Trafford CIL: Charity registered in England and Wales No 1145800 & a Company ltd by guarantee No 7859780

Welcome to the July 2015 issue of the Tracker. We

are delighted to announce a successful funding bid and a Quality

Mark Award since the last Tracker. More inside!

is a registered charity for all disabled people.

deaf/Deaf people,

people with physical and sensory impairments,

people who have mental health or physical health issues,

people with learning difficulties.

is a disabled peoples user-led organisation

(DPULO). We want to help everyone to live full, enjoyable and independent lives in Trafford. We reach out to disabled people, parents, carers and other organisations in Trafford and beyond.

0161 850 0645

hello@traffordcil.co.uk www.traffordcil.co.uk

@traffordcil

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hello@traffordcil.co.uk www.traffordcil.co.uk

Find us on Facebook

www.facebook.com/pages/Trafford-CIL @traffordcil

Contact

Marshall House,

2 Park Ave

Sale M33 6HE 0161 850 0645

Members of the winning TDAN team getting the Golden Envelope from Thrive Trafford on Sunday 21st June more details inside!

Trafford CIL: Charity registered in England and Wales No 1145800 & a Company ltd by guarantee No 7859780

A big Thumbs Up for TDAN, who were successful in winning the public

vote at the Sale Lions Family Fun Day. As a result TDAN has been

awarded nearly 900 to run weekly Coffee Mornings every Wednesday

from 10.30am for members. Well done especially to Jules and the

TDAN team.

Go to page 4 for more information about how to join TDAN and upcoming TDAN Events

Phil, Ruth, Jules, Roy, Darren and Estelle at the TDAN stall on Sunday 21st June Photo by Ian

BBC Community Doorway

Trafford CIL has secured the services of a

volunteer from the BBC. Kieran will be

coming to Trafford CIL on 8th July to help us

to take really good photographs of our

members at the coffee morning, going to the cookery session and taking

part in Tai Chi. In September, the images will be launched at the BBC

studios based in Media City, Salford.

Trafford Quality Mark

Congratulations to Sophie and Estelle and the Senior

Management Team for taking Trafford CIL

successfully through the stages to gain the Trafford

Quality Mark. This local quality mark was awarded by

Thrive Trafford, and shows to everyone that Trafford

CIL runs high quality services for all its users.

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Trafford CIL: Charity registered in England and Wales No 1145800 & a Company ltd by guarantee No 7859780

My Life My Decision

We are delighted to be able to welcome Wilhelmina from Age UK to our coffee morning on 22nd July to talk to us about the very sensitive issue of advance treatments plans. At some point in the future, you may be unable to make decisions for yourself about your health or care.

My Life My Decision works with people before they reach that point. We can help you to plan ahead to ensure you record what medical treatment you want so you can get the treatment thats right for you if you cannot speak for yourself. This then becomes legally binding, so that medical professionals cannot override your wishes. This could include decisions about resuscitation, so if you have any concerns about this topic, this is your chance to state legally what YOU think should happen. My Life My Decision is a project set up by Compassion in Dying (NOT Dignity in Dying)

Benefit Changes Despite a spirited campaign supported by Trafford CIL, the Independent Living Fund has now closed. The result of this will become clear over the next few months and years.

Manchester is one of the areas where people with Long Term/indefinite DLA awards will have to be reassessed for Personal Independence Payments or PIP. If you have an indefinite DLA award, expect to be contacted about it in the near future. Our advocates can assist with questions you may have about benefits so if you are concerned about letters you have received, do get in touch with us.

TDAN Trafford Disability Activity Network

Did You Know You can join TDAN! Are you 16 or over? Do you live in Trafford? Do you have a disability or impairment or mental health or medical issue that affects your ability to carry out day to day activities such as work, shopping, cooking socialising or learning? If so, did you know you could join TDAN? Traffords Disability Activity Network? (Turn to page 4)

Funded by

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Trafford CIL: Charity registered in England and Wales No 1145800 & a Company ltd by guarantee No 7859780

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(from page 3) Yes, but am I disabled? Here are some of the conditions or labels that TDAN members may have. Anxiety, mental health service user, learning difficulty, sensory impairment, deaf, hearing impaired, hard of hearing, visually impaired, blind, partially sighted, autistic, cerebral palsy, motor neurone disease, multiple sclerosis, facial disfigurement, depression, schizophrenia. Never mind the label! Come and join in with the fun.

What does TDAN Do?

TDAN puts on events for disabled people to join in with. Recent events include a Gaming Day, monthly health walks and the fabulous Coffee Mornings. If thats not enough, TDAN also works with disabled people to find out what they really want to do and then puts them in touch with a group that does those things in an inclusive way!

Contact the TDAN Coordinator, Jules Kennedy, for more information

or to join (The photo shows Jules in Virtual Reality Headgear)

0161 850 0645 j.kennedy@traffordcil.co.uk

@ July/August Events

When What Where?

Weds 8th July, Thurs 23rd July

1.30 4.30 Cookery Sessions

The Vegetarian Society

Thurs 6th Aug

10.30am 3.30pm

Gaming Day with Aidis Trust

Trafford CIL Marshall House,

Weds 8th, 15th, 22nd, 29th July, 12th, 19th, 26th Aug.

10.30 12 noon

Coffee mornings with Phil

Trafford CIL, Marshall House

Weds 5th August, 2nd Sept

From 10.30 am

Health Walk

Meet at Trafford CIL, Marshall House.

Now Fully Booked! More sessions planned. Get in touch if you are interested

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Trafford CIL: Charity registered in England and Wales No 1145800 & a Company ltd by guarantee No 7859780

Paddy-Joe Moran, one of our Transitions members has blogged for the

Guardian Online! He has said we can reprint it here:

Language and autism: what every social care professional should know

What professionals say when working with autistic people and their families is important. Blogger Paddy-Joe Moran offers some advice Take the time to check how much or how little the person is understanding, and tailor your language accordingly. I have come into contact with many social care professionals over the years having assessments for autism, sitting in on a family members assessment, and working with them in a professional sense.

Transitions @ July/ August Events

When What Where? Thurs 23rd July

4.30pm 6pm Young Peoples Workshop with 42nd Street!

Trafford CIL Marshall House, Park Avenue Sale M33 6HE

Monday 10th August

1.00pm 3.00pm

Media Event to be confirmed

Trafford CIL

Monday 17th August

1.30pm onwards

(*Date Change) Gaming Workshop with Aidis Trust

Trafford CIL

Tuesday 4, 11th, 18th 25th

1.30pm 3.30pm

Summer Holiday Activities Workshops

Trafford CIL

Thursday 20th August

4.00pm 6.00pm

Confidence building with Robert the Magician

Trafford CIL

Transitions @

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Trafford CIL: Charity registered in England and Wales No 1145800 & a Company ltd by guarantee No 7859780

Over this time I have had many positive experiences, but when it comes to the language used around autism there are a few tips that, as a person with autism, I would like every social care professional to know.

Terminology the debate over whether people on the spectrum should be called autistic person or person with autism is ongoing. I use both terms interchangeably and will do so in this post. But when dealing with an individual it is important to ascertain which term they prefer, and to stick with it. Sometimes the autistic person will opt for one, and their parents may prefer the other. In this case always go with the term favoured by the autistic person.s

Functioning labels you might consider the terms high- and low-functioning necessary to indicate where somebody is on the spectrum, although I personally disapprove of them. If you do insist on using the terms then it is important to remember that people function at different levels day to day, and depending on the task they are doing. It is impossible to gain a full understanding of somebody with autism simply by referring to their functioning label. Functioning labels can be at best misleading, and are often considered offensive by autistic people.

Childlike language remember that many people with autism are adults, or at least teenagers. Talk to them as you would any other adult only simplify your language if absolutely necessary.

Appearances can be deceptive somebody may be non-verbal and rocking backwards and forwards in their chair, but still be able to absorb and understand the most complex

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Paddy-Joe Moran

Trafford CIL: Charity registered in England and Wales No 1145800 & a Company ltd by guarantee No 7859780

language, whereas another person may walk in to the room in a suit and tie and talk non-stop, and yet have difficulty breaking down and understanding the simplest things you say. Take the time to check how much or how little the person is understanding, and tailor your language accordingly.

Negative language whether you view autism as positive or negative is irrelevant. As a professional when diagnosing or working with somebody with autism and their family, your choice of language is powerful. Terms such as suffers from, disease and epidemic should be avoided. This doesnt mean saying that autism is a gift, but simply dealing with it in a professional, matter-of-fact way. If you portray autism as profoundly negative you can begin to shape the views of the autistic person. This can lead to all kinds of problems in the long run including self-doubt, anxiety and depression.

No need to grieve following on from the point above dont advise parents to grieve for the child they should have had. This instantly makes out that the autistic child was never meant to be, and implies that the parents lost a normal child, and were then burdened with a child with autism.

Perhaps you wont have learned anything new from this article, as you will already be aware of all the points mentioned above, and be incorporating them in to the way you work. But as these are the issues most frequently raised by autistic people themselves, there is absolutely nothing wrong with learning from them, and adjusting the way you work.

The aim of being a social care professional is to make things better for the people you work with, therefore listening to their views, and acting on them is essential. So if any of the points raised above are new to you, hopefully you can learn from them, and improve your future interactions with people on the autistic spectrum.

TCIL says: Great advice, Paddy, well done for such a good article!

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Trafford CIL: Charity registered in England and Wales No 1145800 & a Company ltd by guarantee No 7859780

Transitions @

Young Peoples Workshop

Thursday 23rd July 2015

4.30pm 6.00pm

Come and join Kay and Ed from 42nd

Street, and talk about your hopes for the

future!

For all disabled young people (14 to 25) who live in Trafford,

including people with learning difficulties and sensory

impairments. Check out our website www.traffordcil.co.uk or

Facebook Page for more information!

Whats 42nd Street?

Its a project for children and young people who are experiencing stress.

Young people come to get support about all kinds of things that leave them

stressed and unable to cope. This project offers counselling, individual

support and advice to young people.

Contact Michelle, Transitions Coordinator, to book a place

0161 8500645 or transitions@traffordcil.co.uk