Register Today!Visit http://tinyurl.com/AFTD2020 today to register for AFTD’s 2020 Education Conference!

If you would like to attend but cannot afford the registration fee, please contact conference@theaftd.org to request a waiver code to use at registration.

Only people living with FTD and current care partners/caregivers and family members are eligible for this option.

Every year, AFTD convenes persons diagnosed, care partners, researchers, healthcare professionals and others for our annual Education Conference. Join us this April in Baltimore for a day of learning, sharing and connecting. Find help and share hope with people who understand the FTD journey.

Highlights:• LearnaboutthelatestupdatesinFTDscience

straight from the researchers who are helping to deepen our understanding of this disease

• Takepartininteractivebreakoutsessionsfocusingon clinical issues and FTD care strategies

•Makeimportantconnectionsduringspeciallytailored networking sessions and our evening social reception

• Experienceatrulyuniqueandrewardingdaysurrounded by people whose lives have been touched by FTD

Sheraton Inner Harbor Hotel | Baltimore, MD April 17, 2020, 9:00 a.m. to 5:00 p.m.

AFTD’s 2020 Education Conference

AFTD’s 2020 Education ConferenceSheraton Inner Harbor Hotel | Baltimore, MD

April 17, 2020, 9:00 a.m. to 5:00 p.m.

Featured Speakers Keynote Speaker:

Rome Hartman is a producer of the venerable CBS news program 60 Minutes, which

lastMayairedasegmentheproduced about FTD. Entitled “The Cruelest Disease You’ve Never Heard Of,” the story brought newfound awareness of FTD’s uniquely devastating nature to a national television audience of millions. Over the course of his 35+ years in television news, Rome has worked at CBS, NBC and the BBC. He has won many prestigious journalism and television awards, including a Peabody Award and multiple Emmys.

More Information about AFTD’s 2020 Education ConferenceHotel Information: AFTD has reserved a block of rooms at the special discounted rate of $149/night (plustaxes).Visithttp://tinyurl.com/AFTD20Hotel or call 1-800-325-3535 and mention the AFTD Conference. Hurry–thespecialrateexpiresonMarch25.

Financial Assistance: AFTD offers attendees modest financialassistanceintheformofComstockTravelGrants.Youcanfindmoreinformationbyvisiting http://tinyurl.com/ComstockGrants.

Persons Living with FTD: AFTD encourages persons living with FTD to attend and participate in the Education

Conference. A special “quiet room” named in honor of the late FTD advocate Susan Suchan will be open all day if you need a break; respite care is not provided.

Arriving Early? Early registration will be available at the Sheraton on Thursday, April 16, from 4:30-6:30 p.m., with regular registration beginning Friday at 8:00 a.m.

Healthcare Professional Networking: AFTD EducationProgramManagerDeenaChisholmwillleadanetworking lunch for healthcare professionals.

Questions? Please send an email to conference@theaftd.org with any additional questions you may have!

Halima Amjad, MD, MPH, Assistant Professor of MedicineatJohnsHopkins University

SchoolofMedicine

Murray Grossman, MD, EdD, Professor of Neurology and Psychiatry at the University of

Pennsylvania and Director of the Penn FTD Center

Chiadi Onyike, MD, MHS, Associate Professor of Psychiatry and Behavioral Sciences

and Director of the FTD and Young-Onset Dementias Program atJohnsHopkinsUniversity

Katie Brandt, MM, Director of Caregiver Support Services in the FTD Unit at MassGeneraland

Co-Chair of the NAPA Advisory Council

Jennifer Pilcher, PhD, CMC, Founder of Clear Guidance, Editor-in-Chief of the Journal of Aging Life Care

The Very Rev. Tracey Lind, MDiv, Dean Emeritus of Trinity Episcopal Cathedral in Cleveland, Ohio

AFTD’s 2020 Education ConferenceSheraton Inner Harbor Hotel | Baltimore, MD

April 17, 2020, 9:00 a.m. to 5:00 p.m.

8:00 a.m. Registration

9:00 a.m. Welcome Gail Andersen, AFTD Board Chair Christopher Coates,RetiredMilitaryChaplain Bob Meddaugh, AFTD Think Tank

9:15 a.m. FTD Disease Overview Halima Amjad, MD,JohnsHopkinsUniversity

9:45 a.m. Landscape of FTD Research Murray Grossman, MD, University of Pennsylvania Chiadi Onyike, MD,JohnsHopkinsUniversity Facilitator: Nadine Tatton, PhD, AFTD

10:20 a.m. Break

10:40 a.m. Advocating for Dignity in Dementia Katie Brandt, MM,Massachusetts General Hospital The Very Rev. Tracey Lind, MDiv Jennifer Pilcher, PhD, Clear Guidance

11:15 a.m. AFTD 2019 Highlights Susan L-J Dickinson, CEO, AFTD

Schedule and Speakers

11:30 a.m. Conference Keynote Address Rome Hartman, Producer, 60 Minutes

12:00 p.m. Lunch

1:00 p.m. Breakout Sessions: Clinical Issues

2:00 p.m. Breakout Sessions: Care Strategies

3:00 p.m. Break

3:20 p.m. Breakout Sessions: Support and Networking

4:30 p.m. Conference Wrap-Up Session

5:00 p.m. Social Reception Joinyourfellowattendees,speakers,andAFTD staff and Board members for an informal social reception after the conference.

AFTD’s 2020 Education ConferenceSheraton Inner Harbor Hotel | Baltimore, MD

April 17, 2020, 9:00 a.m. to 5:00 p.m.

Breakout SessionsHealthcare professionals, persons diagnosed, caregivers, and AFTD staff will facilitate a

full slate of engaging and informative breakout sessions on a wide range of topics.

Clinical Issues1:00 to 1:45 p.m.

It Takes a Team Maya Lichtenstein, MD,GeisingerMedicalCenter

Brain-Behavior Connections in Behavioral FTD Lauren Massimo, PhD, University of Pennsylvania

Current and Emerging Therapeutic Approaches to FTD David Irwin, MD, University of Pennsylvania

Understanding PPA Maya Henry, PhD,UniversityofTexasatAustin

Genetics of FTD Jamie Fong, MS, CGC, BaylorCollegeofMedicine

Care Strategies 2:00 to 3:00 p.m.

A Positive Approach to bvFTD Melanie Bunn, RN, MS, Positive Approaches to Care

Advocating for Care and What I Wish I Knew Jennifer Pilcher, PhD, Clear Guidance Katie Brandt, MM,MassachusettsGeneralHospital

Developing Communication Strategies Maya Henry, PhD,UniversityofTexasatAustin

Approaches to Care in ALS/FTD Beth Rush, PhD,MayoClinicJacksonville

Apathy and Grief Lauren Massimo, PhD, University of Pennsylvania Amy Shives, MEd, AFTD Think Tank

Support and Networking 3:20 to 4:20 p.m.

Questions & Discussion for Care Partners Halima Amjad, MD,JohnsHopkinsUniversity Chuck Anastasia, AFTD Support Group Volunteer, former care partner

Questions & Discussion on Research Murray Grossman, MD, University of Pennsylvania Jamie Fong, MS, CGC,BaylorCollegeofMedicine

Questions & Discussion for People with FTD Chiadi Onyike, MD,JohnsHopkinsUniversity

Online Platforms for FTD Networking Lauren Gauthier, AFTD Sharon Denny, MA, AFTD

Finding Hope in Loss: A Discussion for Former Caregivers Bridget Moran-McCabe, MPH, AFTD Ann Schoonover, MSW, AFTD