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The Importance of
Involving Siblings:
The Service Provider Role
Katie Arnold, M.S. & Tara Conley, [email protected]; [email protected]
(312) 996-1002; (708)989-3619
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Background
Siblings have longest
relationship
Siblings have beentraditionally overlooked
The sibling experience isvaried and important
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Sibling Research Across the Lifespan
Increased attention has been brought to thesibling role and experience, especially asparents age
Focus of early research was negative
Research has become more holistic
Little longitudinal research
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Review of the Literature
One primary sibling most involved, usually sister
More involved if geographically close
If siblings are involved, parents are better off
Expectations for future caregiving
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Sibling Concerns
Embarrassment and guilt
Isolation, loneliness, and loss
Resentment Increased responsibility/Caregiving
Pressures to achieve
Anger or jealousy
Fears of the future
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What do siblings want
parents & professionals
to know?
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What Siblings Want Parents and
Service Providers to Know The Right to One's Own Life
Acknowledging Siblings Concerns
Expectations for Typically-Developing Sibs Expect Typical Behavior From Typically-
Developing Siblings
Expectations for the Family Member withSpecial Needs
The Right to a Safe Environment
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What Siblings Want Parents and
Service Providers to Know Opportunities to Meet Peers
Opportunities to Obtain Information
Sibs Concerns about the Future Including Both Sons and Daughters
Communication
One-on-One time with Parents Celebrate
Parents Perspective is More Important than
the Actual Disability 8
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What Siblings Want Parents and
Service Providers to Know Include Siblings in the Definition of
Family Actively Reach Out to Brothers and Sisters
Learn More About Life as a Sibling Create Local Programs Specifically for Sibs
Include Brothers and Sisters on AdvisoryBoards and in Policies Regarding Families
Fund Services for Brothers and Sisters
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Sibling Opportunities
Maturity Insight
Tolerance
Vocation
Advocacy
Loyalty
Increased social competence
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Sibling Stories
Siblings: Nick & Tara
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Sibling Stories
Sisters: Patrice, Maggie, and Katie
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Challenges to involving siblings
Time
Distance
Information not give to siblings/finding siblings The parents worry of burdening the sibling
Siblings not realizing they need and deserve
support too Family/cultural perspectives
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Tips and strategies for service providers
Provide age-appropriate information to sibs
Provide opportunities to meet other siblingsof individuals with special needs
Encourage communication
Encourage parents to set aside time
Learn more about siblings' experiences
Future planning is important
Invite siblings to meetings & trainings
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Tips and strategies for service providers
Seek out siblings to serve on boards/committees Encourage therapists (OT, PT, ABA, etc) to
include siblings in sessions.
Sibs are the next generation of caregivers
Emphasis FAMILY support in service plan
Siblings need as much support and information
as their parents and brother or sister with specialneeds
Use broad terminology
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Your success with families may
depend on your relationship withthe siblings.
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How can siblings help
service providers?
Information
Advocacy Support
Caregiving
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Resources
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Sibling Support Projectwww.siblingsupport.org
Sibshopsgatherings for sibs to obtain peer supportand education within a recreational setting
SibKidsyoung siblings connect over the internet
SibParenta listserv where parents of kids with
disabilities can talk about their other kids
SibNetlistserv for adult siblings
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www.siblingleadership.org
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www.sibsnetwork.orgJoin at http://groups.yahoo.com/group/AdultSibsNet/
Find us on Facebook at SIBS Network
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Future Planning Resources
www.rrtcadd.org www.lookiris.com
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Save the Date
March 20th, 2012
Including Siblings Conference at College of DuPage
Details will be at www.thearcofil.org
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Video about Siblings-
Special Siblings, Special Love
http://www.youtube.com/watch?v=Ve-yGz5KzYs
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http://www.youtube.com/watch?v=Ve-yGz5KzYshttp://www.youtube.com/watch?v=Ve-yGz5KzYshttp://www.youtube.com/watch?v=Ve-yGz5KzYshttp://www.youtube.com/watch?v=Ve-yGz5KzYs8/3/2019 9.23.11 Sibling Webinar HBSSP Final Final
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Summary
Siblings are an important group and have thepotential to make a big difference!
SUPPORT SIBLINGS!!!!
Celebrate National Sibling Day on April 10th
!
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QUESTIONS
