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Alzheimer's/Dementia Training for Emergency Responders

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POLICE F I R E E M S Module 1
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Page 1: Alzheimer's/Dementia Training for Emergency Responders

POLICE

F

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R

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Module 1

Page 2: Alzheimer's/Dementia Training for Emergency Responders

Alzheimer’s Alzheimer’s Training for Training for Emergency Emergency RespondersResponders

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Why Provide Training to Why Provide Training to Emergency Responders?Emergency Responders?

Over 60% of A.D. patients Over 60% of A.D. patients wanderwander, , become lost and often are seriously become lost and often are seriously injured or die if not found within 24 injured or die if not found within 24 hours. 72% wander repeatedly.hours. 72% wander repeatedly.

Some A.D. patients, will exhibit Some A.D. patients, will exhibit behavioral changes which may behavioral changes which may endangerendanger themselves, caregivers or themselves, caregivers or responding public safety personnel.responding public safety personnel.

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Purpose of TrainingPurpose of Training To provide basic information about To provide basic information about

Alzheimer’s disease and dementiaAlzheimer’s disease and dementia

To identify and understand symptomsTo identify and understand symptoms

To provide behavior patterns and typical To provide behavior patterns and typical incidents that occur with Alzheimer’s incidents that occur with Alzheimer’s diseasedisease

To better understand how to assess and To better understand how to assess and communicate with an individual in various communicate with an individual in various stages of the disease process.stages of the disease process.

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What do you already know What do you already know aboutabout

Alzheimer’s Disease?Alzheimer’s Disease?(personal experiences, encounters, TV (personal experiences, encounters, TV

shows)shows)

What can we learn from this What can we learn from this training?training?

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Why do people with Alzheimer’s wander away and get lost?

Where are they going? Why can’t the family keep track of them? Why do they wait so long to report them missing?

Why does the elderly lady down the street keep calling us saying someone is stealing from her and reporting intruders when there are none?

Why are they still driving?

Common QuestionsCommon Questions

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Are people with Alzheimer’s violent?

Why does it seem that we are getting more calls now relating to older people, nursing homes, missing elderly people, etc.?

Alzheimer’s only affects the elderly, right?

Is dementia and Alzheimer’s the same? What’s the difference?

Common QuestionsCommon Questions

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DemographicsDemographics

Our population is aging due to Our population is aging due to many factors; primarily:many factors; primarily:

Longer life expectancyLonger life expectancy Better healthcareBetter healthcare Baby BoomersBaby Boomers (1946 – 1964) (1946 – 1964)

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Average Life ExpectancyAverage Life Expectancy

0102030405060708090

100

Age

In 1860, half the population in the U.S. was under age 20, and most were not expected to live to age 65.

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Baby BoomersBaby Boomers

Since 1996, every 8 seconds another of Since 1996, every 8 seconds another of the 80 million American baby boomers the 80 million American baby boomers celebrate their 50celebrate their 50thth birthday. birthday.

We are now seeing the first wave of We are now seeing the first wave of baby boomers turning 60.baby boomers turning 60.

The size of the older population (65+) The size of the older population (65+) will double over the next 25 years.will double over the next 25 years.

Age is a risk factor for Alzheimer’s Age is a risk factor for Alzheimer’s disease.disease.

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StatisticsStatistics

In 2000 an estimated 5 million people have In 2000 an estimated 5 million people have Alzheimer’s in the U.S.Alzheimer’s in the U.S.

24.3 million worldwide24.3 million worldwide

110,000 in Virginia to increase to 160,000 110,000 in Virginia to increase to 160,000 in Virginia by 2025in Virginia by 2025

27,000 in Southeastern Virginia27,000 in Southeastern Virginia

Alzheimer’s is the Alzheimer’s is the fourthfourth leading cause of leading cause of death among adults.death among adults.

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The Year 2050The Year 2050

By 2050 life expectancy will reach By 2050 life expectancy will reach 90+90+

Over Over 70 million70 million people will be people will be over the age of 65; 10% of those over the age of 65; 10% of those will have Alzheimer’s disease. will have Alzheimer’s disease.

Close to Close to 20 million20 million over the age over the age of 85; half of those will have of 85; half of those will have Alzheimer’s disease. Alzheimer’s disease.

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The Year 2050The Year 2050

An estimated An estimated 14 million14 million Americans will Americans will have Alzheimer’s disease if a cure is not have Alzheimer’s disease if a cure is not found.found.

Alzheimer’s disease will be the leading Alzheimer’s disease will be the leading cause of death among adults.cause of death among adults.

Finding a treatment that could delay the Finding a treatment that could delay the onset of Alzheimer’s disease by five onset of Alzheimer’s disease by five years could reduce the number of years could reduce the number of people with the disease by nearly 50% people with the disease by nearly 50% over 50 years.over 50 years.

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Cost of Alzheimer’s DiseaseCost of Alzheimer’s Disease

National direct and indirect cost of National direct and indirect cost of caring for people with Alzheimer’s caring for people with Alzheimer’s disease are at least $100 Billion.disease are at least $100 Billion.

The average lifetime cost of care for The average lifetime cost of care for an individual with AD is $174,000.an individual with AD is $174,000.

Alzheimer’s has the potential to Alzheimer’s has the potential to bankrupt healthcare as we know it.bankrupt healthcare as we know it.

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Cost of Alzheimer’s DiseaseCost of Alzheimer’s Disease

Half of all nursing home residents have Half of all nursing home residents have Alzheimer’s disease or a related Alzheimer’s disease or a related disorder.disorder.

The average cost of nursing home care The average cost of nursing home care is $42,000 per year but can exceed is $42,000 per year but can exceed 70,000. 70,000.

In 2005, the federal government spent In 2005, the federal government spent approximately $647 million for approximately $647 million for Alzheimer’s disease research.Alzheimer’s disease research.

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Typical DangersTypical Dangers

Many elderly people with dementia Many elderly people with dementia live alone.live alone.

Dangers associated with living alone Dangers associated with living alone include:include: Falls – altered vision, hearing, unsteady Falls – altered vision, hearing, unsteady

gaitgait Fires – smoking, stove, space heatersFires – smoking, stove, space heaters Overdose/poisoning – medication, Overdose/poisoning – medication,

cleaning chemicalscleaning chemicals

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Typical DangersTypical Dangers

Burns – decreased temp. sensitivityBurns – decreased temp. sensitivity

Not eating/dehydrationNot eating/dehydration

Wandering/disorientationWandering/disorientation

Victims of phone/door-to-door Victims of phone/door-to-door scams/theftscams/theft

Auto AccidentsAuto Accidents

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Alzheimer’s disease is not just Alzheimer’s disease is not just about forgetting things.about forgetting things.

Alzheimer’s Alzheimer’s disease robs a disease robs a person of all of person of all of

their their memories, memories,

experiences, experiences, and abilities.and abilities.

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Alzheimer’s disease causes a Alzheimer’s disease causes a person to have dementia.person to have dementia.

What is What is dementiadementia??

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DementiaDementia

Dementia is an general term that literally Dementia is an general term that literally means “means “without mindwithout mind.” Dementia replaced .” Dementia replaced the word the word senilesenile in medical terminology.in medical terminology.

It is NOT a disease; it is a set of symptoms It is NOT a disease; it is a set of symptoms resulting from a either a disease process resulting from a either a disease process OR a condition affecting the brain. OR a condition affecting the brain.

It is a gradual loss of thinking, remembering It is a gradual loss of thinking, remembering and reasoning.and reasoning.

Any trauma that occurs in the brain or to Any trauma that occurs in the brain or to the brain can result in permanent or the brain can result in permanent or temporary dementia.temporary dementia.

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DementiaDementia

Some forms of dementia can be Some forms of dementia can be reversed if the underlying cause is reversed if the underlying cause is treatable.treatable.

Alzheimer’s is not reversible at this Alzheimer’s is not reversible at this time.time.

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Diseases that Cause DementiaDiseases that Cause Dementia

Alzheimer’s Disease Alzheimer’s Disease Mini-strokes (Vascular Dementia)Mini-strokes (Vascular Dementia) Parkinson’s DiseaseParkinson’s Disease Huntington’s DiseaseHuntington’s Disease Pick’s DiseasePick’s Disease Fluid on the Brain (Hydrocephalus)Fluid on the Brain (Hydrocephalus) AIDS-Related DementiaAIDS-Related Dementia Alcohol-Related DementiaAlcohol-Related Dementia Head TraumaHead Trauma

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Reversible Causes of Reversible Causes of DementiaDementia

Drug reactions/interactionsDrug reactions/interactions Emotional disturbance (Depression, Emotional disturbance (Depression,

Schizophrenia)Schizophrenia) Metabolic and Endocrine Dysfunction Metabolic and Endocrine Dysfunction

(Thyroid)(Thyroid) Nutritional Loss (malnourishment, Nutritional Loss (malnourishment,

vitamin deficiencies - B12)vitamin deficiencies - B12) Operable TumorsOperable Tumors InfectionsInfections ArteriosclerosisArteriosclerosis

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Alzheimer’s DiseaseAlzheimer’s Disease

Although identified in 1906 by Alois Although identified in 1906 by Alois Alzheimer’s, a German Alzheimer’s, a German neuropathologist and psychiatrist, it neuropathologist and psychiatrist, it is believed that Alzheimer’s has is believed that Alzheimer’s has been around since the beginning of been around since the beginning of time.time.

There are references to Alzheimer’s There are references to Alzheimer’s in the bible, Shakespearean in the bible, Shakespearean literature and ancient writings.literature and ancient writings.

Page 26: Alzheimer's/Dementia Training for Emergency Responders

Alzheimer’s DiseaseAlzheimer’s Disease

Is a degenerative, progressive brain Is a degenerative, progressive brain disorder affecting memory, thought, disorder affecting memory, thought, behavior, personality and muscle control.behavior, personality and muscle control.

It is It is notnot a mental illness – although a mental illness – although behavior may at times seem similar. It is behavior may at times seem similar. It is a a physical diseasephysical disease that attacks and that attacks and destroys brain cells and causes abnormal destroys brain cells and causes abnormal structural changes to occur in the brain structural changes to occur in the brain (called plaques and tangles).(called plaques and tangles).

Alzheimer’s is the most common cause of Alzheimer’s is the most common cause of dementiadementia

Page 27: Alzheimer's/Dementia Training for Emergency Responders

Alzheimer’s DiseaseAlzheimer’s Disease

Alzheimer’s disease is age-related Alzheimer’s disease is age-related affecting affecting 10% of people over the age of 65 10% of people over the age of 65 49% of people over the age of 8549% of people over the age of 85

Alzheimer’s is currently the fourth leading Alzheimer’s is currently the fourth leading cause of death among adults; if a cure is cause of death among adults; if a cure is not found, it will become the leading cause not found, it will become the leading cause within 10 to 15 years.within 10 to 15 years.

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Alzheimer’s DiseaseAlzheimer’s Disease

Most people experience Alzheimer’s Most people experience Alzheimer’s disease after age 65; however people disease after age 65; however people in their 30’s, 40’s and 50’s have in their 30’s, 40’s and 50’s have been diagnosed.been diagnosed.

A simple blood test can determine if A simple blood test can determine if you have the genetic marker for you have the genetic marker for Early Onset Alzheimer’s.Early Onset Alzheimer’s.

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Causes of Alzheimer’s DiseaseCauses of Alzheimer’s Disease

Genetic – Early Onset Alzheimer’s - Blood Genetic – Early Onset Alzheimer’s - Blood Test/ScreeningTest/Screening

Genes linked to Alzheimer’s include Genes linked to Alzheimer’s include Chromosomes 21, 14, 1, 19, 12Chromosomes 21, 14, 1, 19, 12

Thought to be a combination of Genetic & Thought to be a combination of Genetic & EnvironmentalEnvironmental

No exact environmental cause has No exact environmental cause has

been identified. been identified.

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Possible Risk FactorsPossible Risk Factors

Increasing AgeIncreasing Age

Down’s SyndromeDown’s Syndrome

Family History/GeneticsFamily History/Genetics Being born – 15%Being born – 15% Having a parent – 30%Having a parent – 30% Over age 85 – 50%Over age 85 – 50%

Head injury/head traumaHead injury/head trauma

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Risk FactorsRisk Factors

Current theories – Vascular Risks:Current theories – Vascular Risks:

High Blood PressureHigh Blood Pressure DiabetesDiabetes High CholesterolHigh Cholesterol WeightWeight SmokingSmoking

(In general what is good for your (In general what is good for your heart is good for your brain).heart is good for your brain).

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Ironically, many people Ironically, many people living with Alzheimer’s living with Alzheimer’s

are healthy.are healthy.

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10 Warning Signs10 Warning Signs

1.1. Memory LossMemory Loss

2.2. Difficulty performing familiar tasksDifficulty performing familiar tasks

3.3. Problems with languageProblems with language

4.4. Disorientation of time and placeDisorientation of time and place

5.5. Poor or decreased judgmentPoor or decreased judgment

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10 Warning Signs10 Warning Signs

6.6. Problems with abstract thinkingProblems with abstract thinking

7.7. Misplacing thingsMisplacing things

8.8. Changes in mood or behaviorChanges in mood or behavior

9.9. Changes in personalityChanges in personality

10.10. Loss of initiativeLoss of initiative

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Stages of Alzheimer’s Stages of Alzheimer’s DiseaseDisease

There are There are threethree basic stages: basic stages:

Early StageEarly Stage - memory loss and confusion is mild - memory loss and confusion is mild becoming progressively worsebecoming progressively worse..

Often the person is still driving.Often the person is still driving.

Middle StageMiddle Stage - memory loss and confusion - memory loss and confusion worsens and is exacerbated with increased worsens and is exacerbated with increased anxiety, paranoia, and delusions.anxiety, paranoia, and delusions.

High risk of wandering.High risk of wandering.

(This is often the longest stage lasting 7 years or longer.)(This is often the longest stage lasting 7 years or longer.)

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•Late Stage - bodily functions shut down, little or no ability to communicate basic needs, person becomes bedridden and needs continuous care.

Usually lasts about 1 to 3 years.

Stages of Alzheimer’s Disease

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Clues for Recognizing/IdentifyingClues for Recognizing/Identifying

Physical CluesPhysical Clues::

Memory-impaired I.D.Memory-impaired I.D. Blank facial expressionBlank facial expression Inappropriate clothingInappropriate clothing AgeAge Unsteady gait (shuffle)Unsteady gait (shuffle)

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Clues for Recognizing/IdentifyingClues for Recognizing/Identifying

Psychological CluesPsychological Clues:: Confusing/contradictory statementsConfusing/contradictory statements Suffering from delusions and Suffering from delusions and

hallucinationshallucinations AgitatedAgitated Catastrophic reactionCatastrophic reaction ForgetfulForgetful Disoriented/lostDisoriented/lost Impaired judgment and Impaired judgment and

reasoning skillsreasoning skills

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Commonly Prescribed TreatmentsCommonly Prescribed Treatments

FDA approved cholinesterase inhibitors:FDA approved cholinesterase inhibitors:

1993 - tacrine (Cognex®)1993 - tacrine (Cognex®)

1996 - donepezil (Aricept®),1996 - donepezil (Aricept®),

2000 - rivastigmine (Exelon®), 2000 - rivastigmine (Exelon®),

2001 - galantamine (Razadyne®)2001 - galantamine (Razadyne®)Cholinesterase inhibitors are designed to enhanceCholinesterase inhibitors are designed to enhancememory and other cognitive functions by influencingmemory and other cognitive functions by influencingcertain chemical activities in the brain.certain chemical activities in the brain.

2004 - memantine (Namenda®)2004 - memantine (Namenda®)

The first non-cholinesterase treatment ever The first non-cholinesterase treatment ever approved in the U.S.approved in the U.S.

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PreventionPrevention

Vitamins – C & E taken together Vitamins – C & E taken together (prevention)(prevention)

Vitamin E taken alone has been shown to Vitamin E taken alone has been shown to possibly slow functional decline possibly slow functional decline

NSAIDS – may decrease riskNSAIDS – may decrease risk Anti-oxidant rich dietAnti-oxidant rich diet Low saturated fat dietLow saturated fat diet Stay Active – both mind and bodyStay Active – both mind and body Find positive ways to release stressFind positive ways to release stress

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Module 2

Page 48: Alzheimer's/Dementia Training for Emergency Responders

Common Problem Common Problem BehaviorsBehaviors

RepetitionRepetition - - the person repeats the same the person repeats the same questions, statements, or storiesquestions, statements, or stories

Hiding, hoardingHiding, hoarding - - Saving bags of trash, Saving bags of trash, old cartons, newspapers, magazines, moneyold cartons, newspapers, magazines, money

Delusions/ParanoiaDelusions/Paranoia – accusing others of – accusing others of stealing their money or plotting against themstealing their money or plotting against them

Sudden Mood SwingsSudden Mood Swings – quickly becoming – quickly becoming extremely angry or upset without warningextremely angry or upset without warning

IrritabilityIrritability – lashing out at family members – lashing out at family members

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Common Problem Common Problem BehaviorsBehaviors

AnxietyAnxiety – a constant feeling that they – a constant feeling that they have forgotten somethinghave forgotten something

Fidgeting/pacingFidgeting/pacing – walking or swaying – walking or swaying back and forthback and forth

SundowningSundowning - - Around 4:00 p.m., wanting Around 4:00 p.m., wanting to ‘go home’ despite the fact she is in her to ‘go home’ despite the fact she is in her home of many yearshome of many years

Wandering Wandering – leaves the home in search – leaves the home in search of something or somewhere that is familiar of something or somewhere that is familiar to themto them

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Calls for Emergency ServicesCalls for Emergency Services

DrivingDriving

It is VERY difficult to convince a It is VERY difficult to convince a

person to stop drivingperson to stop driving

Common Dangers includeCommon Dangers include:: Difficulty Staying AlertDifficulty Staying Alert Missing traffic signals or road signsMissing traffic signals or road signs Becoming Disoriented/DistractedBecoming Disoriented/Distracted Running out of GasRunning out of Gas

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Faulty JudgmentFaulty Judgment Over-reactingOver-reacting Problems exiting/merging into trafficProblems exiting/merging into traffic Over-reactingOver-reacting Driving on the wrong side of the roadDriving on the wrong side of the road

Delayed Reaction TimeDelayed Reaction Time Noticing changing stop lights too lateNoticing changing stop lights too late Braking too late to avoid collisionBraking too late to avoid collision

Interventions: Interventions: DMV Medical Review FormDMV Medical Review Form Family PhysicianFamily Physician Disabling/Selling VehicleDisabling/Selling Vehicle

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False Reports to 911False Reports to 911 Someone is stealing money or itemsSomeone is stealing money or items Seeing people or animalsSeeing people or animals Reporting intruders/strangersReporting intruders/strangers

Interventions:Interventions: Don’t argueDon’t argue Respond to their fear and anxietyRespond to their fear and anxiety Consider contacting family or Social ServicesConsider contacting family or Social Services

Calls for Emergency Calls for Emergency ServicesServices

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Calls for Emergency ServicesCalls for Emergency Services

Domestic ViolenceDomestic Violence

Aggression often caused by:Aggression often caused by:Mistaken IdentityMistaken Identity

ConfusionConfusion

Over-stimulation (noisy environment)Over-stimulation (noisy environment)

No pre-meditationNo pre-meditation

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Code of Virginia: Section Code of Virginia: Section 19.2-81.3B 19.2-81.3B statesstates

an officer shall arrest . . . unless there an officer shall arrest . . . unless there are special circumstances that dictate are special circumstances that dictate action other than arrest. action other than arrest.

Paragraph C states that if an arrest isn’t Paragraph C states that if an arrest isn’t made, officers must file a written report made, officers must file a written report indicting why and the circumstances. indicting why and the circumstances.

most agencies have a policy that states most agencies have a policy that states an arrest must be made. an arrest must be made.

Alternatives to ArrestAlternatives to Arrest

TDO/Psychiatric EvaluationTDO/Psychiatric Evaluation

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Calls for Emergency ServicesCalls for Emergency Services

Homicide and SuicideHomicide and Suicide

Some premeditation particularly for early onset Some premeditation particularly for early onset or very soon after diagnosisor very soon after diagnosis

Many caregivers consider at some point due to Many caregivers consider at some point due to the overwhelming circumstancesthe overwhelming circumstances

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Calls for Emergency ServicesCalls for Emergency Services

Indecent ExposureIndecent Exposure Often accidental resulting from either:Often accidental resulting from either:

Loss of inhibitions (social norms)Loss of inhibitions (social norms)

Inability to dress themselves properlyInability to dress themselves properly

ShopliftingShoplifting No intent – simply forget to payNo intent – simply forget to pay

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Calls for Emergency ServicesCalls for Emergency Services

Abuse/NeglectAbuse/Neglect Affected person may lash out physically Affected person may lash out physically

and hurt family members/caregivers.and hurt family members/caregivers.

Family members may take out Family members may take out frustrations on affected person resulting frustrations on affected person resulting in the following types of abuse:in the following types of abuse:

Physical, Neglect, Psychological, Physical, Neglect, Psychological, Financial, SexualFinancial, Sexual

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Calls for Emergency Calls for Emergency ServicesServices

Abuse/NeglectAbuse/Neglect Can occur on behalf of either partyCan occur on behalf of either party

Often difficult to ascertain whether Often difficult to ascertain whether person with Alzheimer’s is truly person with Alzheimer’s is truly suffering or paranoidsuffering or paranoid

Social Services (APS) should be called Social Services (APS) should be called for investigationfor investigation

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Calls for Emergency ServicesCalls for Emergency Services

Poisoning/ChokingPoisoning/Choking

May ingest toxic chemicals, i.e. May ingest toxic chemicals, i.e. shampoo, cleaning materialsshampoo, cleaning materials

May overdose on medicationMay overdose on medication

Falls/TrippingFalls/Tripping

Stairs and shower stalls Stairs and shower stalls

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Calls for Emergency Calls for Emergency ServicesServices

Burns/electrocutionBurns/electrocution

Loss of sensitivity to hot/coldLoss of sensitivity to hot/cold

Accidental FireAccidental Fire

Cooking, microwave, space heatersCooking, microwave, space heaters

TrespassingTrespassing – walking in the wrong home – walking in the wrong home

WanderingWandering

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Assessing the Assessing the IndividualIndividual

Rely on caregiver for informationRely on caregiver for information The person with Alzheimer’s cannot tell you what is The person with Alzheimer’s cannot tell you what is

going on. going on.

Do not separate the caregiver from Do not separate the caregiver from patientpatient Do not take the caregiver into another room.Do not take the caregiver into another room. Flashing lights and radios are a distraction.Flashing lights and radios are a distraction. A barrage of people or too much commotion can A barrage of people or too much commotion can

also be difficult, try to separate the individual. also be difficult, try to separate the individual. Sometimes patient may respond better to one Sometimes patient may respond better to one

person than another.person than another.

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CommunicatingCommunicating

Approach from the front; introduce yourselfApproach from the front; introduce yourself

Tell them you are there to help them.Tell them you are there to help them.

Speak slowly and calmly; Do not raise your Speak slowly and calmly; Do not raise your voicevoice

Allow ample time to respondAllow ample time to respond

Ask only one question at a timeAsk only one question at a time

Keep the climate calmKeep the climate calm

Keep instructions positiveKeep instructions positive

Substitute non-verbal for verbal communicationSubstitute non-verbal for verbal communication

Avoid restraints if possibleAvoid restraints if possible

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CaregiversCaregivers

Caregivers suffer as much or more Caregivers suffer as much or more than the person with Alzheimer’s than the person with Alzheimer’s disease does.disease does.

Caregivers are exhausted and Caregivers are exhausted and overwhelmed.overwhelmed.

Caregivers often feel isolated and Caregivers often feel isolated and have very few support systems.have very few support systems.

Caregivers become very depressed Caregivers become very depressed and many consider ending their life and many consider ending their life and the life of their loved one.and the life of their loved one.

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CaregiversCaregivers

Caregivers have a tough time Caregivers have a tough time accepting help from others because accepting help from others because they don’t want to burden other they don’t want to burden other people.people.

Caregivers will not call for help Caregivers will not call for help immediately when they realize their immediately when they realize their loved one is missing.loved one is missing.

Caregivers often complete the Caregivers often complete the grieving process before their loved grieving process before their loved one physically dies.one physically dies.

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DenialDenial

Family members are often in denial Family members are often in denial about their loved ones having this about their loved ones having this disease. They may:disease. They may:

Be angry at the person with the diseaseBe angry at the person with the disease Refuse to acknowledge the person has Refuse to acknowledge the person has

Alzheimer’s Alzheimer’s Be uneducated about the disease processBe uneducated about the disease process Allow the person with Alzheimer’s to Allow the person with Alzheimer’s to

make decisions she/he cannot makemake decisions she/he cannot make

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The Future of The Future of Alzheimer’sAlzheimer’s

Researchers hope to find a drug Researchers hope to find a drug that can delay the onset of that can delay the onset of Alzheimer’s by 5 years. Alzheimer’s by 5 years.

Detecting Alzheimer’s Disease Detecting Alzheimer’s Disease earlier:earlier:

Genetic ScreeningGenetic Screening Better Imaging TechniquesBetter Imaging Techniques Measuring Brain ProteinsMeasuring Brain Proteins MRI Brain ImagingMRI Brain Imaging

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Additional ResourcesAdditional Resources Alzheimer’s Association Area ChaptersAlzheimer’s Association Area Chapters

National Capital Area Chapter, FairfaxNational Capital Area Chapter, Fairfax Southeastern Virginia Chapter, NorfolkSoutheastern Virginia Chapter, Norfolk Central and Western Virginia Chapter, CharlottesvilleCentral and Western Virginia Chapter, Charlottesville Greater Richmond Chapter, Glen AllenGreater Richmond Chapter, Glen Allen

Alzheimer’s Association Safe Return ProgramAlzheimer’s Association Safe Return Program Contact your local Alzheimer’s Association ChapterContact your local Alzheimer’s Association Chapter

Project Lifesaver InternationalProject Lifesaver International www.projectlifesaver.orgwww.projectlifesaver.org

State Search and Rescue ResourcesState Search and Rescue Resources Virginia Department of Emergency Management at (800) 468-Virginia Department of Emergency Management at (800) 468-

8892. 8892.

Module 3

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Questions?

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For Additional Information contact:For Additional Information contact:

Commonwealth of Virginia Commonwealth of Virginia

Alzheimer’s Training Program for Alzheimer’s Training Program for Emergency Service PersonnelEmergency Service Personnel

Julie Ana SkoneJulie Ana Skone

Dept. of Criminal Justice ServicesDept. of Criminal Justice Services

(757) 692-0108(757) 692-0108

www.dcjs.virginia.govwww.dcjs.virginia.gov

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Module 4

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Searching for a Missing Alzheimer’s Searching for a Missing Alzheimer’s PersonPerson

The Wandering Problem

For every 1,000 people in Virginia, 15 suffer from Alzheimer’s disease.

•18% of those with mild dementia, wander

•50% of those with severe dementia, wander

•Copyright © 1999 dbS Productions

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The Wandering Problem

• 1% of lost Alzheimer wandering incidents reported to law enforcement result in fatalities.

• One-third of those incidents where the lost person is not located within 24 hours results in fatalities.

Copyright © 1999 dbS Productions

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Subject’s Profile

•Leaves residence or nursing home

•Has a previous history of wandering

•May cross or depart from roads (67%)

•Usually (89%) found within one mile of place last seen

•Usually found a short distance from road (off road)

•Attempts to travel to former residence

•Copyright ©1999 dbS Productions

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Subject’s Profile

•Leaves few verifiable clues

•Will not cry out for help or respond to shouts

•Usually found in a creek, drainage area, brush or briars (47%)

•Succumbs to the environment

Copyright © 1999 dbS Productions

Page 76: Alzheimer's/Dementia Training for Emergency Responders

Behavioral Hypothesis

Why do they get lost?

•Wandering Initiated

Agitation (exit seekers, escapist, want to go home)

Depression, goal oriented

•Becomes Lost

Loss of time, short term memory, spatial mapping

•Intense Emotional Crisis

Panic reaction

Copyright ©1999 dbS Production

Page 77: Alzheimer's/Dementia Training for Emergency Responders

Alzheimer’s VS Navigation

Poor recent memory Landmarks

Inability to judge time Estimate distances

Loss of visual-spatial skills Sense of direction

If you can’t recognize where you are for lack of landmarks, can’t judge how far back to where you came from and don’t know how to turn around, you get lost.

Copyright © 1999 dbS Productions

Page 78: Alzheimer's/Dementia Training for Emergency Responders

Search is an Emergency

•Subject needs emergency care.

•Subject needs protection from weather and self.

•Time and weather destroy clues.

•Urgent response decreases search difficulty.

•Search size grows exponentially with time.

•Subject seldom ‘walks’ out.

Caregiver’s often wait hours before calling for help once they notice their loved one is

missing.

Copyright © 1999 dbS Productions

Page 79: Alzheimer's/Dementia Training for Emergency Responders

Search is an Emergency

No deaths when subject found within 12 hours of the time last seen.

•If subject found DOA, average time to contact SAR = 50 hours.

•If subject found uninjured, average time to contact SAR= 12.3 hours.

•Subjects die due to environment.

Copyright © 1999 dbS Productions

Page 80: Alzheimer's/Dementia Training for Emergency Responders

Search at Night

•Subject does not generally move at night.

•Searchers / dogs are able to hear better at night.

•Air-scent dogs work better at night.

•Bloodhounds may work better at night.

•25% of finds occur at night

Copyright © 1999 dbS Productions

Page 81: Alzheimer's/Dementia Training for Emergency Responders

Distance Traveled

(Distances given in crows flight.)

Average distance : 0.6 miles.

50% subjects found within: 0.5 miles.

75% subjects found within:0.7 miles.

94% subjects found within: 1.5 miles.

Individuals with severe dementia travel shorter distances.

Wanderers who stay on roads go further.Copyright © 1999 dbS Productions

Page 82: Alzheimer's/Dementia Training for Emergency Responders

Contact Trained S.A.R. Resources

Bloodhounds Field team leaders

Air-scent dogs Field team members

Helicopters Mounted (horse) SAR teams

Fixed wing aircraft Bike teams

Search management Other specialized SAR

Man trackers resources

Copyright© 1999 dbS Productions

Page 83: Alzheimer's/Dementia Training for Emergency Responders

Planning Data

Point last seen ( PLS)

Last Known Position ( LKP)

Circumstances surrounding loss

Initial actions taken by caller

History of the missing subject

Physical and mental health of subject

Personality traits

Weather, terrain

Hobbies or activities person used to engage inCopyright © 1999 dbs Productions

Page 84: Alzheimer's/Dementia Training for Emergency Responders

Find Environment

•General pattern: They go until they get stuck.

•Unique in the tendency to go into brush/ briars.

•Requires searching off roads.

•Many subjects found near or in creeks or drainage ditches.

•Many nursing home cases where subject was found within the structure, make sure staff checks every room, even if the door is locked.Copyright © 1999 dbS Productions

Page 85: Alzheimer's/Dementia Training for Emergency Responders

Once the subject is located, please Once the subject is located, please remember to refer family members to remember to refer family members to

resources such as the Alzheimer’s resources such as the Alzheimer’s Association, Safe Return or Project Association, Safe Return or Project

Lifesaver.Lifesaver.Many of them are unaware that such Many of them are unaware that such

resources exist.resources exist.

Page 86: Alzheimer's/Dementia Training for Emergency Responders

Questions?Questions?


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