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A Program of the UCLA-LIVESTRONG® Survivorship Center of Excellence
Patricia A. Ganz, M.D.UCLA Schools of Public Health & Medicine
Los Angeles County as a Laboratory
• Most populous and diverse county in the US – 9,818,605 residents – 74.5 % 18 years and older – 10.9% 65 years and older – 50.3% White, 8.7% Black or African American,
13.7% Asian, 0.7% American Indian or Alaska Native, 0.3% Native Hawaiian/Other Pacific Islander, 23.5% some other race, 4.9% two or more races; 44.7 % self-identified as Hispanic or Latino ; 27% non-Hispanic white
– 35.6% foreign born
(source, US census data, 2010)
COE Management
Team
Internal RelationshipsExternal Relationships
External ScientificAdvisory Committee
Community Advisory Board
Internal Steering Committee
CommunityCollaborators
UCLA-LIVESTRONG® Survivorship COE Organizational Chart
UCLA/JCCC Perspective on Survivorship
• The Patients and Survivors program has as its major goal the reduction in avoidable morbidity and mortality among patients with cancer including long-term survivors
• Our research focuses on quality of life across the developmental life span and the measurement and evaluation of the quality of cancer care
and UCLA Medical Center
Fifth ranked medical center in the US
Best Cancer Care in California
VITA stands for.... “Vital Information and Tailored Assessment”
The VITA Program is the clinical arm ofUCLA-LIVESTRONG Survivorship COE
http://vita.mednet.ucla.edu/
•Fully accredited, full-service, 376 bed, nonprofit community medical center. •The South Bay’s first hospital, founded in 1971•Highest recognition in the community for quality and state-of-the-art medical
services in a 2004 survey conducted by National Research Corporation. •Selected as a Top 100 U.S. Hospital (2004, Solucient). •Accredited by the American College of Surgeons Cancer Program•Hospital cancer registry, with 1300 incident cases/year•Physicians at Health Care Partners Medical Group admit to TMMC
•A 377-bed-state-of-the-art County facility built in 1987
•In 1992, Olive View incorporated UCLA in its name becoming Olive View-UCLA Medical Center
•In May 1997, Olive View-UCLA Medical Center became a part of ValleyCare, a healthcare delivery system for the north San Fernando Valley, Los Angeles County Department of Health Services
Michelle Doose-Peña, MPH, CHESProgram CoordinatorUCLA Healthy Lives After Cancer Program…supporting teen & young adult survivors!Email: [email protected]: www.facebook.com/HealthyLivesAfterCancer Webpage: www.cancer.ucla.edu/HealthyLivesAfterCancer
Fertility Preservation Services
• UCLA Survivorship Center NP attended MSKCC Conference in October 2011 and met with NP in charge of fertility services consultation
• Conducted survey among UCLA oncologists and other providers to assess knowledge and attitudes towards these services
• Working with reproductive endocrinologists to develop in house referral program as well as regional resources
Needs Assessment – Community Organizations - Summary of Findings
Gaps in services
#1 – Programs targeted toward young adults 21-45
-Fertility-Early menopause/menopause symptoms-Sexual functioning issues-Body image-Managing work/career
Top recurring issues
-Fatigue-Fear of recurrence-Side effects of treatment-Chemobrain-Psychological issues-Fertility-Return to work
Needs Assessment – Patient Interviews - Summary of Findings
Gaps
-Support groups for younger women-Fertility-Mentor/buddy matching program
Recurring Issues
-Fatigue-Cognitive issues – Chemobrain-Fear of recurrence
Needs
-Coping with the “new normal” post treatment – long term survivorship -Healthy lifestyle changes-Support groups for younger women
Total 18 interviewsAge range (at diagnosis): 27 to 45Age range (current): 29 to 54
Needs Assessment – Comparison of Findings
Gaps in services
-Programs targeted toward young adults 21-45-Fertility-Early menopause/menopause symptoms
- Sexual functioning issues-Body image-Managing work/career
Gaps
-Support groups for younger women-Fertility-Mentor/buddy matching program
Community Organizations Breast Cancer Patients
Needs Assessment – Comparison of Findings
Recurring issues
-Fatigue-Fear of recurrence-Side effects of treatment
-Chemobrain-Psychological issues-Fertility-Return to work
Recurring Issues
-Fatigue-Cognitive issues
- Chemobrain-Fear of recurrence
Community Organizations Breast Cancer Patients
Needs Assessment – Comparison of Findings
Needs
-Coping with the “new normal” post treatment – long term survivorship -Healthy lifestyle changes-Support groups for younger women
Breast Cancer Patients
Needs assessment – Lessons Learned
- Confirmed literature and clinical experience- Identified specific regional gaps in services- Helped to prioritize strategies for program development- Honing in on unique population needs that are difficult to address within large organizations
Internal Advisory Committee - Notes
PrioritiesFear of recurrenceCoping with the “new normal”ChemobrainFatigueReproductive & fertility servicesEarly menopause/menopause symptoms
Sexuality & Intimacy issues
Mission Statement
Mission Statement
The Young Breast Cancer Survivorship (YBCS) program is dedicated to enhancing the health and wellness of young
survivors of breast cancer. Our goal is to address the unique gaps in services that exist for this population by providing a regionally refined community resource listing of programs
and services that cater to the specific challenges that young survivors face. The YBCS program especially focuses on
psychosocial support services and educational programs aimed at providing education on coping with various
psychosocial issues.
Next Steps – Program Implementation
Psychosocial program development in process
Online resource libraryAwarded grant funding from UCLA’s Clinical and Translational Science Institute (CTSI)
Development of regional resources focused on reproductive services and fertility preservation
Media/Marketing
Facebook Pagewww.facebook.com/YBCSprogram
UCLA Jonsson Comprehensive Cancer Center Websitewww.cancer.ucla.edu/YBCS