Date post: | 28-Mar-2015 |
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An exploration of the experience of patients who participate in research as co-learners with
primary care teams
Louise Worswick, PhD Student/Researcher, Bournemouth University
Patient involvement in research
• Consumerist approach to public service delivery• Organisational duty to involve • Benefits, impact, barriers to involvement are
widely reported• The debate rages about the impact of
involvement on research outcomes • Little consensus about who, why and how to
involve• Ongoing arguments of tokenism and ‘ticking the
box’
A gap in this body of research
• What is it like for those who get involved?• What is the patient perspective?• What can we learn about their experience
of being involved in research?• Could our learning about the experience
be relevant to future involvement activities?
Using LIMBIC as a case study
LIMBIC - Learning to Improve the Management of Back pain In the Community
• Interprofessional education• Management of back pain • Using evidence to influence improvement• Principles and methods of quality improvement• Improvement learning• User involvement
Baseline data collectionNine practices from two Primary Care Trusts
Repeat data collectionNine practices from two Primary Care Trusts
High level evaluation
High level evaluation
Eight half day workshops with the nine practice teams over 9 months ☻
Practice improvement projects undertaken ☻Practice level evaluation after workshops ☻
Practice level evaluation
Patient representatives join the project ☻☻☻
Patient representatives participate in the workshops☻☻☻☻☻☻☻
Patient representatives describe their experiences☻☻☻☻☻☻☻
Quantitative approach
Qualitative approach
Quantitative approach
Before and after outcome measures through questionnaires with patients
Focus group interviews with workshop participants; GP, Practice nurse, receptionist, patient representative☻, Fast Feedback evaluation
Before and after outcome measures through questionnaires with patients
Patient involvement in LIMBIC
Patient stories
Mutual support group
Workshop evaluation
Writing papers
Celebratory event
Practice improvement teams
Commissioning meetings
LIMBIC filmWiki
Conference presentations
Workshop participants
Workshop presentations
Findings to date• Shift in understanding of the value of patient involvement
“This project has perhaps made me more aware of the value of involving patients in making changes” GP
• Patients influenced the choice of Practices’ improvement projects
“Made the process more relevant and gave a purposeful perspective” Physio
• Attitudinal shift regarding benefit of shared working and interprofessional education
“It was very valuable to hear the patient’s experiences and made our team see things from their perspective…their contribution
was much appreciated and valued at the workshops” Practice Manager
Next steps
• Continued engagement with patient research participants
• Dissemination processes for LIMBIC project• Identification of relevant LIMBIC project data• Interviews with patient representatives and project
team• Analysis of data from interviews and project data• Report findings