+ All Categories
Home > Documents > 2018/19 ANNUAL REPORT - Autism Edmonton · 2015/16 1,389 77 124 2016/17 1,795 122 164 2017/18 2,835...

2018/19 ANNUAL REPORT - Autism Edmonton · 2015/16 1,389 77 124 2016/17 1,795 122 164 2017/18 2,835...

Date post: 30-Sep-2020
Category:
Upload: others
View: 0 times
Download: 0 times
Share this document with a friend
24
2018/19 ANNUAL REPORT JULY 1, 2018 - JUNE 30, 2019
Transcript
Page 1: 2018/19 ANNUAL REPORT - Autism Edmonton · 2015/16 1,389 77 124 2016/17 1,795 122 164 2017/18 2,835 140 135 2018/19 4,149 210 231 OUR IMPACT 2015/16 2016/17 2017/18 2018/19 Number

2018/19 ANNUAL REPORT

JULY 1, 2018 - JUNE 30, 2019

Page 2: 2018/19 ANNUAL REPORT - Autism Edmonton · 2015/16 1,389 77 124 2016/17 1,795 122 164 2017/18 2,835 140 135 2018/19 4,149 210 231 OUR IMPACT 2015/16 2016/17 2017/18 2018/19 Number

2

Message from the President ...................................................... 3

Message from the Executive Director ....................................... 4

Vision & Mission ........................................................................ 5

Our Year in Numbers ................................................................. 5

Who We Are ............................................................................... 6

Our Impact: Support Services .................................................... 8

Our Impact: Community Opportunities .................................... 10

Our Impact: Advocacy .............................................................. 17

Partnerships .............................................................................. 19

Our Donors ............................................................................... 21

Sustainability Report ................................................................ 23

Page 3: 2018/19 ANNUAL REPORT - Autism Edmonton · 2015/16 1,389 77 124 2016/17 1,795 122 164 2017/18 2,835 140 135 2018/19 4,149 210 231 OUR IMPACT 2015/16 2016/17 2017/18 2018/19 Number

3

It has been another great year at Autism Edmonton, and on behalf of our Board of Directors, I

am very excited to share this report with you.

With help from our generous supporters, Autism Edmonton has achieved many milestones this

year, including considerable growth in the provision of respite services, establishment of new

partnerships, expansion in social-recreational opportunities for all ages and advancements in

advocating for systematic change for the autism community.

One of the most significant projects that the Board took on last year has been the development

of a one-year strategic plan. It primarily focuses on establishing baselines, researching and

mapping out how we can keep our services and programs relevant to the community, while

better utilizing our limited resources. Additionally, the Board has established a finance

committee to contribute additional financial oversight and a Policy Committee to develop new

governance policies.

As we forge ahead, I am sure the challenges will be many, but building on our sound foundation,

strong vision, mission and values, we will have all the ingredients for success. That is why last

year we reviewed our vision and mission and formulated our values. These changes aimed to

add more clarity to our work, reflect the evolution of terminology that has taken place within

our community and solidify our core values.

Reflecting on all that we have achieved in 2018/19, I would like to extend a special thanks to our

donors, volunteers and partners for joining us on this journey. Through your dedication, you

have bolstered our commitment to bring about positive and lasting change to our community.

It is hard to do justice in such a brief report to what we have achieved together, but I hope that

the following pages will give you a flavour of the most important work that we have carried out

in support of our community.

Thank you,

Mohammad Rauf

3

Page 4: 2018/19 ANNUAL REPORT - Autism Edmonton · 2015/16 1,389 77 124 2016/17 1,795 122 164 2017/18 2,835 140 135 2018/19 4,149 210 231 OUR IMPACT 2015/16 2016/17 2017/18 2018/19 Number

4

With this annual report, I find myself facing a significant transition in my life’s journey. This

month, my employment with Autism Edmonton comes to a close following my retirement, and

I move forward in my new role as an engaged and committed member of this inspiring

organization. I leave my job at Autism Edmonton with a warm heart, many fond memories, lots

of learning and a feeling of profound gratitude and appreciation for such a generous and giving

community.

This past year, as with other years, I have had the opportunity to witness on a regular basis some

of the most touching feats of charity and humanity. From anonymous donors to tremendous

volunteer efforts, from individual stories of courage and success to growing partnerships and

alliances of opportunities, the presence of the community working directly with Autism

Edmonton has never ceased to amaze me.

Of particular note during 2018-2019 is the profoundly moving story behind the vision and

mobilization of dozens of youth and staff at the Sister Annata Brockman School. We had the

extreme pleasure of partnering with Flair Airlines and the Edmonton International Airport to

introduce a new and innovative program related to autism services with the transport and

hospitality industries. And through special initiatives such as the Private Zoo Night, the World

Waterpark Event and new workshops, we experienced a welcoming community embracing the

idea of inclusivity at a whole new level, with members more actively engaged than ever before.

It is my privilege to share with you a sampling of such successes as outlined in this Report. You

will see reflected in this Annual Report’s numbers and stories the compassion and empathy of a

caring community that I have learned to appreciate and admire.

In closing, there are so many people I want to thank for such a rewarding year; Gala Committee

members, Casino, Cycle and so many other volunteers; donors, third-party event partners,

project partners, provincial partners and our Board of Directors; sponsors and advocates,

research supporters and agency professionals.

And last but not least, I want to express my gratitude to our staff members. This year, as every

year, you have touched thousands of lives, making a large difference in the quality of life for so

many individuals with autism. You are an extraordinary team and it has been my honour to have

worked with you this past year.

Bouquets and kudos to each and every one who makes Autism Edmonton such a meaningful

and successful organization. Our community is well served by the thousands of you.

Carole Anne Patenaude

Page 5: 2018/19 ANNUAL REPORT - Autism Edmonton · 2015/16 1,389 77 124 2016/17 1,795 122 164 2017/18 2,835 140 135 2018/19 4,149 210 231 OUR IMPACT 2015/16 2016/17 2017/18 2018/19 Number

5

All people on the autism spectrum have a life full of

possibilities.

To enhance the lives of people on the autism

spectrum, through knowledge, services and

inclusive opportunities.

5

Page 6: 2018/19 ANNUAL REPORT - Autism Edmonton · 2015/16 1,389 77 124 2016/17 1,795 122 164 2017/18 2,835 140 135 2018/19 4,149 210 231 OUR IMPACT 2015/16 2016/17 2017/18 2018/19 Number

6

The following values guide how we work and keep us moving forward:

WHO WE ARE

We welcome and embrace

inclusivity and diversity of all

people, ideas and perspectives

in building community.

We believe in mutual trust,

honesty, transparency, and

accountability amongst ourselves,

allies and stakeholders.

We treat one another and all

people with empathy, courtesy

and kindness.

6

Page 7: 2018/19 ANNUAL REPORT - Autism Edmonton · 2015/16 1,389 77 124 2016/17 1,795 122 164 2017/18 2,835 140 135 2018/19 4,149 210 231 OUR IMPACT 2015/16 2016/17 2017/18 2018/19 Number

7

Anyone who supports our vision, mission, and values may become a member at no cost. Currently, we

offer two types of membership: for families and individuals, as well as professionals and organizations.

During this reporting period, our overall membership grew by 24%, from 1,899 to 2,352 members.

Our organization is governed by a volunteer Board of Directors, which is elected annually. These periodic

changes ensure that the Board's makeup continues to reflect the diversity and inclusiveness necessary for

effective oversight and decision-making. Our Board of Directors in 2018/19 included:

Angela Kemble

Dr. Keith Goulden

Gabrielle Battiste

Gabrielle Heselton

Jennifer Neal

Kevin Payne

Kristi Rouse

Kyla S.

Laura Gilmour

Lucas Heath

Mohammad Rauf

Ray Wong

Our team is made up of 7 permanent staff and 9

casual staff for the Occasio program. They bring

a wide range of education, professional training

and experience to the agency, as well as passion

and commitment to serving the autism

community.

Our dedicated volunteers are our strongest

resource and valued members of our team. In

the past year, 93 volunteers completed 434

individual shifts and shared 3,368 hours of their

precious time and energy to help us deliver

programs and services. They helped by working

at events, providing office support, raising funds

and much more. The number of volunteer hours

rose by 32% compared to the previous year.

WHO WE ARE

6

7

Page 8: 2018/19 ANNUAL REPORT - Autism Edmonton · 2015/16 1,389 77 124 2016/17 1,795 122 164 2017/18 2,835 140 135 2018/19 4,149 210 231 OUR IMPACT 2015/16 2016/17 2017/18 2018/19 Number

8

52436290

7159 7190

"Next Steps" viewing statistics

2015/16 2016/17 2017/18 2018/19

When people receive an autism diagnosis, they often have no idea what services are available or how to

begin searching for supports. This is where Autism Edmonton comes in. Our Support Services team screens

local educational, medical and other relevant community supports and shares this knowledge with our

members and community.

Our services are not restricted to helping those who are newly diagnosed – we strive to help members

throughout their lifespan. Resource navigation – helping people find and utilize resources available to

them – is one of our core services. People come to us for support and information about a variety of topics

and often turn to us when they are moving between different stages of life or pushed to the brink of crisis.

Some people ask us to walk them through accessing community resources. Others need to share their

stories and we help them to overcome difficulties through compassionate listening. Whatever their needs

are, we are always there to listen and help find the right supports.

In the past year, our Support Services team responded to 1,034

inquiries for information, support, and assistance. Similar to last

year, inquiries on adult-related topics prevailed, which again

demonstrates that supports for this demographic group are

fragmented and challenging to navigate without additional help.

Top 5 inquiry topics brought forward by callers were related to:

(1) provincial funding (FSCD, PDD, AISH), (2) education

(secondary and post-secondary), (3) professional development,

(4) mental health and (5) Autism Edmonton programs.

Additionally, 92 newly-diagnosed families received help through

the Family Navigator Program, which is run in collaboration with

the Glenrose Rehabilitation Hospital (Alberta Health Services)

Diagnostic clinic.

We also received hundreds of general requests about our

services and community resources. Combined with the inquiries

described above, our staff responded to service-related inquiries

from over 2,000 people.

To help more people have the information at their fingertips when they need it, we continued to maintain

“Next Steps,” an online guide on local autism resources. In 2018/19 we had a record-breaking 171,811

visits to our website, including 7,190 views of “Next Steps.”

OUR IMPACT

19%

19%

11%

51%

Types of inquiries received from families and individuals in 2018/19

Pre-school related Child related

Youth related Adult related

Page 9: 2018/19 ANNUAL REPORT - Autism Edmonton · 2015/16 1,389 77 124 2016/17 1,795 122 164 2017/18 2,835 140 135 2018/19 4,149 210 231 OUR IMPACT 2015/16 2016/17 2017/18 2018/19 Number

9

The Pantry Program provides food and other essential daily-living items in

a dignified, autism-friendly environment for any of our members who are

experiencing food insecurity, which is common due to unemployment or

underemployment of autistic adults, as well as high financial and

caregiving demands of having a child or loved one on the autism spectrum.

When our members visit the Pantry, we not only provide them with food

but also help them to find ways of resolving challenges and connect them

to relevant resources.

The Pantry is run in partnership with the Edmonton Food Bank and

operates five days a week.

During the reporting period, we handed out 563 hampers of food. This is

7% lower than the same period in the previous year. This drop does not

reflect a decrease in the availability of food, but is a result of a slight

decline in demand.

Most Pantry users accessed the program four times throughout the year.

Less than a third of the clients visited the Pantry more than once per

month.

People on disability-related income supports (AISH, PDD or income

support) account for 70% of households helped through this program.

OUR IMPACT

In partnership with

9

Page 10: 2018/19 ANNUAL REPORT - Autism Edmonton · 2015/16 1,389 77 124 2016/17 1,795 122 164 2017/18 2,835 140 135 2018/19 4,149 210 231 OUR IMPACT 2015/16 2016/17 2017/18 2018/19 Number

10

Since its inception, the Occasio program has grown steadily

offering regular events to youth 10 years and older.

This unique and high-quality program fulfills a huge need for

families – it provides them with a break from the routine of

caregiving and at the same time allows youth to participate

in positive community-based activities, be an active part of

the community, and develop on-going relationships and

social interactions outside the family unit. What sets Occasio

aside from other recreational programs is that it allows for

flexibility as participants choose which activities to attend

based on their preferences and schedule.

Over the past 12 months, Occasio delivered a total of 4,149

activity hours, a 47% growth compared to 2,835 hours

offered in the previous year. This means more youth got to

spend time with their peers, make friends, learn and have

fun. The number of members participating in the program

rocketed from 140 to 220 in a year.

Occasio in numbers

Responding to the annual survey of

Occasio participants,

90% of families expressed overall

satisfaction with the program.

Year Number of

activity hours Registered members

Number of activities

2015/16 1,389 77 124

2016/17 1,795 122 164

2017/18 2,835 140 135

2018/19 4,149 210 231

OUR IMPACT

2015/16

2016/17

2017/18

2018/19

Number of activityhours

1,389

1,795

2,835

4,149

Occasio Activity Hours

10

Page 11: 2018/19 ANNUAL REPORT - Autism Edmonton · 2015/16 1,389 77 124 2016/17 1,795 122 164 2017/18 2,835 140 135 2018/19 4,149 210 231 OUR IMPACT 2015/16 2016/17 2017/18 2018/19 Number

11

Autism Edmonton has always focused on creating programs that address

service gaps. Last year we continued to demonstrate deep commitment to

expanding services for adults on the autism spectrum by increasing the

number of social-recreational events through the League Program. In the

past, participation in the League was limited to young adults aged 18-24.

In September of 2018, based on feedback and need, we decided to open

the program to a broader age category. Now anyone over the age of 18

can attend the League. This change proved to be successful and the

program soared in popularity.

Last year, the League offered 38 activities and the number of unique

participants reached 104 (up from 56 in 2017/18).

The program’s focus has been on offering recreational free and low-cost

events to suit our members' wide range of interests, hobbies and financial

capacity.

Additionally, we ran a peer-led Adults Support Group that served as a safe

place for members to share their stories, struggles and accomplishments,

and to listen to others sharing similar concerns. This group was attended

by 56 people throughout the year.

OUR IMPACT

32%

67%

1%Gender

Female Male Other

56%22%

22%

Age

18-25 26-35 36 and up

61%

31%

8%

Living situation

Live with parentsLive independentlyLive in a group home

70%

23%

5%2%

Level of education

High school CollegeBachelor's Master's

With funding from

Page 12: 2018/19 ANNUAL REPORT - Autism Edmonton · 2015/16 1,389 77 124 2016/17 1,795 122 164 2017/18 2,835 140 135 2018/19 4,149 210 231 OUR IMPACT 2015/16 2016/17 2017/18 2018/19 Number

12

An important part of our work is offering the

autism community, including parents, siblings,

spouses and other family members, a safe place

to share their experiences, ask questions and

receive advice.

To that end, in 2018/19, we offered two peer

support groups, Partners of Adults with Autism

Group and Parents of Adults with Autism Group,

which were attended 183 times combined.

People who used our support told us that they

felt more hopeful and better able to cope with

problems after speaking with their peers.

Moreover, by providing support and information in ways that suit everyone, we continued to grow our online community. At the end of last year, we had over 4,500 followers on social media (Facebook and Twitter) and 1,158 participants in our Facebook Community Group.

OUR IMPACT

12

Page 13: 2018/19 ANNUAL REPORT - Autism Edmonton · 2015/16 1,389 77 124 2016/17 1,795 122 164 2017/18 2,835 140 135 2018/19 4,149 210 231 OUR IMPACT 2015/16 2016/17 2017/18 2018/19 Number

13

For the third summer in a row, we ran the Community Gardens program. Last year, 122 people joined

our gardening sessions, reaching an overall level of attendance of 246 participants. Compared to the

previous year, average monthly attendance almost doubled from 15 to 27 participants. Nearly half

of participants were children under the age of 18.

The Community Gardens program remained one of the most popular programs offered by our

agency, which is not surprising given that it helps in so many ways:

OUR IMPACT

• A lot of participants continually stressed that this program is a big comfort as it helps them toget access to fresh seasonal vegetables grown locally.

Improves food security

• At every event, participants harvest fresh produce – including beets, zucchini, turnips, basil,chard, potatoes, carrot, kale, etc. – for themselves and get it for free.

Encourages healthy eating habits

• Gardening gets our members outdoors into a more natural setting and keeps them active.

Helps participants to spend more time outside

•Participants collect extra produce for donation to Autism Edmonton’s Pantry Program and Edmonton Food Bank.

Promotes giving back

• When our members work in the garden, they get a chance to meet new people, haveconversations and build new connections. For people on the spectrum, an opportunity tointeract with peers is critical for the development of their social and communication skills. Forfamilies and caregivers, social support is critical to their ability to successfully cope with themany challenges they encounter in caring for someone on the autism spectrum.

Provides stress relief

With funding from

13

Page 14: 2018/19 ANNUAL REPORT - Autism Edmonton · 2015/16 1,389 77 124 2016/17 1,795 122 164 2017/18 2,835 140 135 2018/19 4,149 210 231 OUR IMPACT 2015/16 2016/17 2017/18 2018/19 Number

14

Our first Autism-Friendly Zoo Night was

introduced in August 2018. Interest in the

event was huge – when we opened the

registration, over 400 spots were filled

within a single day. We also had a waitlist

of 96 people for this activity. And although

we got rained out, 180 people who signed

up for this event still joined us! Our guests

had a very special time exploring the

Edmonton Valley Zoo after hours.

The benefit of a private visit is an

opportunity to explore the zoo in a quieter

and more sensory-friendly environment.

Many people on the spectrum would not

typically attempt to visit a zoo or other

busy public places because of the sounds

and sensory input. Large crowds, loud

noises, and bright lights can cause anxiety

for them. Exploring the zoo during our

private event was a unique and sought-

after opportunity.

Last year, we organized numerous social-recreation events and outings under the Community Connections Program. We sought for people on the spectrum, their families and friends to increase their sense of connectedness and belonging.

OUR IMPACT

In December 2018, we hosted Holiday

Celebration and Autism Artisan Market,

which attracted more than 150 people and

was a great day of fun and celebration. This

event included entertainment for all ages

including a puppet show, carol singing,

games for kids, and a photo opportunity

with Santa! And of course, the Autism

Artisan Market was at the heart of this

event. The Market offered an opportunity

for people on the spectrum to present their

artistic work, reach new audiences,

network and sell their products. To

encourage more vendors to get involved

and eliminate the financial barrier to

participation, Autism Edmonton covered

all event expenses.

Page 15: 2018/19 ANNUAL REPORT - Autism Edmonton · 2015/16 1,389 77 124 2016/17 1,795 122 164 2017/18 2,835 140 135 2018/19 4,149 210 231 OUR IMPACT 2015/16 2016/17 2017/18 2018/19 Number

15

We believe people on the spectrum should not be deprived of the right to enjoy life in the community.

Last year, we continued working on events and partnerships that would allow our community to have

access to the same activities as everyone else, while providing support and services to accommodate their

differences and needs.

OUR IMPACT

Autism Aviators is a new partnership

among Autism Edmonton, Flair Airlines and

Edmonton International Airport. Its goal is

to make traveling more accessible by

helping participants get familiar with the

airport process and feel more comfortable

with air travel, all while allowing aviation

and airport professionals to learn more

about how best to support people on the

spectrum. Our first Autism Aviators took

off in June 2019 and was a huge success –

we had a full plane of 120 participants

joining us for a mock travel day. Given the

popularity of this program, we have

already started planning Autism Aviators

for the next year.

It is a Christmas tradition carried out by

thousands of children in Canada: the

annual photo with Santa. But a trip to the

mall to take a photo with Santa can be

overwhelming for children on the

spectrum. Loud noises, bright lights, and

crowds are typically the things that cause

anxiety for them.

For the third year, Londonderry Mall

teamed up with Autism Edmonton to run

the Silent Santa program, which offered an

opportunity for autistic children to have an

enjoyable Santa visit in a quieter and

sensory-friendly environment. The Silent

Santa sessions were offered by

appointment on four Sundays leading up to

Christmas.

Last year, Autism Edmonton also offered

Silent Santa Training to West Edmonton

Mall (WEM) and Mill Woods Town Centre,

which hosted sensory-friendly events as

well.

Page 16: 2018/19 ANNUAL REPORT - Autism Edmonton · 2015/16 1,389 77 124 2016/17 1,795 122 164 2017/18 2,835 140 135 2018/19 4,149 210 231 OUR IMPACT 2015/16 2016/17 2017/18 2018/19 Number

With community partners, we were able to increase the number of workshops and educational initiatives

offered to our members:

OUR IMPACT

For the second year we offered the Sinneave

Foundation’s “Launch into Life!” workshops to help

young people and their families prepare for and

respond to the transition from adolescence to

adulthood. Last year, 20 participants joined these

workshops to discover personal strengths and areas

of growth based on their personal interests, abilities

and needs. Upon completion, each participant

created an Individualized Transition Plan.

People on the autism spectrum can be

vulnerable in emergencies. When

communication is hindered, emergency

situations can escalate fast. In such

circumstances, programs like Medic Alert can

be a vital link between first responders and the

community when faster, informed action

makes all the difference. Last year, we were

fortunate to host a couple of special events in

collaboration with the Edmonton Police

Services, in which participants got to learn

about Medic Alert. At this event, they were also

able to interact with police officers and sign up

for the program at a reduced rate.

To help youth on the spectrum develop their

capacity for independence at home, we piloted

the “Stay at Home Alone” training under the

Occasio Program. The training involved direct

teaching and modelling in a small group setting

using methods suitable to neurodiverse

learning profiles. It was facilitated by a clinical

behavior specialist Cassidy Brown and our staff.

The training consisted of two components –

learning sessions for youth and sessions for

parents or caregivers. A total of 25 people

joined this pilot.

In fall 2018, we joined forces with Children's Autism Services of

Edmonton to host a free interactive session on employment for

adults on the spectrum. This session was facilitated by Michael

John Carley, the founder of the largest organization in the world

comprised of adults on the autism spectrum. Twenty people

came out to this event to gain practical knowledge on how to

find a corporate culture that “fits”, handle a job interview,

explore entrepreneurship and more.

16

Page 17: 2018/19 ANNUAL REPORT - Autism Edmonton · 2015/16 1,389 77 124 2016/17 1,795 122 164 2017/18 2,835 140 135 2018/19 4,149 210 231 OUR IMPACT 2015/16 2016/17 2017/18 2018/19 Number

17

Autism Spectrum Disorder (ASD) is the most common and fastest-growing neurodevelopmental disorder

in Canada. An estimated 1 in 66 Canadians aged 5-17 have been diagnosed with ASD, which means there

are an estimated 21,000 people in the Edmonton area who have autism.

Autism Edmonton works to promote autism understanding and inclusion through the delivery of free

“Autism 101” presentations. Last year, we hosted 25 presentations attended by over 500 people from

various organizations. Audience analysis showed that educators and child development specialists, as well

as First Nations communities, were key groups we presented to. In January 2019, we were invited to offer

a presentation for the First Nations Telehealth Network (FNTN), which was broadcasted to 18

rural/remote First Nations Health Centres across the province. This presentation was recorded and added

to the FNTH public archive/library. Since then, the recording has been viewed several hundred times and

is still being accessed regularly.

OUR IMPACT

We celebrated the 2019 World Autism

Awareness Day (WAAD) with Sister Annata

Brockman School Society students who

have been incredible at bringing the

community’s attention to autism and

raising funds for our services. These

students are setting a good example for all

by showing their support to people on the

autism spectrum. It was an honour for our

agency to share this special occasion with

them!

For the seventh year, in celebration of

WAAD on April 2, we hosted Autism

Community Champion Awards and

facilitated the presentation of awards to 13

incredible individuals and groups. The

purpose of the awards is to provide

community members with an opportunity

to honour those individuals who make that

extra effort to enhance the lives people on

the spectrum. This special event also allows

us to spread positivity in the autism world,

hear success stories or moments of

triumph from our community, which is

always an inspiration to us and all guests.

17

Page 18: 2018/19 ANNUAL REPORT - Autism Edmonton · 2015/16 1,389 77 124 2016/17 1,795 122 164 2017/18 2,835 140 135 2018/19 4,149 210 231 OUR IMPACT 2015/16 2016/17 2017/18 2018/19 Number

In 2018/2019, Autism Edmonton created momentum for positive change by working with our passionate

and engaged members and our partners throughout the province. Through our advocacy investments, we

have been able to bring forward the perspectives of the autism community to government and community

stakeholders on a number of issues. The following are some of our key initiatives:

In the spring of 2018, there was a grass-roots effort by concerned families across the province

who felt that the Family Support for Children with Disabilities (FSCD) program had lost the balance

between offering parent support/training and providing child-focused therapies. We hosted

roundtable discussions and met with the Edmonton Region senior managers of the program in

July of 2018 to advocate for 15 specific recommendations to improve the program. Shortly after

our meeting, the government announced the FSCD Action Plan, which confirmed that direct

services to children should be supported and parent involvement should not be required in the

delivery of specialized services.

Autism Edmonton joined a number of advocacy initiatives with various partners, including

Inclusion Alberta, Autism Society of Alberta, Autism Calgary and Autism Society of the Regional

Municipality of Wood Buffalo, to voice collective concerns about accountability, misuse and lack

of regulatory mechanisms when it comes to seclusion rooms in Alberta schools.

Autism Edmonton and Autism Calgary hosted roundtable discussions with our members and

made a joint submission to the Person with Developmental Disabilities (PDD) review panel. Due

in part to our efforts, eligibility has been identified as a key issue in the final report. We look

forward to participating in the newly established Disability Advisory Forum in 2019/2020 and

continuing to advocate for improvements to the PDD program for adults on the autism spectrum

and their families.

Autism Edmonton, Autism Calgary and Autism Society for the Regional Municipality of Wood

Buffalo developed an Election Guide to highlight key messages for our members who advocated

and engaged candidates during the provincial election.

On the National Level, as a member of the Canadian Autism Spectrum Disorder Alliance (CASDA),

Autism Edmonton attended the 2019 CASDA Leadership Summit. Along with over 180

stakeholders from Canada’s autism community, we helped to launch the Blueprint for a National

ASD Strategy. To date, three out of four national federal parties have endorsed the Blueprint.

OUR IMPACT

18

Page 19: 2018/19 ANNUAL REPORT - Autism Edmonton · 2015/16 1,389 77 124 2016/17 1,795 122 164 2017/18 2,835 140 135 2018/19 4,149 210 231 OUR IMPACT 2015/16 2016/17 2017/18 2018/19 Number

19

We work in partnership with many organizations and groups to achieve our mutual objectives

and broaden our impact. Such collaboration encourages the exchange of knowledge, expertise,

and insights in order to improve the provision of quality services, as well as provides a forum for

cooperation and development. Over the past years, we have worked with nonprofits,

government, community agencies, corporate partners, and universities. Some of our current

partnerships include: Autism Alberta’s Allience, Autism Treatment Network, Children's Autism

Collaboration Team (CACT), Kids Brain Health Network, Kids Up Front, Edmonton Food Bank,

LINKS (Lifespan Integrated Network of Knowledge and Support), Extension for Community

Healthcare Outcomes: ECHO Autism, Interfaith Group, and Transitions Committee.

OUR IMPACT

Autism Edmonton is seen as credible and a

critical voice in research projects as we are an

“association” of individuals on the spectrum

and their families. Our organization is often

approached to help bring together

representative focus groups to assist

universities and other projects.

Through our partnership with the Autism

Research Centre at Glenrose, we support

studies related to autism on an annual basis.

We also help local researchers in recruiting

participants by spreading the word about

studies that are being conducted in our area.

Last year, we regularly shared research

opportunities with our members through our

newsletter and website.

The Children’s Autism Collaboration Team

(CACT) is a stakeholder group that was started

as a cooperative effort between Autism

Edmonton and the Glenrose Hospital nearly a

decade ago. Since then, our agency has been

actively involved in hosting these meetings

every two month. Stakeholders include

representatives from the Government of

Alberta, Alberta Health Services including the

Glenrose, Edmonton and surrounding area

school boards, University of Alberta

Educational Psychology Department, and local

service providers. Meetings consist of an

extensive exchange of information through a

round table discussion, guest speakers and

networking. Collaborating with stakeholders

allows Autism Edmonton to better represent

and serve our community from an informed

position.

Thanks to our expanding partnership with Kids

Up Front, we distributed donated tickets

among the families we serve and watched

hundreds of ticket recipients experience the

thrill of going to an Oilers or Eskimos games,

theatre performances, concerts and more.

19

Page 20: 2018/19 ANNUAL REPORT - Autism Edmonton · 2015/16 1,389 77 124 2016/17 1,795 122 164 2017/18 2,835 140 135 2018/19 4,149 210 231 OUR IMPACT 2015/16 2016/17 2017/18 2018/19 Number

20

Our agency is part of LINKS, a project which goal is to develop a way for families to easily

access services for children with neurodevelopmental differences.

There is a significant innovative component to the LINKS project:

It targets a large and diverse geographic area (metro, urban, rural, remote, and

Indigenous communities)

It has a lifespan focus - addressing services of all ages

It has expert evaluative partners to ensure a rigorous evaluative framework

It is geared towards producing model principles and foundational components of an

evidence-based navigational model or design for all communities.

Autism Edmonton’s contribution included working with the Universities of Alberta, University

of Calgary, Alberta Health Services and Autism Alberta to facilitate community conversations

across the province. We gathered our population’s current experiences about navigating

various service delivery systems related to ASD as well as highlighted present and future needs

for navigational support. Results from this project will be used to help guide future research

and influence public policy.

OUR IMPACT

ECHO Autism is a case based learning program that utilizes video-conferencing technology to

educate Primary Care Providers (PCPs) and other health care specialists in best-practice care for

Autism. Autism Edmonton is proud to be part of this program and bring the voice of our

community to discussions.

Participation in ECHO Autism increases the knowledge and capacity of Autism Specialists and

fellow community practitioners enabling families to access evidence based autism care from

their physicians who they know and trust within their community.

With funding from

20

Page 21: 2018/19 ANNUAL REPORT - Autism Edmonton · 2015/16 1,389 77 124 2016/17 1,795 122 164 2017/18 2,835 140 135 2018/19 4,149 210 231 OUR IMPACT 2015/16 2016/17 2017/18 2018/19 Number

21

OUR DONORS

South Common

Royal Alexandra Hospital Employees Charitable Donation Fund

The Kucharski Bold Foundation

($1000 and up)

21

Page 22: 2018/19 ANNUAL REPORT - Autism Edmonton · 2015/16 1,389 77 124 2016/17 1,795 122 164 2017/18 2,835 140 135 2018/19 4,149 210 231 OUR IMPACT 2015/16 2016/17 2017/18 2018/19 Number

22

Sinneave Rick & Brune

Egan Lee

Jardine David

Otteson Roger & Eleanor

Bronson Laurie

Mak Ronald

Pullam Greg

Murray Jeff

Norburn Jonathan

Stevens Sam

Zylstra David

Leckelt Lindsey

Campbell Charles

Fritz Trevor

Leckelt Dan

Johnson Realene

Romanchuck Jason

Vinet Trina

Olson Gary

Kornelsen Vera

5 Artists 1 Love

Harry Ainlay School

Jacquie’s Garage Sale

Old Skool Hockey Tournament

Sister Annatta Brockman School

St. Louis Bar and Grill

Stephen Schaefer’s 1000 Burpee Challenge

Stuart Olson Golf Tournament

Westminster School

Zesty’s Bar and Grill

OUR DONORS

($500 and up)

Autism Edmonton is deeply grateful for the tremendous leadership and longstanding generosity of the Gala Committee who have been meeting for many months (and hours) to plan our next year’s Opening Doors for Autism Gala and Auction scheduled for October 25, 2019. A huge thank to all of our supporters, donors and sponsors – we look forward to celebrating the 25th anniversary of this event with you!

405 attendees | 32 teams

Top fundraising team - Team Peter

Largest team in attendance – Team Doodlebug

Ambassador - Hadlie White

Over a 50% increase in in-kind donations

Page 23: 2018/19 ANNUAL REPORT - Autism Edmonton · 2015/16 1,389 77 124 2016/17 1,795 122 164 2017/18 2,835 140 135 2018/19 4,149 210 231 OUR IMPACT 2015/16 2016/17 2017/18 2018/19 Number

23

2018 2019 2020 (Budget)

Revenue

Gala 556,000 0 550,000

Donations 270,521 178,743 250,000

Grants 70,909 99,176 112,000

Programs 54,227 98,892 123,000

Fundraising Events 50,927 27,676 45,000

Casino 30,108 80,000

Other 2687 4,089 10,000

Total Revenue 1,005,271 438,684 1,170,000

Expenses

Salaries & Benefits 497,201 524,578 551,000

Gala 222,467 0 230,000

Other 164,080 163,467 129,200

Total Expenses 883,748 688,045 910,200

Surplus (Deficit) for Year 121,523 (249,361) 259,800

Cash Position

Cash at start of year 126,425 310,542 278,883

Surplus (deficit) for Year 121,523 (249,361) 259,800

Amortization 11,432 14,529 9,000

Change in Working Capital 65,882 238,053 32,375

Fixed Asset Acquisitions (14,720) (34,880) 15,000

Cash at Year End 310,542 278,883 595,058

Gala Year? Yes No Yes

SUSTAINABILITY REPORT

Page 24: 2018/19 ANNUAL REPORT - Autism Edmonton · 2015/16 1,389 77 124 2016/17 1,795 122 164 2017/18 2,835 140 135 2018/19 4,149 210 231 OUR IMPACT 2015/16 2016/17 2017/18 2018/19 Number

24


Recommended