Celebrating 5 years of Successful Innovating Operation!

7.7.2007-7.7.2012

October, 2012

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Childrens Cancer Hospital Foundation 57357

Vision and Mission Statements

Vision We are a people organization alleviating suffering and providi ng hope to children with cancer and their families. Mission

Strategic Direction Our strategic direction is the three pillars of quality care, education and research which is the heart of the hospital mission to provide free care with justice in quality for all children with cancer.

Agilit y Being an agile organization, we embrace change and innovati on putting knowledge i nto action at the core of our ac tivities .

Fundraising Being donor centered we are a transparent, trustworthy, model of philanthropy, ensuring financial sustainability through multi sector cooperation

Learning organization We are a l earning organizati on, learning how to learn, empowering the team by supporting personal

growth and sharing our knowledge with others through local and internati onal collaborations.

Community With cancer as our singular focus, we ser ve our community through awareness, prevention and as a model of corporate social responsibility and provider of good healthcare and management systems.

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Childrens Cancer Hospital Egypt 57357 Vision and Mission Statements

Our Vision for CCHE 57357

Challenging the frontiers of cure for our kids with cancer by providing the highes t standards of care while being an inspiring model of charity. Our Mission for CCHE 57357 Curing

We cure kids with cancer for free regardless of race, creed, or ability to pay with Justice in Quality. Caring Through compassion for children and passion for ser vice we provide cost effec tive, famil y centered quality care by our dedicated, motivated, well trained s taff . We take care of our staff as they are the essence of our humanitarian efforts. Learning organization We put knowledge i nto action by building our processes on evidence based practice through continuous

improvement in our learni ng, training and exchanging knowledge with others. Research Research is our methodol ogy. Through fostering innovation, creation and teamwor k we will integrate research in all our ac tivities . Challenge Being an agile, flexible, and dynamic organization; we are change agents rising to meet all challenges with moral courage by integrating the newest and bes t practices in technology, science and management in all our ac tivities .

Community We take care of our community by leading in cancer awareness and preventi on and the protection of our environment.

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Effectively Unique

The Childrens Cancer Hospital Eg ypt 57357 is an incredi ble proj ect that is a true example of the

goodness of mankind and what can be achieved when peopl e wor k together for a common goal .

Egyptians and people from all over the world and most particularl y in the Arab world have contributed

generousl y to the hospital in their wish to support change and improvement and also in their desire to

contribute in any way for the future of our countries and our children, both the sick and the healthy.

Egyptians have demons trated their generosity and their love for their children through the buildi ng of

Hospital 57357 which has been built compl etel y by donation. They have wor ked together since the

inception of the idea of building a state of the art childrens cancer hospital to achi eve the dream of a

better tomorrow for our children. For, not onl y is this project attempting to increase the childhood cancer

survi val rate i n Eg ypt from less than an estimated 40% to the Western rates of 75-80% overall sur vival, i t

is also attempti ng to create a new system of healthcare where management and treatment utilize the

most scientific approaches practiced today. With 4 years of operation completed, 75% overall survi val has

been achieved!

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AFNCI and CCHF

Planning for the hospital began i n 1998 with the formation of the Associati on

of Friends of the National Cancer Institute (AFNCI) whose mandate is to

improve the lives of cancer patients at the National Cancer Institute and

CCHE through facility development, upgrade and training and whose

primary goal at that time was to build a state of the art childrens cancer

hospital[CCHE] that would be free of charge for all children regardless of

race, creed or ability to pay. The AFNCI board appointed a health

consortium to undertake the pre-design phase which di d a feasibility study,

demographic sur vey, operati onal plan, staffing plan, job descriptions and

suggested governance to begin this unique projec t. The AFNCI were

responsible for tendering and implementation of design, construction,

electro mechanical, interiors, equippi ng, health management and fundraising for the entire CCHE project.

In 2004, the Childrens Cancer Hospital Foundati on 57357 was formed to take the hospital into the next

phase of start-up and operation and is now responsible for the strategic vision and mission of the hospital

and its financial sustainability.

57357 Design Concepts and Highlights

The design phase began with eminent healthcare facility architect , Jonathan Bailey. Mr. Baileys concept

was to create a design that was futuristic symbolizing a new era in healthcare but also respecting Egypt s

rich culture and architecture. The design also followed the important aspects of form following function so

that the design would be user friendly for patients and staff and would be responsi ve to pati ent care,

education and research needs for the coming decades.

The interior theme, widel y utilizing natural light throughout and the selecti ve use of colour, is intended to

make the hospital an appealing pl ace for children who will feel a sense of hope, security and a home-like

atmosphere. In compliance with the benchmark standards for pediatric oncol ogy care, the patient rooms

are single or semi-private to reduce the risk of infecti on for our immuno-compromised patients. Compl ete

services are also offered to achieve the standards of a pedi atric oncolog y service which state that ther e

should be a complete diagnostic centre along with surgical and multi-disciplinary specialties to treat the

broad spectrum of concerns that children with cancer have.

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Features i nclude:

187 beds with expansion capabilities to 350.

A design that facilitates family centred care

Specialized clinical pharmacy. Intensive Care and Bone Marrow Transpl ant units.

A comprehensi ve surgery department able to conduct complicated tumour surgery

such as neuro, micro, and ophthalmic surgery. A large outpatient facility able to accommodate 300 patients per day. Multi speciality clinics such as pain, cardiology, dental and ophthalmology.

The first specialized department of psycholog y, soci al work and psychi atry in Eg ypt for

pediatric oncolog y patients. The first child life and school program in Eg ypt for hospitalized children. The first comprehensi ve physiother apy department for oncology patients i n Egypt.

State of the art di agnostics and laboratory support:

i. CT, MRI, PET scans, nuclear medicine, blood bank, cytogenetics laboratory, virology, cord blood s torage and stem cell collection and storage.

A full y equipped r adiotherapy department.

Play areas throughout the hospital departments to ease the stress of waiting for children.

Designed to meet the mos t rigid requirements for immuno-compromised patients and

infection control Designed to meet the highest standards for environmental issues such as was te and

water management and energy consumption.

Challenge, Change, Hope, Excellence oriented

The hospital entered the most important phase of start-up and operation on July 7, 2007; making

the hospital free of charge for all patients and accepting patients with the following criteria:

1. The patients are newl y diagnosed or suspected cases of cancer.

2. The patients must be referred by a physician.

3. The age is from newborn to 18 years.

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There is a large group of dedicated staf f from all levels of healthcar e who

have been oriented to the new standard of healthcare and who believe in

the mission and vision of the hospital and are committed to our slogan,

Knowl edge into Acti on.

The need is great, the hospital is 100% occupancy with 300-500 outpatient

visits per day to the various hospital departments. Currentl y there are 187

beds open and all departments are operational and are wor king to establish

a good foundati on of process, policies and procedures i n alignment with the hospital mission,

vision, and core values.

Inpatient units: The inpatient units are in the bed tower and ar e a circular design to promote

better obser vation of patients and more

efficient access for staff. There are 30 rooms

that are semi-pri vate and 119 rooms that are

private. All rooms have bathrooms, tel evisions,

and wall to wall windows for children and

famil y to view the outside world for the long

days they are confined to their room. Studies

have shown that the use of windows and

outside light is extremel y important for healing

and emotional well being. Doctors and nurses

have been assigned to specific wards and are

caring for specialized groups of patients

such as leukemia, brain tumours, and other

malignancies. Each ward has a staff

lounge and locker space as well as a play

room and librar y and large outside waiti ng

area for visitors.

Outpatient Clinic

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The spacious, cheerful 27 clinic

outpatient facility is open 6 days a

week and has a 3 room 24 hour,

7days a week emergency triage for

our ver y sick patients who arrive in

serious condition either from their

disease or the treatment.

Competent physicians and nurses

perform a complete physical

assessment and initiate emergency

care to ensure stabilization of their

condition and instituting

appropriate monitoring and

treatment in a timel y, efficient

manner.

The outpatient unit has a l ovel y

outside garden where children may

play while waiting to see the doc tor

as well as several waiting areas to

provi de a smooth operational flow

and providing comfort for patients

and families who are distressed

over their illness.

It is here that the doctor will make the initial

assessment of the patients, initiate treatment

planni ng and do regular follow-up for the course

of their treatment. A satellite blood drawing

station is within the unit simplifying the process

for the patient. The pharmacy is adj acent to the

unit, enabling the parents to obtain the outpati ent

medication and recei ve education at the in-unit

drug information centre.

Multi-specialty oncology clinics have been

initiated where all specialti es will see the pati ents

as a group and discuss treatment planning such

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as the neuro-oncology team who are neurosurgeons, oncologists, radiologists, pharmacists, and

nursing. This facilitates communication and improved care.

Multi-specialt y Department:

Eye Clinic Neurology Clinic

The purpose of the multi-specialty department is to provide services to patients who require them of the

different specialties such as neurology, ophthalmology, orthopedics, pain clinic, and dermatology for both

the immediate consequences of their illness such as pain management or seizures, but also for the long

term effects such as fertility, physical disabilities, hormonal dysfunction and second malignancies.

Families can be confident that the entire needs of their children can be met at the hospital by the multi-

disciplinary team of specialists.

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Day Treatment Unit:

The objecti ve of the Day Treatment Unit is to provide all outpatient treatments such as chemotherapy,

hydration, long term antibiotic therapy, blood products, and minor procedures in an atmosphere that is

conducive to wellness and promoting acti vity. The area is a large open room concept that has

comfortable easy chairs for sitting or reclining and different pl ay centres geared to children of different

ages. There are two small minor procedure rooms equipped with anaesthesia and oxygen and a suite of

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private rooms for patients requiring isolation or pri vacy.

The competent resident physicians, nursing staff and pharmacists ensure that the treatment is given in a

timel y manner and that the famil y is educated i n all aspects of care.

Department of Laboratory Services: The objec tive of the laboratory services is to suppl y the necessar y

information that the clinicians require to diagnose and treat the patient in a timely, cost effective and

measurable methodolog y with the highest quality. The CCHE Labor atories provi des all the necessar y

services to perform the leading edge cancer di agnostics that are an integral part of treatment planning

and determining outcomes. Cytogenetics, immunophenotypi ng, flow

cytometry, molecular biology, virology, patholog y, hematol ogy, tr ansfusi on

medicine, microbiology, cord blood, clinical chemistr y are all specialties

within the laborator y ser vices that are integral to understanding the

biology of cancer and its effect on the patient.

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Department of Radiology

The objecti ve of the radiology department is to provide the

best quality imaging information that clinicians require to

diagnose and treat the patient. The department provides

the full range of imaging ser vices because the diagnosis of

tumours requires precise imagery. Therefore, MRI, CT,

Flouroscopy, and Angiography are all available for the

patients requirements and to assist the clinician in accurate

diagnostic informati on regarding the location, size, and

areas of spread.

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Department of Nuclear Medicine: The Nuclear Medicine department provi des diagnostic information to

enhance the radiolog y process in a different way and is used in the treatment of certain cancers such as

neuroblastoma and thyr oid. The CCHE is proud to have the first PET/CT scan i n Egypt and cycl otron

which is of primary importance in imaging the cancer cells and deep seated tumours. Until the cyclotron is

operati onal, the Ismalaya Military Hospital has kindl y agreed to give us the necessary material to operate

the PET/CT. The cycl otron unit is now complete and operation will begin within the next few weeks. It is

anticipated that the 57357 Cyclotron will be the main supplier for PET/CT machines operating in the

immediate vicinity of the hospital.

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Radiotherapy Department: The mission of the Radiotherapy

Department at the CCHE is to provide a comprehensi ve radiotherapy

treatment plan using the latest technology and methodology for

children with cancer safel y. The Radiotherapy Department has two

state of the art linear accelerators to perform the precise radiotherapy

that is required for our patients. There is also a Physics Department to

calculate the precise measurements and a simulator to develop them.

The Radiother apy Department, like the radi ology department is

functioning as a busi ness unit; selling its services to other hospitals in

order to generate funds.

Intensive Care Unit: The aim of the Intensi ve Care Unit is to provide comprehensi ve care to children

whose body systems are in an acute state of distress that requires intense observation and monitoring.

This may incl ude patients who are newl y diagnosed and are acutel y ill from the tumour bur den and

children with severe infections or suffering from other serious si de effects of treatment such as

hemorrhage, tumour breakdown, and seizures. Children can become critically ill suddenl y and require a

highly skilled staff who can perform the necessar y procedures such as mechanical ventilation, cardiac

monitoring, and correcting life threatening chemical imbalance. The unit is designed for 1 to1

nurse/patient obser vation and all

patients are in pri vate rooms with a

view from the nursing station.

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Bone Marrow Transplant Unit

The 9 bed bone marrow transplant unit

began operation November 2009 to provide

autol ogous transplantations [from the

patients own bone marrow] for children with

different types of cancer such as

neuroblastomas and leukemi a that standard

chemotherapy has not been successful.

Plans are underway to develop a l arger unit

in the expansion phase to meet the demand

for this type of treatment.

Physical Therapy Department:

The Physical Therapy Department provides comprehensi ve services to assist infants, children and adolescents to improve their gross motor, mobility and bal ance skills. Children with cancer often have

severe side effects from the disease or the treatment compromising their physical abilities. Licensed physical

therapists with expertise in pediatrics work with the child and family to develop goals that optimize the childs

functional abilities. All children referred to the department receive an indi vidual assessment to identify impairments

and limitations that interfere with the childs functional skills. A treatment plan with individualized goals is

developed in collaborati on with child and famil y because most of the plan mus t be carried out at home on a daily

basis to optimize effect. Treatment inter ventions are individualized and include a variety of methods and

modalities that incorporate current theories and equipment that optimizes patient pr ogress and outcomes.

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Department of Psychosocial Oncology:

The vision of the psychosocial department is to introduce the best psychological and soci al care for the

child with cancer and his /her family through a multi-disciplinary team approach so they will find ways to

improve quality of life, manage their fears, and find hope for their future. The psychosoci al oncolog y

department is the first of its kind in Egypt recognizing that psychosocial oncology is a unique

specialization meeting the unique needs of a patient and family faced with the devas tation of the cancer

diagnosis. The team consists of psychiatrists, psychologists,

social wor kers, and child life therapists. The psychosocial

needs are multi-factorial affecting family dynamics, patient

behavior, coping skills, sibling needs, and out of pocket

medical costs such as transportation, extra food costs, cl othing

costs, and loss of work time. These costs can be considerable

for a famil y already struggling financially. The psychosocial

team inter views all families and patients from the beginning of

diagnosis, making an assessment and pl anni ng future

strategies. Plans are bei ng made to develop support groups

for children, parents, and the bereaved families. A psychologist

is part of the team to perform the in depth developmental and

behavioral assessments for the children who ar e suffering

from lear ning disabilities as a result of the disease or

treatment.

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Pharmaceutical Services: The vision of the CCHE Department of Pharmaceutical Services is to

enhance patients' quality of life by exercising leadership in provision of the highest standards of

pharmaceutical care with a patient centered focus through coordinated clinical pharmacy acti vities , research and scientific management approaches, which are targeted towards positi ve patient outcomes .

Pharmacists are active members of the healthcare team who provide pertinent advice regarding drug

dosages, i nteracti ons, compati bility, the best drug for a particular situation, and other general drug

information. They also prepare all drugs in the unit dosing format, which is where drug doses ar e sent up

to the ward prepared separatel y for the patient for a 24 hour basis. This reduces wastage and errors and

is more economical. Keepi ng accurate statistics since opening, the pharmacy is mixing more than 32,000

intravenous pr eparations and preparing more than 8000 oral prescriptions monthl y.

Pharmacists are an essential part of the care team

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Department of Surgery: The Operating theatres and

recovery room are s tate of the art and have all the

essential equipment and instrumentati on to perform

complicated cancer surgery such as microsurgery,

laser surgery and neurosurgery. The rooms are

spacious and have the necessary air handling to keep

the department i nfection free. There is a large team of

qualified neurosurgeons , orthopedics, ophthalmolog y

surgeons, and cancer surgeons who perform the

complex surgeries required by many of our children.

The nurses are well trained in the principles of aseptic

technique, anatomy and physiol ogy and surgical

nursing to assist the surgeons in their wor k.

Volunteer Services: The Volunteer Department of the CCHE 57357 vision is Believing in the

uniqueness of the indi vidual, the power of our families and the importance of community to help to create

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a hospital of excellence. The Childrens Cancer Hospital Eg ypt administration believes firml y that

implementation of a Volunteer Department is necessar y to encourage the community to take an acti ve

part in CCHE, enabling us to do things creatively, innovati vel y and help departments throughout the

hospital to achieve the level of service they are stri ving for. Volunteers ar e helping in the pl ay acti vities, as

information guides, transporting patients, supporting families and hel ping in all CCHF and CCHE events.

CCHF Blood

Donor Clinic:

Our children need a ver y safe and constant blood suppl y because of the effec ts of disease in some cases

but also from the effect of treatment. Because of our history of establishing the first structured voluntar y

blood donor program in Eg ypt for the Nati onal Cancer Institute, we wer e also committed to establishing a

similar program for the CCHE 57357. Since beginning in August, 2007 the hospital has been blessed by

having 3000 units of bl ood donated by wonderful people who are committed to helping our children. The

police academy recruits and the soldi ers send donors weekly to donate blood.

Giving a helping hand

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Health Information Technology Department: From the beginning

of the pl anning in 1999, the vision for information systems was to

have a hospital that would be competitive with the leading systems in

the West but that might not necessarily be at the l eadi ng edge of

technology. Thinking has evolved since then recognizing that it is important to achi eve a full y automated

hospital with the best pr ograms and technologies available. The Childrens Cancer Hospital Eg ypt 57357

admi nistration believes that timel y and easy access to informati on is critical to the pursuit of excellence in

all clinical, academic, r esearch and administrative matters. It is crucial for the hospital to be able to

capture all the data about the patients , treatments, expenditures, and all hospital wor k to be able to

develop long term pl anni ng and policies that will af fect futur e expansion or program development.

Becoming an automated hospital will not only manage data better but improve the wor k of the hospital

more efficientl y, reduce errors, and be more cost efficient. Cerner, Oracle, Fujitsu-Siemens, Healthy and

SEE have completed the complicated process of digitization with our HIS staff and the CCHE staff to

become the first full y digitized hospital i n Egypt! On November 8, 2009, the Cerner HIS program began

operati on. The CCHE 57357 admi nistration is very proud of the enormous efforts that the entire staff has

made to learn the system and begin the process of data capture and data management that will help us in

provi ding the best, most cost ef fecti ve care for our patients.

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CCHE Dental Clinic

The major source of infecti on for children is their mouth and for children whose immune system is

compromised by cancer treatment and its side effects, this can be a ver y serious probl em. The obj ective

of the Dental Clinic is to ensure that all of our children have healthy teeth and gums to pr event serious

infection. The dental clinic is fully equipped with all the necessar y tools to perform the comprehensi ve

dental care our children require.

Department of Nursing

The nursing department is the most important department of a hospital because nurses are the primary

care givers for the patient and famil y. To care for children with cancer requires specialized training,

dedication, compassion and a true love of nursing. The 400 nurses who work in CCHE are a dedicated

group of men and women from degree and diploma programs throughout Egypt. All nurses recei ve

compulsory training regarding childhood cancer and treatment, nursing assessment, family centred care,

computer literacy, English, health information systems, quality, evidence based practice and working as

an integral part of a multi-disciplinar y team. The nursing department vision statement is: To provide

compassionate, highly specialized quality patient and famil y centred care. Their mission is: Challenging

the future. As an integral partner of the healthcare team, through dedicated service, nursing at CCHE will

strive to improve the healthcare of children with cancer through l eadership, evidence-based clinical

practice, education and research.

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CCHE Auditorium and Conference Facilities:

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The beautiful CCHE 57357 Auditorium has 200 seats and is being used for educational symposiums,

performances for the children and their families, and meetings. It is full y equipped with LCD projector, full

sound and recording capability, monitors and comfortable seating with a closel y situated reception area.

In Jul y 2009 , the Auditorium and classrooms were used for the CCHE 57357 International Pediatric

Conference that had over 500 attendants for the week and conducted the first live streaming of the entire

7 day meeting and was available on the internet for anyone to see. I t is available to be rented for outside

use as an additional source of income for the hospital.

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CCHE is a learning organization: To achieve a centre of excellence; the most important thi ng is to have

a highly trained staff which is achieved by creating a learning organization in which personal development

is regarded as the essence of delivering quality care and ser vice. A great amount of ef fort must be put

into training of all levels of staff to ensure that staff will have the expertise to wor k in a modern healthcare

facility and also to pr ovi de the l evel of care that our complex patients require. As Martin Luther King said,

The func tion of education is to teach one to think intensi vel y and to think criticallyL.i ntelligence plus

character-that is the goal of true education. Fostering an environment of continuous learning no matter

the position will promote a sense of well bei ng in the employee and a desire to provide a high standard of

performance. The most important element of this is that the indi vidual develops a thirst for knowledge and

critical thinking skills utilizing evidenced based prac tice and the l atest technolog y that will enable him to

wor k to his highes t potential. To promote learning and acti ve exchange of information and expertise,

weekl y tumor board meetings have been initiated discussing new patients or patients with complications

with the entire multi-disciplinar y team reporting their findings, as well twice weekly earl y morning teaching

sessions on a variety of topics such as infection management, pain control and topical issues . Over 200

outside lecturers have been i nvited to present on relevant issues such as nano technology and ion beam

therapy, brain tumour management, quality , research, health management, and leukemia.

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The hospital provides the opportunity for continuing educati on and professional development for all levels

of healthcare specialties to enabl e them to provide the lates t in technology advancement and to

encourage respec t for the healthcare professions in Egypt. Currentl y there are over 600 staff who have

taken or are taking a variety of courses r anging from infection control, emergency resuscitation,

healthcare administration, marketing, business writing, computer literacy and English. Others have been

sent outside of Egypt for specializati on of skills such as in diagnosing brain tumours or infectious

diseases.

The hospital received 2.5 million LE from the Social Devel opment Fund, 250,000 LE from Pepsi, and

donations from USAID and the Industrial Modernisation Centre for staff trai ning and educati on.

Video and teleconferencing:

Through the cooperation of Eg ypti an Enstanet, the Childrens Cancer Hospital Egypt 57357 held its first

video teleconferences with an external hospital, St. Jude Childrens Research Hospital and Childrens

Hospital Bos ton, which are renowned childrens cancer treatment centres. This is enabling our staff to

partake in the latest lec tures and to share cases with l eadi ng consultants i n prestigious centres. In July

2009, the CCHE 57357 held its first international conference for pedi atric oncol ogy. Through the help of

Enstanet, EMS, and TE Data the 7 day conference had li ve streami ng of all sessi ons that was available

on the 57357 website and recei ved 928 viewers from all over the world. There was also a 3 day j oint

pharmacy wor kshop with St. Judes that had over 500 participants . The CCHE 57357 has obtained

fundi ng for the streaming equipment to have hospital wide educational sessions for patients and families

as well.

Sharing our knowledge with others

CCHF and CCHE administrations believe that we

must share our knowl edge that we so generousl y

receive from others and therefore all presentations

are open to anyone to attend as well as being

available on-line for all to view. In addition, we have

held several training sessions for pharmacists,

nursrs, physicians and fundraisers from other

centers locally and internationall y. One of our maj or

collaborations is Hospital 99199 in Sudan.

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A Sudanese delegation came to speak with the CCHF and CCHE 57357 executive about seeking their

assistance to build the first childrens cancer hospital i n Sudan through knowledge transfer, sharing of

experience and tr aining of their staff. The Sudanese founders wish to follow the CCHE 57357 model

exactl y and the entire process. A memo of understanding was written and signed outlining this historic

collaboration. Fundraisers, pharmacists, and physicians have come to spend time at CCHE to gain

knowl edge and begin the process of establishing Hospital 99199.

Future programs

There are s till four critical components to a successful health sciences facility that the CCHE 57357 team

has lef t to accomplish.

1. A Health Sciences Training Academy for upgrading the CCHE staff as well as providing training opportunities for the countr y and the region in healthcare.

2. Research Institute 3. Treatment expansion projects: Tanta, 60 bed, and phase 2 building 350 beds 4. Patient/family guest house and s tudent/staff residence complex.

.

1. Health Sciences Training Academy/Research Institute

The CCHF 57357 Health Sciences Training Academy will be available for Egypt

and all countries in the region to breed a new generation of professi onals who

will raise the standar d of healthcare deli ver y. Theor y and clinical practice will be

part of ever y course which will include a wide range such as Intensive Care

Nursing, Health Information Technology, Medical Secretar y, Child Life Specialist,

Housekeeping, Inventor y management, CPR, and a variety of other areas of

specialization.

The CCHF 57357 Health Sciences Training Academy will be available for Egypt

and all countries in the region to breed a new generation of professi onals who

will raise the standar d of healthcare deli ver y. Theor y and clinical practice will be

Training Academy

/Research Institute

Proposed Design,

Jonathan Bailey

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part of ever y course which will include a wide range such as Intensive Care Nursing, Health Information

Technol ogy, Medical Secretar y, Child Life Specialist, Housekeepi ng, Inventor y management, CPR, and a

variety of other areas of specialization.

In keeping with the mission from the i ncepti on of the Childrens Cancer Hospital Eg ypt, the CCHF 57357

Health Sciences Academy will be established by fundraising from generous people or granting agencies

who share a vision in provi ding quality education to healthcare professionals. The CCHF 57357 Training

Academy will be part of a multi-story complex that will house a family guest house, staff residence and

research institute.

2. Research Institute To be a leading treatment centre for children with cancer, it is our mission to

develop a prestigious research and learning institute that will carry out research in cancer, cancer

epidemiology, health care policy, healthcare management, pharmacy and nursing. Albert Szent-

Gyorgyi, 1937 Nobel Prize Medicine, said Research is to see what everybody else has seen, and

to think what nobody else has thought. To improve childhood cancer treatment and healthcare

management in Egypt we must create a strong research program at CCHE 57357 that can

accurately register pediatric cancer incidence and survival data as well as identifying cause and

efficacy of treatments. As the saying goes, You cannot manage what you cannot measure.

Research in healthcare policy and management is crucial to identify future strategies and

examine disease trends for better planning.

The process for establishing the research department started with the development of The Good Clinical

Practice Handbook for Clinical and Research Protocols which outlines the scope of work, policies and

procedures, organizational structure, mission and vision, and hiring of staff. The Central Protocol Review

and Research Monitoring Office [CPRRMO] was established in August 2008 and has a staff of 50

including epidemiologist, basic researchers and clinical research associates. Clinical Research

Associates perform the important tasks of assisting in protocol development, data management, protocol

compliance and research education. The dynamic young team is made up of a diverse group of talented

professionals coming from medicine, pharmacy, information technology, epidemiology and basic science

have worked hard with the Scientific Medical Advisory Committee to develop the foundation of the

CPRRMO and research department. The department has already assisted in the development of several

articles for publication as well abstracts for presentation at several international scientific meetings. CCHE

is proud to have published 50 papers in leading journals since 2009 as a result of the work of the

Scientific Medical Advisory Committee and Department of Research.

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In March 2011, Dr. Shahenda El Naggar, Basic Research Coordinator, was awarded 1.5 million LE to

pursue research in brain tumours. In June 2011, Dr. Sameera Ezzat, Director Research and Dr. El

Naggar were awarded from the Egypt National Science Academy, 50,000 LE each entitled, Motivation

Award for Scientists.

It is anticipated that by 2020, the Research Institute will have 125 primary scientists and research

associates and over 200 laboratory staff.

3. Treatment Expansion

The CCHE aim is to be the referral center for all Egyptian children; assessing, advising the best

treatment and referring them back to their closest center but retaining a large majority of them for primary

care which might be in the range of 1500-2500 new cases per year. To meet the demand, a 60 bed unit is

being planned in the existing hospital while a 40 bed satellite unit is in the construction phase in Tanta,

which is in the heart of the highly populated Delta region.

The number of children that are coming from the Gulf area or Africa is anticipated to increase as

well; because of the lack of facilities in their countries. Feasibility study, and preliminary design by

hospital architect, Jonathan Bailey, who designed the original building, are underway for a second

building of 350 beds, development of a neuro sciences unit with 10 room OR and 6 intra-operative MRIs,

more educational space, expanded radiology and radiotherapy units and other areas on a second piece

of property adjacent to the hospital that has been generously donated through the Cairo governorate.

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4. Patient/family guest house, Hospice care, and student residence complex.

Many of our patients come from l ong distances to recei ve treatment and are often required to spend

several weeks to months nearby the hospital. This can put enormous hardship on the families who have

limited resources both financially and sociall y. Many hospitals throughout the world recognize this as a

significant factor in treatment compliance and emotional and financial stressors. Research has shown that

families having a child with cancer suffer significant non medical costs such as transportation, lodging,

food, babysitting, loss of wor k, salary, and depleted savings.

This guest house will provide at little or no cos t a home away from home for the families and their children

alleviating the stress associated with finding lodging near the hospital. I t is anticipated that there will be 3

towers, 300 bedrooms with 150 of these being capable of providing light treatment thereby allowing us to

treat more patients. As well, there will be a 150 bed hospice unit for children who are in the fi nal stages of

their illness. We will also have i ndi viduals coming for training or lending expertise who will need a place

to stay. This residence will provide accommodation for them. The Cairo Governorate has generously

donated a piece of land i n close by Moqqattam to enable us to proceed in the construction of this

important addition to the ser vice of the hospital.

350 BED TOWER

HEALTH SCIENCES ACADEMY,

RESEARCH INSTITUTE,

RADIOLOGY UNIT

ORIGINAL

BUILDING

CCHF PROPOSED EXPANSION DESIGN, JONATHAN BAILEY, ARCHITECT

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Financial Strategy and Status

CCHF leadership is fully aware of the difficulty in retaining public interest in supporting a charity

facility on the long term and early on invested in professional fund raising training in order to create a

sustainable program.

Although the economy has been slow in Egypt for several years, over 1 Billion LE has been raised since November 2000! Donors recognize the need for sustainability and program excellence and so are continuing to finance what they consider a worthy project.

The CCHF has a comprehensive development plan encompassing both fund raising and public

relations. The plan calls for fund raising both in Egypt and abroad. The CCHF is also seeking potential private and corporate support in other countries.

Key components of the fundraising plan are:

Phase 1 and permanent programs

- Direct mail campaign - Capital building campaign - Major gift campaign

- 0900 and 4 digit mobile campaign - Major events - Major gift campaign - Bank program - Hotel program - Corporate Giving Program - Monthly donation - School and universities program - Sponsor a Child - Group donations

- Call centre - Electronic mail - E-payment - Exhibitions - Naming opportunity

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Naming Opportunity, Sponsor a Child, Monthly Donation, Corporate Giving

Phase 2: 2002 to present

- Grants - Endowment campaign of 3 billion LE target with 1 billion LE allocated to date. It is

the CCHF vision to build a large endowment base that will meet yearly operating costs as well as program and facility expansion. The existing endowment can only meet 30% of the annual operational cost, therefore the need for intensive fundraising.

- Annual Ramadan and spring campaigns

- Specialty programs and naming opportunity

Phase 3 Operational phase

- Ongoing fundraising with above activities

- Post-opening predicted income from selling of services to other hospitals such as PET/CT, MRI, radiotherapy, lab services, chemotherapy, cyclotron, TPN, stem cell etc

- Potential donors such as former patients, Sponsor a Bed/Sponsor a Child programs - An investment committee has been formed with prominent Egyptian businessmen to

develop, implement and monitor investment strategies for sustainability and program expansion.

Major corporations such as Egypt Air, CIB, Bank of Alexandria, Pepsi Cola, MobiNil, Vodafone, Misr

Bank, Ghabbour Motor Industries, Bavarian Motors, Duravit, Ceramica Cleopatra, Marriott Hotels, Conrad

Hotels, Hilton Hotels, Intercontinental Hotels, Yalla, EgyTelecom, Link, Cisco, Microsoft, IBM, Siemens,

Jonathan Bailey Associates, Skanska, UHS project management, Shaker Consultancy, Hamza, ACC,

Hill-Rom, Draeger, British Petroleum, Pfizer, Schering Plough, Sewedy Cable, Misr 2000 School, Suez

Cement and a multitude more have joined the project for the long term and are supporting us with large

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cash donations, sponsorship of fundraising events, service, product, or naming opportunities. Many

companies have given the hospital in-kind donations such as cemen [Suez Cement]t, electric cables, all

the interior and exterior lighting, granite, ceramics, plumbing fixtures, and landscaping to name a few.

CCHE 57357 Timeline:

1995: a volunteer group began to gather information about building a hospital

1998:

Association of Friends of the National Cancer Institute registered and serious discussion about building a hospital began

First seed money,11million LE was donated by several prominent Egyptian businessmen 1999: land was provided by the Cairo Governorate through the efforts of HE Fathi Sorour, Speaker of Parliament and Cairo

Govenor Abdel Rahim Shehetta

July 1999: Egypts First Lady Mrs. Suzanne Mubarak officiated at the ceremonial ground breaking

August 1999: SLAM began pre-design phase

April 2000: Design phase began with Jonathan Bailey Associates, architectural firm and Skanska as project manager.

November 2000: work began on the property with the building of the construction site fence followed by a fence painting party

attended by several hundred school children

December 2000: site excavation

April 2001: a tender was let for the foundation.

July 2001: construction began on the foundation

Ground water made building the foundation a lengthy and expensive process

November 2001: the tender for superstructure was prepared

March 2002: Superstructure begun

Construction is divided into packages and no package is started until the necessary funds are raised

March 2003 international RFP for interior is out

June 2003 : super structure completed

January 2004: The establishment of the Childrens Cancer Hospital Foundation (CCHF) headed by Mrs. Suzanne Mubarak.

March 2004: electrical-mechanical and interiors phase begun

July 2005: Equipment tender released

August 2005: Executive Board of Hospital appointed to begin start-up of hospital.

January 2006: First 30 newly graduated nurses hired to begin training in pediatric oncology

February 2006: Equipment tender awarded to Siemens

August 2006: Jonathan Bailey Associates re commissioned to execute the interior design.

August 2006: Issuing of tender for Hospital management start-up.

December 2006: Equipment tender scope of work finalized and orders underway

February 2007: Awarding of Hospital Management Tender to Comprehensive Care International

March 2007: First pieces of equipment have arrived with complete amount arriving by year end.

March, 2007: Non medical furniture arriving.

April, 2007: CCI begins work of management phase.

- Hiring of staff begun.

April 15, 2007: Mrs. Suzanne Mubarak makes her first official visit with the First Lady of Armenia, Mrs Koucharian.

July 7, 2007: Hospital opened and accepting patients. Phased opening begun.

December, 2007: The Information Technology tenders are completed and signed with implementation over 2 years.

January, 2008: The cyclotron is received and the construction for the housing facility has begun.

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The PET/CT has begun operation with the generous support of the Military Hospital in Ismalaya who is supplying the radioactive

material until our cyclotron is up and running.

January, 2008: Mrs. Suzanne Mubarak visits hospital with the First Lady of Turkey, Mrs.

Cerner and Oracle begin the process of implementing the HIS and ERP system.

February, 2008: Mrs. Suzanne Mubarak visits hospital with Her Royal Majesty, Queen Sofia of Spain.

The first CCHE 57357 neuro-oncology visit and symposium: Visiting Professors: Dr. Mark Kieran, Director of Pediatric Neuro-

oncology, Dana Farber Cancer Institute, Childrens Hospital Boston, Dr. Peter Black, Founding Chair, Neurosurgery, Childrens

Hospital Boston, Dana Farber Cancer Institute.

April, 2008: Dr. Jan de Kraker, Pediatric hematologist/oncologist , prominent specialist in childrens kidney tumours and

founding member of the International Society for Pediatric Oncology[SIOP] from Amsterdam to instruct medical care team on

kidney tumours current and future strategies and to consult on cases.

May, 2008: Construction begun on Cyclotron building. Cement donated by Suez Cement Group.

Crown Prince Philippe of Belgium and Mrs. Jolanta Kwaniewska, former first lady of Poland , visit the hospital.

Dr. Liliana Goumnerova, Assoc. Professor Neurosurgery, Childrens Hospital Boston and Dana Farber Cancer Institute instructed

neurosurgical team regarding specialized techniques.

June, 2008: Dr. Andrew Koh, Specialist in Infectious Diseases and Pediatric Hematology/Oncology, Childrens Hospital and Dana

Farber Cancer Institute instructed staff and outside physicians on management of infectious disease in the immune-

compromised patient.

Mufti Sheikh Ali Gomaa visits the hospital.

July 7, 2008: One year of operation successfully completed!

Sheikh Al Azhar, Mohamed Sayeed Tantawy visits the hospital.

August, 2008:

Egyptian National Football Team visits.

Dr. Hossam Ghoneim, Executive Director Medical and Clinical Services and Ms. Barbara Allisson, Chief Nursing Officer from

Soliman Fakeeh Hospital, Jeddah Saudi Arabia spent a week with Hospital 57357 staff providing lectures on quality assurance in

hospitals, evaluating all departments and providing suggestions for quality improvement.

The CCHE 57357 is awarded the World Health Organization's UAE Health Foundation 2008 Prize

In a grand award ceremony held at the Assembly Hall of the Palais des Nations in Geneva, His Excellency , Mr. Hamid El Katamy

, Health Minister of the United Arab Emirates delivered the World Health Organization's United Arab Emirates Health

Foundation 2008 Prize to the Children's Cancer Hospital Foundation Egypt 57357 for its efforts and dedication in delivering

excellent healthc are standards, free of charge, for children with cancer and for its outstanding contribution to healthcare as a

model of excellence.

The prize was rec eived by Mrs. Ola Ghabbour, the Foundation's Secretary General . Also present at th e ceremony were

Dr.Margaret Chan, Director General of WHO, Dr. Leslie Ramsammy, President of the World Health Assembly, and the

representatives of more than 190 nations. Previous winners of the award are: Hillary Clinton, Professor Magdi Yacoub,

Renowned Cardiac Surgeon, and Bill and Melinda Gates foundation.

October, 2008: Dr. Mostafa el Say ed, winner of USA Science Medal 2007 visits the hospital.

Hospital 57357 begins their collaboration with Hospital 99199 of Sudan by attending the groundbreaking ceremony for the first

childrens cancer hospital in Sudan.

December, 2008: Coptic Orthodox Pope Shenouda III visits the children and hospital

Dr. Zakzouk, The Awkaf Minister ( Islamic Religious Affairs) visits

First joint workshop with the International Research Council of Egypt was held.

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January, 2009: The CCHE hosts a workshop by the IAEA's AFRA task force for the harmonization of Medical Physicists'

education programs across Africa.

February, 2009: US Medal of Science winner, Dr. Moustafa El Say ed gave a lec ture about his important scientific work, gold

nanotechnology, with Mufti Aly Gomaa in attendance.

March, 2009: The first live video conference between CCHE 57357 and St. Jude Childrens Research Hospital was held with the

topic being Sleep Disorder. The first live neuro-oncology video conference with Dana Farb er Cancer Institute.

CCHE 57357 1st School Science Day: 7 national schools participated in the first science day presenting papers on cancer res earch

with Minister of Education, Dr. Youssry El Gamal in attendance. 75 students participated in the event.

April, 2009: CCHE 57357 and the El Ahram Centre for Political and Strategic Studies hosted a conference on Corporate Social

Responsibility with Minister of Investment, Dr. Mahmoud Mohie el Din.

HE, Mrs. Elisabeth Christofias, The First Lady of Cyprus visits CCHE.

May, 2009: Dr. Logan Spector, Chair, Epidemiology Group of Childrens Oncology Group visits and gives several pres entations

on the epidemiology of cancer and the many new findings. He also discussed possible collaboration in epidemiology.

June,2009: Team from M.D. Anderson visit to discuss the development of a pediatric oncology fellowship program connected

with Baylor College that would assist us in training future Egyptian physicians and increase the supply of physicians for our

hospital and others.

Dr. Ross Pinkerton, Director of Pediatric Hematology/oncology for Queensland Australia visited and gave several presentations

on non hodgkins lymphomas discussing current and future strategies.

July, 2009: 2nd

year of operation successfully completed

1st

CCHE 57357 Scientific Conference, Challenge, Change, Hope, Excellenc e: Breaking New Frontiers in Pediatric Oncology 41

eminent physician scientists, pharmacists and nurses from the leading pediatric cancer treatmen t centres in North America,

Europe, and the Middle East presented on topics relating to hospital and disease management and research and was attended

by more than 2000 people.

November, 2009: CCHE 57357 GO Live for Cerner. After almost 2 years of preparation, the CCHE 57357 began the health

information technology system.

The CCHE 57357 Bone Marrow transplant unit opened, treating its first patients. A team of BMT consultants from Childrens

Nationwide Hospital and Boston Childrens /Harvard conducted a week long symposium focusing on bone marrow

transplantation treatm ent, and supportive care issues for the care team.

Mrs. Nancy Brinker, WHO Ambassador for Global Action Against Cancer visited the hospital and spoke about the need for

cooperation to work .

December, 2009: Dr. Lia Gore, childrens hospital of Denver made her second visit giving presentations about Leukemia and

research.

February, 2010: a delegation came from St. Joan de Deu Hospital, Barcelona, Spain to give presentations about neuroblastoma

and to explore areas of collaboration.

Dr. Sima Jeha, Direc tor Pediatric Hematology Oncology, St. Jude Childrens Research Hospital visited giving lectures on

Leukemia and beginning the process of collaboration.

March, 2010: Dr. Donna Wall, cord blood specialist and Director of Pediatric Bone Marrow transplantation, Childrens Hospital

Winnipeg, Canada and Dr. Leslie Lehmann, Director of Pediatric Bone Marrow Transplantation, Childrens Hospital Boston

visited giving presentations and meeting with the transplant team about accreditation, and collaborating on publishing articles

togeth er.

Miss Kathleen Houlahan, Director of Nursing, Childrens Hospital Boston , Pediatric Hematology/Oncology gave a series of

nursing leadership presentations and drew up a long term plan for nursing collaboration with the Director of Nursing between

the two hospitals.

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April, 2010

Smiles Exhibit: A joint project between the Austrian and Polish Embassy brought the world famous Smiles exhibit to CCHE. The

Polish artist and founder of the project, Marek Wysoczynski, did a workshop with our patients who produced some wonderful

pictures with smiles. HE Mrs. Suzanne Mubarak also contributed a picture for this high profile, feel good event.

Childrens Hospital Los Angeles delegations visits: Dr. Stuart Siegel, Direc tor Pediatric Hematology Oncology, Dr. Russell Merritt,

Pediatric Gastroenterologist, Mr. David Kruger, Direc tor Nursing Pediatric Hematology/Oncology, and Dr. Hesham Abdel Azim,

Directo r Cord Blood and Stem Cell Bank met with CCHE 57357 staff and gave pres entations regarding leukemia, nutrition,

chemotherapy nursing education, and cord blood research as well as discussing areas of future collaboration.

Dr. Mohamed El Nashawy: world famed nano-technologist visited and spoke about applications of nano technology in cancer.

HE Dr. Ahmed Darwish, Minister of Administrative Development visited CCHE to see the HIS system and its application.

Members of the staff presented the work that is being accomplished through the HIS and the benefits to care.

CCHE 57357 Hospital Cafeteri a rec eives ISO CERTIFICATION.

June 2010

Dana Farber Canc er Institute/Childrens Hospital Boston visit: Dr. Mark Kieran, Director Pediatric Neuro-oncology, Dr. Michelle

Silvera, Neuro-oncology radiologist attending, Dr. Susan Chi, Researcher, Pediatric Neuro-oncologist, Dr. Charlie Russell,

Researcher, Pediatric Oncologist, Dr. Carlos Rodriguez, Researcher, Pediatric Oncologist gave talks on molecular biology, brain

tumours, understanding MRI neuro-oncology imaging, osteosarcomas as well as conducting workshops to develop strategies

for publishing papers and case reports for the disease strategy groups. The Harvard team is committed to assisting the groups

to begin the process of developing and submitting manuscripts for publication believing strongly that this is the next step of

development for the hospital to share its vast amount of data and findings on the international stage.

July, 2010

St. Jude Childrens Research Hospital: Dr. Raul Ribiero, Director of International Outreach, Mr. George Velez, Intern ational

Outreach Business Administrator, and Dr. Deepa Bhojwani, pediatric hematologist, visited the hospital giving lectures and

discussing areas of future collaboration in research and training.

August, 2010

-Mrs. Suzanne Mubarak visited the hospital after a 2 year absence and officially opened the bone marrow transplant unit and

cyclotron and asked for CCHEs help in supporting the National Cancer Institute in its new building campaign saying that we

have set th e standards that other hospitals must strive for.

-CCHE 57357 is awarded the Middle East Hospital Build 2010 Prize for Best Physical Environment and Highest Commendation for Best Sustainable Environment.

The CCHE was reco gnized for the superb, well designed physical environment of the hospital and how it is an outstanding space

enhancing the experienc e felt by patients, staff and visitors through an innovative and considered approach to the physical

environment. The Sustainable Environment commendation was given for outstanding commitment to sustainability in terms of

its design, development and construction and in particular, the innovative use of new materials, products or construction

methods, which will save energy and encourage future efficiency as well as demonstrating an efficient use of resources, such as

energy and water, and use of materials that reduce environmental and health impacts of the facility.

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March 2011

A new board of CCHF Trustees was formed with new mission and vision statements for both the foundation and hospital.

May 2011

Dr. Shahenda El Naggar, CCHE Basic Research Coordinator, was awarded 1.5 million LE to conduct her research on brain

tumours.

June, 2011

Dr. Sameera Ezzat, CCHE Director of Research and Dr. Shahenda El Naggar awarded Scientists of the Year 2011 from Egyptian

National Research Council.

October, 2011

Turkeys Prime Ministers Wife visits.

Childrens Hospital Boston/Dana Farber Cancer Institute and Johns Hopkins physician scientists and nurses visit to

discuss possible joint pediatric oncology and sub-specialization, and nursing fellowships, as well as doing capacity

building in neurosurgery nursing, neuro-radiology, and JCI accreditation preparation.

March, 2012

Discussions begin with American University of Cairo regarding possible collaboration between the two prestigious

institutions.

African Ambassadors from 22 countries visit CCHE and begin discussions on cooperation for the benefit of all

Africa.

June, 2012

Schematic design begins for new 350 bed expansion, proton therapy, radiology unit, health sciences academy, and

research institute with Jonathan Bailey, renowned hospital architect and architect of the original hospital.

July 7, 2012 FIVE YEAR ANNIVERSARY OF START OF OPERATIONS

CCHE celebrated with a fabulous Survivor Day for patients and their families in the hospital garden as well as a

two day Scientific Workshop which highlighted CCHE department and treatment achievements and activities.

Drs. Mark Kieran, Leslie Lehmann and Ms. Kathy Houlahan from Boston Childrens and Dana Farber Cancer

Institute presented and attended the workshop.

September, 2012 Feasibility Studies received from consultant, Solving Efeso, on Proton therapy and Health

Sciences Academy in preparation for expansion.

September 21, 2012: Historic signing of fellowship partnership with Dana Farber Childrens Hospital Cancer Center.

Unique Partnership with DFCHCC to establish Pediatric Oncology Fellowship

CCHE and Dana Farber Childrens Hospital Cancer Center have signed an historic

partnership to establish a number of medical fellowships that would bring the level of education for childrens cancer specialists in Egypt and the region to Western

standards . In a unique blend of training between the two centers and capacity

building the Egyptian mentors and the applicant it is our hope to inc rease the

38

numbers of qualified pediatric oncologists in Egypt and the region and develop a

superior training program at CCHE. The long term strategy is to have sub specialty fellowships in neuro-oncology, neurosurgery, radiology, nursing, psycho-oncology

and pharmacy.

Egypt Cancer Network USA was established in the United States to provide

Egyptian Americans and others the opportunity to support the many worthy projects of CCHE. Currently they are sponsoring the

schematic lite design for the new expansion as well as

having sponsored several educational experiences for individual staff and supported CCHE and the NCI with

cancer medication. ECN is a 501c 3 non profit and donors will receive a tax deductible receipt. Check the

website for further information: www.egyptcancernetwork.org .

IN CONCLUSION, the Childrens Cancer Hospital Egypt 57357, has become known

throughout the world and is being viewed as a model to follow in other developing

countries.

The areas people are being asked to help in are as follows:

Monetary donations for equipment, training, research and projects.

In kind donations such as consultancy expertise for training and development, research, patient consultation and treatment.

Purchasing a naming opportunity (rooms or departments, equipment, program sponsorship), adopt a bed program, planned giving, employee donation program.

Funding of consultants for program development and training Introduction to others who may be interested in supporting the project.

Please check our website, www.57357.com for updates of the hospital, our activities and donors. I can be reached through the CCHF office +202 25351799, hospital call centre 19057 or you may contact me at +20100 2149920 or e-mail snaga@57357.com or snaga3@gmail.com .

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Sincerely,

Never doubt that a small group of thoughtful committed citizens can

change the world. Indeed, it is the only thing that ever has. Margaret

Mead (1901 - 1978)

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Somewhere, children dance to the joyous music of life, while elsewhere they only cling to existence.

They are all ours.