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Acquired Brain Injury Rehabilitation Services:The Southern Picture
Dr. Nicola RyallConsultant in Rehabilitation Medicine
28 September 2006
NATIONAL REHABILITATION HOSPITAL
Acquired Brain Injury: Data…
• Common– HIPE: 11,000 admitted with ABI
(underestimate)
• Increasing survivors• 75% 18-35 years• 75% are men • 40% due to RTA…(UK stats)• 250-375 survivors/250,000 pop…(UK
stats)
Sequelae 1…
• Physical• Paralysis• Ataxia/incoordination• Sensory deficits• Visual/Auditory• Dysphagia• Epilepsy• Headache, fatigue,
pain etc.
• Communication• Expression/Reception• Dysarthria• Dyslexia• Dysgraphia
Sequelae 2…
• Cognitive• Memory• Attention• Perception• Problem- solving• Insight• Safety-awareness• Self-Monitoring• Social judgement
• Behavioural/Emotional• Emotional lability• Poor Initiation• Mood change• Adjustment problems• Aggressive outbursts• Disinhibition• Inappropriate sexual
behaviour• Poor motivation• Psychosis
Role of Rehabilitation
• Neural plasticity accounts for some of the recovery but this can be facilitated by timely and appropriate rehabilitation
• Rehabilitation reduces disability and improves integration…maximal benefit in first 3-6 months
Slinky Model (RCP, BSRM 2003)
Acute care/neurosurgeryWard based therapy
Post-acute in-patientSpecialist Rehabilitation
Community based rehabilitationDay centre/out patientsOut-reach/Home basedVocational rehabilitation
Longer term community supportSpecialist care/care management
Review/ drop-in clinicsRe-assess as required
Reduced Impairment and pathology
Improved activity(reduced disability
Enhanced participation
Goals & outcomes
Hospital
Home
Expected Outcomes (BSRM,1998)
• Mild TBI survivors unable to maintain pre-accident performance
• 30-40% of survivors have ‘good recovery’ (moderate disability) within 6-12 months
• MDT Rehabilitation reduces length of stay by 30%
• <1 in 6 return to work within 5 years
Rehabilitation Services
• Patchy and poorly integrated– ill-understood and sub-optimally used– inefficient and inappropriate deployment of
services– ineffective treatment – sub-optimal outcomes for patient and carer
with poor user satisfaction– unreasonably heavy demands on GP,
community nursing and social services – problems are self-perpetuating
Size of problem?
• 6 DATHs…1Younger Disabled Unit
• >17,500 acute bed-days were spent by young patients over five years.
• For an individual patient, the average waiting time in an acute hospital was almost two years (627 days) from onset of disability.
National Rehabilitation Hospital
• Republic• 119 beds• 34 (ABI)• 5 consultants
• UK International• 254 beds (rehab)
360 (ABI)• 16
27..74..450
Waiting for admission….
• 203 patients waiting admission
• 44.8% awaiting brain injury rehabilitation
• Average waiting time: > 6 months
• 20% of adults from RTAs
• 50% of children from RTAs
• 3 HDU beds….18 months wait
Waiting for discharge…
• 10-15% of NRH beds delayed discharges
• No protected funding to ‘unblock’ beds
• €12,000,000 spent in last 15 months year on crisis intervention
• 78% of recommendations not followed through in community….2000
• Most of rest dissatisfied
New funding since 2001
0
Rehabilitation Strategy 2002
0
Since April 2006….
0
NTPF
0
New Hospital
• 235 beds• No guarantee of
funding• Significant delays to
date
Is it all doom and gloom?
• Despite limited resources we still achieve good outcomes
• Deliver and lead up-to-date rehabilitation
• We work hard at developing ideas to improve our care and service delivery
• Majority of patients discharged home
• …But poor community resources
What we need…
• National Strategy on Development and Delivery of Rehabilitation Services
• Coordinated care across the continuum of care from acute to community
• Relevant, Accessible, Acceptable, Equitable, Efficient, Effective
Thank you