Leslie Hammersmith, MACancer Research AdvocateSenior Manager and eLearning AnalystUniversity of Illinois at Urbana-Champaign

Social Media Basics for Clinical Research

November 9, 2013Circle City Chapter of ACRP: 13th Annual Fall Symposium: Excellence in Clinical Research

• 6 year breast cancer survivor• Senior Manager and eLearning

Analyst in higher education• Trained cancer research advocate

• AACR• Research Advocacy Network• NCCTG• Young Survival Coalition Research Think Tank• NBCC Project LEAD Institute• DOD Breast Cancer Research Program

OVERALL SYMPOSIUM OBJECTIVES

Name major pieces of legislation impacting research as well as be able to predict how the changes may impact their organizations and be able to organize a plan to adhere to the new laws.

Describe key concepts and competencies needed to self-monitor a clinical trial.

Describe how social media can enhance

site/sponsor relationships and evaluate the impact of technology-enhanced communication on the clinical trial process.

© copyright ACRP 2008 3

OVERALL SYMPOSIUM OBJECTIVES

Identify issues that can adversely affect the quality of clinical research trials and describe actions they can take to eliminate and prevent quality issues from happening.

Discuss changes in regulations relating to FDA requirements for medical devices.

Assess The Sunshine Act in order to anticipate and prepare for necessary requirements in their clinical trial processes.

© copyright ACRP 2008 4

60 Seconds

How many do you recognize?

How many do you use?

How close are you to “The Basics” ?

Going Mobile

• 56% of all Adult Americans have a smartphone.

(91% of the adult population owns some kind of cell phone.)

• Becoming the “Digital Diagnosis”

*Based on data from telephone interviews conducted by Princeton Survey Research Associates International from April 17 to May 19, 2013.

From Institute for Health Technology Transformation, http://ihealthtran.com/wordpress/2013/07/infographic-how-to-engage-patients-online/

DEMOSTwitter Pinterest Facebook TrialX

Twitter – What’s the point?

1. Connect to your network(s). 2. Share content.3. Create value.

1 – Connect Your Network

• Follow medical professionals and colleagues

• Follow professional associations• Follow patients and patient

communities

Use Favorites to save.

A Favorite and a Retweet

2 – Share Content

• Read and Retweet• Conferences• Learn to love #Hashtags!

Conference Hashtags#

3 – Create Value

• Add original content• Add your insights• Participate in chats

Retweet and add your insight.

http://www.symplur.com/healthcare-hashtags/tweet-chats/

#BCSM

Professional Recognition

Facebook

• 1.11 Billion users• Expect interaction.• Access to statistics (“Insights”)

Facebook – Stats Overview

Facebook – Demographics

Facebook – Post Analytics

Facebook – Traffic

• 1.11 Billion users• Expect interaction.• Access to statistics (“Insights”)

ExampleWisconsin Equine Clinic & HospitalFacebook – Weekly “What’s Your Diagnosis?”

Pinterest – What’s the point?

• Organized as “boards” • People follow your boards• Graphical interface

• Applications for clinical research???

What makes an effective use of Pinterest?

How would you use it?

Clinical Trials of Texas, Inc. on Pinterest (cttexas12)

TrialX – Clinical Trials on Your Smartphone

• Patients going mobile.• Location specific.• Personalized.

I use TrialX app (free).

Enter my details and location.

And clinical trials in my area come up.

TrialX – Clinical Trials on Your Smartphone

Free The Data!

The road map to successful participant engagement with

social media means developing a strategy, a personality, and investing time, resources, and

value creation in a social media presence.

Step-by-Step

1. Build a foundation.

2. Listen and participate.

3. Gain followers by adding value.

4. Generate buzz and provide the community an opportunity to share authentic stories of people getting better by participating in clinical trials.

5. Monitor channels.

Bonus Example: Webicina

Learn More FromMayo Clinic Center for Social Media (MCCSM)

• http://network.socialmedia.mayoclinic.org/mccsm/

• Social Media Residency• Social Media Week• http://socialmediatoday.com/joan

-justice/1478141/big-brand-theory-how-mayo-clinic-became-gold-standard-social-media-healthcare

THANK YOU

Leslie Hammersmith@piaffeatxlhammersmith@yahoo.comThis presentation on Slideshare at http://www.slideshare.net/lhammersmith

November 9, 2013Circle City Chapter of ACRP: 13th Annual Fall Symposium: Excellence in Clinical Research