The K

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An Introduction

To Our Chapter

Presentation

• Our Vision, Mission & Goals• About Us

• Programs/Community Awareness• Fund Development

• Volunteer Engagement• Operations

Our VisionOur Mission

Organizational Goals:

• Fund and promote research into kidney disease

• Implement services to support individuals living with kidney disease to high quality health care.

• Advocate for the right of people with kidney disease to high quality health care

• Promote public awareness and commitment to organ donation

• Ensure on-going public support for the work of The Kidney Foundation.

About Us…...

In the 1960s, people with kidney failure had little hope of survival. Dialysis was considered an extraordinary treatment and restricted to very few. Transplantation was still experimental.

It was during this time that a young Montreal architect, Morty Tarder, died from kidney disease. Confronted with their son’s death, the Tarder family vowed to start an organization that would raise money for research into this poorly understood disease. In 1964, The Kidney Disease Foundation of Canada, as it was known then, was created in Montreal.

Today, the Kidney Foundation of Canada is the national health charity committed to kidney health and to improved lives for all people living with kidney disease. Our vision for the future is an enduring legacy of those dedicated volunteers who, 40 years ago, started out with a compelling cause and the resolve to make a difference.

About Us…...The 60s

Only a handful of hospitals provide hemodialysis, treatments are strictly rationed and selection committees determine who will receive this life-saving therapy. The Foundation begins to advocate for greater awareness of kidney disease, more treatment centres and research into kidney transplantation.

1964: The death of young Montreal architect Morty Tarder from kidney disease sparks the creation of The Kidney Disease Foundation of Canada.

1965: The Women's Auxiliary of the Foundation organizes the first child-testing program to screen for kidney disease with the help of several doctors from the Royal Victoria Hospital in Montreal.

1968: The Foundation launches its first fundraiser, the "Trick or Treat" campaign, endorsed by Prime Minister Pierre Elliot Trudeau.

About Us…...The 70’s

The Foundation becomes a vibrant, national health charity expanding to include Branches and Chapters across Canada. Money raised by the Foundation is used to provide seed funding for the establishment of organ retrieval systems and to support kidney-related research.

1974: Volunteers for the Foundation number more than 10,000 nationally.

1975: The Foundation awards a total of 11 research grants to renal investigators in various provinces.

1978: The Foundation breaks the million dollar mark through its various fundraising activities across the country.

1979: March is officially declared Kidney Month in Canada and the flagship door-to-door fundraiser, the March Drive, is launched.

About Us…...1980sMany more kidney patients have access to treatment through the success of an alternative form of dialysis called peritoneal dialysis. The use of the anti-rejection drug cyclosporin leads to vast improvements in transplant success. The Foundation presses for more federal government involvement in promoting organ donation and the development of national standards for patient care.

1982: The first edition of the Patient Manual is published in English and French.

1984: Over 25,000 volunteers contribute their time and talents to support the work of the Foundation.

1985: 75 Research Grants are awarded by the Foundation to various renal investigators.

1985: The Foundation distributes over 1,000,000 wallet-sized cards to the public, explaining the warning signs of kidney disease.

1987: The province of British Columbia reverses its decision to decline payment for cyclosporine, an anti-rejection medication used by transplant recipients, thanks to Foundation advocacy initiatives.

Meanwhile, further efforts convince the province of Quebec to have the organ donor

consent form placed on the back of all newly issued provincial Medicare cards.

1988: The National Direct Mail program is launched, bringing in over one million dollars in gross revenues.

About Us…...1990s The number of people receiving treatment for end-stage renal disease is growing as the population ages. Transplantation success, ironically, is creating longer waiting lists. The Foundation increases it efforts to ensure the best possible future for people living with kidney disease, through the delivery of its broad range of programs and various collaborative initiatives.

1994: Michel Perron, a kidney transplant recipient, successfully completes his journey to the North Pole, raising more than $260,000 for the Foundation. Two years later, he repeats his remarkable feat … this time, voyaging to the South Pole.

1996: The Foundation hosts the Links to Success Forum, bringing together representatives from government, healthcare institutions, the organ donation community, and staff and volunteers from the Foundation to develop solutions to the critical shortage of organs for transplantation.

1998: More than 85,000 volunteers are actively contributing to the mission of the Foundation.

1999: The Foundation hosts the Horizons 2000+ Conference, bringing together the country’s leading kidney scientists and other stakeholders to explore themes and make recommendations that will eventually form the basis of an enhanced national kidney research strategy.

About Us…...2000+

As growing evidence points to the preventable nature of kidney disease among certain high-risk groups, the Foundation begins to explore an expanded role in early detection.

2002: The Foundation hosts the first National Forum on Chronic Kidney Disease, attended by a broad range of stakeholders, to highlight the key issues, increase knowledge and identify the action needed to reduce the burden of kidney disease over the next three years.

2003: In order to address the expanded constituency, which now includes populations at risk, and to guide and align its activities across the country, the Foundation reviews and renews its vision, mission and guiding principles.

2004: The Foundation’s Endowment Fund surpasses the $5 million mark, and its contribution to research since its creation in 1964 surpasses $70 million.

2005: A new brand identity for the Foundation is developed and launched: The Kidney Foundation of Canada – the foundation of kidney care. The new tagline reflects the broadening of the mission to embrace all aspects of kidney care – from earliest

prevention to the treatment and care of individuals affected by kidney disease.

ProgramsCommunity Awareness

For more information on programs visit www.kidney.on.ca

Rese

arch

&

Pro

gra

ms

Every day in Canada , an average of 12 people are diagnosed with kidney failure. In many cases, this diagnosis changes a person's life forever. Adjusting to the demands of a chronic illness can be difficult and demanding.

Fortunately, people are not alone as they learn to manage kidney disease. The Kidney Foundation has services and programs in place to help people adjust to the changes brought about by kidney disease, and to learn to lead fulfilling lives while managing the condition.

The Kidney Foundation of Canada is the only national health charity committed to reducing the challenges of kidney disease. Our many programs and our investment in research helps us to reduce the burden of kidney disease in Canada.

For more information on programs visit www.kidney.on.ca

For more information on programs visit www.kidney.on.ca

Research

Research has led to the development and perfection of dialysis treatment. It has made transplantation the

treatment of choice for an increasing number of patients, and has led to the development of the anti-rejection

drugs that have made kidney transplants so successful. All of these advances as well as countless others would

never have been made were it not for thousands of hours and millions of dollars first being spent on basic and clinical medical research. Researchers are working

towards improved means of managing kidney disease, and, ultimately, reducing the impact it has on Canadians.

For more information on programs visit www.kidney.on.ca

Educational Material

Living with Kidney Disease Manual - comprehensive information on treatment options, diet, exercise and lifestyle

specifically developed for people with kidney failure - available in English, French, Chinese, Italian, Portuguese and

Punjabi.

The Kidney Foundation of Canada is committed to providing education about kidneys and kidney disease. Through

information pamphlets, fact sheets and brochures on specific aspects of living with kidney disease.

For more information on programs visit www.kidney.on.ca

Financial Assistance

• Short Term Financial Assistance

• Travel Loan Program

• Compassionate Loans

For more information on programs visit www.kidney.on.ca

Information & Referral

Referrals to appropriate community agencies and resources. Information and referral services are

intended to guide patients through the sometimes confusing and stressful process of adjusting to

living with kidney disease.

For more information on programs visit www.kidney.on.ca

The Peer Support Program

Volunteers are renal patients or family members themselves who have adjusted to living with kidney disease, have

participated in training programs, and have the desire to help others by sharing their experiences.

Available in e-Format for more information visit ww.kidney.on.ca

News Publications & Information

Kidney Living Publication of the Ontario Branch

• Community Updates

• Annual Reports

• Website www.kidney.on.ca

For more information on programs visit www.kidney.on.ca

Summer Camp Programs

• Lion’s Camp Dorset

•Children’s Camp Subsidy Program

For more information on programs visit www.kidney.on.ca

Other Resources

- Patient & Family Symposium- Renal Cookbooks - Resource Libraries

- Kidney Care- Chinese Renal Association (CRA)

- Speakers' Bureau - Health Fairs

-Tax Information Sessions-The Ambassador Program

For more information on programs visit www.kidney.on.ca

Living with Kidney DiseasePatient & Family Symposium

The “Living with Kidney Disease” Patient and Family Symposium provided opportunities to learn from, interact with, and ask questions of renal professionals and service providers,

and to find out about other people’s experiences with renal disease.

Whether they had been personally affected by kidney disease, or have someone they care about who is affected by kidney disease, we provided a casual, comfortable and friendly

environment to explore a variety of different workshops and information sessions all related to living with kidney disease.

Organ Donation Awareness

The Kidney Foundation of Canada actively promotes awareness of and commitment to organ donation awareness campaigns and advocacy efforts to encourage all Canadians to make positive choice about organ donation. Did you know………

• over 30,000 people in Canada require life-sustaining treatments such as dialysis or a kidney transplant to replace the function of kidneys that have failed?

• that the number of Canadians on renal replacement therapy will double in the next 10 years?

• 12 people in Canada learn their kidneys have failed every day; up from 8 just three years ago?

• over 75% of people on Ontario's organ and tissue donor list are waiting for a kidney transplant?

• Canada has one of the lowest organ donation rates in the developed world.

• The success rate of living donor transplantations is now over 90 per cent, thanks to transplant research discoveries.

For more information on awareness visit www.kidney.on.ca

Living Green RibbonA flagship event in Ontario during National Organ and Tissue Donor Awareness Week, the Living Green Ribbon is an annual photo shoot where people become part of a living tableau – a giant green ribbon - the internationally recognized symbol of organ and tissue donation. Photos from previous events have been used in posters, public service announcements and notecards. Organized in schools and public venues, the Living Green Ribbon brings together students, local dignitaries and community members to show their support for organ and tissue donation

Transplant Recipients are wearing white. Volunteers from The Kidney Foundation, Hotel

Dieu Grace Medical Staff, Other Organ Donation Awareness volunteers wear the signature green ponchos and hold signs indicating their consent.

Firefighters and the Chief of Police outline the ribbon.

For more information on awareness visit www.kidney.on.ca

Advocacy

The advocacy goals of the Foundation are:

• to inform and educate the public, government, politicians and other organizations about the needs of people living with kidney disease.

to influence public policy to ensure that the needs are being met.

For more information on advocacy visit www.kidney.on.ca

Patient & Family Social Activities

Patient & Family Christmas Party November

Patient & Family Barbeque - JulySubject to interest

Please contact erika@mdirect.net for more information on events

Fund Development

3rd Party Events

Fund Development & Events

Please contact our office for more information on events

Campaigns

The March Drive Campaign

Beginning in 1976, The March Drive Door to Door Campaign has raised more than $60 million dollars for the Foundation, and is our single biggest revenue generator. The March Drive offers a double opportunity; it enables the Foundation to raise much needed funds to support our mission and it provides a way for the Foundation to share the accomplishments through thousands of volunteers who support us from coast to coast.

Other Campaigns

Service Club & Associations Campaign

U Plus 2 Campaign

Individual/Corporate Campaigns

In Honor/In Memorium Donations

F2F Campaign

Fund Development & Events

Please contact our office for more information on events

Annual Pasta & Pizza Fest

A Kidney Foundation's signature lunchtime fundraising event, held annually during the month of May.

Showcasing an array of unique pasta and pizza dishes from approximately 25 of Windsor and Essex County's finest restaurants and banquet facilities, attending Pasta Fest is a great opportunity to enjoy an inexpensive all-you-can-eat pasta & pizza feast.

The funds raised will go towards supporting the Kidney Foundation's mission.

MAY

Fund Development & Events

Please contact erika@mdirect for more information on events

Beach Jam Volleyball Tournament

Mixed teams of six take to the courts for a fun day of volleyball consisting of a minimum of four games per team, plus elimination rounds. Teams can register online. At registration, each player receives a designated amount of tickets to put in containers for a chance to win some handsome door prizes. Cash sponsorships are available at varying levels such as title sponsor or courtside.

Teams or individual players also have the opportunity to raise pledges for additional revenue for The Kidney Foundation.

JUN

E

Fund Development & Events

Please contact erika@mdirect for more information on events

Festival Epicure

Festival Epicure is an annual three-day celebration of food, wine and music every July at the Riverfront Festival Plaza. The event is organized by Windfest Productions with volunteer operations developed by The Kidney Foundation of Canada, Windsor & District Chapter. Every year the bar gets raised higher to outdo the previous years excitement. With its eclectic, high caliber approach to every facet of the festival, Festival Epicure continues to kick off the Windsor-Detroit region's summer festival season with a bang.

JULY

Fund Development & Events

Please contact erika@mdirect for more information on events

Hub International Golf Classic

This popular tournament is sold out every year and features a Texas scramble format round of golf with a shotgun start, registration prizes and competitive prizes, followed by a delicious dinner in the clubhouse. Competitions include: closest to the pin, longest drive, a putting contest, a chipping contest, and several hole-in-one chances to win fabulous prizes such as cash or a leased car.

AU

GU

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Fund Development & Events

Please contact erika@mdirect for more information on events

The “Give the Gift of Life” Walk

Friends, family, coworkers and caring individuals band together to raise funds and walk for those suffering from kidney disease. This event was launched in 2001 as the “Be a Lifesaver” walk and was rebranded as the “Give the Gift of Life” walk in 2008 with an emphasis on organ donation awareness. This event is now being held at Colasanti’s Tropical Gardens and has been met with great success and continues to keep expanding. A 5km walk is followed by a social breakfast allowing participants to meet and greet with each other. Incentive prizes make this a fun family challenge and outing.

SE

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Fund Development & Events

Please contact erika@mdirect for more information on events

Third Party Events

Our Foundation is very fortunate to have incredible support in our communities. Creative individuals from communities all over Essex County have generously supported our programs and services with unique fundraising ideas. You may have an idea like a small barbecue or a larger event like a bowl-a-thon or a High School Halloween Costume Walk. Whatever the idea there are staff at the Foundation who would be pleased to offer guidance.

Third Party Events

Windsor Homebulders Association Golf Tourney

BMO Golf Tourney

A Day for a Life Tourney

Windsor Firefighters Chilifest

Windsor Public Library Dress Down Days

Jamieson Labs Casual Days

Green Shield Casual Days

Riverside HS Halloween Walk

For Volunteer Opportunities contact our office.

Volunteer Engagement Volunteer Fairs & Materials

Campaign Recruitment Event Recruitment

Community AwarenessVolunteer Recognition/Chapter Committee Office/Clerical

The Chapter BoardChapter Annual Meeting & Volunteer Recognition

Operations

Windsor & District Chapter (our region)

* Tilbury and Wheatley part of Kent county not shown

The Role of the ChapterIntroduction

Chapters or community entities are the points of contact between the Kidney Foundation of Canada (KFOC) and

people affected by or at risk of kidney disease. Typically they are communities of people who may be organized around such activities as fundraising, organ donation,

government relations, programs and services, and volunteer engagement dedicated to supporting Branch-

wide strategies and plans.

Questions