Li-Ying Chiu Research and Development Specialist HOPE Foundation for Cancer Care

4 Good Tips Advocacy and Campaigns to Promote

Cancer Care

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Source: Ministry of Health and Welfare

Taiwan

Area ：36,000 km² Population : 23 million Coverage of NHI : 99%

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Taiwan

Ø  Cancer Spending in NHI : 1.92 billion USD ; 11.6 % of Total NHI Expenditure (2013)

Source: Ministry of Health and Welfare、National Health Insurance Administration & WHO

Taiwan US UK JP KR Total Health Expenditure as share % of GDP (2012)

6.6 17.9 9.4 10.1 7.5

Health Expenditure Per Capita (USD) (2012)

1,350

8,895

3,648

4,752

1,703 6.6times 3.5times

1.3times 2.7times

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- 2,000 4,000 6,000 8,000

10,000 12,000 14,000 16,000

The number of new cancer cases of the 10 top cancer

2009 2010 2011

Every year, more than 90,000 patients face the impact brought by cancer

Source：Taiwan Cancer Registry Ministry of Health and Welfare

Cancer has ranked the top 10 causes of death in Taiwan for past 32 years

92,682

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Incidence rate & Mortality rate Ranking compared to 34 OECD countries

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Ranked 23rd place

Ranked    10th place

No treatment within 3 months after diagnosis Much higher mortality rate!

Mortality Rate Per Year rises to is more than the mortality rate of those who receive treatment timely.

No treatment within 3 months after diagnosis

18%

Source：Taiwan Cancer Registry, Ministry of Health and Welfare

Receive treatment timely

3 times 55%

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Why Are Cancer Patients Unwilling to Receive Treatment? 【A Survey of Health Promotion Administration (HPA)】

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The 7 Main Reasons Ø  Too old to undergo the side effects Ø  Fear of surgery Ø  Fear of the side effects of therapies Ø  Reduce the quality of life Ø  Appearance change Ø  Need to work Ø  Fear to be the burden of the family

Source: The survey of Health Promotion Administration 2012 8

Why do Cancer Patients Receiving Treatment Also Want to Give Up? 【A Survey from HOPE】  

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Over 90% patients are worried about mental and physical discomfort

91.7

39.6 29.2 20.8 18.8 14.6 10.4 10.4 0

10 20 30 40 50 60 70 80 90

100 The reasons why you want to give up

Source：A Survey about the Discomfort of Cancer Patients and Their Responses, HOPE 2013, n=206

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23%

Around 60% patients do not talk about the mental and physical problems with health care professionals

due to Fear、Lack of Knowledge of Cancer！

NO 17%

YES 83%

Will you take the initiative to talk about your discomfort with health care professionals?

Source：A Survey about the Discomfort of Cancer Patients and Their Responses, HOPE 2013, n=206

1.  I don’t think it’s helpful 27% 2.  My body has no apparent discomfort

25% 3.  Don’t know how to ask 20% 4.  They are too busy to answer 9% 5.  Don’t know whom to ask 9% 6.  Feel embarrassed to ask 5% 7.  Other 5%   11

Lack of Understanding

Stage 0, 3% Stage I, 16%

Stage II, 30% Stage III, 22%

Stage IV, 16%

Unclear 13%

What is Your Stage of Cancer?

1/ 10 Cancer Patients does not know Their Cancer Staging

Source：A Survey about the Discomfort of Cancer Patients and Their Responses, HOPE 2013, n=206

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Film

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4 GOOD TIPS Awareness Active Participation Patient Advocacy

Cancer Patients and Their Family

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Cancer is not a terminal illness Remember to follow 4 GOOD Tips

GOOD TIP 1 Understand It

GOOD TIP 2 Face It

GOOD TIP 3 Explore It

GOOD TIP 4 Fight It

Learn “4 GOOD Tips“! Cancer treatment is not as uncomfortable as you think!

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GOOD TIP 1： Understand It Learn about your cancer staging and molecular profiling results.

•  The Type of Cancer：Site of the primary tumor •  The Stage of Cancer：Tumor Size(T)/The

lymph nodes involvement(N)/The presence of metastasis(M)

•  The Cell Type：Based on pathology reports •  The Gene Type：The patterns of gene

expression

Cancer ID Card

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Lung Cancer 1st among the ten leading causes of cancer death

Mr. Hu The Date of Pathology Report 2012/ 10 The Site of Tumor Lung Cancer The Cell Type Adenocarcinoma The Size of Tumor 1 cm Lymph Nodes Involvement (+) Metastasis Pleural Cancer Staging 3B(T4N1M0) The Degree of Cell Differentiation Chronic Diseases Hypertension The Gene Type Treatment Surgery/ Chemotherapy

Understand It

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GOOD TIP 2： Face It Explore orthodox treatment to confront cancer.

• Near  the  livelihood • Hospitals  accredited  by  health  care  authori6es

Choose the Hospital

• Prepare imaging and pathology reports to discuss with doctors. • Remember to receive the treatment in time before the disease gets worse.

Ask for Second Opinion

• Doctors and case managers • Cancer Resource Map: A platform includes all cancer information • Free nationwide hotline：0809-010-580

Search for Resources

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GOOD TIP 3： Explore It Find individualized cancer treatment.

•  Set the goal of treatment which meets the individualized need, e.g. cure cancer, decrease the discomfort, alleviate the disease etc.

Explore the main goal of treatment

•  No treatment is absolutely good or bad! •  Importantly, choose the appropriate treatment based on patients

'current status to maximize the effectiveness of treatment.

Explore the most suitable treatment

•  Each treatment has its side effects, it may cause some discomfort, but most can be mitigated. Prior knowledge of mitigation methods can reduce the impact brought about by the treatment.

Explores the side effects

Treatment

Chemical Therapy

Targeted Therapy

Radiation Therapy

HRT Transplant

Therapy

Clinical Trials

Surgery

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GOOD TIP 4： Fight It Trounce the tumor by completing your treatment!

• Persistent in the dietary principle of high calorie, high protein, do exercise regularly and have plenty of sleep. Keep the best physical  strength to fight against cancer

Adjust the lifestyles

• Find the ways to keep yourself calm and happy, and learn to be view cancer positively

Adjust the emotion: keep positive!

• Keep the good communication with the medical staffs • If there are any symptoms of discomfort , inform your medical team and do not arbitrarily interrupt or stop treatment .

Cooperate with doctors and nurses

Regular Follow-

up

Blood Test

Imaging Examinat

ion Endoscopy

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Take Action

Ø Keep tracks of test results and treatments they have done

Ø Actively participate in their own health

Ø  Find out the best treatment plan with medical team

Hope Passport

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WHAT WE HAVE DONE THIS YEAR…

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1. Hope Passport Ø  Available in 101 hospitals, including all those which provide

cancer treatments and cancer care services. Ø  The circulation jumps from 5,389 (2013) to over 9,000(2014

Nov.) in one year . Ø  The amount of total circulation grows 40%.

   

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2. Press Conference

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3. Social Media: Website http://www.ecancer.org.tw/4good_hope/

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3. Social Media: Facebook 8,044 likes on the Facebook posts

Reached to 338,944 Facebook users (since Aug. 28, 2014)

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4. Poster & Advertisement Lamp House

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Feedback Ø  “It makes me feel more confident in treatment! ” - Mr.

Wang, 63 years old (colon cancer patient)

Ø  “According to the records, I can discuss with doctors if I have questions straight away.”-Miss Lee, 40 years old (caregiver)

Ø  “Communication improves!”-Miss Lai, 34years old (nurse)

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ü  More Lectures ü  Hope Passport APP

What’s Next Strengthening Cancer Education

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ALL WIN Government、Hospitals、Cancer Patients、NGOs

Our Vision EMPOWERMENT

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4 Good Tips Learn about your cancer staging and molecular profiling results.

Explore orthodox treatment to confront cancer.

Find individualized cancer treatment.

Trounce the tumor by completing your treatment!

LEFT

GOOD TIP 1： Understand It

GOOD TIP 2： Face It

GOOD TIP 3： Explore It

GOOD TIP 4： Fight It

” For (4) Good, Cancer Shall be in the Dust.” 32

Thanks for your attention!

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