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© 2013 Griswold International, LLC© 2013 Griswold International, LLC
A National Plan to Fight Back
Alzheimer’s Disease Innovation 2013
© 2013 Griswold International, LLC
November isNationalAlzheimer’sDiseaseAwarenessMonth
“During National Alzheimer's Disease Awareness Month, we
stand united in our commitment to improve care for Alzheimer's patients, identify new therapies for the disease,
and support all those whose lives have been touched by this
tragic ailment.”
Excerpt from President Obama’s Proclaimation
November isNationalFamilyCaregiversMonth
“Family members, friends, and neighbors devote
countless hours to providing care to their relatives or loved ones.
During National Family Caregivers Month, we recognize and thank the
humble heroes who do so much to keep our families and communities strong.”
Excerpt from President Obama’s Proclaimation
© 2013 Griswold International, LLC
© 2013 Griswold International, LLC
Goals for Today• Review the National Alzheimer’s Plan 2013 and share tools for
reaching key goals and overcoming challenges
• Share innovative non-medical Alzheimer’s treatment approaches
• Empower clients and their family/professional caregivers to fight Alzheimer’s Disease through quality care, advocacy, education and support
Presented by:
Linda BarbaFamily Caregiver, Advocate and Support Group Facilitator
Chris Kelly, MEd Director of Learning and DevelopmentGriswold Home Care
© 2013 Griswold International, LLC
Thank you for your courage, energy, and dedication!
Professional CaregiversHealthcare Providers
Family Caregivers Clients Living with Alzheimer’s
© 2013 Griswold International, LLC
Brainwriting is…• a fun, engaging way to brainstorm• sharing as many ideas as possible within a short timeframe Brainwriting Process• Listen for our questions• When prompted, enter your solutions using the webinar chat function• Don’t overthink or agonize…There are no right or wrong answers Brainwriting Outcomes• Peer-to-peer learning and sharing• A publication that benefits others who are living with Alzheimer’s Important• Avoid sharing any information that you would not want others to see
BRAIN WRITINGSolutions
Orange Arrow Button: Minimizes or expands the GoToWebinar control panel.
© 2013 Griswold International, LLC
Lit Review
Social Media
Advocacy
Solutions Webinar & Toolkit
© 2013 Griswold International, LLC
© 2013 Griswold International, LLC
Memory loss that disrupts life
Problems with planning andproblem-solving
Struggle to completefamiliar tasks
Confusion with person,place and time
New problems withreading, writing or speaking
Misplacing things inunusual places
Decreased or poor judgment
Changes in mood or personality
Changes in movement/coordination
Agitation and/or aggression
Sundowning
Wandering
Inability to eat or swallow
Challenging Symptoms
© 2013 Griswold International, LLC
“I feel like I have been hearing about ‘plaques’ and
‘tangles’ for 15 years. Isn’t there anything new that would generate hope and excitement for people living with this horrible disease? All you hear is the negative. You can’t help but develop a sense of
helplessness. Helplessness can be paralyzing.”
Family caregiver quote
© 2013 Griswold International, LLC
A National Planto Address
Alzheimer's Disease
Source: http://aspe.hhs.gov/daltcp/napa/NatlPlan2013.pdf
© 2013 Griswold International, LLC
USDHHS Identifies 5 Key Priorities
Prevent and Effectively Treat Alzheimer’sDisease by 2025
Enhance Care Quality and Efficiency
Expand Support for People with Alzheimer’sDisease and Their Families
Enhance Public Awareness and Engagement
Improve Data to Track Progress
© 2013 Griswold International, LLC
Alzheimer’s Association 10 Core Challenges
A lack of public awareness
Insufficientresearch funding
Difficulties with diagnosis
Poor dementia care
Inadequate treatments
Specific challenges facing those with younger-onset Alzheimer’s
Unprepared caregivers
Ill-equipped communities
Mounting costs
Specific challenges facingdiverse communities
Alzheimer’s Association Top Challenges: http://www.alz.org/documents_custom/napareport.pdf
- Lou Gehrig
© 2013 Griswold International, LLC
Real Stories
Linda BarbaFamily Caregiver, Advocate and Support Group Facilitator
© 2013 Griswold International, LLC
Prevent & Effectively Treat Alzheimer's DiseaseA Focus on Non-Medical Treatment Approaches
© 2013 Griswold International, LLC
"If you say Alzheimer's, everyone immediately thinks
that it's the plaques that actually cause the disease. That couldn't
be further from the truth…the data actually suggests these plaques are a form of
protection that the body tries to put on.”
Andrew Dillin, of the Salk Institute in California and the Howard Hughes Medical Institute
“While research on AD has made
steady progress, there are no pharmacological or other interventions to definitively prevent,
treat, or cure the disease.” National Alzheimer’s
Plan excerpt
© 2013 Griswold International, LLC
“NPTs emerge as a useful, versatile and potentially cost-effective approach to
improve outcomes and quality of life for both the
person with dementia and caregivers.”
Javier OlazaránNeurologist and NPT Researcher
© 2013 Griswold International, LLC
Cognitive training and rehab(individual and group)
Reminiscence
Personalized music
Creative expression(writing, scrapbooking)
Physical activity/Staying active
Support groups
Yoga/Tai Chi/Meditation
Combining all of the above
Improve Cognitive Symptoms
Source: http://www.nptherapies.org/pdf/Non-pharmacological%20Therapies%20in%20AD,%20a%20Systematic%20Review%20of%20Efficacy.pdf
© 2013 Griswold International, LLC
Improve Activities of Daily Living (ADLs)
Yoga/Tai ChiADL training
Physical activity/Staying activeGuided performance
© 2013 Griswold International, LLC
Improve Mood and Peace of Mind
Adult day care
Memory care center
Meditation/Yoga/Tai Chi
Validation therapy
Support
Cognitive BehavioralTherapy (CBT)
Meaningful diversion
Personalized music
© 2013 Griswold International, LLC
Improve Quality of Life forFamily Caregivers
In-home counseling sessions
Cognitive BehavioralTherapy (CBT)
Ongoing telephonesupport/coordination
Online connectionwith peers/HCPs
Education:- Coping skills- Problem solving
Support groups (with and w/o client)
© 2013 Griswold International, LLC
Alzheimer’s Disease Treatment Toolkit
http://bit.ly/1cOTZiY
Latest Treatment Optionshttp://bit.ly/1fx7kK8
NICE.org.uk
http://bit.ly/1isrbga
The Society for Cognitive Rehabilitationhttp://bit.ly/1aGi5rZ
Recollection Connection
© 2013 Griswold International, LLC
Enhance Care Quality & EfficiencyA Focus on Care Coordination, Empowerment & Recognition
© 2013 Griswold International, LLC
Effective Care Coordination Practices
Develop a single point of contact for clients/families
Form a multi-disciplinary care team that communicates effectively
Develop a personalized action plan for clients/families
Offer ongoing, dynamic Learning/Development opportunitiesfor dementia care professionals
Learn from best practice dementia care models:
© 2013 Griswold International, LLC
A Dynamic Dementia Care Team
Social Worker/Geriatric
Care Manager
MassageTherapist
FacilityProfessionals
Home careProfessional
Adult Day CareProfessional
Nurse
Geriatric PsychiatristNeurologist/Geriatrician
RehabProfessionals:OT/PT/Speech
PCP/NP/PA
CognitiveBehavioral
Therapist (CBT)
DieticianCognitive
RehabilitativeTherapist (CRT)
RecreationalTherapist
© 2013 Griswold International, LLC
Real Stories
Linda BarbaFamily Caregiver, Advocate and Support Group Facilitator
© 2013 Griswold International, LLC
Care Coordination Toolkit
http://bit.ly/17lKTT2
Alzheimer’s Quality of Carehttp://bit.ly/1aR0IHw
CDPH.ca.govhttp://bit.ly/1a0Nq9f
Working With Providers
© 2013 Griswold International, LLC
Quality Care Toolkit
http://1.usa.gov/1e1fQAE
AD Research Centershttp://bit.ly/1fT52W4
IPCed Professional Training
http://bit.ly/17JB2qq
Alzheimer’s Association Professional Training
© 2013 Griswold International, LLC
Expand Support for People with Alzheimer’s Disease
& Their Families
© 2013 Griswold International, LLC
Improving the Experience
Widespread lack of knowledge/understanding aboutAlzheimer’s Disease
High level of public/professional stigma
Negative experiences for people living with AD
Poor understanding of the scope of Alzheimer’s Disease
Isolation for clients and caregivers
Lack of targeted services and support for those living withYounger-Onset AD
Core challenges:
© 2013 Griswold International, LLC
http://bit.ly/1aCBXIT
Overcoming Stigmahttp://bit.ly/1hCSeHI
Confronting Ageism and Stigma
Expanding Support Toolkit
http://bit.ly/16YR1mY
AD Support GroupsAD Support Groupshttp://bit.ly/1hIafBU
Early Onset AD Info
© 2013 Griswold International, LLC
Real Stories
Linda BarbaFamily Caregiver, Advocate and Support Group Facilitator
Enhance PublicAwareness & Engagement
© 2013 Griswold International, LLC
© 2013 Griswold International, LLC
Understand the Scope
http://to.pbs.org/1cjMpI7
PBS: The Forgettinghttp://1.usa.gov/1a10RWQ
Alzheimer’s Basics
http://bit.ly/HPpewl
What is Alzheimer’s?http://bit.ly/1bzGLBJ
About Alzheimer’sWhat is Alzheimer’s?
© 2013 Griswold International, LLC
Enhance Engagement
http://bit.ly/HV5zKU
Alz. Foundation of Americahttp://bit.ly/17ROVbJ
Fisher Center for AD
http://bit.ly/HS1KXK
Alz Assoc Advocacy: Join The Cause
© 2013 Griswold International, LLC
Real Stories
Linda BarbaFamily Caregiver, Advocate and Support Group Facilitator
© 2013 Griswold International, LLC
Key Takeaways
Review the National Alzheimer’s Plan and get involved
Effective care coordination is critical
Let’s work together to “improve the experience” for thosewho are living with AD
Non-medical treatment approaches DO offer promise andhope today
© 2013 Griswold International, LLC
Open Q&A
1. Click to expand if necessary
2. Type questions here
© 2013 Griswold International, LLC
National 24x7 Care Line:800-GRISWOLD
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