www.alsmn.org April—May 2013 1 THE The ALS Association, Minnesota/North Dakota/South Dakota Chapter, also serves Superior, Wisconsin. April—May 2013 I I NFORMER NFORMER T he ALS Association, MN/ND/SD Chapter is pleased to partner with the University of Minnesota Medical Center, Fairview ALS Clinic! This Muscular Dystrophy Association (MDA)-sponsored clinic is located in the Phillips Wangensteen building on the University of Minnesota, Minneapolis Campus, and it has been in operation since the early 1980s. The clinic’s medical director, Dr. David Walk, has been leading the ALS clinic team since August of 2011. The clinic team consists of multidisciplinary professionals representing nursing, physical therapy, occupational therapy, speech therapy, respiratory therapy, social work, and pulmonology. The clinic also partners with dietary, psychology, and other departments as needed. Like the other ALS clinics featured in our newsletter to date, The University of Minnesota, Fairview ALS clinic is actively involved in ALS research trials and is a member of Great Lakes ALS Study group (GLAS.) The newest neurologist to join the team is Dr. Georgios Manousakis. Dr. Manousakis began seeing ALS patients at the clinic in August of 2012. He received his medical school training in Athens, Greece and completed his neurology residence at the University of Wisconsin. Dr. Manousakis completed a neuromuscular fellowship at Washington University in St. Louis. He has significant experience in clinical diagnostics, management of ALS patients, and electrodiagnostic studies (EMG). He also recently participated in a landmark clinical trial for patients with the genetic form of ALS. Comment from a clinic patient: “Our family is so impressed with the high quality of the expert staff at the University of Minnesota ALS Clinic. I was diagnosed with ALS 10 years ago in February, so I have gotten to know the doctors, nurses, therapists and health care workers who make up a comprehensive team. Many have cared for me long term, and we have seen some new faces. All are knowledgeable professionals who anticipate my needs. They also listen carefully to our concerns, and respond with useful suggestions and resources. They show enormous empathy and compassion for us. The staff are open to new ideas based on the needs of the ALS community and are willing to take on new challenges. ... We are deeply grateful to be in such marvelous care.” For more information about this clinic, please contact the clinic coordinator, Leslie Phidd, RN, at 612-624-7134. Our next issue will feature the ALS Clinic at the Avera Neuroscience Institute in Sioux Falls, South Dakota. ALS CENTER AND CLINIC UPDATE Members of the U of M/Fairview ALS clinic team: (pictured left to right) Gina Ficocello, MDA; Barb Young, PT; Leslie Phidd, RN and Clinic Coordinator; Dr. David Walk, MD; Cindy Gackle, OT; Karissa Borchert, Social Work Intern; Dr. Diana Diebold, MD Not pictured: Marcia Margolis, PT; Robin Samuel, OT, Karen Stine, SLP; Gina Chambers, RN; Rachel Karst, RN; Mary Winkels, LICSW; Jennifer Myhre, LICSW & Representative of The ALS Association, MN/ND/SD Chapter Dr. Georgios Manousakis April is Volunteer Appreciation Month MAY is Save the Date! A Day to Remember Metro area Thursday, June 13 7—9 p.m. Dr. David Walk
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www.alsmn.org April—May 2013 1
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The ALS Association, Minnesota/North Dakota/South Dakota Chapter, also serves Superior, Wisconsin.
April—May 2013 IINFORMERNFORMER T he ALS Association, MN/ND/SD Chapter is pleased to
partner with the University of Minnesota Medical Center, Fairview ALS Clinic!
This Muscular Dystrophy Association (MDA)-sponsored clinic is located in the Phillips Wangensteen building on the University of Minnesota, Minneapolis Campus, and it has been in operation since the early 1980s.
The clinic’s medical director, Dr. David Walk, has been leading the ALS clinic team since August of 2011. The clinic team consists of multidisciplinary professionals representing nursing, physical therapy, occupational therapy, speech therapy, respiratory therapy, social work, and pulmonology. The clinic also partners with dietary, psychology, and other departments as needed.
Like the other ALS clinics featured in our newsletter to date, The University of
Minnesota, Fairview ALS clinic is actively involved in ALS research trials and is a member of Great Lakes ALS Study group (GLAS.)
The newest neurologist to join the team is Dr. Georgios Manousakis. Dr. Manousakis began seeing ALS patients at the clinic in August of 2012. He received his medical school training in Athens, Greece and completed his neurology residence at the University of Wisconsin. Dr. Manousakis completed a neuromuscular fellowship at Washington University in St. Louis. He has significant experience in clinical diagnostics, management of ALS patients, and electrodiagnostic studies (EMG). He also recently participated in a landmark clinical trial for patients with the genetic form of ALS.
Comment from a clinic patient: “Our family is so impressed with the high quality of the expert staff at the University of Minnesota ALS Clinic. I was diagnosed with ALS 10 years ago in February, so I have gotten to know the doctors, nurses, therapists and health care workers who make up a comprehensive team. Many have cared for me long term, and we have seen some new faces. All
are knowledgeable professionals who anticipate my needs. They also listen carefully to our concerns, and respond with useful suggestions and resources. They show enormous empathy and compassion for us. The staff are open to new ideas based on the needs of the ALS community and are willing to take on new challenges. ... We are deeply grateful to be in such marvelous care.”
For more information about this clinic, please contact the clinic coordinator, Leslie Phidd, RN, at 612-624-7134.
Our next issue will feature the ALS Clinic at the Avera Neuroscience Institute in Sioux Falls, South Dakota.
ALS CENTER AND CLINIC UPDATE
Members of the U of M/Fairview ALS clinic team: (pictured left to right) Gina Ficocello, MDA; Barb Young, PT; Leslie Phidd, RN and Clinic Coordinator; Dr. David Walk, MD;
Cindy Gackle, OT; Karissa Borchert, Social Work Intern; Dr. Diana Diebold, MD
Not pictured: Marcia Margolis, PT; Robin Samuel, OT, Karen Stine, SLP; Gina Chambers, RN; Rachel Karst, RN; Mary Winkels, LICSW; Jennifer Myhre, LICSW &
Representative of The ALS Association, MN/ND/SD Chapter
Dr. Georgios Manousakis
April is Volunteer
Appreciation Month
MAY is Save the Date!
A Day to Remember
Metro area
Thursday, June 13
7—9 p.m.
Dr. David Walk
2 April—May 2013 www.alsmn.org
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EXECUTIVE DIRECTOR COLUMN
I n May, I’ll be headed to Washington D.C. to share my story about ALS. People with ALS, their caregivers and families, and dedicated staff and
volunteers from The ALS Association will be attending our annual advocacy and public policy conference, a wonderful event where we have the opportunity to talk with our legislators about important ALS issues. It is one of our best avenues to gain more funding for ALS research, and I could not be more excited for this opportunity.
I began thinking about the importance of advocacy in our daily efforts. Advocacy is not just about talking to senators and members of Congress. It has a much broader definition that applies to each of us. It is simply showing active verbal support for a cause. This could be advocating for someone with ALS who is no longer able to communicate their needs. It could simply be
sharing your ALS story with a friend, co-worker or neighbor. You could take it a step further and engage others in your efforts, like putting a team together for a Walk to Defeat ALS event. Being an advocate is more enjoyable as a team!
The bottom line is, sharing how ALS has affected your life helps spread awareness about the disease, the programs and services available to people and the opportunities available for involvement. The message becomes stronger when we speak out about our shared cause. For me, I’ll be sharing about the programs and services available through our Chapter, the stories of all of the people I have met, the need for increased research funding to find a cause and cure for ALS, and how important it is for everyone to work together to support the ALS community. How will you share your ALS story?
Jennifer Hjelle Executive Director
Jennifer Hjelle
ALS Day at Target Field is Tuesday, May 14th. Stay tuned for details on festivities and how you can be involved! Information will be sent electronically and available on our web site.
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Cleaning House?
W e are always in need of items that individuals can use when eating, dressing, cooking, driving, or doing other household tasks. Items used most often are rocker knives, utensils
with built-up handles, scoop plates, book holders, key holders, writing and typing aids, zipper pulls, button hooks, and adapted scissors. If you have any of these items or other similar items that you are no longer using, we would greatly appreciate receiving them. Thanks to your generosity, items
can be used by others in the ALS community. Please contact Cheryl or Nancy at the Chapter if you have any questions at 888-672-0484 or [email protected].
The ALS Association, MN/ND/SD Chapter Mourns the Death of Lori Sterner
L ori Sterner was diagnosed with ALS in 1993. She died in March 2013. After her ALS diagnosis, Lori was determined to make a difference in her life and the life
of all others living with ALS. She and other dedicated volunteers were instrumental in getting the Chapter started here in Minnesota. Because of these efforts, the Chapter will celebrate its 20th year of assisting people with ALS and their families, by offering free programs and services. Lori was a member of the first Board of Directors at the Chapter. She felt fortunate that her disease was slowly progressing and because of that, she was able to continue working. In fact, in 2012 she was honored by her employer, Goodwill Easter Seals/MN, with their Advancing the Mission Award for ‘consistently and passionately’ living the mission of that organization. It was part of her lifeline dedication, both in her work life and in volunteering, to help serve individuals with disabilities. We know Lori was grateful to her employer and her co-workers for the accommodations they made for her and she felt that with their help, they gave her life ‘meaningful purpose’ and that her ‘contributions were worthwhile’. The ALS Association is grateful for the many ‘gifts’ that Lori gave to our organization and to the ALS community, and we extend our condolences to her family and friends.
Lori Sterner
The Wright-Hennepin Electric Trust (WHET) Awards Grant to Our Chapter
M embers of the Wright-Hennepin Cooperative Electric Association can choose to contribute to Operation Round-Up, a fundraising mechanism for
The WHET. Because of the commitment of these members to round up their monthly electric bills, The WHET awarded $50,000 in grants to local non-profit organizations this year. The ALS Association, Minnesota, North Dakota, South Dakota Chapter received $5,656 to purchase equipment for our Durable Medical Equipment Loan Pool. The WHET has been supportive of this Chapter for many years and the generosity of donors to Operation Round-Up has provided much needed equipment for the loan pool. We are grateful to the WHET board for their ongoing support.
Linda Lorentzen, Vice-President of Care Services, receives WHET award from
I glanced up from my fingertips on the piano as the last chord resonated throughout the air and saw my grandpa’s blue eyes smile at me from his wheelchair across the
room. I had finally mastered “The Entertainer”, my grandpa’s favorite song. I continued to stare proudly in his direction and was struck with a pang of sorrow when I noticed how withered his body had become. A few years earlier, my grandpa, the man I considered to be my mentor and hero, had been diagnosed with Lou Gehrig’s Disease, or ALS, a horrible disease that kills nerve cells and deprives the affected person of motor skills, leading to paralysis and death. Now that the disease had progressed a few years, I sadly noticed its detrimental effects on my grandpa’s body more and more each day.
At first, it was simply a little trouble walking, but each year the disease had taken more away from the man I adored since childhood, to the point where he could no longer communicate and barely had the strength to swallow food. My hero was slowly being cheated of every part of his body, and there was nothing he could do about it. Gone were the happy days of fishing, bread-baking, and crossword puzzles. These simple things I would never again share with the man I looked up to so much. Never again would I hear one of his adventurous Navy stories or hear his booming laugh from his recliner in the living room. Yet here was one thing the disease could not take away from this courageous man, and that was his love for music. Suddenly, I realized how important my musical performances were for my loving advisor. Each time I poured my heart into a Mozart sonata or belted out “Tomorrow” from Annie, or even labored
over a few warm-up scales, I saw my grandpa light up and forget about his failing body. I began to understand that if I could bring him even just a little happiness through the gift of music, I knew that there would be hope, not just for the man I admired, but for me and for the rest of my family as well.
Every year during my annual family visits to Minnesota, I would put on musical performances for my grandpa. These recitals were always much anticipated by my grandparents and usually were the focal point of my visits. For the performance, the whole family would drive to the Mayo clinic and watch me play on the majestic grand piano in the lobby for the employees and doctors of the hospital. When my grandpa had to move to the nursing home, and became too sick to travel to the clinic, he refused to allow this setback to halt the performances and made sure that I was scheduled to perform in front of the residents at the nursing home. Every time my grandpa heard my voice echo throughout the room, or heard the delicate stroke of a piano chord, he would break down into tears of joy, tears of pride for my accomplishment, tears shed simply for the appreciation of the beauty of music. Seeing the happiness I could bring to the man I loved so dearly through my musical performances, helped me cope with the devastation of his disease and brought a beat of cheerfulness to an otherwise trying time. The happiness my grandpa felt from my music permeated throughout the whole family, which in turn filled me with a deep-seated inner joy. In those moments when my grandpa’s tears combined with the melody of a Beethoven concerto, I almost believed that he had conquered his disease altogether. I had never seen him feel so alive.
Now that my grandpa is gone, I still play my music with the same passion I did when I played for him, and I still see his face in my mind, as I strum a humble chord or two on my guitar. Knowing that I brought my own personal hero joy while he was coping with a devastating disease in his last days, allows me to be at peace with his passing. Although I miss him terribly and wish more than anything to play music for him again, even just one more time, I know that my grandpa and I have an indescribable, invisible bond that forever transcends the confines of life and death. My hero’s memory is always in my mind every time I perform whether I am playing my guitar for a few friends or singing the national anthem at an Atlanta Braves game. Wherever the place, my grandpa’s presence will always be with me, and will forever shape my path as a musician.
Danielle Wall with her grandfather, David Buesing, at the Gonda Building—Mayo Clinic, just before her
performance July 2, 2004. Rochester, Minnesota
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If you’re interested in contributing financially to any of the above programs,
funds have been established for each. You can designate your donations in
whole or part to any of the programs and your donation will go 100 percent
to that program. Donations can also be designated to research. Please
contact Jennifer Hjelle at The ALS Association, MN/ND/SD Chapter, with any
questions on how to designate your contributions 888-672-0484 or e-mail
interested in hearing from anyone who would like to become a Chapter
volunteer.
CHAPTER PROGRAMS ALS SPECIALTY CLINICS IN
OUR SERVICE AREA
ALS CENTER OF EXCELLENCE, Hennepin County Medical Center (HCMC), Parkside Building
Mailing Address: 701 Park Ave, PPC 250, Minneapolis, MN 55415 Clinic Location: 825 South 8th Street, Suite 250, Mpls., MN 55404 612-347-5224 *Nationally certified ALS center Medical Director: Dr. Ezgi Tiryaki Clinic Coordinator: Heather Sutherland, RN
AVERA NEUROSCIENCE INSTITUTE 800 E 21st St., Sioux Falls, SD, 57105-1096, 605-332-1610 Medical Director: Dr. Karen Garnaas Clinic Coordinator: Pam Michels, RN
ESSENTIA HEALTH, Duluth Clinic Neurology 400 East Third St., Duluth MN 55805, 218-786-3930 Medical Director: Dr. Amber Erickson Clinic Coordinator: Lisa Katzmarek, CMA
MAYO CLINIC 200 First Street SW, Rochester, MN 55905, 507-538-1037 *Nationally certified ALS center Medical Director: Dr. Eric Sorenson Clinic Coordinator: Julie Hovda, RN
SANFORD HEALTH NEUROSCIENCE Sanford Coordinated Treatment Center 736 Broadway, Fargo, ND 58122, 1-800-437-4010 ext. 4020 Medical Director: Dr. Kara Eickman Clinic Coordinator: Peggy Mondry, RN
SPINAL CORD INJURY CENTER , VA HEALTH CARE SYSTEM One Veteran's Drive Minneapolis, MN 55417 (612) 629-7005 Clinic Nurse: Anne Bateman, RN, NP ALS Case Manager/SCI Home Care Coordinator: Tammy Aaron, RN, CRRN
UNIVERSITY of MINNESOTA MEDICAL CENTER, FAIRVIEW 420 Delaware Street SE, Minneapolis, MN 55455, 612-624-7134 *New appointments/referrals: 612-624-7134 *Return appointments: 612-626-6688 Medical Director: Dr. David Walk Clinic Coordinator: Leslie Phidd, RN Community Outreach Coordinator: Kelly Schuna, 612-626-4823
ALS Center of Excellence, Hennepin County Medical Center (HCMC), Berman Center (Minneapolis, Minnesota)
The ALS Center of Excellence at HCMC has completed the Ceftriaxone and Dexpramipexole trials. Both studies will likely have study results available by the end of the year or early 2013.
Educating for empowerment & quality of life: A study of ALS patients & caregivers: The ALS Center of Excellence at Hennepin County Medical Center is partnering with the University of St. Thomas to build patient-centered models for the ALS journey. Patients and their caregivers are fully informed participants who are educated to collaborate with health care providers to determine courses of treatments that are specific to each patient’s goals and abilities. A research team from the University of St. Thomas is currently working with newly diagnosed individuals with ALS and their caregivers to better understand their needs. Others from the University are seeking to understand the work of each person in the interdisciplinary team and their needs in order to identify areas where communication, resources and support can be improved for people with ALS, their caregivers and health care providers.
The ALS Center of Excellence at HCMC has two new studies that are now open for enrollment:
Nuedexta is an FDA approved medication that is currently used to treat the symptom of pseudobulbar affect in ALS patients. The new study will determine if Nuedexta can also improve other bulbar symptoms such as swallowing and speech difficulty and an excess of saliva. The medication is not a treatment for ALS but is used for symptom relief in those patients who have the bulbar form of ALS. Participation will be for approximately 3 months. Participants must be at least 18 years of age with no prior use of Nuedexta. Participants should be located close to the study site and be able to follow study tasks. Tirasemtiv is being investigated as a potential new therapy for the improvement of muscle weakness and muscle fatigue in patients with ALS. The purpose of this research study is to evaluate the safety and effectiveness of Tirasemtiv versus placebo when taken with or without riluzole and how well it is tolerated in patients with ALS. This is a phase IIb study. Patients will be on study drug for approximately 12 weeks. Certain eligibility criteria must be met to be able to participate.
If interested in either of these studies, please contact the study coordinator, Cindy Rohde, RN at 612-341-7923 or by e-mail at [email protected].
To be included on our research alert list and for information on upcoming trials, please contact Cindy Rohde, RN, ALS research coordinator, at 612-341-7923.
Mayo Clinic (Rochester, Minnesota) The Mayo Clinic ALS Center has completed enrollment for the NIH funded study on markers of oxidative cell injury and their association with ALS, and is not actively recruiting for any other ALS studies at this time.
University of Minnesota Medical Center, Fairview (Minneapolis, Minnesota) A research study evaluating an investigational medication for people with ALS is currently being conducted by Dr. David Walk at the University of Minnesota ALS Clinic. Enrollment has been completed for this study. The University of Minnesota ALS Clinic is conducting an observational study of the effect of botulinum toxin injections on speech ability in patients with primary lateral sclerosis (PLS) or amyotrophic lateral sclerosis (ALS).
You may qualify for the study if you: Have been diagnosed with PLS or ALS Have been prescribed botulinum toxin injections for drooling or jaw stiffness For more information, contact [email protected] or 612-624-7745.
WITH OUR DEEPEST SYMPATHY We send our sympathy to the families and friends of the following who recently lost their battle with ALS:
Mike Cochrane Delores Hermann Thomas Kasper Betty Martin
Mark Goodman Nancy Homan Kayleen Krahler Victoria Skodje
Gunnars Grants Glenn Hommerding Quinton Larson Scott Stafne
David Hasty Ken Kaplan Josephine Lier Lynda Stang
Lori Sterner
Bereavement is the deepest initiation into the mysteries of human life, an initiation more searching and profound than even happy love.
Love remembered and consecrated by grief has proved itself stronger than death. -Dean W. R. Inge, English author and Professor of Divinity
Our apologies if we neglected to mention a name, please know that all persons with ALS and their families are in our thoughts and prayers.
2000 Dodge Ram 1500. 127,000 miles Furnished with power lift capabilities. $8,000. Call John at 952-933-4239 or 612-805-2401
If you would like to advertise a van or medical equipment in the newsletter, please call the Chapter office at 888-672-0484.
ITEM FOR SALE
SUPPORT GROUP SCHEDULES & UPDATES
Due to unpredictable weather, location changes, facilitator illness, holidays, and/or other possibilities, we ask that you
RSVP for each group. If the group is cancelled for any reason, we will make every attempt to notify you.
The ALS Association, MN/ND/SD Chapter Support Groups
Mankato Area Support Group ..................... Mankato, Minnesota ..................................... click here
Twin Cities Support Group .......................... Minneapolis, Minnesota ............................... click here
Saint Cloud Area Support Group ................ Saint Cloud, Minnesota ................................ click here
Family Caregiver Support Group ................ Minneapolis, Minnesota ……RSVP required to attend!
The ALS Association, MN/ND/SD Chapter Office, 333 Washington Ave. N., Suite 105, Minneapolis (Union Plaza visitor parking lot).
4th Wednesday in April and May, 7:00-8:00 p.m. (Please arrive at 6:45 p.m.)
Next meetings: Wednesday, April 24, and Wednesday, May 22. RSVP to Jennifer Myhre, LICSW at 888-672-0484, or [email protected].
If you have any questions about these groups, please contact Care Services Coordinators, Jennifer Myhre, LICSW, [email protected], or Anne Supplee, MDiv, [email protected], or call 888-672-0484.
Please click on the following link to view the specific information for all ALS support groups in our service area:
June 2012 Most Commonly Asked Questions About Children and Grief
June 2012 Questions Children Ask About ALS
June 2012 Range of Motion
July 2012 Preparing for the Final Journey with ALS
July 2012 Do You Want a Feeding Tube?
September 2012 Journeying at End of Life
September 2012 Research Primer
September 2012 Genetics and ALS
November 2012 Information for New Caregivers
January 2013 Hospital Admissions and Emergency Room Visits
B ased upon information gathered in our annual survey, we are establishing this newsletter item entitled Information Links. Feedback from those of you who have completed the annual survey revealed that many of you wanted to access information
when you were ready to learn about a particular topic. Therefore, each article will have its own link to a website versus being published in the newsletter. The list will continue to grow during the coming months. If you do not have access to a computer and want a hard copy of any article, please contact our office. If you have any feedback about Information Links, contact Cheryl Meyers,
T he ALS Association, MN/ND/SD Chapter and its St. Cloud ALS support group members thank Lee Zurek for her many years of service as support group co-facilitator. Lee’s unique blend of personal and
professional experience made her a valuable and beloved part of the group. Lee graciously volunteered time from her busy schedule on a monthly basis for over 8 years! We will miss her very much, but will be forever grateful for her commitment and compassion to the ALS community and to the St. Cloud support group.
Help a Person with ALS As you may recall, we announced the departure of our Chapter’s Volunteer Coordinator, Stephanie Tyree, in the last issue of The Informer. The ALS Association, MN/ND/SD Chapter recognizes the importance of the Chapter’s Volunteer program and the wonderful matches that have been created between people with ALS, their families, and with the dedicated volunteers. Our hope is to have a new volunteer coordinator hired and oriented to the position by the next issue of the newsletter. Until that time, we will continue to maintain the matches already in place and will put on hold any further match requests/searches. Thank you for your understanding and please call Linda Lorentzen, VP of Care Services, at 888-672-0484 if have any questions or concerns.
Walk to Defeat ALS Lend a helping hand on Walk Day by assisting with registration, T-shirt distribution, food distribution, decorating, face painting, advocacy, and more.
Minot, North Dakota ........................................ Saturday, May 11, 2013 ....................................... 7:15 a.m. – Noon
Gala Fundraising Committee Help plan The ALS Association Gala by becoming a committee member! Committee members will work on securing silent and live auction items and selling tables and seats for the event. Looking for those who are self-motivated, comfortable asking for donations and good at meeting deadlines.
Frequency: Meets April–November once a month 1.5 hrs. + 3-4 hrs per week securing donations Date/Time: Weeknights 6:00-7:30 p.m., specific date to be determined by committee Location: The ALS Association office, downtown Minneapolis (free parking)
SuperHero 5k/10k Planning Committee Be a part of our fun SuperHero 5k/10k event by serving on a planning committee. Committee members assist with securing event sponsors, in-kind donations of food and awards, entertainment, and publicity.
Frequency: Meets March–October once a month for 1 hour. Date/Time: Weeknights 6:00-7:30 p.m., specific date to be determined by committee Location: The ALS Association office, downtown Minneapolis (free parking)
Twin Cities Walk to Defeat ALS Fundraising Committee Play an important role in planning the Twin Cities Walk to Defeat ALS! Committee members assist with securing event sponsors, in-kind donations of food, entertainment, and publicity.
Frequency: Meets March–September once a month for 1 hour. Date/Time: Weekdays in person and/or by conference call, specific time to be determined by committee Location: The ALS Association office, downtown Minneapolis (free parking)
Graphic Design Volunteer Play an important role in fundraising efforts by designing brochures, ads, invitations, programs, and possibly designing website and managing photography archives. Experience or coursework in Adobe Creative Suite (InDesign, Photoshop and Illustrator) or similar graphic design program is needed.
Day/Time: Flexible Time Commitment: 6 months Location: Off-site at volunteer’s preference
To learn more about any of these opportunities or to sign up, please contact [email protected], or call 888-672-0484.
Volunteers, Thank You for Your Partnership
W ith April being volunteer appreciation month, the staff of The ALS Association are mindful of your extensive contribution. You commit your time and talent to help grow our organization and spread awareness of ALS. Your
enthusiasm at special events creates an energetic and hopeful atmosphere. Your assistance in the office enables the staff to serve those living with ALS more effectively. Your fundraising allows us to extend free services to make living with Lou Gehrig’s Disease a little easier. Your help with household chores in the homes of people with ALS directly lightens their burdens. Your contribution has touched many lives. We are so appreciative of your partnership. Thank you for volunteering.
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TRIBUTES, MEMORIALS & CONTRIBUTIONS To the best of our knowledge, the following list includes contributions made January and February, 2013.
Online donations received during this period may be delayed in processing.
In Honor of: Arlene Auch
Kathleen Ruud Steven Bachman & Joann Pfeiffer
Nicole Bachman James Baltazar
Jean Marie Baltazar Michael Brandt
Barbara Brandt Chris Hesler Stephanie Hessler Jackie & Nate Laulainen Doug & Lynn Nelson
Mark Buermann Xcel Energy
Mary Denz Amy & Kyle Denz, Isaac Gratton Karina Novak Joy Woelfel
Charles Ego Barbara Ego
Scott Evers Bradley Karow
Jerry Grayson Timothy Grayson Roger Gylling
Jena Gylling & Family Jeanne Hoyme
Mary Moe Wayne Johnson
Laura & Joel Foss Julie Kottsick
Cindy Becker Michael & Susan Hill
Tribute: E. Thomas Marquardt, in Memory of E. Clifford Marquardt
Allen Abrams Marilyn Adams Josephine Barauskas Fran & Debbie Barker Lori Beto Ann Bradley Richard Burke Bob & Chrystal Carew Sharon Carlo Ralph & Marie Carlson Barbara Clancy Karen Clausius Stanley Cooper Julie Davitt Susan Drane Dennis Haack Kathleen Hoeft Brechon Mike & Carolyn Housewert Scott Jensen Kurt Jensen Andrew & Yongtae Kim John Kim Eileen Lindgren Ruth Marquardt Barbara Matarrese
TRIBUTESTRIBUTES
In Memory of: Clifford Arntz
Jeanne Anderson Paul Dieser HFMA Minnesota Chapter Mary Kautto Candace Peterson
Wendy Blais Sarah Otremba
Thomas Boehmer Patricia Ahern Susan Anderson Anonymous Donors Michael Bailey Phyllis Balzart Don & Cathy Balzart Wilson Stuart Bigham Greg Boehmer Monica Boehmer Paul Boehmer Donna Bredemus John Buecksler Audrey Burlington Susan Cammack Lil Carlson Roger Carufel Lynn Christianson
MEMORIALSMEMORIALS
Gail Curl Linda Czeck Lee Dock Diane Elliott Eleanor Fried The Godes Family Darlene Grannis Debra Grannis James Hamer Keith & Helen Heggernes Judy Hilsgen Hobo Inc. / Chemquest Inc. Chester & Bobbi Jacobsen Elaine Kain Eileen Klockeman Patricia Koelsch Jim & Jana Kulseth Verna Le Mire Diane Lindberg E. Leland Lindberg Jodi Linder Marti Lynn Charles Mahovlich Lisa Nelson James Nippert Josephine Reese Residential Remodelers Darlene Robideau S.E. Czeck Trucking Kevin Schmidt Pearl Schmidt Kelly Jo Solberg Anthony & Gayle Stelter Amber Svihovec MaryAnn Sweeney Karen Taylor Ten-E Packaging Services Robert Terry Judith Thompson Univar Charles Vancura Mary Ann Wagner Daniel Weyandt
Donna Mae Boese Clare VandeVelde
Mary Jean Bonemeyer Gina Bonemeyer Mary Bonemeyer Peter Bonemeyer
Pat Braaten Braaten Family
Nora Broekemeier Jeffrey Isaacson
Donald Bublitz Barbara Antony Paula Anzures Carol Bublitz Norma Bublitz Gary Dahlgren Ruth Ebert Dante Guzman & Family Earl & Shirley Johnson Jeanette Johnson Marsha Johnson Steven Johnson Tim Karas
Edward Kass Leslee Kitzman Donald Krenzel Larry Madison Don Manning Marge Morgan Wayne Nesje Ann Poynton Gary Robbillard Rosemary Schmidt Daniel Song Roger Truax
Nancy Burggraf Anonymous Donor
Peter Burton Jon Sorensen
Yvonne Cossette Tom & Carolyn Hesford
Joanne Decker Terese Pederson
Dennis Spletstoser Duane & Doris Huss
Roy Dunham Lisa Lipari
Yvonne Engelstad Ruth Haugen
Gary Erickson Deborah Hutterer
Eugene Evans Sara Evans
Daniel Fleischhacker Anonymous Donor
Donald Fleming Corine Fleming
Robert Fogel Richard Kruse
Sandra Gaffney Amy Brachio
James Garrity Donald & Jane Matthees
Larry Goodis Marlene Thorson
Gunars Grants Steven Hepokoski Chester & Bobbi Jacobsen
Alan Grossman Anonymous Donors Renae & Dan Froslie Kim Keller
Dorothy Grotte Zaundra Bina
Ethel Gustafson Ameriprise Sarah Bjelland Vernelle Clayton Jim Kollross Robert Lawrence Mary Jane Lindholm Bryan Ott Jeff and Heather Shideman
William Halpenny David Lund
Luanne Hammerstrom Jane Anderson Cathy Beck
(Continued on page 11)
Norbert Miloch Lester & Ruth Mullin Patricia Netti James Novotny Suzanne Oberg Elaine Rose Nancy Rose Robert Sabatino Roy & Mary Jane Sahlstrom Lawrence Saunders Laurel Schmitz Joseph Schoening Dolores Schroder Bernardine Schweig Lee Shaw Virginia Soderberg Larry & Ardis Sophian The Huizenga Foundation Elizabeth Thorngren Connie Vacco
Don Nelson Bruce Homeniuk
Dale Sorlie Joey Fowler Carmel Sorlie Palm
Allen Sorum Arlen Sorum
Lynda Stang Drew Dietrich, Redtail Ridge Elementary School
Steven Stefano Anonymous Donor
Samuel Terry Jeanette Terry
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Best & Flanagan LLP Sue Billings Terrence Bjorklund Althea Blommel Rebby Bowman Mary Buell Patricia Cooley Barbara Donley Joy Felix Nancy Foster Barbara Gustafson Mark Hammerstrom K. Laurie Hancer Ruth Henry Julie Johnson Dawn Kreft Cliff & Betty Line Donna Lundgren Phyllis Meister Steve & Ingeri Milam Judy Miller Rose Moe North Memorial Foundation Sharon Nygard Nina Osberg Judith Pascoe Bruce Peterson Janet Prenevost Andrea Robb Pam Ross James Sersha Doris Sunheim Charlene Wehner Ann Wild
Judson Harmon John & Joan Westerlund
Shirley Haug Martha Haug
Delores Hermann Holly Borrelli Lorrie Hocke Kevin & Annette Selbitschka Patricia Strub Waste Management Lamp Tracker
Dale Hillstead Wilma Hillstead
Nancy Homan Karen Hoffman
Emma Hutcheson Amy Burton Becky Caldwell-Tautges Deborah Deanovic Stephen Gerberding Be Ho Jodie Kalla Kathy Kuusisto Anita Lee Kelly Lindblom Patrick Manion Pamela McCulloch Rian Melander Midwest Ear, Nose & Throat Specialists Esteban Navarro Sue Prinsen Sylvia Spragg Robert Thompson Wake Forest Baptist Medical Center Judith Weigel
Marilyn Johnson Edward Johnson
Glenn Jones Lorelle Jones
(Continued from page 10) Tony Judt Ross Collins
Bertha Kadlec Marilyn Noga
Bernadine Kimmes Gemini, Inc.
LeRoy Kinzel Ashlee Kinzel
Charles Kohs Gordon Kohs
Myra Krank Joel & Kris Anderson Irene Clark Bonnie Jacobson Lawrence Kassin June & Neil Lapidus & Partners at Lurie Besikof Lapidus & Co. David & Laurie Levi Maureen Matthes Ardene & David Meshbesher Mary Rooney Laurie & Robert Sweeney Don & Mary Thornton Susan Trousdale
Craig Lamphere Gene Funk
Timothy Lehman Tracy Lehman
Kellie Lemna Anonymous Donor Kelsey Brockberg Kristi Carlson Nancy Gould Jan & Dave Jenks Jessica Mark Kristi Torbenson
Henry Luetkehoelter Ameriprise
Susan McAllister Lee Zurek
Margaret McConnell Patricia Beiswenger
Kathleen Miller Linda Bergh Shari Brandt Joyce Indehar-Seep Julie Owen
Georgina Molstad Rick Fishbune
Norlin Nelson Roberta Nelson
Thomas Oothoudt Joan Burnett
Ronald Ostrem Shirley Bierma Lavonne Cahill Thomas Ellingsworth Duncan & Rita Mackenzie William Ostrem Willis Ostrem Sharilin Potter Mark Smetana Karen Stanley Richard & Jeffrey Tuthill, Nancy Elwood
Ron Rentschler Dave Simons
Vanetta Richards-Rosenberg Susan Benson
Carl Robson Marlene Thorson
Milton Running Susan Gerten Ruby & Jerry Halvorson
Andrea Hanson Rudell Kittleson Christine & Matthew Kleven Patricia Kubly Marlys Oie Ellsworth Olson D. F. Paulson Carol Smith Janelle Streed
David Salstrand Theresa Anick Karine & David Carlson Barbara Erickson Tim & Leanne Miller Leanne Stanley
George Salstrand Algonquin Club Debra Anderson John Anderson MaryAnn Anderson Theresa Anick Anonymous Donor Sheila Arimond Donald Arola Barbara Baldrica Jan Baldwin Helen Baumgardner Susan & Paul Bokros Ronald Borbiconi Ann Brown William Bussey Doris Carey Karine & David Carlson Theresa Caywood Shirley Choquette Dan & Mary Cohoe Cyrilla Collard Diane Dougherty Clarice Dulong John Englund Mazie Englund Barbara Erickson Terry & Barbara Filippi Rebecca Fillman Richard & Judy Frider Dale & Luella Gannarelli JoAnn Getz Rita Giesler Rita Gustafson Cleone Heald Mary Hemmersbaugh Martha Hnatko William Hodge William Hume Joy Janesky Reed & Naomi Jarrett Dana & William Kearney Mary Klinker Gene & Betty Kroll Jane Kruger Theresa LaBine Mary Latimer Cynthia Latvala Mary Lerick Mary Lowry William Lowry John & Theodora Lyon Jean Malley Patrick & Karen Mallory Jim & Becky Markovich George & Pat Mattson Margaret Mattson Mary Ellen Mayerle
Beverly McDowell Eugene & Ruby Mielke Glen & Sue Milani Patty & Tom Miller Tim & Leanne Miller Adele Moran Barbara Moser Beverly Murr Thomas Nagle Kathleen Nevanen Erin O'Keefe John & Carol Olson Nancy Raich Realife Cooperative of Hibbing James & Joan Rhude Roberta Rittgers James Rostvold Harold Sanders Laura & John Segala Susan Spalding Leanne Stanley Susan Stish Gail Sundvall Brenda Suzick Lori Uncini Mary Kay & Jack Wihela
Pamela Schmitt Gemini, Inc.
Barbara Schulz Ruth Weibel
Evelyn Schuman Anonymous Donor
Larry Sing Alan & Fran Dexter Jordan Sing
Dennis Spletstoser Betty Borgeson Will Buhler Moine & Sharon Gates Wayne & Mary Hill Gary & Cheri Johnson Alfred Kolberg Wayne Spletstoser
Scott Stafne Lucy Gluth
Alan Steger Mary Simplot
Raymond Stevermer Jody Smith
Gary Stoakes Kathleen Hanisch
Elaine Stump Carolyn Bohrer Sylvia Weerts
Gene Swanson Jenna Cooper & Kelly Barthelemy
Wade Swenson Gail Swenson
Roger Thomas Anonymous Donor
Timothy Tingwald Debra Basler Janet Beaman Nancy Cooper Andrea Germann John & Elaine Giebenhain Cheryl Goodall Cindy Hendrickson Brian Kading Gwen Kading R. Virginia Kading Susan Kading Wayne Kading
(Continued on page 12)
12 April—May 2013 www.alsmn.org
IINFORMERNFORMER ALS MN/ND/SD
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ANNUAL APPEAL ANNUAL APPEAL
DONATIONSDONATIONS
GENERAL GENERAL CONTRIBUTIONSCONTRIBUTIONS
Company Matches American Express Gift Match Blue Cross Blue Shield of Minnesota GRACO Company ING Charitable Giving Program Liberty Mutual Foundation Match Thomson Reuters Thrivent Financial for Lutherans UnitedHealth Group
Employee Giving Campaigns Accenture Allina Health System American Express Gift Match Ameriprise Financial Employee Giving Campaign Blue Cross Blue Shield of MN CitiGroup Foundation Ecolab Inc. General Mills GRACO Company IBM Ing Charitable Giving Program Pearson Education PiperJaffray Pricewaterhouse Coopers Raytheon Charitable Giving Target Corporation TE Connectivity Thrivent Financial for Lutherans United Parcel Service UnitedHealth Group US Bank
Wells Fargo Community Support Campaign
Federated Campaigns Combined Federal Campaign of the Red River Valley Community Health Charities Minnesota Community Shares of Minnesota Forestville Twp Combined Charities Greater Twin Cities United Way Truist (formerly United eWay) United Way of Greater Philadelphia and Southern New Jersey United Way of the Capital Region Warren One Fund
Individual Donations via EGC Jessica Ahrenstorff Tina Anderson Anonymous Donors Tabitha Bartz Timothy Bishop Kathleen Blau Mark Buermann Mark Dean Maria Delmoro-Hultman Amanda Drew Arvin Fisher Theresa Foss Emmaline Guter Kyle Hansen Andrew Hartos Karl Hills Cynthia Johnson Derek Johnson Collin Jordre Amanda Kaufer Vicki Keith John Koenig Amanda Kolquist Lisa Kreidler Rachel Lund Bradley Lundberg Vicki Majorowicz Angela Milinkovich Denise Moore Jordan Moore Samuel Morantz Stacie Nelson Tina Nelson Daniel Nimtz Mary Nimtz Steven Noble Linda Nucci Sarah Otremba Pearson Education Employees Karen Port Lisa Rothgeb Abby Sampsel Marnie Schaffer Jason Schultz Andrea Weatherly Margaret Weir-Sangalli Craig Willford Mary Kay Wurzinger
Grants Ron & Carolyn Groves Yanish Family Fund
Contributions Stacey Allard Timothy Andersen Anonymous Donors George Balch Angella Bartholomay Joseph Bartish
Robbin McClelland Larry & Janice Nelson Rachel Nissly Thomas Quinlan Arlene Schnoor Catherine Sundeen Nancy Swenson Jean Tingwald Jane Van Boskirk Eldora Whiton Susan Whiton Dorothy Wright
Theresa Tsai Leo Tsai
John Vleck Anonymous Donor
Florence Voegli Marlene Thorson
Timothy Voigt Jeff Voigt
Wilma Wagner Jessica Cottingham
Priscilla Waldron Anonymous Donor
Patricia Wells Curt & Cindy Friedrich Trudy Garrigan Stephanie Goerl
Lois Welshons Elizabeth Welshons
Robert Wendlandt Ruth Fay Matt Steidl
Paul White Pam White
Thomas White Janie Brockman Family Health Services Minnesota
Mary Wiley Chester & Bobbi Jacobsen
James Womack Gemini, Inc.
Peter Zirbel Cathy Reed
(Continued from page 11)
Kathleen & Sabri Ayaz Janice Baker Glen Beckman Donald Bernstein Judy Buol Adrian & Paula Burdick Roger Burg Dwight & Lois Carpenter Joseph Cavaleri Gino DiMattia Rick Fishbune David Flaherty Karen Gates Joseph & Lisa Gerber Frank Hable Winifred Hed Velda Helzer Danny & Sandy Hendrikson Cleon & Lavonne Heusinkveld Robert & Julie Holscher
Donald & Patricia Huntington Cheryl Iversen Robert Janu Truman Johnson A. J. Kabus Eleanor Kiel Thomas & Jodi Kinney John & Susan Knauer Dave Lauritsen Ralph & Phyllis Leistikow Freddie Lynch Thane & Carolyn Malmstone John & Melanie McMillion Gayle Miels Mason & Gwen Myers Darrell Nelson Delia & Donnal Nelson Carol Olson Noel & Lynn Olson Vince & Linda Olson Arlene Oslund Joseph Petras Jr. John Pollack Juliet Roe H.D. Rovelstad Tom Rowekamp Jeff Rundgren Karen Sandberg Marie Shippee Siri Ann Smith Don Taschner Shirley Thom Bud Tollefson Julie Ann Ulmer David & Laura Witte John & Cathy Wolff
Rolf Bjelland John & Kathy Campbell Shaun Collier Dakota Supply Group Sharon D'Souza Kara Eickman Audra Field First Class Mortgage II James Gerads Larry & Kathy Grinaker Jay Hilley Janelle Hoffman Honeywell International Charity Matching Joan Honsa Brad & Carrie Jacobson Ronald Jorgenson David Kelleher Laura Klimek Kathy Koenig Juanita Lauritsen Richard Lidbom LifeSprk! Shine On Linda Lorentzen Phill Lundberg Chad Magstadt Steven Marquart David McNair Rich & Ronda Menze Willis Merriman Patty Monilaws Patricia Nelson Nu Shapes, Inc Kim O'Neil Paige Pagel Sherryle Peterson-Noleen Reliable Medical Supply Kristin Rigg Ethel Roerig Carol Rogne Eileen Spencer Kevin Walli Kari Ward Ardelle Watkins
Equipment Donations Roxanne Boehmer Tim Bresnahan Lois Edmundson John Eidenshink Sandy Forrest Mai Huynh Chester Jacobsen Darus Spingler Marian Spletstoser Betty Sundeen Jean Tingwald David Wells
We gratefully acknowledge the people and groups who generously made memorial gifts and contributions to our Chapter since the last newsletter. Money received support programs and services, public awareness, and research into the cause and a cure for ALS. Upon receipt of these gifts, an acknowledgement of the gift is sent to the person or family designated. All contributions are tax-deductible. If we have omitted any names, please notify us. Thank you for caring.
www.alsnd.org 13 April—May 2013
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FANTASTIC CHAPTER FUNDRAISERS
Black Woods Blizzard Tour
T he Black Woods Blizzard Tour – A Ride to Fight ALS is the largest snowmobile fundraising event in the world. It
has now raised more than $5.1 million in its 14 year history. Participating in the event were 182 snowmobile riders and 60 sponsors, held January 30 - February 2, 2013. While snow conditions and low temperatures were once again a challenge, riders were not deterred, riding this year in the Lake Vermilion and Two Harbors areas.
Terry Steinbach, former Minnesota Twins catcher and current bench coach, served as the celebrity host of the event for the 14th year. Joining Steinbach on the ride again this year were Minnesota Twins manager, Ron Gardenhire and former Minnesota Twins greats, Kent Hrbek and Tim Laudner.
This year’s top fundraiser was the Polaris team of Roseau, Minnesota. The team raised more than $111,000 through local community events and pledges. Jane Evans, representing Polaris, accepted the 2013 Polaris 600 Indy ES snowmobile donated by Polaris Industries. The sled will be used to raise more funds for ALS and the 2014 Black Woods Blizzard Tour. Second place went to Minnesota Twins Manager, Ron Gardenhire, who raised $25,000. Coming in third was Dave Telschow, Savage, Minnesota, who raised $21,500. Ted Kowalski, Prior Lake, Minnesota, raised $12,600 to take home fourth place honors. Rounding out the top five was Jeff Thompson, Cologne, Minnesota, who raised $11,940.
Winning the Wes Blakeslee Most Valuable Rider Award this year was Tony Dockendorf of Cloquet, Minnesota. Dockendorf has been a part of the event since the beginning. He has been a rider, volunteer and a role model for the riders with his innovative approach to fundraising. Congratulations to Tony on winning the award and thanks for his many years of outstanding service.
A new volunteer award was created this year. Larry Bannor was awarded the Larry Bannor Volunteer Award for 2013. Larry was one of the original four riders who created the event. He has offered to help with any aspect of the ride for the past 14 years. Larry has been working with the snowmobile clubs this past year. His focus was to build a strong relationship with the groups for this and future years. Another of his goals was to ensure trails were groomed and ready for our event. Congratulations, Larry!
We would like to thank everyone involved in the Black Woods Blizzard Tour, especially all of the volunteers and those who donated to the event. A huge thank you is extended to the Black Woods Blizzard Tour committee: Bud Baker, Jeff Erikson, Bryan Flaherty, Cullen Flaherty, Pete Gassert, Dan Hartel, Tom Jesperson, David Kolquist, Julie Thoreson, Dave Telschow and Jeff Trentman.
Sponsors for the event include: our title sponsor Black Woods Grill and Bar; presenting sponsors: Polaris Industries, Fox Sports North, KBJR 6 & Range 11, KDAL 610 AM, Phillips-UV/IceHole/Sutter Home/Red Bull, Aluma Trailers/Widdes Trailer Sales; major sponsors: Minnesota Twins, Youngstedt Companies, Duluth Lawn & Sport, Essentia Health, Lamar Outdoor Advertising; participating sponsors: AmericInn, Amsoil, Cirrus Aircraft, Coors Light/Rohlfing Distributing, Dan Fredrickson Signs, Jesperson Studio, KLN Family Brands, Pro Print, Tischler Wood; contributing sponsors: Bullyan RV, Cambria, Castle Sales, CenturyLink, Coca-Cola, Creative Threads, Fortune Bay Resort, Harbor City Oil, Hartel’s/DBJ Disposal Companies, Holiday StationStores, JWDA Inc, JNBA Financial Advisors, Kolar Toyota, London Road Rental Center, Mellin Promotions, Minnesota Coaches, MN USA, National Audio & Visual, Northland Subway, Perkins, Pike Lake Liquors, Precision Camera, Republic Bank, Stokes Media House, SYSCO, Twin Ports Paper; supporting sponsors: Byfuglien Trucking, Calumet Specialty Products Partners, CentraCare Health Systems, Country Inn & Suites, Country Inn of Two Harbors, Hoyt Lakes VFW, Manning Transfer, Meier Art & Frame, Northern Business Products and University Liquor. The ride operates under USDA Forest Service Permit.
14 April—May 2013 www.alsmn.org
IINFORMERNFORMER ALS MN/ND/SD
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Walk to Defeat ALS
T he 2013 Walk to Defeat events are upon us! Please mark your calendars for the Walk nearest you!
Please note that Registration will run from 8:30 a.m. to 10:00 a.m., when the Walk begins.
Mankato, MN ................ Saturday, April 20 ........................ Mankato West High School Grand Forks, ND ......... Saturday, April 27 ....................... University Park Bismarck, ND ................ Saturday, May 4 ........................... Sertoma Park Community Center Minot, ND ..................... Saturday, May 11 ......................... Duane Carlson Stadium – Minot High School, Magic City Campus Fargo/Moorhead ......... Saturday, August 24 ..................... Lindenwood Park Rochester, MN .............. Saturday, September 7 ............... Soldier’s Field St. Cloud, MN .............. Saturday, September 14 ............. Eastman Park/Lake George Twin Cities, MN ............ Saturday, September 21 ............. Thomson Reuters in Eagan Sioux Falls, SD ............. Saturday, September 28 ............. Sertoma Park
ATTENTION ALL WALKERS! In order to receive an official Walk to Defeat ALS T-shirt during the 2013 Walk season, walkers will be required to raise a minimum of $50 to earn a shirt.
Why the change? Unfortunately, our care services’ expenses – equipment, technology, and respite care – continue to increase. We also have people on waiting lists for certain equipment needs. By incorporating a T-shirt minimum, we are ensuring that sufficient funds are available to meet the demands of our Chapter’s programs and services. More and more ALS Association Chapters across the nation are implementing T-shirt minimums to ensure that their programs and services can thrive and continue to serve as many people as possible.
Have questions regarding the Walk to Defeat ALS? Contact your Walk coordinator! For Minnesota Walks, please contact Kristina at 888-672-0484 or [email protected]. For North Dakota and South Dakota Walks, please contact Chelsea at 888-672-0484 or [email protected].
Larry Sing Memorial ALS Golf Classic
M ark your calendar and start practicing your swing! The 19th Annual Larry Sing Memorial ALS Golf Classic is scheduled for Monday, August 26, 2013 in the Fargo/Moorhead area. Those who register
prior to May 31st will receive a 5% Early Bird Discount off of the regular price of $900 per team or $225 for individuals. Space is limited – don’t miss out on this fun day of golf. To register, click here.
Also, don’t miss out on an opportunity to become a sponsor of this event. Hole sponsorships start at $250 and are available on a first-come, first-served basis. Contact Chelsea at 888-672-0484 or [email protected] to register your team or purchase a sponsorship!
Kolar Toyota ALS Walleye Tournament
C asting for A Cure: The 18th Annual Kolar Toyota ALS Walleye Tournament will be held on Saturday, June 1, 2013 on Island Lake, Duluth, Minnesota. Registration for teams is a
minimum of $350—with incentive prizes for individual anglers for donations collected at specific levels starting at $350. Find out how you could win fabulous prizes for participating—check out our website at www.kolartoyotawalleye.com or by contacting Sandy at 888/612-672-0484 or [email protected].
FANTASTIC CHAPTER FUNDRAISERS
SuperHero 5k/10k Dash & Kids Dash
M ark your calendars! Our Chapter’s 2nd Annual SuperHero 5k/10k Dash is coming up on Saturday, October 12th at Lake Phalen in St. Paul, Minnesota. Check-in begins at 9:00 a.m., and the run/walk will begin at 10:00 a.m. For those wishing to participate, online registration is now
open at www.alssuperherodash.com. We have incorporated a NEW Kids’ Dash this year as well! The Kids’ Dash will begin at 9:45 a.m.
Participants are invited to dress up and run in the attire of their favorite superhero!
Early birds will be rewarded with a discounted registration fee. Early registration will cost $25 for the 5k race, and $30 for the 10k through October 1st, and then will increase to $30 for the 5k and $35 for the 10k. Walk-up registration the day of the event is $35 for the 5k and $40 for the 10k. The fee for the Kids’ Dash is $10. In addition to the entry fee, we are encouraging runners to fundraise to support the programs and services provided by the Chapter. For more information on fundraising, check out our website noted above.
Be a superhero and join us in raising money to help those individuals and their families who are battling ALS!
J oin the growing team of individuals who have pledged their support for the fight against ALS through the Strike Out ALS program. These individuals have stepped up to the plate by making a pledge for each home game strikeout by the
Minnesota Twins this season and are helping us hit our fundraising goal out of the park! We’re asking you to take your turn at bat by making a pledge online.
The Minnesota Twins, along with former Minnesota Twins, Kent Hrbek and Terry Steinbach, are offering special incentives for three lucky program participants:
Invitation to stand on the baseball field before a September Minnesota Twins game for the ALS check presentation and four tickets to the game
Personalized autographed bat by Kent Hrbek
Personalized autographed bat by Terry Steinbach
Working together, Carrier and the Minnesota Twins will generously match the first $10,000 of pledges to The ALS Association for every home game strikeout. For more information about participating, please contact Kristin at [email protected] or 888-672-0484.
If you are planning a family event and need additional information on how to do this, please contact Kristin Skaar at the Chapter office at [email protected] or 888-672-0484.
COMMUNITY FUNDRAISERS
P lease join us for the upcoming Community Fundraisers that have been set up as third party events to benefit The ALS Association. If you would like more information about the following events please contact the Chapter Office at
888-672-0484 or [email protected] or check out our event listing at www.alsmn.org. If you are planning a family event and need additional information on how to do this, please contact Kristin Skaar, Special Events Coordinator, at the Chapter office at [email protected] or 888-672-0484.
Jean Willer Memorial Golf Classic
The Fifth Annual Jean Willer Memorial ALS Golf Classic will be held on Thursday, June 13th at Apple Creek Country Club in Bismarck, North Dakota. Jean was diagnosed with ALS in 2007 and lost her battle with the disease in November of 2008. Her wish was to help others who are affected by this terrible disease. This tournament is to honor Jean and her inspirational courage throughout her battle with ALS. All proceeds go The ALS Association, MN/ND/SD Chapter to help spread awareness, assist people with ALS and their families, and fund research. Come honor Jean by participating in a relaxing day of golf and raising funds for The ALS Association. Golfing begins at 12:30 p.m., social and dinner to follow at 6 p.m. Registration is $135 for an individual or $540 for a team. The format will be scramble play with a two drive minimum per person. Prizes for low net and low gross and the chance to win a new car from Puklich Chevrolet for a hole in one.
Contact Lonna at 701-355-353 or [email protected] to register. To guarantee clothing size, all registrations must be received by Friday, April 12, 2013. This event sold out last year, so register now!
7th Annual Dick Becker Memorial ALS Run 4 Research
The 7th Annual Dick Becker Memorial ALS Run 4 Research will be held Saturday, May 4, 2013 at 10:30 a.m. at the Becker Farm in Browerville, Minnesota. The Becker Family began the ALS Run 4 Research to increase ALS awareness, and to honor the memory of their father, Dick Becker, who passed away from ALS in 2006. The funds raised at this event will be donated to The ALS Association, MN/ND/SD Chapter to fund research and provide support to those fighting ALS. Choose to walk or run the 5k or the 10k and register online for $15 by visiting the website. Pre-register by April 15th to guarantee your T-shirt. Walk-up registrants are also welcome. Bring your family for refreshments, music, socializing and door prizes.
The ALS Association, Minnesota, North Dakota, South Dakota Chapter, is a non-profit voluntary health organization dedicated solely to the fight against amyotrophic lateral sclerosis (often called Lou
Gehrig’s Disease) through research, patient support, information dissemination and public awareness.
The ALS Association
Minnesota, North Dakota, South Dakota Chapter
333 Washington Ave N, Suite 105, Minneapolis, MN 55401 or
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