

w t

hin

gs a

re b

uil

t O

bsta

cle

s t

o inclu

sio

n a

s a

result o

f th

e p

hysic

al/built

environm

ent

in w

hic

h w

e

live

Acce

ss t

o:

Build

ings

Public

Utilit

ies

Public

Tra

nsport

Info

rmation

Education

Leis

ure

Choic

e in L

ife

Choic

e in L

ivin

g O

ptions

Barr

iers

Faced

by P

eo

ple

wit

h

Dis

ab

ilit

ies -

En

vir

on

me

nta

l

ST

RU

CT

UR

AL

Ho

w t

hin

gs a

re r

un

C

reate

d b

y t

he s

tructu

re o

f m

any o

f our

activitie

s,

part

icula

rly in t

he a

rea o

f

em

plo

ym

ent.

Exam

ple

s:

9-5

work

ing d

ay

Work

conditio

ns

Rig

id w

ork

tim

eta

ble

s

Pro

ductivity t

arg

ets

in w

ork

pla

ce/c

om

petitive m

ark

ets

/com

petitive s

port

s

Barr

iers

Faced

by P

eo

ple

wit

h

Dis

ab

ilit

ies -

Str

uctu

ral

AT

TIT

UD

INA

L

Ho

w p

eo

ple

th

ink

T

hese c

an b

e h

idden b

ut

are

oft

en t

he b

iggest

barr

iers

.

Exam

ple

s:

Jokes

Patr

onis

ing b

ehavio

ur

Inappro

priate

language

Public

ste

reoty

pes–m

edia

Fear

and m

isunders

tandin

g

No e

ffort

to e

mplo

y d

isable

d p

eople

– e

conom

ic r

easons

Bein

g m

ade t

o feel th

ey a

re t

he p

roble

m

Barr

iers

Faced

by P

eo

ple

wit

h

Dis

ab

ilit

ies A

ttit

ud

inal

Th

e L

eg

al C

on

text

Th

e U

nit

ed

Nati

on

s C

on

ven

tio

n o

n t

he R

igh

ts o

f

Pers

on

s w

ith

Dis

ab

ilit

ies U

NC

RP

D

•T

he U

nited N

ations C

onvention o

n t

he R

ights

of

Pers

ons

with D

isabili

ties is a

new

inte

rnational agre

em

ent.

•T

he a

gre

em

ent,

als

o k

now

n a

s a

tre

aty

, says t

hat people

with d

isabili

ties h

ave t

he s

am

e h

um

an r

ights

as e

very

one

els

e.

•A

rtic

le 2

7 –

people

with d

isabili

ties h

ave t

he r

ight

to w

ork

in a

n o

pen,

inclu

siv

e a

nd a

ccessib

le e

nvironm

ent.

•T

here

may b

e s

pecific

legis

lation r

ele

vant

to y

our

countr

y

– c

heck o

ut th

e L

egal R

equirem

ents

Wo

rkin

g w

ith

em

plo

yees w

ith

dis

ab

ilit

y -

Dis

ab

ilit

y E

tiq

uett

e

•If

you t

hin

k t

hat an e

mplo

yee m

ay n

eed a

ssis

tance,

ask

them

befo

re y

ou d

o a

nyth

ing.

•A

lways a

sk the e

mplo

yee w

hat

is t

he b

est

way t

o h

elp

,

and lis

ten c

are

fully

.

•N

ever

talk

dow

n t

o o

r be p

atr

onis

ing t

o a

n e

mplo

yee w

ith

dis

abili

ty.

•N

ever

invade p

ers

onal space.

•If

you d

on’t u

nders

tand w

hat

an e

mplo

yee is s

ayin

g –

seek c

larification.

•R

em

em

ber

to a

lways t

alk

to a

dis

able

d e

mplo

yee d

irectly,

not to

their c

o-w

ork

ers

.

Wo

rkin

g w

ith

Em

plo

yees w

ith

Dis

ab

ilit

y -

Dis

ab

ilit

y L

an

gu

ag

e

Polit

ical C

orr

ectn

ess o

r P

olit

en

ess a

nd

Court

esy

Word

s t

o U

se

•A

pers

on w

ith s

pin

a b

ifid

a

•W

heelc

hair U

ser

•P

ers

on w

ith a

physic

al

dis

abili

ty

•P

ers

on w

ith a

learn

ing

dis

abili

ty

•S

om

eone w

ith a

dis

abili

ty

Word

s t

o A

void

Vic

tim

of

spin

a b

ifid

a o

r hunchback

Wheelc

hair b

ound

•C

ripple

•R

eta

rd

Handic

apped

Wo

rkin

g w

ith

Em

plo

yees w

ith

Dis

ab

ilit

y -

Dis

ab

ilit

y L

an

gu

ag

e

Ten

th

ing

s n

ot

to s

ay t

o a

pers

on

wit

h d

isa

bil

ity

•It’s

okay,

I’v

e w

ork

ed

with t

he d

isa

ble

d

•Is

yo

ur

wife d

isa

ble

d too?

•W

as it an a

ccid

ent or

were

you b

orn

lik

e this

?

•If I

becam

e d

isab

led I t

hin

k I’d

kill

myself

•I

saw

this

gre

at th

ing o

n T

V tha

t w

ou

ld r

eally

he

lp

yo

u.

Wo

rkin

g w

ith

Em

plo

yees w

ith

Dis

ab

ilit

y -

Dis

ab

ilit

y L

an

gu

ag

e

Ten

th

ing

s n

ot

to s

ay t

o a

pers

on

wit

h d

isa

bil

ity

•T

here

’s a

dis

ab

led p

ers

on

liv

es d

ow

n m

y s

treet.

•I

had

a f

riend

lik

e y

ou

on

ce

bu

t h

e w

as a

bit w

ors

e.

•It m

ust be n

ice

to g

et

out.

•I

thin

k y

ou

’re b

rave.

•I

rea

lly a

dm

ire y

ou the w

ay y

ou p

rete

nd t

here

is

no

thin

g w

ron

g.

Dis

ab

ilit

y E

tiq

ue

tte

som

e s

imp

le e

xam

ple

s

A w

he

elc

ha

ir u

ser

is h

av

ing

dif

ficu

lty

ge

ttin

g

thro

ug

h a

do

or.

Sh

ou

ld y

ou

a.

sto

p a

nd

wa

tch

to

se

e h

ow

he

ma

na

ge

s

b.

gu

ess

he

ne

ed

s h

elp

an

d g

ive

it

wit

ho

ut

ask

ing

c. a

sk if

he

ne

ed

s h

elp

an

d f

oll

ow

his

dir

ect

ion

s

d.

pre

ten

d y

ou

do

n’t

se

e h

im

Dis

ab

ilit

y E

tiq

ue

tte

som

e s

imp

le e

xam

ple

s

A w

he

elc

ha

ir u

ser

is h

av

ing

dif

ficu

lty

ge

ttin

g

thro

ug

h a

do

or.

Sh

ou

ld y

ou

a.

sto

p a

nd

wa

tch

to

se

e h

ow

he

ma

na

ge

s

b.

gu

ess

he

ne

ed

s h

elp

an

d g

ive

it

wit

ho

ut

ask

ing

c. a

sk i

f h

e n

ee

ds

he

lp a

nd

fo

llo

w h

is d

ire

ctio

nsü

d.

pre

ten

d y

ou

do

n’t

se

e h

im

Dis

ab

ilit

y E

tiq

ue

tte

som

e s

imp

le e

xam

ple

s

You

are

sa

yin

g g

oo

db

ye

to

so

me

on

e w

ho

ha

s n

o

use

of

his

ha

nd

s.

Sh

ou

ld y

ou

a.

gra

b h

is h

an

d a

nd

sta

rt s

ha

kin

g i

t

b.

pa

t h

im o

n t

he

he

ad

c. w

ave

yo

ur

ha

nd

in

th

eir

fa

ce

d.

smil

e,

no

d a

nd

sa

y g

oo

db

ye

Dis

ab

ilit

y E

tiq

ue

tte

som

e s

imp

le e

xam

ple

s

You

are

sa

yin

g g

oo

db

ye

to

so

me

on

e w

ho

ha

s n

o

use

of

his

ha

nd

s.

Sh

ou

ld y

ou

a.

gra

b h

is h

an

d a

nd

sta

rt s

ha

kin

g i

t

b.

pa

t h

im o

n t

he

he

ad

c. w

ave

yo

ur

ha

nd

in

th

eir

fa

ce

d.

smil

e,

no

d a

nd

sa

y g

oo

db

ye

ü

Dis

ab

ilit

y E

tiq

ue

tte

som

e s

imp

le e

xam

ple

s

So

me

on

e w

ho

ha

s d

iffi

cult

y s

pe

ak

ing

cle

arl

y is

try

ing

to

tell

yo

u s

om

eth

ing

. S

ho

uld

yo

u –

a.

pre

ten

d y

ou

un

de

rsta

nd

him

an

d g

o o

n t

alk

ing

ab

ou

t

som

eth

ing

els

e

b.

smil

e a

t h

im a

nd

go

on

wit

h w

ha

t yo

u’r

e d

oin

g

c. a

sk h

im i

f h

e c

an

fin

d s

om

eo

ne

wh

o c

an

te

ll y

ou

wh

at

he

’s s

ay

ing

d.

ma

ke y

ou

r b

est

gu

ess

ab

ou

t w

ha

t h

e’s

sa

id a

nd

ask

him

if

yo

u’v

e h

ea

rd c

orr

ect

ly

Dis

ab

ilit

y E

tiq

ue

tte

som

e s

imp

le e

xam

ple

s

So

me

on

e w

ho

ha

s d

iffi

cult

y s

pe

ak

ing

cle

arl

y is

try

ing

to

tell

yo

u s

om

eth

ing

. S

ho

uld

yo

u –

a.

pre

ten

d y

ou

un

de

rsta

nd

him

an

d g

o o

n t

alk

ing

ab

ou

t

som

eth

ing

els

e

b.

smil

e a

t h

im a

nd

go

on

wit

h w

ha

t yo

u’r

e d

oin

g

c. a

sk h

im i

f h

e c

an

fin

d s

om

eo

ne

wh

o c

an

te

ll y

ou

wh

at

he

’s s

ay

ing

d.

ma

ke

yo

ur

be

st g

ue

ss a

bo

ut

wh

at

he

’s s

aid

an

d a

sk

him

if

yo

u’v

e h

ea

rd c

orr

ect

lyü

Gett

ing

th

e M

ost

fro

m

Em

plo

yees w

ith

Dis

ab

ilit

ies

Wh

at

ca

n e

mp

loyers

do

?

•U

nde

rsta

ndin

g a

nd im

ple

me

nting

be

st pra

ctice

sta

nda

rds

•T

hin

kin

g a

bou

t n

on

-ve

rbal co

mm

un

ication

sig

nag

e,

info

rmation

•E

nsuri

ng

sta

ff h

ave

dis

abili

ty e

qualit

y t

rain

ing

•E

nsu

rin

g C

om

mun

ication

Str

ate

gie

s a

nd P

olic

ies

take a

ccou

nt

of

the

ne

ed

s o

f em

plo

ye

es a

nd

cu

sto

me

rs w

ho

ha

ve

dis

abili

tie

s

Gett

ing

th

e M

ost

fro

m

Em

plo

yees w

ith

Dis

ab

ilit

y

Wh

at

ca

n e

mp

loyers

do

?

•A

ssis

t w

ith

tra

ve

lling

expe

nses w

here

ne

ce

ssary

•F

oste

r p

ositiv

e a

ttitu

des to d

isa

bili

ty a

mon

gst

sta

ff

•Im

ple

me

nt

fle

xib

le w

ork

ing a

rra

ng

em

ents

to c

ate

r

for

ne

ed

s o

f em

plo

ye

es w

ith

dis

abili

ty

•G

ain

ing a

bett

er

unde

rsta

ndin

g o

f fina

ncia

l an

d

techn

ical assis

tan

ce

availa

ble

to e

mp

loye

es w

ith

dis

abili

ty

Dis

ab

ilit

y E

qu

ality

Tra

inin

g f

or

Em

plo

yers

Cartoons by Nora Zölzer-Bryce

A picture can say more than a thousand words. At the end of each handbook, a slightly different opportunity is provided for one to examine the presented project results. The artist Nora Zölzer-Bryce has taken a humorous look at the instruments developed in the project and has captured them in the form of cartoons. A deliberate attempt has been made to show sensitive topics in a humorous, sometimes even provocative, but decidedly unconventional manner. The objective thereby being to encourage and enable different perspectives - and then also to critically question them. Nora Zölzer-Bryce herself views art as a universal method of communication. She intentionally designs her work “without boundaries” and also wants it to be so understood. “It is left to the viewer to interpret and should give the confidence that there are no wrong ways of seeing things… just different ones!” And sometimes there should just be a smile at the end.

Nora Zölzer-Bryce was born in 1979 in Winterberg, Germany. In 2008 she graduated with a Bachelor of Arts Degree from the Department of Art and Design of the Galway-Mayo Institute of Technology in Ireland. In addition, she has a degree in nursing and has been working with disabled people as a personal assistant in the Independent Living Service for many years. Nora Zölzer-Bryce lives with her family in Galway, Ireland.

Pilot project We Empower uS bH Better career opportunities for people with Spina bifida and Hydrocephalus

This publication has been released by the project partnership as a result of the

Leonardo da Vinci “We empower uS bH” project. It is part of the occupational support

concept which comprises seven instruments.

The titles of the methodical toolkit instruments are:

1. Guidelines for action and practical help in training and vocation

2. Empowerment and self-management of young people with Spina bifida and/or Hydrocephalus

3. Information for specialist staff in the field of careers advice, career guidance

and training and employment placement for young people and adults with Spina

bifida and Hydrocephalus

4. Information, tips and hints for employers

5. Vocational biographies

6. Promoting activities through social networks and peer to peer

7. Peer Support Training

All instruments can be downloaded free of charge from the project website:

www.we-empower-us.eu

This project is conducted with the financial support of the European Commission.

The responsibility for the contents of this publication lies solely with the author;

the Commission is not liable for any further use of the information therein.


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