AMYOTROPIC LATERAL SCLEROSIS

ALS by Cheetahs

GROUP MEMBERS Güldeniz Karakuş Abide Yıldız Zeynep Özal Esra Akman

CONTENTS  What is ALS ?

Causes and Risk Factors

Signs and Symptoms

Diagnosis and Treatment

DEFİNİTİON OF ALS ALS belongs to a group of diseases

called motor neuron diseases. It is a disease that attacks the nerve cells that are used in voluntary muscle actions; actions that we can control such as those in the arms, face and legs.

TYPES OF ALS There are two different types of ALS, sporadic and familial.

FACTS YOU SHOULD KNOW

ALS is not contagious. ALS attacks nerve cells found in the brain

and spinal cord. The average life expectancy of ALS patients

after diagnosis is between 2-5 years. Experts are currently unsure what causes

ALS. Muscle weakness occurs in 60% of ALS

patients. There is currently no cure for ALS. 

CAUSES AND RISK FACTORSOF ALS

CAUSES

Gene Mutations Chemical Imbalance Disorganised Immune Responses Protein Mishandling

RİSK FACTORS

ESTABLİSHED RİSK FACTORS

Heredity Age Sex

ENVİRONMENTAL RİSK FACTORS

Smoking Lead exposure Millitary Services

SINGS AND SYMTOMPS OF ALS

ALS is typically a disease that involves a gradual onset.

The first symptoms of ALS can be quite varied in different people.

EARLY SIGNS AND SYMPTOMS OF ALS INCLUDE:

Slurring of speech or trouble swallowing Hand weakness or clumsiness Difficulty walking, tripping or difficulty doing

your normal daily activities Weakness in your leg, feet or ankles Muscle cramps and twitching in your arms,

shoulders and tongue Difficulty holding your head up or keeping a

good posture

When symptoms begin in the arms or legs, it is referred to as “limb onset” ALS.

Other individuals first notice speech problems, termed “bulbar onset” ALS.

An abnormal reflex commonly called Babinski’s sign also indicates upper motor neuron damage

BREATHİNG MUSCLESPermanent ventilatory support

Survival progressSurvival progress also can be different for eachperson. Although the survival time with ALS is threeto five years, many people live five, 10 or more

years

ALS attacks only motor neurons

And also ALS patients often experience fear,anxiety, and depression.

DIAGNOSIS AND TREATMENT

DIAGNOSIS There is no single test that can be used to diagnose

of ALS.However ; Electromyography (EMG)

Nerve conduction study(NCS)

TREATMENT FOR ALS

* ALS does not have a cure, but treatments exist to relieve symptoms and improve patients’ quality of life.

However...

NO CURE DOES NOT MEAN NO HOPE !

THERAPYFOR ALS PATİENTS Breathing therapy Physical therapy Occupational therapy Speech therapy Nutritional support Psychological and social support

 

PHYSİCAL THERAPY AND EXERCİSEhttps://www.youtube.com/watch?v=G_gt_nxpYyo

INFORMATION IS AVAILABLE FROM THE FOLLOWING ORGANIZATIONS

ALS DERNEĞİ

https://www.als.org.tr

7-8. Kısım villalar karşısı, Afet yönetim merkezi arkası 34158 ATAKÖY İSTANBUL TURKEY Tel: (+90

212) 559 59 19, (+90 212) 559 50 55 Fax: (+90 212) 559 44 84

ALS Association1275 K Street, N.W.Suite 1050Washington, DC   20005advocacy@alsa-national.orghttp://www.alsa.org Tel: 202-407-8580Fax: 202-289-6801

ALS Therapy Development Institute300 Technology SquareSuite 400Cambridge, MA   02139info@als.nethttp://www.als.net Tel: 617-441-7200Fax: 617-441-7299

Prize4LifeP.O. Box 425783Cambridge, MA   02142contact@prize4life.orghttp://www.prize4life.org Tel: 617-500-7527

STEPHAN HAWKİNG’S STORY https://www.youtube.com/watch?v=LUa

yjO_KgsQ

References: American Speech-Language Hearing

Association http://www.asha.org/public/speech/disorders/als/

Health Talk Online http://healthtalkonline.org/peoples-experiences/nerves-brain/motor-neurone-disease/physical-therapy-and-exercise

Live Science http://www.livescience.com/39583-als-lou-gehrigs-disease.html

Medscape http://emedicine.medscape.com/article/306543-overview#aw2aab6b4

Mayoclinic, Retriewed from: http://www.mayoclinic.org/diseases-conditions/amyotrophic-lateral-sclerosis/basics/risk-factors/con-20024397

ALS ASSOCIATION ( http://www.alsa.org/about-als/symptoms.html )

National Institute of Neurological Disorders and Stroke (http://www.ninds.nih.gov/disorders/amyotrophiclateralsclerosis/detail_ALS.htm#26767484)

Remedy’s Health Communities.com (http://www.healthcommunities.com/als/symptoms.shtml)