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2/12 #hpm Healthcare Social Media Transcript

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Healthcare Social Media Transcript

From: Wed Jul 25 18:00:00 PDT 2012

To: Wed Jul 25 19:15:00 PDT 2012

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jfclearywisc Jim Cleary, @uwhealth Palliative care & Dir @painpolicy (PPSG) joining #Hospice& #palliative medicine #hpm tweetchat for next hr #hpmglobalWed Jul 25 18:01:52 PDT 2012

April918 HPM doc in Colorado! Hi everyone! #hpmWed Jul 25 18:02:20 PDT 2012

ctsinclair @April918 Hey April! made it safe and sound to Colorado! Let me know when yourun into @CKRN#hpm

Wed Jul 25 18:03:28 PDT 2012

ctsinclair RT @aliciabloom: for the next hr, youll be seeing a bunch of #hospice & #palliativecare related tweets-- its #hpm tweetchat time! #hpm

Wed Jul 25 18:03:43 PDT 2012

MarksPhone Mark here for part of the evening #hpmWed Jul 25 18:03:58 PDT 2012

aliciabloom MSW, LSW practicing in #hpm from Philadelphia by way of upstate NY. passionateabout improving patient access to #hpm.

Wed Jul 25 18:04:15 PDT 2012

jfclearywisc @MarksPhone New photo? #hpm

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Wed Jul 25 18:04:28 PDT 2012

ctsinclair Christian Sinclair - pallimed doc, Natl Hospice Med Dir for Gentiva, soccer fan, andtweets are my own and I presume yours are too! #hpm

Wed Jul 25 18:04:31 PDT 2012

April918 @ctsinclair will do, its been a crazy few weeks since the end of the fellowship!#hpm

Wed Jul 25 18:04:55 PDT 2012

ctsinclair @MarksPhone Got your post. On my to read list tonight after chat! #hpmWed Jul 25 18:05:17 PDT 2012

ctsinclair RT @jfclearywisc: @MarksPhone New photo? "looks good! I need to update mine."#hpm

Wed Jul 25 18:05:31 PDT 2012

ctsinclair Hoping to see @dockj@RossJeanette@hollyby@meredithGould and others

tonight... #hpmWed Jul 25 18:06:29 PDT 2012

ctsinclair Hey Jim Alicia and Mark! #hpmWed Jul 25 18:06:51 PDT 2012

ctsinclair Where is that rascally @rfberry? #hpmWed Jul 25 18:07:08 PDT 2012

ctsinclair OK we'll be getting started on topic #1 here in 1-2 minutes #hpmWed Jul 25 18:07:34 PDT 2012

aliciabloom @ctsinclair she's giving a lecture in SF about why people should demand palliativecare! #hpm

Wed Jul 25 18:08:25 PDT 2012

nursefriendly Hello Everyone, Andrew Lopez, RN from #NewJersey, #nurse#entrepreneur#socialmedia enthusiast #hpm

Wed Jul 25 18:08:32 PDT 2012

ctsinclair WARNING: You'll see swear words in the stream tonight on 2 different topics. Youare free to write them out or use *** as appropriate #hpmWed Jul 25 18:08:40 PDT 2012

ctsinclair @aliciabloom Oh that is right! And I just remembered @hollyby is out of thecountry, but that never stopped her before! #hpmWed Jul 25 18:09:07 PDT 2012

jfclearywisc @ctsinclair Hi! #hpmWed Jul 25 18:09:10 PDT 2012

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nursefriendly RT @ctsinclair: Hello everyone! It's 9p ET 6p PT and time to start the #HPMtweetchat. I'll be hosting tonight. Sound off and let me know who is here #hpmWed Jul 25 18:09:16 PDT 2012

MarksPhone @ctsinclair oh my we are going to the dark side so darth v #hpmWed Jul 25 18:09:27 PDT 2012

nursefriendly RT @aliciabloom: for the next hour, you'll be seeing a whole bunch of #hospice palliative care related tweets-- it's #hpm tweetchat time!

Wed Jul 25 18:09:27 PDT 2012

ctsinclair Topic #1: A charity called Fuck Cancer (@letsFCancer) has recd increasedattention for engaging younger people in cancer screening #hpm

Wed Jul 25 18:09:31 PDT 2012

ctsinclair Topic #1 (cont) What can we as a community learn from successful creativeengagement ideas like @letsFCancer & Stand Up 2 Cancer @su2c#hpm

Wed Jul 25 18:10:08 PDT 2012

MarksPhone @ctsinclair what does engaging younger people mean #hpmWed Jul 25 18:10:35 PDT 2012

MeredithGould @ctsinclair Hanging out w/my husband! #hpmWed Jul 25 18:11:07 PDT 2012

ctsinclair @MarksPhone They have really aimed their messaging at 18-35 year olds and areaiming to educate them to get their parents screened #hpm

Wed Jul 25 18:11:42 PDT 2012

ctsinclair Topic #1 Resource: @LetsFCancer website: http://t.co/vIYYdOzp#hpmWed Jul 25 18:12:06 PDT 2012

ctsinclair I read about the founder on Mashable this AM and felt frustrated that palliative caretopics like pain can't get this kind of attention #hpm

Wed Jul 25 18:12:59 PDT 2012

April918 T1: you can't use the same marketing for everyone, so different angles to be anecessity #hpmWed Jul 25 18:13:06 PDT 2012

MarksPhone Thank you. There are two points here motivating parents not sure I agree w/kids &educating younger people abt cancer #hpm

Wed Jul 25 18:13:15 PDT 2012

jfclearywisc @ctsinclair T1: need to think broadly in these concepts & ideas. But let me ask.Know of a hospital that advertises #palliative care? #hpm

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Wed Jul 25 18:13:34 PDT 2012

ctsinclair T1: Where is the "F*** Pain" or "F*** vomiting and depression"outreach/educational charity? #hpm

Wed Jul 25 18:14:01 PDT 2012

aliciabloom catchy slogans & logos with celebrity support engage the younger demographic#hpm

Wed Jul 25 18:14:02 PDT 2012

MarksPhone @jfclearywisc@ctsinclair great point and interesting #hpmWed Jul 25 18:14:04 PDT 2012

ctsinclair RT @jfclearywisc: T1: need to think broadly in these concepts & ideas. Know of ahospital that advertises #palliative care? #hpm

Wed Jul 25 18:14:33 PDT 2012

nursefriendly T1 Can give us a very good idea at what demographics will respond to what type ofmessages, campaigns - help target them #hpm

Wed Jul 25 18:14:42 PDT 2012

April918 @jfclearywisc good point! People want to hear about being cured, more than thealternatives #hpmWed Jul 25 18:14:53 PDT 2012

ctsinclair @jfclearywisc Posted a contest on @Pallimed to donate $1000 to 1st hospital thatcould show me a serious ad campaign around palliative #hpm

Wed Jul 25 18:15:43 PDT 2012

ctsinclair RT @aliciabloom: catchy slogans & logos with celebrity support engage theyounger demographic #hpmWed Jul 25 18:15:54 PDT 2012

ClaudiaNichols RT @aliciabloom: for the next hour, you'll be seeing a whole bunch of #hospice palliative care related tweets-- it's #hpm tweetchat time!

Wed Jul 25 18:16:08 PDT 2012

jfclearywisc @ctsinclair And what happened to the contest? WHo got the $1000 #hpmWed Jul 25 18:16:25 PDT 2012

ctsinclair RT @April918: T1: you cant use the same marketing for everyone, so differentangles to be a necessity "True" #hpm

Wed Jul 25 18:16:30 PDT 2012

ctsinclair RT @jfclearywisc: @ctsinclair And what happened to the contest? WHo got the$1000 "No one has claimed it as yet" #hpm

Wed Jul 25 18:16:54 PDT 2012

@jfclearywisc I need to find the post and put a statute of limitations on it. It was in

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ctsinclair

2007 or so. #hpm

Wed Jul 25 18:17:09 PDT 2012

nursefriendly RT @April918: T1: you can't use the same marketing for everyone, so differentangles to be a necessity #hpmWed Jul 25 18:17:10 PDT 2012

April918 @aliciabloom it may take a celebrity with chronic illness or terminal condition to getPC the attention it deserves! #hpmWed Jul 25 18:17:18 PDT 2012

aliciabloom maybe we could start a "Fuck Fearing Death" campaign, since the "Fuck Cancer"thing totally took off....? #hpm

Wed Jul 25 18:17:56 PDT 2012

jfclearywisc @April918 "Cancer Sucks" badges came from a patient at UW Carbone CancerCenter. Now big online sales.... #hpmWed Jul 25 18:18:00 PDT 2012

April918 @ctsinclair It may take more than $1000 to get a hospital's attention! Maybe weshould start a fundraiser for this. #hpm

Wed Jul 25 18:18:22 PDT 2012

ctsinclair If I recall, cancer was once such a taboo subject that it was not spoken about, butnow the battle is almost celebrated. #hpm

Wed Jul 25 18:18:23 PDT 2012

MarksPhone Culture & movement for survival. We've not clearly deliniated survival HPM etc Thiswhole PC Hospice survival needs positioning #hpm

Wed Jul 25 18:18:33 PDT 2012

PracticalWisdom I need to be doing my Work but could not resist. I'm Lisa Adult Edu passionateabout #HCSM Tardy Pass Accepted? Thx @ctsinclair#HPMWed Jul 25 18:18:34 PDT 2012

ggramels @jfclearywisc@ctsinclair#hpm Our hospital doesn't advertise but we are proud ofour PC program. But then, we care for poor people.

Wed Jul 25 18:18:47 PDT 2012

nursefriendly RT @ctsinclair: T1: Where is the "F*** Pain" or "F*** vomiting and depression"outreach/educational charity? #hpm

Wed Jul 25 18:19:04 PDT 2012

nursefriendly RT @aliciabloom: catchy slogans & logos with celebrity support engage theyounger demographic #hpm

Wed Jul 25 18:19:08 PDT 2012

ctsinclair @jfclearywisc@AliciaBloom I wonder if Cancer Sucks or Fuck Cancer are

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trademarked... #hpm

Wed Jul 25 18:19:11 PDT 2012

Kamiyamay #hpm Don't work here but: http://t.co/WyuXmbZs saw them advertisingWed Jul 25 18:19:16 PDT 2012

ctsinclair @PracticalWisdom Oh yes, your pass is accepted if you will accept mine inreplying to your DMs! #hpm

Wed Jul 25 18:19:32 PDT 2012

April918 @April918 how 'bout "cancer doesn't always have to suck" #hpmWed Jul 25 18:19:38 PDT 2012

nursefriendly RT @April918: @aliciabloom it may take a celebrity with chronic illness or terminalcondition to get PC the attention it deserves! #hpm

Wed Jul 25 18:19:48 PDT 2012

BillPfohl At HospiceCNY we are targeting caregivers...women who are concerned about

how they are going to deal with caregiving #hpmWed Jul 25 18:20:03 PDT 2012

MarksPhone What is most dramatic is to hear from caregivers who did not benefit from HPM theyare one shit angry group very dramatic #hpm

Wed Jul 25 18:20:05 PDT 2012

ctsinclair @Kamiyamay like billboards and magazine ads and a traditional campaign? #hpmWed Jul 25 18:20:17 PDT 2012

PracticalWisdom Perhaps more gentle words~ RT @ctsinclair: @jfclearywisc@AliciaBloom Iwonder if Cancer Sucks or Fuck Cancer are trademarked... #HPMWed Jul 25 18:20:34 PDT 2012

ctsinclair @April918 AAHPM had a slogan contest a while back and the winner was"Actually, there IS something we can do." #hpm

Wed Jul 25 18:20:53 PDT 2012

jfclearywisc @ctsinclair But then need to hone in and think of political envt. "Cancer pain sucks"will sell better than "pain sucks" this week! #hpm

Wed Jul 25 18:20:57 PDT 2012

nursefriendly RT @jfclearywisc: @April918 "Cancer Sucks" badges came from a patient at UWCarbone Cancer Center. Now big online sales.... #hpmWed Jul 25 18:21:08 PDT 2012

PracticalWisdom Not seen DM's=Broken RT @ctsinclair: @PracticalWisdom Oh yes, your pass isaccepted if you will accept mine in replying to your DMs! #HPM

Wed Jul 25 18:21:11 PDT 2012

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ctsinclair @PracticalWisdom We have permission to swear tonight given the subjectmaterial. ;-) #hpm

Wed Jul 25 18:21:20 PDT 2012

ctsinclair RT @MarksPhone: What is most dramatic is to hear from caregivers who didntbenefit from HPM they are one shit angry group very dramatic #hpm

Wed Jul 25 18:21:46 PDT 2012

ctsinclair @BillPfohl Smart to focus on caregivers. How about "I'm a damn good caregiver!"campaign. #hpmWed Jul 25 18:22:36 PDT 2012

April918 @ctsinclair thats kind of a touchy slogan, but also very true #hpmWed Jul 25 18:22:54 PDT 2012

ctsinclair Obviously the point is not just the swearing here but we need to learn from thesuccess of other medical niches and adapt. #hpm

Wed Jul 25 18:23:04 PDT 2012

MarksPhone targeting is key but until we understand the problems & issues w/in the caregiversneeds & patient we cant create a powerful message #hpm

Wed Jul 25 18:23:09 PDT 2012

nursefriendly @ctsinclair T1 it is clearly a #trailblazer campaign that is potentially #politicallycontroversial with h igh #backfire potential. #hpmWed Jul 25 18:23:13 PDT 2012

PracticalWisdom Yup, RT @ctsinclair: @PracticalWisdom We have permission to swear tonightgiven the subject material. ;-) #HPM

Wed Jul 25 18:23:45 PDT 2012

ctsinclair @April918 I really like the slogan but for those who think hospice is shady, it playsinto their fears. #hpm

Wed Jul 25 18:24:03 PDT 2012

nursefriendly @ctsinclair T1 I don't see many #hospitals getting an endorsement from their#pubicrelations#departments to sign off on it. #hpm

Wed Jul 25 18:24:10 PDT 2012

BillPfohl @ctsinclair How about "we can help"...because that's what caregivers are lookingfor. And they are making the decision about Hospice. #hpmWed Jul 25 18:24:12 PDT 2012

Kamiyamay @ctsinclair@BillPfohl Bravo - meet some of the most amazing people doingamazing things - hidden hero's of america-yeah caregivers #hpm

Wed Jul 25 18:24:32 PDT 2012

ctsinclair @nursefriendly Yes I agree about the potential to backfire. That is why campaignslike this are rarely originate from HC organizations #hpm

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Wed Jul 25 18:24:55 PDT 2012

PracticalWisdom I was thinking of slogans that are not so direct but folks catch the message. KindaLike a Wink Wink impact. @ctsinclair#HPM

Wed Jul 25 18:25:00 PDT 2012

MarksPhone Messaging PC is about rebranding its image & needing to know what problems PC(w/o calling it that) solves for caregivers/patients/hpc #hpm

Wed Jul 25 18:25:12 PDT 2012

April918 Maybe kids of chronicaly ill and dying could contribute to slogan to target youngaudience? #hpm

Wed Jul 25 18:25:15 PDT 2012

ctsinclair @MarksPhone yes, we must listen first. #hpmWed Jul 25 18:25:21 PDT 2012

nursefriendly RT @BillPfohl: At HospiceCNY we are targeting caregivers...women who areconcerned about how they are going to deal with caregiving #hpmWed Jul 25 18:25:37 PDT 2012

nursefriendly RT @ctsinclair: @April918 AAHPM had a slogan contest a while back and thewinner was "Actually, there IS something we can do." #hpmWed Jul 25 18:25:58 PDT 2012

PracticalWisdom Hospice Shady? RT @ctsinclair: @April918 I really like the slogan but for thosewho think hospice is shady, it plays into their fears. #HPM

Wed Jul 25 18:26:07 PDT 2012

jfclearywisc MT @MarksPhone: targeting is key but until we understand issues w/in thecaregivers needs & patient we cant create a powerful message #hpm

Wed Jul 25 18:26:18 PDT 2012

ctsinclair For those that are interested the founder of @letsFCancer Founder Yael Cohen isdoing a live video chat on @Mashable tomorrow #hpm

Wed Jul 25 18:26:28 PDT 2012

produceconsume @ctsinclair Cancer Sucks live trademark f*** cancer available TrademarkElectronic Search System (TESS)http://t.co/SW1zOPCr#hpm

Wed Jul 25 18:26:34 PDT 2012

MarksPhone Do you know the cost for messaging to change someones mind -- huge. But asmart HPC talking PC smartly at dx is subtle #hpm

Wed Jul 25 18:27:09 PDT 2012

PracticalWisdom @ctsinclair Could you please give T1: again? #HPMWed Jul 25 18:27:13 PDT 2012

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ctsinclair Other #cancer campaigns that HPM can learn from : #Livestrong,#StandUp2Cancer, Komen #hpm

Wed Jul 25 18:27:43 PDT 2012

jfclearywisc RT @ctsinclair: @April918 AAHPM slogan "Actually, there IS something we cando." ---> DIrect & relates to issue. Response to "nothing" #hpm

Wed Jul 25 18:27:44 PDT 2012

ctsinclair Repeat T1: A charity called Fuck Cancer (@letsFCancer) has recd incr attentionfor engaging younger people in cancer screening #hpm

Wed Jul 25 18:27:58 PDT 2012

PracticalWisdom RT @MarksPhone: Do you know the cost for messaging to change someones mind-- huge. But a smart HPC talking PC smartly at dx is subtle #HPMWed Jul 25 18:28:01 PDT 2012

Kamiyamay @jfclearywisc@MarksPhone#hpm I beleive need is individual - "each person likea snow flake - what is good for you may not be for her"

Wed Jul 25 18:28:13 PDT 2012

ctsinclair repeat T1a: Topic #1 (cont) What can we learn from successful creativeengagement ideas like this and Stand Up 2 Cancer @su2c#hpm

Wed Jul 25 18:28:17 PDT 2012

BillPfohl The people who think Hospice is shady...will never seek it services. "You can'targue with a crazy person..." #hpm

Wed Jul 25 18:28:24 PDT 2012

ctsinclair RT @MarksPhone: Do you know the cost for messaging to change someones mind-- huge. But a smart HPC talking PC smartly at dx is subtle #hpmWed Jul 25 18:28:34 PDT 2012

April918 the inital audience should be healthcare providers who don't understand PC? Itseems like most logical place to start..the frontline #hpm

Wed Jul 25 18:28:36 PDT 2012

PracticalWisdom @ctsinclair Thanks. #HPMWed Jul 25 18:28:48 PDT 2012

ctsinclair @BillPfohl good point. Sad but true. #hpmWed Jul 25 18:28:56 PDT 2012

MarksPhone fcancer is a cute tag line to catch the attention of a specific audience that's all buthow long will that audience stick to learn? #hpm

Wed Jul 25 18:29:07 PDT 2012

jfclearymac New ACS campaign re #palliative care "Palliative care sees the person beyond thecancer" http://t.co/JMs42DOr Love it! #hpm#HpmglobalWed Jul 25 18:29:13 PDT 2012

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abandoned by the medical profession near end of life #hpm

Wed Jul 25 18:31:48 PDT 2012

BillPfohl "actually, there IS something we can do" scares me. What if we can't manage thepain or symptoms...then its false advertising #hpm

Wed Jul 25 18:32:09 PDT 2012

Kamiyamay RT @PracticalWisdom: T1: Don't think we always have to use 4 letter words to

equal success 4 campaign= @CDC Zombie http://t.co/xYR1r3P0#HPMWed Jul 25 18:32:09 PDT 2012

MarksPhone This is a binominal equation both parties need to be ready to accept or at leastunderstand value/benefit of hpm #hpm

Wed Jul 25 18:32:37 PDT 2012

PracticalWisdom A+ RT@ BillPfohl "actual ly, there IS something we can do" scares me. What if wecan't manage pain/symptom.then its false advertising #HPM

Wed Jul 25 18:33:25 PDT 2012

ctsinclair Topic 2: Pink Ribbons Inc is a recent documentary about the overcommercialization of medical charities Take 2 min and watch trailer #hpmWed Jul 25 18:33:28 PDT 2012

Kamiyamay @ravipm2000#hpm the one our co uses "because your life matters"Wed Jul 25 18:33:29 PDT 2012

achatburn @April918 totally agree... Just had a residency didactics lecture from a cardiologistthat turned into a 20 min anti-hospice soap box #hpm

Wed Jul 25 18:33:31 PDT 2012

MarksPhone @BillPfohl That is the fear and it is totally unfounded good PC is amazing andsmart that is why it is a seperate discipline #hpm

Wed Jul 25 18:33:43 PDT 2012

Kamiyamay RT @MarksPhone: This is a binominal equation both parties need to be ready toaccept or at least understand value/benefit of hpm #hpmWed Jul 25 18:33:44 PDT 2012

ctsinclair Topic 2 cont: here is the Pink Ribbons Inc trailer: http://t.co/Eegnnhev#hpmWed Jul 25 18:33:47 PDT 2012

PracticalWisdom @MarksPhone What about the concept of being left behind. Isn't that what is amajor source of concern. So we will be there for you. #HPM

Wed Jul 25 18:34:00 PDT 2012

ctsinclair RT @achatburn: Had a residency didactics lecture from a cardiologist that turnedinto a 20 min anti-hospice soap box "" #hpm

Wed Jul 25 18:34:18 PDT 2012

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nursefriendly RT @ctsinclair: Topic 2 cont: here is the Pink Ribbons Inc trailer:http://t.co/Eegnnhev#hpm

Wed Jul 25 18:34:19 PDT 2012

CarolynMcC @achatburn@April918 So sad. Lot of minds that need opening about #hpmWed Jul 25 18:34:58 PDT 2012

Kamiyamay @achatburn@April918#hpm been there heard that before-dreadWed Jul 25 18:34:59 PDT 2012

BillPfohl @MarksPhone Yes...but there are patients that die terribly ...no matter what youdo...a couple of those will hurt your rep #hpm

Wed Jul 25 18:35:50 PDT 2012

ctsinclair Questions on Topic 2 will come up after you get a chance to watch the PinkRibbons Inc trailer... #hpm

Wed Jul 25 18:36:06 PDT 2012

PracticalWisdom Hope some of my #BCSM Pals will jump in! RT @ctsinclair: Topic 2 cont: here isthe Pink Ribbons Inc trailer: http://t.co/EMdr6zmW#HPM

Wed Jul 25 18:36:31 PDT 2012

PracticalWisdom Excellent Choice RT @ctsinclair: Questions on Topic 2 will come up after you get achance to watch the Pink Ribbons Inc trailer... #HPMWed Jul 25 18:37:05 PDT 2012

ctsinclair Topic 2: In Hospice and Pall iative Care we see a lot of fighters and survivors andwe ourselves support many ribbon initiatives #hpm

Wed Jul 25 18:37:25 PDT 2012

MarksPhone @BillPfohl okay the % is there it is low do we message & edu from a position ofwell we may not get it right all the time but hey go pc #hpmWed Jul 25 18:37:38 PDT 2012

CarolynMcC @ctsinclair Wow. Powerful. I can't wait to see it now. #hpmWed Jul 25 18:37:46 PDT 2012

JoanneKenen #aarp on how to assess needs of family caregivers http://t.co/sOQGfQLP#hpm#caregivers#aging#hcr

Wed Jul 25 18:37:50 PDT 2012

ctsinclair Topic 2 cont: But do we understand fully the impact of disease awarenesscampaigns and can we learn lessons from the pitfalls. #hpm

Wed Jul 25 18:38:03 PDT 2012

ctsinclair RT @PracticalWisdom: Hope some of my #BCSM Pals will jump in! "Yes we wouldlove to have them involved!" #hpmWed Jul 25 18:38:33 PDT 2012

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MarksPhone I guess from a communications point of view giving a black ribbon for hpm wouldbe a buzz kill defeating a goal #hpm I joshWed Jul 25 18:38:38 PDT 2012

PracticalWisdom T2: Pink Ribbon It is about Hype It is about Money. You don't sell perfume with apink Ribbon. So glad #BCSM R my Teachers. #HPM

Wed Jul 25 18:38:42 PDT 2012

ggramels @jfclearywisc#palliative#hpm#Hpmglobal Good oncologists also see the person,not the cancer. Pts want us 2 work together 2 care for them

Wed Jul 25 18:39:15 PDT 2012

jfclearywisc @ctsinclair T2: "Race for the Cure" keeps the cure agenda out there as opposed tothe "cancer control agenda that incl #palliative care #hpm

Wed Jul 25 18:39:21 PDT 2012

ctsinclair @CarolynMcC I know, I was so shocked when I saw it. It reminded me of a postDrew Rosielle wrote on @pallimed: http://t.co/CWKk2Lio #hpm

Wed Jul 25 18:39:36 PDT 2012

April918 We have to be responsible when dealing with intimate issues, seems like pinkribbon forgot the purpose #hpm

Wed Jul 25 18:39:45 PDT 2012

ctsinclair @MarksPhone That made me chuckle #hpmWed Jul 25 18:39:55 PDT 2012

MarksPhone someone should have a march or run with caregives who have benefited from hpm

just to make some media noise #hpmWed Jul 25 18:39:59 PDT 2012

CarolynMcC @ctsinclair Everything has intended and unintended consequences and the pinkribbon had huge unintended consequences. #hpmWed Jul 25 18:40:20 PDT 2012

nursefriendly @ctsinclair T2 The goals of a specific campaign if targeted and specific enoughshould be straightforward to evaluate. #hpm

Wed Jul 25 18:40:30 PDT 2012

jfclearywisc @ggramels Greg, I would agree re "Good oncologists" But oncology has surrendedthat role in rush to give chemo #palliative#hpm#Hpmglobal

Wed Jul 25 18:40:42 PDT 2012

BillPfohl @MarksPhone all I'm saying is don't leave yourself open.97% of cases may gogreat.No 1 hears about them. All they hear about is the 3% #hpm

Wed Jul 25 18:40:48 PDT 2012

ctsinclair Sometimes hard to see how much hope and effort patients and families invest

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(emotionally and financially) in ribbons and wrist bands #hpm

Wed Jul 25 18:40:58 PDT 2012

nursefriendly RT @April918: We have to be responsible when dealing with intimate issues,seems like pink ribbon forgot the purpose #hpm

Wed Jul 25 18:41:07 PDT 2012

nursefriendly RT @CarolynMcC: @ctsinclair Everything has intended and unintended

consequences and the pink ribbon had huge unintended consequences. #hpmWed Jul 25 18:41:25 PDT 2012

ctsinclair @jfclearywisc@ggramels Almost proceduralist, instead of oncologist, you havechemologist, instead of cardiologist, you have stenter #hpm

Wed Jul 25 18:41:53 PDT 2012

MarksPhone @ctsinclair the more I think of it that would be a real media slap in the face I meanlike radical messaging need the likes of capc in #hpm

Wed Jul 25 18:41:55 PDT 2012

PracticalWisdom T2: Pink Ribbon=Absolute Power corrupts absolutely. How much $ goes to theactual Research/Prevention. #HPM

Wed Jul 25 18:41:57 PDT 2012

ctsinclair RT @CarolynMcC: Everything has intended and unintended consequences andthe pink ribbon had huge unintended consequences. #hpmWed Jul 25 18:42:05 PDT 2012

ctsinclair RT @MarksPhone: someone should have a march or run with caregives who havebenefited from hpm just to make some media noise #hpm

Wed Jul 25 18:42:24 PDT 2012

Kamiyamay @ctsinclair@MarksPhone#hpm too much as I jump every time the phone rings -on call not so funny but 'we are human' maybe that's my slogan

Wed Jul 25 18:42:28 PDT 2012

MarksPhone @BillPfohl and why that because no one hears about the 97 #hpmWed Jul 25 18:42:47 PDT 2012

ctsinclair Good lessons to be learned here about what happens when your successmanages you and not the other way around #hpm

Wed Jul 25 18:42:48 PDT 2012

PracticalWisdom MT @ctsinclair: hard 2 C how much hope & effort patients & families invest(emotionally and financially) in ribbons/wrist bands #HPM

Wed Jul 25 18:42:51 PDT 2012

JenLBose I've become numb to all of the ribbon campaigns. It seems like the real reason thatthey started has been lost. #Hpm

Wed Jul 25 18:42:51 PDT 2012

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BillPfohl America's attitude about death is going to change. The numbers will make thathappen. HPM should be leading the way thru education #hpm

Wed Jul 25 18:43:29 PDT 2012

Kamiyamay RT @ctsinclair: Good lessons to be learned here about what happens when yoursuccess manages you and not the other way around #hpm

Wed Jul 25 18:43:53 PDT 2012

April918 It seems that staying true to Palliative Care is best....quality and goals. No frills.#hpmWed Jul 25 18:43:57 PDT 2012

April918 RT @ctsinclair: Good lessons to be learned here about what happens when yoursuccess manages you and not the other way around #hpm

Wed Jul 25 18:44:14 PDT 2012

ctsinclair RT @BillPfohl: Americas attitude about death is going to change. Numbers willmake that happen. HPM should lead the way thru education #hpm

Wed Jul 25 18:44:20 PDT 2012

PracticalWisdom We need to educate our pol iticians about the #HPM Education Act. Can't assumethey know what Pal liative means~they R Busy @ctsinclair#HPM

Wed Jul 25 18:44:28 PDT 2012

aliciabloom the pink ribbon campaign had good intentions (raise funds, awareness), but it'soriginal movement has been overtaken. #hpmWed Jul 25 18:44:29 PDT 2012

MarksPhone ribbion etc are critical humans are hope machines somehow we need to makehpm hopeful ribbion and hpm are not diametrically opposed #hpmWed Jul 25 18:44:36 PDT 2012

jfclearywisc @April918 Same with language of Survivors. Creates notion of Winners andlosers. And guess what we spend more time with the losers! #hpm

Wed Jul 25 18:44:42 PDT 2012

ctsinclair @April918 Well to make a program successful you do have to be aware of fundingand sustainability and have a good business sense #hpmWed Jul 25 18:44:58 PDT 2012

CarolynMcC @April918 And why many of us are working for standard palliative care consult atthe beginning of any life threatening diagnosis #hpm

Wed Jul 25 18:45:21 PDT 2012

PracticalWisdom MT @jfclearywisc: @April918 Same 2/language of Survivors. Creates notion ofWinners/losers.guess what we spend more time w/ the losers! #HPM

Wed Jul 25 18:45:49 PDT 2012

@jfclearywisc Kind of like @MarksPhone blog post: http://t.co/lXgTHOC9#HPM

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ctsinclair

Wed Jul 25 18:45:53 PDT 2012

MarksPhone all these ribbion heads to donate 2% of the take to hpm or its awareness #hpm Iwould like to see one of them have the balls to talk hpmWed Jul 25 18:45:54 PDT 2012

BillPfohl @MarksPhone I was in news management long enough to know that no one readsthe newspapers in a Utopia. All people want is bad news #hpmWed Jul 25 18:45:56 PDT 2012

ctsinclair RT @CarolynMcC And why many of us are working for standard palliative careconsult at the beginning of any l ife threatening diagnosis #hpm

Wed Jul 25 18:46:09 PDT 2012

PracticalWisdom MT @CarolynMcC: @April918 why many of us Rworking 4 standard palliative careconsult at the beginning of any l ife threatening diagnosis #HPM

Wed Jul 25 18:46:17 PDT 2012

MarksPhone @BillPfohl if it bleeds it leads #hpmWed Jul 25 18:46:27 PDT 2012

ctsinclair (Sidebar: Love the tweets people. Some real gems in here!) #hpmWed Jul 25 18:46:33 PDT 2012

April918 @jfclearywisc true.....the battle despriptions need to go! Fight, give up, win,loose......my pet peeve! #hpmWed Jul 25 18:46:34 PDT 2012

PracticalWisdom When I worked for a Non-profit & Did United Way talks EVERYBODY wantedHospice to come and share. Can we bui ld on that? @BillPfohl#HPM

Wed Jul 25 18:47:14 PDT 2012

Kamiyamay #hpm We don't need ribbons we need authentic success stories from docs nurses,caregivers, families, friends, lovers

Wed Jul 25 18:47:19 PDT 2012

BillPfohl @MarksPhone You have just passed the 1st test in Journalism school. #hpmWed Jul 25 18:47:26 PDT 2012

ctsinclair @MarksPhone Would love to see NCI designated #cancer centers be mandated touse 5-10% of funds on palliative care. Revolutionary! #hpmWed Jul 25 18:47:31 PDT 2012

ctsinclair Getting ready for Topic 3, summarize your thoughts on Topic 2 Pink Ribbons Incand lessons learned. More swearing ahead. #hpm

Wed Jul 25 18:48:15 PDT 2012

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JenLBose Yes! RT @Kamiyamay: #hpm We dont need ribbons we need authentic successstories from docs nurses, caregivers, families, friends, lovers #Hpm

Wed Jul 25 18:48:16 PDT 2012

April918 How 'bout "give me qual ity , or give me death"....wait, maybe that won't work. #hpmWed Jul 25 18:48:21 PDT 2012

PracticalWisdomUmm, perhaps you are on to something. Takes Balls to Care~when the going getsrough. Be A #HPM PAl. @MarksPhone#HPMWed Jul 25 18:48:24 PDT 2012

BillPfohl @PracticalWisdom I don't think you can educate politicians...you can lobby themthough... #hpm

Wed Jul 25 18:48:33 PDT 2012

achatburn @CarolynMcC@april918 that seems to fit well with literature saying patients wantstraightforward info and open honest conversations #hpmWed Jul 25 18:48:36 PDT 2012

aliciabloom people do not fail, lose or give up when disease directed treatment is no longereffective #hpm

Wed Jul 25 18:48:53 PDT 2012

aliciabloom @April918 haha! #hpmWed Jul 25 18:49:06 PDT 2012

jfclearywisc @ctsinclair@marksphone TOtally #HPMWed Jul 25 18:49:08 PDT 2012

PracticalWisdom Trying to help @AAHPM. RT @BillPfohl: @PracticalWisdom I dont think you caneducate politicians...you can lobby them though... #HPMWed Jul 25 18:49:31 PDT 2012

Kamiyamay #hpm A ribbon can't near symbolize the tears I shared with a dtr today, the kiss onan old man's head, the ease of expression on arrival

Wed Jul 25 18:49:31 PDT 2012

ctsinclair RT @April918 How 'bout "give me qual ity , or give me death"....wait, maybe thatwon't work "Too funny" #hpm

Wed Jul 25 18:49:33 PDT 2012

April918 @Kamiyamay true....and success in PC doesn't always mean living in the end. It'show you live until the end! #hpm

Wed Jul 25 18:49:36 PDT 2012

Kamiyamay RT @April918: @Kamiyamay true....and success in PC doesn't always mean livingin the end. It's how you live until the end! #hpmWed Jul 25 18:50:04 PDT 2012

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PracticalWisdom RT @PracticalWisdom: Umm, perhaps you are on to something. Takes Balls toCare~when the going gets rough. Be A #HPM PAl. @MarksPhone#HPMWed Jul 25 18:50:05 PDT 2012

BillPfohl People: success stories are great. But if I was a PCG i would be looking for solidinformation, real help and respite... #hpm

Wed Jul 25 18:50:09 PDT 2012

jfclearywisc @Kamiyamay: #hpm authentic success stories--> will be interesting to see howNBC uses social media (storify) w Olympics. Lesson to learn?

Wed Jul 25 18:50:25 PDT 2012

PracticalWisdom MT @Kamiyamay: #hpm ribbon cant near symbolize tears I shared w/ a dtr today,kiss on an old mans head, ease of expression on arrival #HPM

Wed Jul 25 18:50:58 PDT 2012

ctsinclair Topic 3: Research shows that swearing during a painful event decreases theamount of pain experienced. http://t.co/3HfmwThW#hpmWed Jul 25 18:51:13 PDT 2012

MarksPhone Change the black ribbon to whi te like in white light for hpm support #hpmWed Jul 25 18:51:27 PDT 2012

CarolynMcC MT @April918@Kamiyamay true....and success in palliative care doesn't alwaysmean living in the end. It's how you live until the end! #hpm

Wed Jul 25 18:51:30 PDT 2012

Kamiyamay @BillPfohl#hpm Respite is one of guaranteed levels of service, authentic help -

agree!Wed Jul 25 18:51:36 PDT 2012

ctsinclair Topic 3: Have you seen this in patients clinically? Or yourself? #hpmWed Jul 25 18:51:43 PDT 2012

Kamiyamay RT @jfclearywisc: @Kamiyamay: #hpm authentic success stories--> will beinteresting to see how NBC uses social media (storify) w Olym ...

Wed Jul 25 18:52:06 PDT 2012

CarolynMcC @ctsinclair Ha! So true and why I scream when I throw javelin. Not the same, but ittakes your mind off. #hpmWed Jul 25 18:52:28 PDT 2012

MarksPhone yup swearing at cab drivers who block cross walks makes me feel better #hpmWed Jul 25 18:52:32 PDT 2012

ctsinclair Topic 3a: Note swearing only works best if you do not swear a lot normally. Thinkthe surprising curse from the demure older lady. #hpm

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Wed Jul 25 18:52:54 PDT 2012

Kamiyamay @ctsinclair#hpm sorry now I am laughing - ok lhen and whiskey tooWed Jul 25 18:53:04 PDT 2012

produceconsume @CarolynMcC Life of Quality v Quality of Life... Still remember your post. Still lovethe transposition. #hpm

Wed Jul 25 18:53:11 PDT 2012

BillPfohl RT @ctsinclair:Research shows that swearing during a painful event decreasesthe amount of pain.(I'll try it at my next board meeting!) #hpm

Wed Jul 25 18:53:22 PDT 2012

Kamiyamay @MarksPhone#HPM I will keep praying for your MarkWed Jul 25 18:53:38 PDT 2012

JenLBose T3 I heard it from my cousin that just had a baby. She said she did it a few times butfelt so much better #Hpm

Wed Jul 25 18:53:59 PDT 2012

ctsinclair RT @Kamiyamay: #hpm A ribbon can't near symbolize the tears I shared with a dtrtoday, the kiss on an old man's head, the ease of expression on arrival

Wed Jul 25 18:54:10 PDT 2012

PracticalWisdom Perhaps just being a good citizens too! RT @MarksPhone: yup swearing at cabdrivers who block cross walks makes me feel better #HPM

Wed Jul 25 18:54:44 PDT 2012

April918we should create 'swearing therapy' Hospice is all about being creative withtreatments right?? #hpm

Wed Jul 25 18:54:48 PDT 2012

achatburn @ctsinclair: T3: swore with a patient today as I was rapidly de-escalating androtating his opiate... Damn tumor preventing IT pump #hpm

Wed Jul 25 18:55:00 PDT 2012

CarolynMcC @produceconsume So thoughtful of you to say that - now if we can just get othersto live it. #hpm

Wed Jul 25 18:55:12 PDT 2012

crgonzalez @ctsinclair IS that because the shame of swearing diverts the brain's attention fromthe source of pain? #hpm

Wed Jul 25 18:55:14 PDT 2012

ctsinclair After reading this research I imagined how I would try to counsel a patient onswearing for breakthrough pain. #hpmWed Jul 25 18:55:32 PDT 2012

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aliciabloom RT @ctsinclair: Research shows that swearing during a painful event decreasesthe amount of pain experienced. http://t.co/FyNMd0cU#hpm

Wed Jul 25 18:55:39 PDT 2012

achatburn @MarksPhone too bad everything in medicine is gray #hpmWed Jul 25 18:55:53 PDT 2012

crgonzalez RT @ctsinclair T3: Research shows that swearing during a painful eventdecreases the amount of pain experienced. http://t.co/8EkKsXe6#hpmWed Jul 25 18:56:19 PDT 2012

Kamiyamay @April918#hpm a local hospice gives massage - i'll take a n ice massage toswearing anyday!! and music therapy!!

Wed Jul 25 18:56:33 PDT 2012

ctsinclair @crgonzalez Swearing may help relieve pain by activating the brainsendogenous opioids, similar to pain drugs like morphine #hpm

Wed Jul 25 18:56:40 PDT 2012

aliciabloom @ctsinclair drop 3 f-bombs q 2 hr PRN for pain? #hpmWed Jul 25 18:56:45 PDT 2012

April918 RT @ctsinclair: Research shows that swearing during painful event decreases theamount of pain experienced. http://t.co/0vyMxwo4#hpmWed Jul 25 18:56:48 PDT 2012

CarolynMcC @ctsinclair Seriously though, swearing has to be used selectively or it wil l becomeineffective #hpm

Wed Jul 25 18:57:09 PDT 2012

ctsinclair RT @aliciabloom: @ctsinclair drop 3 f-bombs q 2 hr PRN for pain? "And call meafter you stop swearing" #hpm

Wed Jul 25 18:57:26 PDT 2012

PracticalWisdom Agree RT @Kamiyamay: @April918#hpm a local hospice gives massage - ill takea nice massage to swearing anyday!! and music therapy!! #HPMWed Jul 25 18:57:31 PDT 2012

crgonzalez @ctsinclair So it induces pleasure centers! Wow. #hpm

Wed Jul 25 18:57:32 PDT 2012

ctsinclair @aliciabloom Maybe you could give them a choice of swear words? #hpmWed Jul 25 18:57:43 PDT 2012

April918 @aliciabloom YES!!! #hpmWed Jul 25 18:57:46 PDT 2012

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ctsinclair RT @CarolynMcC: @ctsinclair Seriously though, swearing has to be usedselectively or it will become ineffective "Exactly!" #hpm

Wed Jul 25 18:57:55 PDT 2012

Kamiyamay #hpm Am I supposed to send the chaplain to do this swearing therapy or pray - thisis a wild night

Wed Jul 25 18:57:59 PDT 2012

CarolynMcC @ctsinclair Tolerance builds up just like with opiates. #hpmWed Jul 25 18:58:05 PDT 2012

PracticalWisdom Agree RT @CarolynMcC: @ctsinclair Seriously though, swearing has to be usedselectively or it will become ineffective #HPMWed Jul 25 18:58:11 PDT 2012

crgonzalez @aliciabloom LOL. Spit out two F-bombs and call me in the morning #hpmWed Jul 25 18:58:13 PDT 2012

aliciabloom @ctsinclair whatever works best for the patient, right? #hpmWed Jul 25 18:58:34 PDT 2012

PracticalWisdom T3: @ctsinclair When would swearing be considered unprofessional? #HPMWed Jul 25 18:58:46 PDT 2012

ctsinclair So to wrap up please share with the group your craziest swear substitute. Forexample "SHHHHhhhhhh-ugar cookies" #hpm

Wed Jul 25 18:58:55 PDT 2012

ravipm2000 I worry that persistent swearing will have a tachyplylaxis effect. Ocassionalswearing may be more effective? More study is needed! #hpmWed Jul 25 18:59:13 PDT 2012

BillPfohl Sorry I couldn't resist!http://t.co/rJVFGxSB#hpmWed Jul 25 18:59:24 PDT 2012

ctsinclair RT @PracticalWisdom: T3: @ctsinclair When would swearing be consideredunprofessional? "when it is derogatory or directed at people" #hpm

Wed Jul 25 18:59:25 PDT 2012

April918 SHHHHHHHHHut the front door! #hpmWed Jul 25 18:59:37 PDT 2012

STrudeauH_MedFT @ctsinclair Stephens(2009): swearing induces a negative emotion as an imediatealarm reaction, which in turn may induce temp. analgesia #hpm

Wed Jul 25 18:59:37 PDT 2012

aliciabloom shut the front door! #hpm

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Wed Jul 25 19:00:01 PDT 2012

MarksPhone shut the front door or mitt romney #hpmWed Jul 25 19:00:10 PDT 2012

produceconsume @crgonzalez Living out loud ... Gives LOL a new twist. (and not trademarked)#hpm

Wed Jul 25 19:00:12 PDT 2012

ctsinclair RT @crgonzalez: @aliciabloom LOL. Spit out two F-bombs and call me in themorning "Pain followup needs to be faster than the next day!" #hpmWed Jul 25 19:00:14 PDT 2012

jfclearywisc @aliciabloom Firetruck #hpmWed Jul 25 19:00:26 PDT 2012

ctsinclair @STrudeauH_MedFTThanks! Were you twitter searching for people talking aboutswearing? ;-) #hpm

Wed Jul 25 19:00:38 PDT 2012

April918 RT @produceconsume: @crgonzalez Living out loud ... Gives LOL a new twist.(and not trademarked) #hpm

Wed Jul 25 19:00:52 PDT 2012

Kamiyamay @ctsinclair#hpm Unbelievable, astounding, oh my gosh, WOW, fabulous,hmmmmmmmmmm lots of good alternatives as with treatments! Great conv

Wed Jul 25 19:01:25 PDT 2012

crgonzalez A la chingada (saying F-it in Spanish) #hpmWed Jul 25 19:01:30 PDT 2012

Kamiyamay RT @April918: RT @produceconsume: @crgonzalez Living out loud ... Gives LOLa new twist. (and not trademarked) #hpm

Wed Jul 25 19:01:42 PDT 2012

jfclearywisc @ctsinclair T1; #palliative care; keepers of the Bucket list! #hpmWed Jul 25 19:02:12 PDT 2012

GriefHealing Talking about #Death to a Dying #Teenhttp://t.co/aBRWxTL7#hospice#hpmWed Jul 25 19:02:42 PDT 2012

Kamiyamay RT @jfclearywisc: @ctsinclair T1; #palliative care; keepers of the Bucket list! #hpmWed Jul 25 19:02:59 PDT 2012

BillPfohl Bucket! It's 10:00 Pm on the east coast...I'll catch you next week. #hpmWed Jul 25 19:02:59 PDT 2012

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PracticalWisdom Night you Guys. Thanks for using your knowledge, skill and ability to help Patientsexperiencing Pain and End of Life. #HPMWed Jul 25 19:03:09 PDT 2012

ctsinclair Thanks all for coming to an insightful, slightly off-color chat tonight. Make sure youshut the front door before you go to bed. #hpm

Wed Jul 25 19:03:12 PDT 2012

April918 great chat!! see y'all next weeek!! #hpmWed Jul 25 19:03:51 PDT 2012

stales @ctsinclair@PracticalWisdom wait! Did I miss some pink ribbon bashing?! #hpmI'm a pro #bcsm

Wed Jul 25 19:04:06 PDT 2012

aliciabloom high five @ctsinclair! thanks for hosting :) #hpmWed Jul 25 19:04:17 PDT 2012

jfclearywisc @ctsinclair THank you for an interesting chat! #hpmWed Jul 25 19:04:17 PDT 2012

crgonzalez @BillPfohl I actually memorized that Carlin routine as a kid, charming my fellowstudents and horrifying a ll adults #hpm

Wed Jul 25 19:04:55 PDT 2012

Kamiyamay @achatburn#hpm how bout li fe's a dance be it fast or slow - do it your way (feelingsilly after this chat)

Wed Jul 25 19:05:40 PDT 2012

PracticalWisdom I didn't RT Your Tweet @ctsinclair When would swearing be consideredunprofessional? "when it is derogatory or directed at people" #hpm

Wed Jul 25 19:06:51 PDT 2012

STrudeauH_MedFT @ctsinclair Close! I just happen to be writing a paper on emotions, langauge andcancer, and was just reading that study! #hpm

Wed Jul 25 19:07:34 PDT 2012

CarolynMcC @ctsinclair Thanks for hosting and glad I caught the group tonight. I always learn

something new! #hpmWed Jul 25 19:08:39 PDT 2012

produceconsume @crgonzalez Made me think of bucket and then buck it then buck.it - double playon bucket list and f*** it #hpm

Wed Jul 25 19:08:47 PDT 2012

hpmmsudo Outpatient study shows #palliativecare reduces hospital stay and saves money.#moreproofhttp://t.co/38bnxmqs#hpm

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Wed Jul 25 19:08:53 PDT 2012

PracticalWisdom I enjoyed Tweeting with you #HPM I believe the 1st I Met you was #HPMGlobal.You add Value w/@jfclearywisc@ravipm2000

Wed Jul 25 19:10:03 PDT 2012

jfclearywisc @produceconsume Creatitive It is that sort of stuff we need.... #hpmWed Jul 25 19:10:17 PDT 2012

Kamiyamay RT @jfclearywisc: @produceconsume Creatitive It is that sort of stuff we need....#hpm

Wed Jul 25 19:11:17 PDT 2012

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