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Person Centered Dementia Care - The CMS Hand in Hand Toolkit
Karen Schoeneman
+Hand in Hand – What is it?
n Training toolkit: 6 hour-long training classes n 4 on person-centered dementia care n 2 on abuse recognition and abuse prevention n Instructor orientation guide
n Consist of video clips shot in a nursing home, along with instructor notebook to guide discussions
n Focus is nurse aides but all staff would benefit
n CMS has distributed the kit to all nursing homes or it can be purchased from the government if you don’t have it
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+The Cover
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+Each Lesson Has a DVD and a Teacher’s Manual
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+The Key is Interaction Style
n Especially for residents with dementia, but really for all residents, the way staff interact can either bring great quality of life or can result in loss of dignity and self-esteem
n All staff would benefit from looking at some of the videos and reviewing their own style of interactions
n Managers, supervisors, leaders can model this person-centered style and see that their staff have good interactions with residents
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+You Can Model and Teach
n Social Service workers and Activity Directors are specialists in Quality of Life
n You are cued in to dignity and how we “come off” when we interact; it is easy for staff to get in a rut and “come off” as hurried, harried, disinterested, even rude, without even intending it
n You are natural models and teachers of the best styles; you can point out problems and solutions and this course can help.
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+Course Stresses Person-Centered Care “Person centered care is an approach to care that
honors and respects the voices of residents as individuals and those working closest with them. It involved a continuing process of listening, trying new approaches, seeing how they work, and changing routines and organizational approaches in an effort to individualize and de-institutionalize the care environment.”*
* Ohio Person-Centered Care Coalition
Leaders can make sure their organizational routines can adept to resident needs and preferences
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+Examples of Hand in Hand scenarios n Good and bad interactions, battles or good
approaches
n Teaches what goes on in the brain as dementia progresses
n Being alert to possible abuse (physical, verbal, sexual)
n Increasing level of ADL help as resident declines
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+ The 6 Lessons – Ch. 3 and 4 Videos Are Valuable for All Staff n 1. Understanding the World of Dementia: The
Person and the Disease
n 2. What is Abuse?
n 3. Being with a Person with Dementia: Listening and Speaking
n 4. Being with a Person with Dementia: Actions and Reactions
n 5. Preventing Abuse
n 6. Being with a Person with Dementia: Making a Difference
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+Now We Meet Mrs. Caputo and Heather
n Watch Heather’s interaction style, voice tone, facial expression
n She will need to offer help while maintaining dignity
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+A sequencing problem
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+Heather Needed to Correct a Mistake While Maintaining Dignity
n What was happening in this video?
n What was the Heather’s response
n What was Heather’s style of interacting?
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+Another Aide Tries to Be Sociable
n Watch what Charlie says and does with this resident.
n Is he maintaining dignity?
n Is he listening and supporting choice?
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+Charlie Gets Me Up
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+Does Charlie Need Coaching?
n Did Charlie do anything wrong? What?
n What would your emotions be if you were this resident?
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+Dementia Causes Brain Changes
n Area affected is unique
n Often communicating is difficult, so we need to pay close attention to facial and body language as well as words that are being attempted
n Course DVD Module 1 shows deterioration of brain tissue – point is to realize a resident isn’t being difficult, but is having trouble understanding you and remembering
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+ What Difficulties Might Appear? n Forgetting what they said and consequently saying
the same thing over and over
n Forgetting who you are and what your role is
n Forgetting how to do things like ADLs and what you have told them
n Being unable to find the right words to communicate, and being frustrated at this
n Forgetting where they are, and other key facts
n Being easily distracted and overwhelmed
n Misreading the environment, e.g., thinking a dark area is a hole
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+ Now We Look at Two Styles of Getting Mrs. Caputo Up n Watch the aide Jane’s style of speaking and
body language
n Watch the problems Mrs. Caputo is having with communication
n Is this a good morning?
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+Good Morning #1
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+Mrs. Caputo and Jane
n What did you notice about Mrs. Caputo’s communication?
n What did you notice about Jane’s communication? Both speaking and listening?
n How did Mrs. Caputo react to Jane?
n Next, let’s see how Heather does it. What interaction skills does she use?
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+Good Morning #2
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+Mrs. Caputo and Heather
n Resident had the same problems in each scenario
n But interaction made all the difference. Some residents would show anger, Mrs. C just gave up in scenario 1 and she had a good time in scenario 2.
n What were Heather’s skills to help Mrs. C to understand and complete tasks?
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+Many Reasons for a “Behavior” n Health issue
n Medication
n Communication
n Environment
n What task is requested of them
n Unmet needs
n Life story
n You
n What is there about you that is different from some other care giver?
n WHAT ARE SOME THINGS THAT COULD MAKE SOMEONE WITH DEMENTIA RESPOND DIFFERENTLY TO YOU THAN THEY DO TO SOMEONE ELSE?
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+Communication Strategies That Leaders Can Model and Coach n Identify yourself
n Get at eye level, use person’s preferred name
n Listen with attention and patience, give time for response
n Watch body language
n Use visual cues to add to your verbal instructions
n Ask how you can help them
n Slow down, use simple sentences
n Repeat instructions as needed
n Tell person what you are doing
n Observe emotions
n Be social, laugh together
n AVOID negative words
n AVOID ARGUING
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+ Once We Guess Why a Resident Periodically Becomes Upset . . . n We can try out techniques n To mitigate n To head it off at the pass n To get them busy doing something else n To reassure/give comfort, a sweater, etc. n To give needed food or drink or toileting
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+Use the 3 P’s – Prepare, Prevent, Present n Prepare – by knowing what is likely to start
happening and what triggers it
n Is it related to time, or place, or task?
n Is it related to general loneliness, homesickness, or something else?
n At 3pm most days Mrs. Caputo tries to leave the home. She thinks she needs to pick up her children from the school bus. If thwarted, she fights back. Knowing this, what skills can staff use to mitigate the agenda? Here are two techniques.
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+Maria Tries a Technique
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+In the Lobby
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+Do’s and Don’ts When a Resident is Upset n Don’t –
n Contradict or argue n Say no, or you can’t
or other negatives n Try to physically
restrain unless there is danger
n Address the agenda by talking about it
n Try reality orientation
n Do n Anticipate n Keep calm and
reassuring n Be present and listen n Offer an alternative n If things are getting
out of control, call for help
n Get others out of the way of an aggressive action going on
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+Buttons
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+How Did Wendy Do?
n Did she maintain dignity?
n Did she figure out what he really needed?
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+Sneakers
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+Family Members Should be Welcomed into the Team n They need a little education on dementia so
they can better understand their relative and other residents
n This aide’s leader did something brilliant to help the son understand. What was it?
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+Cues to a Person
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+Help Your Volunteers
n If you have young volunteers, sometimes they are shy about talking to a resident
n You can help them do what the previous slide shows – they can look at a person’s room and tell you what they found out.
n This gives them something to talk about.
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+Summary – Key Skills You Can Foster and Model n See and Say – show what you want while saying
it
n Ladies and Gentleman – politeness runs deep – shaking hands, having a gentleman help a lady, every interaction should be like you are greeting the Queen of England
n Don’t mention failures, just offer help
n Don’t talk down to a resident or treat like a child
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+CMS is hoping. . .
n And so am I, that nursing homes will want to have most of their staff and supervisors take this training, so everyone who interacts with a resident with dementia can have a toolkit of “behaviors” that can help life go smoothly for everyone.
n Families and volunteers need some of this education so they acquire skills they need too. The Council might like to see some of Module 1 so they can learn about dementia.
n The videos can be shown from the DVDs for those not needing a whole hour long classroom experience
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+How to Buy the Toolkit
n Hand in Hand: A Training Series for Nursing Homes is available from National Technical Information Service for $100.00 plus S/H. The product number is AVA21573CDRM and can be ordered by telephone at 1-800-553-6847.
n Alternatively, you may download the series and create your own toolkit from the website below.
n http://www.cms-handinhandtoolkit.info/Downloads.aspx
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