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American Association on Health and Disability Roberta Carlin, MS, JD Executive Director [email protected] www.aahd.us
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American Association on Health
and Disability
Roberta Carlin, MS, JDExecutive [email protected]
www.aahd.us
What is the Mission of AAHD?
Advance Health Promotion and Wellness Initiatives for Children and Adults with Disabilities
Research -Education - Public Awareness - Advocacy
Federal – State - Community
What is AAHD?
National Cross – Disability & Public Health Organization
Eliminate Health Disparities
Reduce Incidence of Secondary Conditions
Community Inclusion and Full Accessibility
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• Disability Researchers• Public Health Professionals• Disability Organizations• State Health Departments• Policy Analysts• Healthcare Providers• People with Disabilities
Who are AAHD Members?
What are AAHD Programs?AAHD Website – www.aahd.us
AAHD Health Promotion Resource Center
AAHD Public Policy Center
Disability and Health Journal
Disability and Health in the News
AAHD Regional/State Liaisons
AAHD Scholarship Program
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• AAHD Memberships• Government Contracts (CDC)• Universities (USC, UNH, UAB - NCHPAD)• Private Contracts (Susan G. Komen,
Christopher and Dana Reeve Foundation, Robert Wood Johnson Foundation, NCOA)
• Private Donations
How Did AAHD Receive Funding in 2014?
AAHD Website
Health Promotion Resource Center
Health Promotion Resource Center
Sample Abstract Topics (50+)
AccessibilityAgingAutismDepressionExerciseNutritionSocial Determinants of Health
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Abstracts
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AAHD Initiatives
Sample AAHD InitiativesProject Accessibility USAwww.project-accessibility-usa.org/Home.htm
National Disability Navigator Resource Collaborativewww.nationaldisabilitynavigator.org
NCHPAD – National Center on Physical Activity and Disabilitywww.nchpad.org
Disability Research and Dissemination Centerwww.disabilityresearchcenter.com
Commit to Inclusionwww.committoinclusion.org
Targeted Dissemination Strategies
Broad Social Media TechniquesMultiple List Serves
WebinarsIssue Briefs
Partner Collaborations
AAHD Dissemination
Helping People with DisabilitiesGet the Health Coverage They Need
Presenter: Karl D. Cooper, Esq.American Association on Health and Disability
Inclusive Health CoalitionDecember 18, 2014
National Disability Navigator Resource Collaborative A project of the American Association on Health and Disability 15
What is the NDNRC?The National Disability Navigator Resource Collaborative (NDNRC) is an initiative of seven national cross-disability organizations in order to provide disability information and support to navigators and other enrollment specialists as they assist consumers with enrollment through the Affordable Care Act insurance marketplaces.
Who is the NDNRC?
National Disability Navigator Resource Collaborative A project of the American Association on Health and Disability 16
NDNRC Partners
National Disability Navigator Resource Collaborative A project of the American Association on Health and Disability 17
The mission of the National Disability Navigator Resource Collaborative (NDNRC) is to provide cross-disability information and support to Navigators and other enrollment specialists thereby ensuring people with disabilities receive accurate information when selecting and enrolling in insurance through the Affordable Care Act Marketplaces.
Mission Statement
National Disability Navigator Resource Collaborative A project of the American Association on Health and Disability 18
NDNRC Home Pagewww.nationaldisabilitynavigator.org
National Disability Navigator Resource Collaborative A project of the American Association on Health and Disability 19
NDNRC Home Page
National Disability Navigator Resource Collaborative A project of the American Association on Health and Disability 20
State Pages
Resources & Links
National Disability Navigator Resource Collaborative A project of the American Association on Health and Disability 21
• Enrollment Resources – Disability Specific• Enrollment Resources – Mental Health and Behavioral Health• Enrollment Resources – Populations with Special Health Care
Needs• Enrollment Resources – ACA Marketplace and Medicare• Enrollment Resources – ACA Marketplace and Medicaid• Enrollment Resources – Overview• Enrollment Statistics• Affordable Care Act (ACA) Resources – Government• Affordable Care Act (ACA) Enrollment Resources
CATEGORIES
National Disability Navigator Resource CollaborativeA project of the American Association on Health and Disability 22
Disability Guide
National Disability Navigator Resource CollaborativeA project of the American Association on Health and Disability 23
Disability GuideTable of Contents
•Introduction•What Are the Purposes of the Supplemental Disability Guide?•Key Questions for Navigators•Who Are People with Disabilities?•What Problems and Barriers Have People with Disabilities Historically Encountered Obtaining Healthcare Insurance?•How Do Disability Rights Laws Affect the Operation of the Marketplace?•What Do Navigators Need to Know about Disability?•How Is Medicaid Eligibility Being Determined for People with Disabilities?•Scenarios•What Types of Accommodations Should Navigators Know about?•NDNRC Fact Sheets•Resources•Glossary
16 FACT SHEETS
National Disability Navigator Resource CollaborativeA project of the American Association on Health and Disability 24
1. Comparing Health Plans’ Benefits and Coverage Summaries2. Getting and Using Health Plan Evidence of Coverage3. Using Health Plan Customer Service4. Rehabilitation and Habilitation Services and Devices5. Prescription Medication Benefits6. Supporting Collaborations Between Navigators, Connectors and
Assisters, and Local Disability and Affinity Organizations7. Mental Health and Substance Abuse Parity8. Medically Frail Status as an Exemption to Receiving Medicaid
Alternative Benefit Plan with Essential Health Benefits9. Streamlined Marketplace Application Process
16 FACT SHEETS
National Disability Navigator Resource CollaborativeA project of the American Association on Health and Disability 25
10. Medical Supplies Benefits11. Civil Rights of People with Disabilities under the Americans with
Disabilities Act and Section 504 and Section 508 of the Rehabilitation Act
12. Process for Medicaid Eligibility13. Referral and Resource Lists14. Information for People on Medicaid Home and Community-
Based Services Waiver Waiting Lists15. Medicaid Buy-In16. Information for Veterans Regarding Department of Veterans
Affairs Healthcare*
National Disability Navigator Resource CollaborativeA project of the American Association on Health and Disability 26
Health Insurance Jeopardy!
It’s not about the answer. It’s about asking the right question!
Year One Observations
National Disability Navigator Resource CollaborativeA project of the American Association on Health and Disability 27
1. Deaf and Hard of Hearing2. Children with Special Health Care Needs3. Behavioral Health (Mental Health and Substance Use Disorder)4. Prescription Drug Formularies5. Rehabilitation and Habilitation Therapies6. Durable Medical Equipment and Assistive Technologies7. Coverage for Individuals Newly Receiving SSDI8. Enrollment Accessibility
NEEDS BY DISABILITY CATEGORY
Year Two New Fact Sheets
National Disability Navigator Resource CollaborativeA project of the American Association on Health and Disability 28
16. Renewals & Redeterminations
17. Moving from Coverage-to-Care for People with Disabilities
18. Meeting the Communication Needs of Specific Disability Populations
19. Disability Etiquette
Year Two New Fact Sheets
National Disability Navigator Resource CollaborativeA project of the American Association on Health and Disability 29
What to Know When Assisting a Consumer with: • Autism Spectrum Disorder• Child with Special Health Care Needs• Intellectual Disability• Mental Illness• Multiple Sclerosis• Paralysis• Information for Veterans Regarding
Department of Veterans Affairs Healthcare*
POPULATION SPECIFIC
Community Outreach Collaboratives
National Disability Navigator Resource CollaborativeA project of the American Association on Health and Disability 30
1. Rhode Island Parent Information Network, Cranston, RI2. Center for Independence of the Disabled, NY, New York, NY3. NAMI Southwest Pennsylvania, Pittsburgh, PA4. Lakeshore Foundation, Birmingham, AL5. Family Voices Indiana, Indianapolis, IN6. Wayne State University, Detroit, MI7. University of New Mexico Center for Development and Disability,
Albuquerque, NM8. NAMI Kansas, Topeka, KS9. Family Voices Colorado, Centennial, CO10.North Dakota Center for Persons with Disabilities at Minot State
University in partnership with Family Voices of North Dakota, Minot, ND
11.PAVE Family to Family Health Information Center, Tacoma, WA
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• Sign up to receive NDNRC updates: http://www.nationaldisabilitynavigator.org/
• Sign up for AAHD’s newsletter: http://www.aahd.us/contact/
• Check out AAHD’s Resource Center: http://www.aahd.us/resource-center/
How to stay involved
National Disability Navigator Resource CollaborativeA project of the American Association on Health and Disability
Contact Us
National Disability Navigator Resource CollaborativeA project of the American Association on Health and Disability 32
American Association on Health and Disability110 N. Washington St., Suite 328-J
Rockville, MD 20850Phone: (301) 545-6140
Roberta Carlin, MS, [email protected]
Karl D. Cooper, [email protected]
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