Allied to Kids is an initiative of the NSW Children’s Healthcare Network. The newsletter will be circulated regularly to provide updates and information to support allied health professionals who work with kids and their families. Allied to Issue 121 June 2019 kids Children Above a Healthy Weight One in four Australian children and adolescents are above a healthy weight. Over time, overweight and obesity have a significant impact on a child’s health and development. 1 All health professionals play a very important part in supporting families to adopt health lifestyles. It is up to every allied health professional to enhance their knowledge and skills around the topic of healthy weight. Healthy Kids for Professionals is a website designed to help health professionals manage children above a healthy weight, and their families. Resources can be found and downloaded from https://pro.healthykids.nsw.gov.au/. ‘8 for a healthy weight’ is an example of one of the resources available. It sets out key messages to help you provide advice to families. These healthy habits are safe lifestyle messages for all children aged 2 to 18 years. 2 Reference: 1. Australian Institute of Health and Welfare 2019. Data sources for monitoring overweight and obesity in Australia. Cat. no. PHE 244. Canberra: AIHW. 2. Healthy Kids for Professionals https://pro.healthykids.nsw.gov.au/ accessed 28 May 2019. Inside this edition Children Above a Healthy Weight 1 To Tweet or not to Tweet 2 How to Support a Child when their Sibling is Dying 2 Conquering Wees and Poos 3 Wolf and Glass Education Session 4 First 2000 Days Framework 5 The Resilience Doughnut 6 Jelly Beans and Popcorn 6 FASD Hub 7 Take a Tour of a Simulated Refugee Camp 8 Research Corner 9 -10 Allied Health Educator Contact Details 11 Allied Health Telehealth Virtual Education 11 Tertiary Children’s Hospitals Grand Rounds 12 Save the Date 13 Conferences/Workshops/ Webinars 13-15
Transcript
Allied to Kids is an initiative of the NSW Children’s Healthcare Network. The newsletter will be circulated regularly to provide
updates and information to support allied health professionals who work with kids and their families.
Allied to Issue 121
June 2019 kids
Children Above a Healthy Weight
One in four Australian children and adolescents are above a healthy weight. Over time, overweight and obesity have a significant impact on a child’s health and development.1
All health professionals play a very important part in supporting families to adopt health lifestyles. It is up to every allied health professional to enhance their knowledge and skills around the topic of healthy weight.
Healthy Kids for Professionals is a website designed to help health professionals manage children above a healthy weight, and their families. Resources can be found and downloaded from https://pro.healthykids.nsw.gov.au/.
‘8 for a healthy weight’ is an example of one of the resources available. It sets out key messages to help you provide advice to families. These healthy habits are safe lifestyle messages for all children aged 2 to 18 years.2
Reference:
1. Australian Institute of Health and Welfare 2019. Data sources
for monitoring overweight and obesity in Australia. Cat. no.
PHE 244. Canberra: AIHW.
2. Healthy Kids for Professionals https://pro.healthykids.nsw.gov.au/ accessed 28 May 2019.
Inside this edition
Children Above a Healthy Weight 1
To Tweet or not to Tweet 2
How to Support a Child when their Sibling is Dying
This section will be a regular inclusion of the Allied to Kids newsletter and will spotlight relevant Twitter accounts for allied health professionals.
AWCH@awchaus - The Association for the Wellbeing of Children in Healthcare (AWCH) is a national not-for-profit organisation that has been advocating for the needs of children, young people and their families within the healthcare system in Australia since 1973.
Centre of Research Excellence in Adolescent Health@WellbeingYouth - The National Health and Medical Resarch Centre, Centre of Research Excellence in Adolescent Health unites young people and interdisciplinary researchers to drive progress in Wellbeing, Health and Youth.
Please do not forget to follow AlliedtoKids@AlliedtoKids - A2K aims to provide education, support and clinical resources to allied health professionals working with children across NSW.
How to Support a Child when their Sibling is Dying
Every child has different life experiences and these shape the way they may understand the world, life and even death. Children’s experience of death is varied. One child may have experienced the death of a family member, friend or beloved pet, yet other children will have had no direct experience of death. Though the subject of death and dying is uncomfortable for many of us and the experience of losing a loved one can be overwhelming, talking about death to a child as openly and honestly as you can is important in helping them to understand that it is a part of life.
Children’s Health Queensland, as part of their National Palliative Care Week blog, provides guidelines for sensitive conversation with kids about their sibling dying. The blog highlights the importance of parent-child communication. Communication is more than the conversations parents have directly with them. It includes the body language, facial expressions, tone of voice, gestures and incidental sounds. Children are also very aware when they are excluded from contact and conversation. The vivid imagination, so much a part of being a child, will fill in the gaps in their understanding. With this in mind, ‘good’ communication with children occurs when they feel included, respected and listened to.
Australian Centre for Grief and Bereavement: https://www.grief.org.au/ACGB/ACGB_Publications/Resources_for_the_Bereaved/Resources_Bereaved.aspx
Pillars of Strength: http://pillarsofstrength.com.au/.
Adapted from: Queensland Government Children’s Health Queensland Hospital and Health Service https://www.childrens.health.qld.gov.au/blog-how-to-support-your-child-when-their-sibling
A two day workshop was held in Dubbo on 16 and 17 May, 2019. The workshop attended by 24 participants was presented by Rebecca Khan, occupational therapist. The workshop was made possible by the HETI Workplace Learning Grant Program.
The two day workshop explored the clinical management of chronic incontinence in children aged 3-15 years. It covered the development of toileting including toileting milestones, as well as the aetiology of chronic constipation/soiling, urinary incontinence and bedwetting. Topics explored included continence strategies for children who have developmental delays who have not achieved bowel or urinary continence in first line treatment. Time was also spent developing an awareness of the impact of anxiety and other socio-emotional aspects in participating on toileting routines in children ages 3-15 years.
The days were packed with new information, problem solving and an abundance of resources. Some of the amazing resources that Rebecca shared included:
Kids that Go - https://kidsthatgo.com/
Conquering Wees & Poos CD-ROM Lady Cilento Children’s Hospital
The ‘invisible’ pelvic floor is now in 3D - https://www.continence.org.au/news.php/580/the-invisible-pelvic-floor-is-now-in-3D
Participants in the Conquering Wees and Poos Workshop May 2019
Everyone that attended these two days would like to acknowledge the support of HETI and the tireless work of Amanda, Danielle and the Western NSW Paediatric Focus Group in organising this amazing workshop.
Lynn Wolf, MOT, OTR, IBCLC and Robin Glass, MS, OTR, IBCLC practice occupational therapy at Seattle Children’s Hospital in Seattle, Washington. Lynn and Robin, often referred to as Wolf and Glass, are considered by many as ‘gurus’ in the realm of paediatric feeding management. In addition to numerous journal articles, their book Feeding and Swallowing Disorders in Infancy: Assessment and Management is a core text and much-used reference.
Following on from their sold-out workshops in Brisbane, Melbourne and Sydney, an advanced level education session with Lynn and Robin was held on 8th May at Sydney Children’s Hospital, Randwick. The session format was a round table discussion based on questions and cases provided by participants. Twenty clinicians from across NSW were in attendance, comprising members of the NSW Speech Pathology Paediatric Feeding Education Working Group and senior speech pathologists in paediatric feeding from the three tertiary children's hospitals. The session provided a continuing professional development opportunity for clinicians, as well as acknowledgement of the significant contribution of Working Group members to education and clinical support across the state.
Lynn and Robin provided insight into paediatric feeding services at Seattle Children’s Hospital. Of interest was the significant role of occupational therapists in the assessment and management of infants under 12 months of age. This scope of practice is more aligned with that of speech pathologists in Australia.
A range of clinical issues were addressed during the round table forum. Topics and cases discussed included oral feeding of infants on high flow, silent aspiration in children with no neurological or structural abnormalities, Prader-Willi syndrome, laryngeal penetration and long term aspiration, instrumental assessment, and short-gut syndrome. Review of emerging research and recent literature prompted reflection on current practices and lively discussion. The meeting also provided a networking and clinical support opportunity for senior speech pathologists across NSW.
On behalf of the attendees, the Allied Health Educators would like to thank Lynn and Robin for sharing their time and expertise to provide this invaluable learning opportunity.
Back row (L-R): Kate Hodge, Gloria Tzannes, Laura Swift, Georgia Doolan, Christine Ibrahim, Amanda Simon, Sandra Norris, Jana Carr, Katelyn Vanos, Jennifer Hughes, Jenny Wood.
Front row (L-R): Carmel Blayden, Emily Davis, Brodie Hughes, Robin Glass, Lynn Wolf, Krystal Furey, Jen Nicol, Sonia Hughes.
Photo by: Lauren Leeming
Page 5
Issue 105
First 2000 Days Framework
Adapted from: NSW Government (2019) The First 2000 Days
The First 2000 Days Framework is a strategic Policy Document (PD2019_008) which outlines the importance of the first 2000 days in a child's life (from conception to age 5). Released on the NSW Health Policy Distribution System in February 2019, The First 2000 Days Framework details what action people within the NSW health system need to take to ensure all children have the best possible start in life.
The first 2000 days is a critical time for physical, cognitive, social and emotional health. What happens in the first 2000 days of life has been shown to have an impact throughout life. For example, early life experiences are:
Strongly predictive of how a child will learn in primary school
A predictor of school performance, adolescent pregnancy and involvement with the criminal justice system in the adolescent years
Linked to increased risk of drug and alcohol misuse and increased risk of antisocial and violent behaviour
Related to obesity, elevated blood pressure and depression in 20-40 year olds
Predictive of coronary heart disease and diabetes in 40-60 year olds
Related to premature ageing and memory loss in older age groups.
Scope of the First 2000 Days Framework
The First 2000 Days Framework incorporates a range of policies, programs, services and models of care to make sure that the right health services are available for everyone. The Framework is intended for use throughout the entire NSW health system so that all clinicians understand the importance of the first 2000 days in their daily practice, whether they work with infants and young children, or adults and the elderly.
The Framework explains that everyone is impacted by their first 2000 days. The Framework is also relevant to organisations outside of the NSW health sector, in particular human services agencies, and communicates the need for everyone to consider the importance of the first 2000 days in the delivery of services and supports. Through effective and collaborative support and intervention during the first 2000 days, there is an opportunity to give children the best possible start in life physically, developmentally, socially and emotionally, and to address the escalating prevalence of adult disease and morbidity.
The Framework has three strategic objectives. These objectives provide an ‘umbrella’ for policies and guidelines that will play a role in promoting the importance of the first 2000 days.
1. Understanding the importance of the first 2000 days
2. Care and support for all
3. Specialised services for those who need it.
The framework is essential reading for anyone working with children and their families and can be found at https://www1.health.nsw.gov.au/pds/ActivePDSDocuments/PD2019_008.pdf.
Jelly Beans and Popcorn is an activity based book for children. Available from Rosie’s Place for $15 each it is designed for children to think about who they are, the people and places around them and what they might hope for in their future. The book helps children recognise feelings their bodies might have in certain situations, it discusses safe people and safe places in their community and most of all the whole book is about them and who they are. It helps children be visible in counselling and gives them their own space to write or draw what is most important to them.
Adapted from: The Resilience Doughnut, Building Resilience in Children and Young People
by Lyn Worsley and Ruth Fordyce
Many factors in a child’s life contribute to their development. Recent research has focused on people who are resilient, despite the adversities they are facing. By drawing on current research regarding the common qualities of these children that display resilience, clinical psychologist Lyn Worsley developed a simple and practical resilience-building tool that can be easily used. It is called the Resilience Doughnut and is outlined in, The Resilience Doughnut: The Secret of Strong Kids.
The Resilience Doughnut has two parts:
1. The hole in the middle represents the child’s key beliefs that develop as they build the tools and resources they need to face the world. Research indicates that young people who have strong positive beliefs in each of these areas are more likely to be resilient.
2. The Doughnut is comprised of seven sections. Each of these sections represent an external factor in the person’s life. When reviewing the research, Lyn found that these seven factors repeatedly showed up in the lives of resilient people.
The seven factors are:
The Parent Factor: characteristics of strong and effective parenting
The Skill Factor: evidence of self competence
The Family and Identity Factor: where family identity and connectedness is evident
The Education Factor: experience of connections and relationships during the learning process
The Peer Factor: where social and moral development is enhance through interactions with peers
The Community Factor: where the morals and values of the local community are transferred and the young person is supported
The Money Factor: where the young person develops the ability to give as well as take from society through employment and purposeful spending.
The Resilience Doughnut is simple and effective to use. New ways of building resilience in children and young people can be discovered and applied in many different contexts. There is a range of creative Resilience Doughnut resources which can be used when working with children or adolescents. Visit www.theresiliencedoughnut.com.au for more information.
FASD Hub is a website that allows health professionals, service providers or carers find information on Fetal Alcohol Spectrum Disorder (FASD). This Australian website is a collaboration between The University of Sydney, Telehthon Kids Institute, Menzies School of Health Research, NOFASD Australian and the Australian and New Zealand FASD Clinical Network.
This repository houses essential information on what is FASD, assessment and diagnosis, managing FASD and prevention. It also includes a comprehensive listing of Australian and international FASD resources. The website also houses a number of videos to assist the user learn about the strengths, difficulties and challenges for a person with FASD. Designed to meet the needs for health professionals, other professionals, parents and carers, the website offers a wealth of information.
It is possible to explore the database of all past and present publications and research projects related to FASD. All training and support opportunities both online and face to face are related to FASD for professionals. In addition there is a range of support for parents and carers.
The website houses curated information for clinicians and allied health professionals including:
Written by: Melissa Galanto, Service Development Officer, NSW Refugee Health Service
Ever wondered what health care is available to children in a refugee camp?
Have you ever put yourself in the shoes of a refugee parent?
A mock refugee camp has taken over the grounds of Auburn Centre for Community, to demonstrate the process of exile - from escape, refugee camp, and settlement in Australia. To make this experience more targeted, the NSW Refugee Health Service has partnered with Cumberland Council to provide tours especially for health professionals as part of Cumberland Council’s interactive Refugee Camp in My Neighbourhood.
Health tours are delivered by guides from refugee and asylum seeker backgrounds and NSW Refugee Health Service staff so participants receive first-hand accounts, as well as an opportunity to ask any burning questions about epidemics, detention, parasites (and anything else).
Last year, health staff described the tour as:
“Confronting and powerful experiential learning”
‘”Absolutely awesome”
“A great experience for me and it changed my perception of refugees”
The 2.5 hour tour gives a very unique understanding of how the refugee experience can impact on well-being, and assist health professionals to develop strategies to engage effectively with people from a refugee background. For many health professionals CPD points would apply.
Health tours are only available on Wednesday 7 August. Book a tour via http://refugeecampauburn.com.au using the promotional code HEALTH. Cost: $22.
Assessing current adherence to the National Guideline for the Assessment and Diagnosis
of Autism Spectrum Disorders in Australia
Are you currently involved in the assessment and diagnosis of autism spectrum disorders in Australia?
If so, please participate in this survey that will aim to understand your current assessment and diagnostic practices. This survey can take approximately 20-30 minutes for most professionals, and a maximum of 50 minutes (depending on the breadth of the assessment types that you offer in your practice). At any time, you can save your responses and return to the survey later.
To participate in the survey, please click http://j.mp/2GJU8bZ.
If you have any questions or would like further information please contact Anindita at [email protected].
Your participation is key in understanding current practices, as well as to identify potential areas to focus implementation activities.
Research Corner Clinician Workshops - Clinical utility of assessment of functioning tools
The Cooperative Research Centre for Living with Autism (Autism CRC) are looking for clinicians to participate in a Consultative Workshops in June 2019 to evaluate the clinical utility of assessment of functioning tools, including PEDI-CAT (ASD), Vineland-3 and ICF Core Set for ASD Documentation Form. This is to address the National Guideline Practice Point relating to “Instrument Development and Validation” (https://www.autismcrc.com.au/knowledge-centre/resource/national-guideline). Detailed information can be found in the Participant Information Statement (http://bit.ly/ClinicianPIF).
Please pass on this information to other clinicians in your network who may be interested in participating.
You can register for this free event at the following links:
If you are unable to attend a workshop, but would like to express your interest in participating in a future local or teleconference workshop, please provide your details at the following link: https://assessmentoffunctioningeoi.splashthat.com/.
Autism CRC will also be hosting a workshop for individuals on the autism spectrum and caregivers, please feel free to let us know if you are happy to promote these with your clients.
If you have any questions please feel free to contact the research team by emailing: [email protected].
Seeking Participants for ICF Definitions Workshops
The Cooperative Research Centre for Living with Autism (Autism CRC) are looking for people with lived experience of autism to participate in a Consultative Workshops in June 2019 to help develop an easy to use assessment of functioning for people on the spectrum. This is to address the National Guideline Practice Point relating to “Instrument Development and Validation” (https://www.autismcrc.com.au/knowledge-centre/resource/national-guideline).
Detailed information can be found in the Participant Information Statements:
Parents or caregivers of anyone on the autism spectrum (of any age): http://bit.ly/ICFparentPIF.
Please pass on this information to others in your network who may be interested in participating.
You can register for this free event at the following links:
If you are unable to attend this workshop, but would like to express your interest in participating in a future local or teleconference workshop, please provide your details at the following link: https://icfdefinitionsworkshopeoi.splashthat.com/.
If you have any questions please feel free to the research team by emailing: [email protected].
For more details about any of the information included in this newsletter, or if you have something you would like included in a future edition, please contact one of us.
Allied to Kids Allied health education and clinical support
Submissions for Future Editions of Allied to Kids Let us know about your workshops, new programs, events, research or positions vacant. Clinical articles need to be evidence based with a relevant (albeit short) reference list. Submissions can be sent to any of the Allied Health Educators (email details are listed above) and need to be received no later than the 25
th
of each month to ensure inclusion in the following month’s edition. Remember, Allied to Kids is a newsletter for allied health professionals by allied health professionals.
Please note the inclusion of event/resource details in this newsletter does not constitute endorsement by the NSW Children’s Healthcare Network. Individuals are responsible for determining the credentials of events/resources in line with their own professional standards.
Issue 105 Page 11
Further details regarding Allied to Kids is available at the
Allied to Kids website:
http://www.nchn.org.au/a2k/index.html.
Issue 121
Children’s Healthcare Network
Allied Health Telehealth Virtual Education Available to allied health professionals who provide services through
NSW/ACT Health
The 2019 Allied Health Telehealth Virtual Education program incorporates a range of virtual education technologies such as videoconferencing and pre-recorded sessions. Upcoming Sessions:
Most sessions are recorded and available for viewing online. Please visit the Allied to Kids website http://www.nchn.org.au/a2k/index.html for details of the 2019 calendar, latest updates and to view earlier sessions.
11 June Queanbeyan Paediatric Mealtime Support Clinic #
Tertiary Children’s Hospitals Grand Rounds Available to allied health professionals who provide services through NSW Health
Children’s Hospital at Westmead (CHW) Grand Rounds
The CHW Grand Rounds Education Program is held each Thursday from 1:00 - 2:00pm. Upcoming sessions:
For information contact SCHN-Education (CHW) [email protected] or [email protected]. Previous CHW Grand Rounds sessions are available for viewing at: http://elearning.schn.health.nsw.gov.au/host/index.php.
John Hunter Children’s Hospital (JHCH) Paediatric Grand Rounds
The JHCH Paediatric Grand Rounds Education Program is held each Tuesday from 1:00 - 2:00pm. Upcoming session topics include (more specific details are released one week prior to the session):
For instructions on how to view these sessions online or to access previous sessions, please email [email protected].
Sydney Children's Hospital (SCH) Grand Rounds
The SCH Grand Rounds Education Program is held each Wednesday from 1:00 - 2:00pm. Upcoming sessions:
For information on how to view sessions contact SCH Education Administration on 02 9382 5409.
4 June Haematology/oncology
11 June General Paediatrics and Adolescent Medicine
18 June Emergency
25 June Palliative Care
Presentation 1 Presentation 2
6 June Psychological Medicine ENT
13 June Respiratory Update
20 June Poisons Information Centre Child Development Unit
Paediatric and Adolescent Nutrition Update Day: Challenges in babies,
toddlers and teens
8 November 2019
The Children’s Hospital at Westmead
Further information will be released in the coming months.
Conferences/Workshops/Webinars
Regional Paediatrics NSW Annual Conference
29 - 31 August 2019
Wagga Wagga, NSW
Further information will be released in the coming weeks.
Social Determinants of Health: A Framework
Webcast 1: 3 June 2019
Webcast 2: 1 July 2019
Webcast 3: 12 August 2019
Webcast 4: 23 September 2019
Webcast 5: 18 November 2019
The Centre for Healthcare Knowledge & Innovation invites you to register for Webcast 1: A Framework for Social Determinants of Health. The first of five webcasts streamed live from a state-of-the-art studio this webcast will take a look at the theory of social determinants of health and the evidence that supports key action areas.
Facilitated by Tessa Boyd-Caine, CEO of Health Justice Australia, a panel of experts will provide the baseline for building shared language around individual lifestyle factors, social and community networks, and general socioeconomic, cultural and environmental conditions in 2019.
For further information https://www.thecentrehki.com.au/events/sdoh/.
MP4Kids Conference
5 July 2019
Royal North Shore Hospital
MP4Kids is a clinical network representing all Level 4 paediatric units in general public hospitals, in metropolitan and outer metropolitan Sydney. A range of presentations are planned around the theme, ‘Optimising the patient journey through partnership, collaboration and innovation’. The program is expected to comprise topics of interest to allied health professionals.
Tickets can be purchased from https://www.trybooking.com/book/event?eid=477372&.
For further information regarding MP4 Kids contact [email protected].
15th NSW Brain Injury Rehabilitation Program Forum
13 - 15 November 2019
Parramatta, NSW This event aims to connect a broad range of stakeholders working with children, young people and adults following severe traumatic brain injury (TBI).
It will explore how professionals and people with TBI can work together through the continuum of recovery, from rehabilitation to community re-integration, to support positive long-term outcomes.
See https://www.aci.health.nsw.gov.au/about-aci/calendar/15th-NSW-Brain-Injury-Rehabilitation-Program-Forum
Further information will be released in the coming months.
Rural Health and Research Congress: Connecting Communities
16 - 18 October 2019
Lismore NSW
The 8th Rural Health and Research Congress will focus on the theme “Connecting Communities”. This Congress provides an opportunity to share initiatives which enhance the health and wellbeing of our rural people and communities. For more information, please visit https://e-award.com.au/2019/ruralhealth/newentry/about.php.
Pearson Autism Forum 2019 4 June 2019 - Sydney, NSW 6 June 2019 - Brisbane, QLD https://learn.pearsonacademy.com.au/au/courses/723-autism-forum-2019 6th Annual Family Systems Conference 19 & 20 June 2019 North Sydney, NSW http://www.thefsi.com.au/events/16th-annual-family-systems-conference/ MP4Kids Conference 5 July 2019 St Leonards, NSW https://www.trybooking.com/book/event?eid=477372& Learn to Play Workshops 8 - 12 July 2019 - Learn to Play 5 Day Workshop 10 July 2019 - Parent Learn to Play: Train the Trainer 11 & 12 July 2019 - Advanced Learn to Play Therapy Melbourne, VIC https://www.learntoplayevents.com/events/
Conferences/Workshops/Webinars continued Addressing Rest and Sleep in Children from an Occupational Perspective 29 - 31 July 2019 Melbourne, VIC http://www.zimei.com.au/?espresso_events=addressing-rest-and-sleep-in-children-from-an-occupational-perspective 13th National Allied Health Conference 5 - 8 August 2019 Herston, QLD http://www.nahc.com.au/ Developing Pretend Play Skills in Children - Advanced 7 - 9 August 2019 Brisbane, QLD http://www.zimei.com.au/?espresso_events=developing-pretend-play-skills-in-children-advanced International Symposium on Shaken Baby Syndrome/Abusive Head Trauma 16 & 17 September 2019 Sydney, NSW https://www.dontshake.org/2019-sydney#midCol DCD/Dyspraxia and the role for Occupational Therapy 25 & 26 October 2019 Melbourne, VIC http://www.zimei.com.au/?espresso_events=dcd-dyspraxia-and-the-role-for-occupational-therapy-2 Learning to Conquer the Wees & Poos...the Basics and Beyond 2 & 3 December 2019 Melbourne, VIC http://www.zimei.com.au/?espresso_events=learning-to-conquer-the-wees-poos-the-basics-and-beyond
