Local data and public health research

Anne Marie CarewNational Health Information Systems

Health Research Board

• State agency under Department of Health.– Budget €40m+, funding portfolio €100m+, staff of 60

• Providing evidence for policy– Public Health Alcohol Bill, Food Pyramid, Fluoridation

• Information for service planning– Disability, drug use, mental health

• Funding health research– Clinical, Population Health, Health Services Research– Infrastructure, capacity building, specific projects.

internal

external

National Health Information Systems

• HRB has been in the business of collecting health information since the 1960’s

• Currently five national systems in the areas of disability, drugs and alcohol and mental health

National Health Information Systems• Service planning database for intellectual disabilityNIDD

Established 1995c.27,000 records

• Service planning database for physical and sensory disabilityNPSDD Established 2002c.25,000 records

• Epidemiological database recording treated drug and alcohol misuse

NDTRSEstablished 1990

c.20,000 cases p.a

• Database recording admisssions to and discharges from psychiatric hospitals

NPIRSEstablished 1963

c. 18,000 admissions & 18,000 discharges

• Census of drug and alcohol related deaths NDRDIEstablished 2005

c. 1,400 p.a

National Health Information Systems• Service planning database for intellectual disabilityNIDD

Established 1995c.27,000 records

• Service planning database for physical and sensory disabilityNPSDD Established 2002c.25,000 records

• Epidemiological database recording treated drug and alcohol misuse

NDTRSEstablished 1990

c.20,000 cases p.a

• Database recording admisssions to and discharges from psychiatric hospitals

NPIRSEstablished 1963

c. 18,000 admissions & 18,000 discharges

• Census of drug and alcohol related deaths NDRDIEstablished 2005

c. 1,400 p.a

National Health Information Systems• Service planning database for intellectual disabilityNIDD

Established 1995c.27,000 records

• Service planning database for physical and sensory disabilityNPSDD Established 2002c.25,000 records

• Epidemiological database recording treated drug and alcohol misuse

NDTRSEstablished 1990

c.20,000 cases p.a

• Database recording admisssions to and discharges from psychiatric hospitals

NPIRSEstablished 1963

c. 18,000 admissions & 18,000 discharges

• Census of drug and alcohol related deaths NDRDIEstablished 2005

c. 1,400 p.a

National Health Information Systems• Service planning database for intellectual disabilityNIDD

Established 1995c.27,000 records

• Service planning database for physical and sensory disabilityNPSDD Established 2002c.25,000 records

• Epidemiological database recording treated drug and alcohol misuse

NDTRSEstablished 1990

c.20,000 cases p.a

• Database recording admisssions to and discharges from psychiatric hospitals

NPIRSEstablished 1963

c. 18,000 admissions & 18,000 discharges

• Census of drug and alcohol related deaths NDRDIEstablished 2005

c. 1,400 p.a

National Health Information Systems• Service planning database for intellectual disabilityNIDD

Established 1995c.27,000 records

• Service planning database for physical and sensory disabilityNPSDD Established 2002c.25,000 records

• Epidemiological database recording treated drug and alcohol misuse

NDTRSEstablished 1990

c.20,000 cases p.a

• Database recording admisssions to and discharges from psychiatric hospitals

NPIRSEstablished 1963

c. 18,000 admissions & 18,000 discharges

• Census of drug and alcohol related deaths NDRDIEstablished 2005

c. 1,400 p.a

How is the information used?

• National level/web updates published annually for Department of Health/HSE

• European level for EMCDDA• International level for UNCRC, UNODC, World Drugs Report, WHO• Regional PI reports for HSE to monitor targets • Interactive data available on drug treatment and on mental health

(CSO)• Peer review publications• Services • Requests for data from policy makers, consultants, nursing staff,

service planners, hospital and service personnel, local health managers, students, academic staff, media etc.

Relevance to policy and practice

• NIDD/NPSDD– Inform EU feasibility study on European Register for children with Cerebral Palsy (2011)– Data used in value for money and policy review of disability services, 2012. – Database used as sampling frame for the TILDA Intellectual Disability Study (ongoing). – Contribution of data on assistive technology and technical aids to HSE’s Health Atlas– Data on wheelchair use for the Interdepartmental Group reviewing Mobility Allowance, 2013.

• NDTRS – Data used to inform set up of Local Drugs and Alcohol Task Force areas.– Informing the National Drugs Strategy 2009-2016.– Inform legislation banning head shop substances (2010).

• NPIRS – monitoring Vision for Change and its implementation

• NDRDI– Informing National Overdose Prevention Strategy and National Substance Misuse Strategy (which has led to the

Public Health (Alcohol) Bill)– Medical Bureau of Road Safety/Road Safety Authority

Examples of impact

• NDTRS data on drug treatment

• NDRDI data on drug-related deaths

• NIDD – almost complete register of people with intellectual disability

In 2010, NDTRS data were used in the development of legislation banning head shop drugs

NDRDI data were used by European Medicines Agency to withdraw sale of some analgesics

The NIDD was used as a sampling frame for the TILDA intellectual disability supplement

Geographical reporting

• National• Community Health Organisation area (CHO)• Local Health Office area (LHO)• County• Electoral division area

• Local drug and alcohol task force areas• Alcohol treatment/deaths within local areas• Wheelchair users in a local area• Residential accommodation type by area• Cranmore and Environs Regeneration Masterplan• Admissions following out of hours GP referrals to

mental health inpatient services within a region.

Geographical profile examples

Format

• Reports• Static data tables• Interactive data tables• Static maps• Charts • Infographics

Access

• Freely available• Access methods– Direct access online– Request for information process (www.hrb.ie)

Developments

• LINK - single web-enabled system • Greater efficiencies • Geographic data at small area level