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ANNUAL REPORT 2010
ANNUALREPORT
2010
Awardee: AndrewGilbert,MD AssistantProfessor
Affiliation:CenterofExcellencefor OCDandRelatedDisorders, MountSinaiSchoolofMedicine
Study: NeuralCorrelatesofEmotional ResponseInhibitionin ObsessiveCompulsiveDisorder
Amount: $44,842
Awardee: JedidiahSiev,PhD PostDoctoralFellow
Affiliation:OCDandRelatedDisorders Program,Massachusetts GeneralHospital
Study: AttentionalProcessesin ScrupulousOCD
Amount: $39,957
Promoting research into the causes and treatment of OCD and related disorders is a top priority of the International OCD Foundation. In 2010, the Foundation granted four Research Awards that totaled $136,648. These yearly Research Awards are funded by contributions from the Foundation’s members and friends. A committee, led by the Vice Chair of the IOCDF Scientific Advisory Board (SAB), Sabine Wilhelm, PhD, and composed of members of the SAB and other OCD experts, reviewed each research proposal and made recommendations to the IOCDF Board of Directors who made the final decisions. The Award winners and their affiliations and topics are listed below.
RESEARCH GRANTSDearFriendsandSupportersoftheInternationalOCDFoundation,
The Foundation continues to move into the future. With the addition of an in-house Web Developer, Fran Harrington, to our staff, we have been able to do a complete website overhaul and added a virtual hoarding center. Significant upgrades to the website this year involved a newly launched support group database to be followed shortly in early 2011 with an updated treatment provider database. Our 17th Annual Conference - held in Washington DC - had over 1,000 attendees, half of which were at a Foundation conference for the first time. With the Pentagon just over a mile away from the conference hotel, we felt that Retired Lt. Colonel Shannon Shy’s Keynote Address: “My War with OCD: A Story of OCD in the Military” was an ideal choice. In addition, Dr. Jonathan Grayson received the Patricia Perkins Lifetime Achievement Award in honor of his decades long dedication to the IOCDF and individuals with OCD and their families.Dr. Alec Pollard continues to direct and oversee our Behavior Therapy Training Institutes (BTTI). This year, all three BTTIs were sold out. As a result, over 90 more mental health therapists are now familiar with effective diagnostic and treatment strategies for OCD and related disorders. Our second annual OCD Awareness Week was a major success this year. Overall, groups in 13 different states hosted activities during the week of October 11-17, 2010 to educate their communities and the public as a whole about OCD and related disorders. OCD Awareness Week was also featured on Time.com and on New England Cable News. The week ended with a live, Internet broadcast of OCD Stories. Viewing parties were held in 9 states nation-wide and we tracked almost 500 unique hits to the live video streaming of the event. In Boston, it was standing room only as 175 people showed up to see many of the stories told live.Finally, the IOCDF continues its commitment to finding and promoting effective treatment for everyone with OCD and OCD related disorders. Research money comes from generous donors within the IOCDF community and this year a total
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of $136,648 was raised. Thank you to all who contributed and to Dr. Sabine Wilhelm, the chair of the Grant Review Committee. The missions of the IOCDF remain the same: educate the public and professionals about OCD in order to raise awareness and improve the quality of treatment provided; support research into the causes of, and effective treatments for, OCD and related disorders; improve access to resources for those with OCD and their families; and advocate and lobby for the OCD community. I want to thank our donors, members, Board of Directors, Scientific Advisory Board members, affiliates and volunteers for their dedication, time and energy spent helping the IOCDF fulfill its very important mission.Sincerely,Jeff Szymanski, PhD Executive Director International OCD Foundation, Inc
CONTENTS
Research Grants................................ ............2Annual Conference ...................................3-4Behavior Therapy Training Institute.........5-6OCD Awareness Week ..........................7-8Newsletter .................................................9Website ....................................................10Affiliates ...............................................11-12Speakers Bureau ................................13-14Scientific Advisory Board .....................15-16Finances ............................................17-18Board/Staff .............................................19
Awardee: AdamLewin,PhD AssistantProfessor
Affiliation:UniversityofSouthFlorida CollegeofMedicine
Study: Neuro-ExecutivePredictorsof CognitiveBehavioralTreatment ResponseinYouthwithObsessive CompulsiveDisorder
Amount: $24,971
Awardee: MichaelWheaton,MA DoctoralStudent
Affiliation:UniversityofNorthCarolinaat ChapelHill
Study: AffectiveResponsesand InformationProcessingin CompulsiveHoarding:A PsychophysiologicalInvestigation
Amount: $26,878
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Gerald Nestadt, MD, MPH
ProfessorofPsychiatry,JohnsHopkinsMedicalInstitutions
Director,JohnsHopkinsOCDClinic
PrincipalInvestigator,OCDCollaborativeGeneticsAssociationStudy
Sanjaya Saxena, MD
Director,UCSDObsessiveCompulsiveDisorders
ProgramDirector,SanDiegoVAAnxietyDisordersClinic
Professor,UniversityofCalifornia,SanDiegoSchoolofMedicine
Aureen Pinto Wagner, PhD
Director,AnxietyWellnessCenter
Barbara Van Noppen, PhD
AssistantChairofEducation,KeckSchoolofMedicine,UniversityofSouthernCalifornia
Sabine Wilhelm, PhD
AssociateProfessor,HarvardMedicalSchool
Director,CognitiveBehaviorTherapyProgram,MassachusettsGeneralHospital
Director,OCDandRelatedDisordersProgram,MassachusettsGeneralHospital
CO-CHAIRS:
Denise Egan Stack, LMHC
Secretary,BoardofDirectors,IOCDFPresident,OCDGreaterBoston
Committee Members:
Thröstur Björgvinsson, PhD
ProgramDirector,HoustonOCDProgramDirector,BehavioralHealthPartialProgram,McLeanHospital
Alice Bredice
ConferenceCoordinator,McLeanHospital
Susan Dailey
OCDAdvocateandMom
Martin Franklin, PhD
ClinicalDirector,CenterfortheTreatmentandStudyofAnxietyAssociateProfessor,UniversityofPennsylvaniaSchoolofMedicine
Charles Mansueto, PhD
Director,BehaviorTherapyCenterofGreaterWashington
Fugen Neziroglu, PhD, ABBP
ClinicalDirector,Bio-BehavioralInstituteProfessor,HofstraUniversityProfessor,NewYorkUniversity
CONFERENCE PLANNING COMMITTEE
In addition, there were kids and teens art therapy rooms led by art therapists from Rogers Memorial Hospital. This provided an opportunity for kids and teens with OCD or with someone with OCD in their family, to meet, support each other and feel part of a community. Additional activities in this year’s conference included a film festival, an expanded poster session, and an increase in support group options. This year’s keynote speech was given by Retired Lt. Colonel Shannon Shy. With the Pentagon just over a mile away from the conference hotel, we felt that Shannon’s Keynote Address: “My War with OCD: A Story of OCD in the Military” was an ideal choice. Dr. Jonathan Grayson, a member of IOCDF’s Scientific Advisory Board, and Director of the Anxiety & OCD Treatment Center of Philadelphia was given the Patricia Perkins Lifetime Achievement Award to acknowledge his decades long contributions to the IOCDF and those struggling with OCD.Over 50% of our attendees this year were first-time conference goers and evaluations completed by participants were very positive. People with OCD found out that they weren’t alone and learned about medications and techniques they could use to manage their OCD.
The IOCDF Board of Directors chose the Hyatt Regency Crystal City Hotel in Washington, DC as the venue for the 17th Annual IOCDF Conference from July 16-18, 2010. Attendance hit 1057, which is the second best turnout in Conference history.As determined by the Conference Planning Committee, the conference program included a a full range of topics related to OCD. There were more than 100 presentations, seminars, workshops and support groups at the Conference, covering every aspect of OCD and related disorders. On Thursday, July 15 before the official start of the Conference, the Foundation put on an Advanced Behavioral Therapy Training Institute (ABTTI), which was open to mental health professionals who treat OCD and related disorders. The title of the training, “Treating Religious Obsessions: Helping the Scrupulous Contend with Certain Uncertainties About the Uncertain Certainty”, was a 4 1/2 hour workshop given by Alec Pollard, PhD, the Director of the Anxiety Disorders Center at the Saint Louis Behavioral Medicine Institute. A record 69 professionals attended the ABTTI. Included in the general conference schedule were presentations for individuals suffering with OCD (adults, adolescents and children), family members and friends, treatment providers and researchers.
ANNUAL CONFERENCE
Diane Davey, RN
President,BoardofDirectors,IOCDF
ProgramDirector,OCDInstituteMcLeanHospital
October Boston, MA BTTI
ThethirdBTTIthisyearwasheldOctober1-3inBoston,MAatMassachusettsGeneralHospital.AspecialthankstoSabineWilhelm,PhDandBarbaraRosembergforhostingthisBTTI.ThisBTTIwasalsosoldoutwith30attendees.
Faculty:Throstur Bjorgvinsson, PhDProgramDirector,HoustonOCDProgramDirector,BehavioralHealthPartialProgram,McLeanHospitalMartin Franklin, PhDClinicalDirector,CenterfortheTreatmentandStudyofAnxietyAssociateProfessor,UniversityofPennsylvaniaSchoolofMedicineMichael Jenike, MDProfessor,HarvardMedicalSchoolMedicalDirector,OCDInstitute,McLeanHospitalNancy Keuthen, PhDDirector,AssociateProfessorofPsychology(Psychiatry),HarvardMedicalSchool&MassachusettsGeneralHospitalCo-Founder&Co-Director,MGHTrichotillomaniaClinicandResearchUnitChiefPsychologist,OCDClinic&ResearchUnit,MassachusettsGeneralHospitalC. Alec Pollard, PhDDirector,AnxietyDisordersCenter,St.LouisBehavioralMedicineInstituteProfessorofCommunityandFamilyMedicine,St.LouisUniversityJeff Szymanski, PhDExecutiveDirector,InternationalOCDFoundationClinicalInstructorinPsychology,HarvardMedicalSchoolSabine Wilhelm, PhDAssociateProfessor,HarvardMedicalSchoolDirector,CognitiveBehaviorTherapyProgram,MassachusettsGeneralHospitalDirector,OCDandRelatedDisordersProgram,MassachusettsGeneralHospital
June Oconomowoc, WI BTTI
ThesecondBTTIwasheldJune11-13inOconomowoc,WI,atRogersMemorialHospital.AspecialthankstoBradleyRiemann,PhDandBarryThometforhostingthisBTTI.ThisBTTIwassoldoutwith30attendees.
Faculty:Cheryl N. Carmin, PhDProfessor&Director,Stress&AnxietyDisordersClinicandCognitiveBehaviorTherapyProgramDepartmentofPsychiatry,UniversityofIllinois-ChicagoKaren L. Cassiday, PhDClinicalDirector,Anxiety&AgoraphobiaTreatmentCenterClinicalAssistantProfessorofPsychology,RosalindFranklinUniversityInstructor,DepartmentofBehavioralSciences,RushPresbyterianSt.Luke’sMedicalCenterJohn Greist, MDDistinguishedSeniorScientist,MadisonInstituteofMedicineDirector,HealthcareTechnologySystemsClinicalProfessorofPsychiatry,UniversityofWisconsinMedicalSchoolDavid Jacobi, PhDClinicalSupervisorandBehaviorSpecialist,Child&AdolescentCenterandChildCenter,RogersMemorialHospitalPatrick McGrath, PhDDirector,CenterforAnxietyandObsessiveCompulsiveDisordersCo-Director,SchoolAnxietyandSchoolRefusalProgramAlexianBrothersBehavioralHealthHospitalC. Alec Pollard, PhDDirector,AnxietyDisordersCenter,SaintLouisBehavioralMedicineInstituteProfessorofCommunityandFamilyMedicine,SaintLouisUniversityBradley C. Riemann, PhDDirector,OCDCenterandCognitiveBehavioralTherapyServicesRogersMemorialHospital
February, Brooklyn, New York BTTI
The IOCDF Board of Directors voted to hold three BTTI’s in 2010. The first of these was held February 14-16 in Brooklyn, NY, at the Downstate Medical Center, SUNY Typically BTTI’s are held Fridays - Sundays. Recognizing that this interferes with Jewish tradition, this BTTI was moved to a Sunday - Tuesday format and was co-hosted by Nefesh and Downstate Medical Center. This BTTI was sold out with 30 attendees.
Faculty:
Jeremy Coplan, MDProfessorofPsychiatry,StateUniversityofNewYork(SUNY)Director,DivisionofNeuropsychopharmacology,SUNYDownstateMedicalCenter
Steven Friedman, PhD, ABPP
ProfessorofClinicalPsychiatry,StateUniversityofNewYork(SUNY)Director,Phobia&AnxietyDisordersClinic,SUNYDownstateMedicalCenter
Fugen Neziroglu, PhD
ClinicalDirector,Bio-BehavioralInstituteProfessor,HofstraUniversityandNewYorkUniversity
Fred Penzel, PhD
Director,WesternSuffolkPsychologicalServices
Diane E. Scholomskas, PhD
DirectorofResearch,AppliedBehavioralResearchAssistantClinicalProfessorinPsychiatry,YaleUniversitySchoolofMedicine
Aureen Pinto Wagner, PhD
Director,AnxietyWellnessCenterClinicalAssociateProfessor,DepartmentofNeurology,UniversityofRochesterSchoolofMedicine
C. Alec Pollard, PhD
Director,AnxietyDisordersCenter,SaintLouisBehavioralMedicineInstitute
ProfessorofCommunityandFamilyMedicine,SaintLouisUniversity
Since 1994, the International OCD Foundation has been holding Behavior Therapy Training Institutes (BTTI) in different cities around the country. Led by the Chair of the BTTI faculty, C. Alec Pollard, PhD, the BTTI is a three-day intensive course on the diagnosis and treatment of OCD and related disorders designed by members of the Foundation’s Scientific Advisory Board. The subjects covered in the first two days of didactics include an introduction to OCD and related disorders; effective treatment modalities including cognitive behavior therapy, especially Exposure and Response Prevention and medications that have been proven effective; and a section on treating children and adolescents with OCD. On the third day of the Institute, attendees break up into small groups of five or six. A member of the BTTI faculty leads each group. In these sessions attendees develop treatment plans for a current OCD patient they are working with. All attendees then have three follow up phone sessions with the leader of their group following the completion of the formal three-day Institute. Of note, we are able to keep the fee for the registrants very affordable due to significant contributions from Thomas and Eileen Lamberti.
BEHAVIOR THERAPY TRAINING INSTITUTE
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Alec Pollard, PhD, Chair, BTTI Faculty
• Dr. Fugen Neziroglu
“OCD: The Beginning”
• Jeff Bell
“Hit And Run”
• Jared Kant
“Never Worry”
• Jeffrey Sparr
“Create Peace of Mind”
• Marilyn Luchini
“Losing Michael”
• Dr. Michael Jenike
“An OCD Adventure in Portugal”
• Kristen Love
“Fighting for my Free Spirit”
gathered to hear many of the stories told in person. A newly forming OCD Texas affiliate used this as their kick off event, attracting 75 attendees. Rogers Memorial Hospital merged their annual Gala event with our broadcast and we watched Kristen Love tell her story from Wisconsin along with 400 attendees gathered at the hospital that night.
We want to thank our storytellers for doing such an amazing job of communicating the pain, perseverance, and hope that is associated with OCD. We received an enormous amount of feedback from the OCD community about how moved and inspired viewers were by each of these individuals’ stories. The broadcast was videotaped and is available online at: www.ocfoundation.org/awareness
The International OCD Foundation and associated groups from across the country came together during the week of October 11-17, 2010 to educate their communities and the public as a whole about Obsessive Compulsive Disorder (OCD) and its treatments. Several of the nation’s leading experts and pioneers in the field of OCD talked about how they work with those who suffer daily from this debilitating disorder. Drs. Aureen Wagner and Jonathan Abramowitz gave a talk in North Carolina while Dr. Fugen Neziroglu and her colleagues ran a one-day conference of workshops and talks in New York. A support group in Poughkeepsie, New York and the OCD Western Pennsylvania affiliate held story-telling events during the week. A group in Nova Scotia, Canada set up an OCD information booth and PeaceLove Studios held a Paint4Peace activity in Rhode Island. We generated 300 additional Facebook fans due to individuals donating their status updates, and individuals sent in Letters to the Editor that were printed in their local newspapers. OCD Awareness Week was also featured on Time.com and on New England Cable News. Overall, groups in 13 different states hosted activities during the week. The week ended with a live, Internet broadcast of OCD Stories.
Viewing parties were held in 9 states nation-wide and we tracked almost 500 unique hits to the live video streaming of the event. In Boston, it was standing room only as 175 people
OCD AWARENESS WEEK
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Visitors come to the IOCDF website to learn about OCD, to find helpful resources, support groups and experienced treatment providers. In 2010 we updated our support group database providing a quick and easy way to search for support groups in one’s local area. We list approximately 250 support groups all over the country (as well as some international support groups we are aware of). The database features a Google search engine that generates an interactive map. In 2011, our treatment provider database will also be updated and contain the same features and flexibility as the support group database.
In 2010 we were also able to launch our new Hoarding Center (www.helpforhoarding.org). This was a collaboration between internationally recognized hoarding experts (and IOCDF Scientific Advisory Board members) Randy Frost, PhD and Gail Steketee, PhD and IOCDF Web Developer Fran Harrington. Hoarding has been a hidden disorder for many years. Before the early 1990’s, there was little research on hoarding. Since then, however, interest has increased dramatically among research scientists and clinicians. Recent media coverage of hoarding has also increased awareness and interest among sufferers, family members, and human service personnel who often deal with the problem. The IOCDF Hoarding Center was designed to provide the most up-to-date and accurate information about hoarding and its treatment.
WEBSITEIn the beginning of 2010, the Winter newsletter contained articles about updates to our website as well as various themes involved in the treatment of OCD (ethics and ERP, integrating technology into CBT for OCD, and community versus office based treatment). The Spring 2010 newsletter reviewed the highlights of the Annual Conference and contained articles about different perspectives within the OCD community (children who have a parent with OCD, patient turned therapist) as well as a promising new treatment for OCD: Acceptance and Commitment Therapy. In the Summer, the newsletter recapped the successes of the conference, featured an essay contest winning article by 11-year old Max Mickenberg, an announcement of 2010 Research Grant Award winners, and articles on OCD subtypes and Inference-Based Therapy for OCD. In the Fall 2010 issue, we reviewed OCD Awareness Week events, and ran articles on compulsive homework, OCD and depression, and the importance of participation in research studies.In every issue we included first hand accounts by those struggling with OCD and their family members. There were updates from IOCDF affiliates, opportunities for individuals to participate in ongoing OCD related research, and information about resources including intensive OCD treatment programs and our Behavior Therapy Training Institutes.
OCD NEWSLETTER
Homepage
Support Group Database
Hoarding Center
OCDPhiladelphia
Contact information:Theresa Cohen, President Mary Nuxoll, Vice-President c/o AATC 112 Bala Avenue Bala Cynwyd, PA 19001 Phone: (215) 676-3238 Fax: (610) 667-1744 Website: www.philaocdgoal.org Email: [email protected] served:Eastern half of Pennsylvania
OCDWesternPA
Contact information:Elaine F. Davis, PhD, President Hilary Zurbuch, MS, Vice-President PO Box 81648 Pittsburgh, PA 15217 Phone: (412) 363-6231 Website: www.ocfwpa.orgEmail: [email protected] Facebook page: http://www.facebook.com/pages/Obsessive-Compulsive-Foundation-of-Western-Pennsylvania/108186369206615 Area served:Western half of Pennsylvania
OCDPuertoRico
Contact information:Millie Court, President 313 T 21 Bayamon, PR 00959 Phone: (787) 294-6726Area served:Territory of Puerto Rico
OCDTexas
Contact information:Irene Tobis, PhD, President Phone: (512) 327-9494 Website: http://public.ocdtexas.org Email: [email protected] served:State of Texas
OCDBoston
Contact information:Denise Egan Stack, President McLean Hospital 115 Mill St. Belmont, MA 02478 Phone: (617) 872-0935Website: www.ocfboston.org Facebook Page: http://www.facebook.com/group.php?gid=77029112737 Email: [email protected] served:State of Massachusetts
OCDTwinCities
Contact information:Renae Reinardy, PsyD, President 3432 Denmark, Suite #97 Eagan, MN 55123 Website: www.ocdtc.org Facebook Page: http://www.facebook.com/pages/OCD-Twin-Cities/90361474300?ref=ts Email: [email protected] served:250 miles surrounding zip code 55104
OCDNewJersey
Contact information:Ina Spero, President Allen H. Weg, EdD, Vice President 60 MacAfee Road Somerset, NJ 08873 Phone: (732) 828-0099 Fax: (732) 828-7088 Website: www.njocf.orgEmail: [email protected] served:State of New Jersey
OCDNewYork
Contact information:Fugen Neziroglu, PhD, President Phone: (516) 442-9621 Website: ocdny.orgEmail: [email protected] served:State of New York
OCDGreaterDenver
Contact information:Michael Stein, PsyD, President 720-248-7057 [email protected] served:100 miles surrounding zip code 80222
OCDJacksonville
Contact information:Laurie McDonagh, President Gay Nightingale, Vice President 8495 Bluestem Court Jacksonville, FL 32244-6025 Phone: (904) 728-7834 Alternate Phone/Fax: (888) 783-3211 Website: www.ocfjax.org Email: [email protected] served:Northern half of Florida
OCDMidwest
Contact information:Patrick McGrath, PhD Email - [email protected] Phone - TBDArea served:Illinois, Indiana, Ohio and Wisconsin
OCDMidAtlantic
Contact information:Charles Mansueto, PhD [email protected] (301) 593-4040T. Carter Waddell [email protected] (202) 643-6231 (202-MID-OCD1) website: http://www.ocdmidatlantic.orgArea served:100 miles north and 150 miles south of 20901 zip code
All of our affiliates carry out the mission of the International OCD Foundation through programs at the local, community level. Each of our affiliates are non-profit organizations that are run entirely by dedicated volunteers. Programming includes local fundraisers, membership drives, regional conferences, newsletters, support groups, lecture series, and participating in OCD Awareness Week (see page 7 for more about OCD Awareness week). We want to thank all of these volunteers for their hard work, time, and dedication.If you would like to find help in your community or would like to volunteer in grassroots efforts to raise awareness and funds locally, please contact one of our affiliates below.
OCDNorthwestArkansas
Contact information:Suzanne Meunier, PhD [email protected] (479) 200-1922
Area served:
100 miles surrounding Fayetteville, AR
OCDSanFranciscoBayArea
Contact information:Mary Weinstein [email protected] Website: www.ocd-bayarea.com Email: [email protected] Address:Scott Granet, LCSW P.O. Box 3313 Redwood City, CA 94064-3313 Phone: (415) 273-7273Area served:9 Bay Area Counties - Alameda, Contra Costa, Marin, Napa, San Francisco, San Mateo, Santa Clara, Solano, and Sonoma
OCDSacramento
Contact information:Robin Zasio, PsyD, LCSW, President P.O. Box 279035 Sacramento, CA 95827 Phone: (916) 366-0647, Ext. 4 Website: http://www.ocdsacramento.org Email: [email protected] served:Vacaville (western border), Reno (eastern border), Fresno (southern border), Reno (northern border)
AFFILIATES
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Eric Storch, PhD
Director,UniversityofSouthFloridaObsessiveCompulsiveDisorderProgram
AssociateProfessor,UniversityofSouthFlorida
ScientificAdvisoryBoard,InternationalOCDFoundation
Gail Steketee, PhD
DeanandProfessor,BostonUniversity’sSchoolofSocialWork
Co-Author,“Stuff:HoardingandtheMeaningofThings”
ScientificAdvisoryBoard,InternationalOCDFoundation
Chris Trondsen
SupportGroupLeader
OCDAdvocate
Sabine Wilhelm, PhD
Director,BodyDysmorphicDisorderClinic&ResearchUnit,MassachusettsGeneralHospital
Director,OCDandRelatedDisordersProgram,MassachusettsGeneralHospital
ViceChair,ScientificAdvisoryBoard,InternationalOCDFoundation
Robin Zasio, PsyD, LCSW
Director,AnxietyTreatmentCenterofSacramento
Director,CognitiveBehaviorTherapyCenterofSacramento
ScientificAdvisoryBoard,InternationalOCDFoundation
Gerald Nestadt, MD, MPH
ProfessorofPsychiatry,JohnsHopkinsMedicalInstitutions
Director,JohnsHopkinsOCDClinic
PrincipalInvestigator,OCDCollaborativeGeneticsAssociationStudy
Fugen Neziroglu, PhD, ABBP, ABPP
ClinicalDirector,Bio-BehavioralInstitute
ScientificAdvisoryBoard,InternationalOCDFoundation
President,OCDNewYorkAffiliate
C. Alec Pollard, PhD
Director,AnxietyDisordersCenter,SaintLouisBehavioralMedicineInstitute
ScientificAdvisoryBoard,InternationalOCDFoundation
Chair,BehaviorTherapyTrainingInstitute,InternationalOCDFoundation
Sanjaya Saxena, MD
Director,UniversityofCaliforniaSanDiegoObsessiveCompulsiveDisordersProgram
ScientificAdvisoryBoard,InternationalOCDFoundation
Consultant,“AsGoodAsItGets”(SonyPictures,1997)
Shannon Shy
RetiredLt.Colonel,USNavy
Author,“It’llBeOkay:HowIKeptObsessiveCompulsiveDisorder(OCD)fromRuiningMyLife”
Scott Granet, LCSW
President&Co-Founder,OCDSanFranciscoBayAreaAffiliate
Jonathan B. Grayson, PhD
Co-Director,AnxietyandAgoraphobiaTreatmentCenter
ScientificAdvisoryBoard,InternationalOCDFoundation
BoardofDirectors,OCDPhiladelphiaAffiliate
Jared Kant
Author,TheThoughtThatCounts:APersonalTaleofTrialandUltimateTriumph
OCDAdvocate
ElizabethMcIngvale
Founder,PeaceofMind
NationalSpokespersonInternationalOCDFoundation
Jonathan Abramowitz, PhD
DirectoroftheOCD/AnxietyDisordersClinic,UniversityofNorthCarolinaatChapelHill
Author,“GettingOverOCD”
ScientificAdvisoryBoard,InternationalOCDFoundation
Jeff Bell (Bibel)
Author,“WheninDoubt,MakeBelief”
BoardofDirectors,InternationalOCDFoundation
NationalSpokesperson,InternationalOCDFoundation
Randy Frost, PhD
ProfessorofPsychology,SmithCollege
Co-Author,“Stuff:HoardingandtheMeaningofThings”
ScientificAdvisoryBoard,InternationalOCDFoundation
Since 1986, the IOCDF has reached out to tens of thousands of people with OCD, their families, service providers, policymakers and others to raise awareness about the disorder, to help connect people with OCD to treatment providers, and to advance research into more effective treatments. In 2008, the IOCDF launched the Speakers Bureau to continue these goals and missions of the IOCDF. The IOCDF Speakers Bureau includes people with OCD who understand firsthand the challenges of this disorder, and the importance of effective treatment. Among them are Jeff Bell and Elizabeth McIngvale who also serve as National Spokespersons for the Foundation, helping to spread our message that while the challenges are great, there is real hope for people with OCD. Other speakers include renowned medical and research experts who have treated people with OCD and/or engaged in cutting edge research to understand the causes of the disorder and to find more effective treatments. All of our speakers are trained to provide informative presentations on OCD to a variety of audiences.
SPEAKERS BUREAU
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Judith L. Rapoport, MD
NationalInstituteofMentalHealth,Bethesda,MD
Steven Rasmussen, MD
ButlerHospital,Providence,RI
Scott L. Rauch, MD
MassachusettsGeneralHospital,Boston,MAMcLeanHospital,Belmont,MA
Bradley C. Riemann, PhD
RogersMemorialHospital,Oconomowoc,WI
Barbara Rothbaum, PhD
EmoryClinic,Atlanta,GA
Sanjaya Saxena, MD
Professor,UCSDDepartmentofPsychiatry
Director,UCSDOutpatientPsychiatricServices
Gail Steketee, PhD
BostonUniversity,Boston,MA
S. Evelyn Stewart, MD
UniversityofBritishColumbiaMassachusettsGeneralHospital
Eric A. Storch, PhD
UniversityofSouthFlorida,St.Petersburg,FL
Barbara L. Van Noppen, PhD
UniversityofSouthernCalifornia,LosAngeles,CA
Aureen P. Wagner, PhD
UniversityofRochester,Rochester,NY
Allen Weg, Ed.D.
Stress&AnxietyServicesofNewJerseyEastBrunswick,NJ
Robin Zasio, PsyD., LCSW
TheAnxietyTreatmentCenter,Sacramento,CA
Bruce Mansbridge, PhD
AustinCenterfortheTreatmentofOCD,Austin,TX
Charles S. Mansueto, PhD
BehaviorTherapyCenterofGreaterWashington,SilverSpring,MD
Brian Martis, MD
UniversityofMichigan,AnnArbor,MI
Patrick McGrath, PhD
AlexianBrothersBehavioralHealthHospital,HoffmanEstates,IL
Dean McKay, PhD
FordhamUniversity,Bronx,NY
Tanya K. Murphy, MD
UniversityofSouthFlorida,St.Petersburg,FL
Gerald Nestadt, MD, PhD
JohnsHopkinsHospital,Baltimore,MD
Fugen Neziroglu, PhD
Bio-BehavioralInstitute,GreatNeck,NY
David Pauls, PhD
HarvardMedicalSchool,Boston,MAMassachusettsGeneralHospital,Boston,MA
Fred Penzel, PhD
WesternSuffolkPsychologicalServices,Huntington,NY
Katherine A. Phillips, MD
RhodeIslandHospital,ProvidenceRI
Steven Phillipson, PhD
CenterforCognitiveBehavioralPsychotherapy,NewYork,NY
Christopher Pittenger, MD, PhD
YaleUniversity,NewHaven,CT
C. Alec Pollard, PhD
St.LouisBehavioralMedicineInstitute,St.Louis,MO
Edna B. Foa, PhD
UniversityofPennsylvania,Philadelphia,PA
Martin E. Franklin, PhD
UniversityofPennsylvania,Philadelphia,PA
Randy Frost, PhD
SmithCollege,Northampton,MA
Wayne K. Goodman, MD
MountSinaiMedicalCenter,NewYork,NY
Jonathan Grayson, PhD
TheAnxietyandOCDTreatmentCenter,Philadelphia,PA
Benjamin D. Greenberg, MD, PhD
ButlerHospital,Providence,RI
John H. Greist, MD
MadisonInstituteofMedicine,Madison,WI
William A. Hewlett, MD, PhD
VanderbiltUniversityMedicalCenter,Nashville,TN
Bruce M. Hyman, PhD, LCSW
OCDResourceCenterofFlorida,Hollywood,FL
Nancy J. Keuthen, PhD
MassachusettsGeneralHospital,Boston,MA
Lorrin M. Koran, MD
StanfordUniversityMedicalCenter,Stanford,CA
Michael Jenike, MD, Chair
MassachusettsGeneralHospital,Boston,MAOCDInstitute,McLeanHospital,Belmont,MA
Sabine Wilhelm, PhD, Vice Chair
MassachusettsGeneralHospital,Boston,MAHarvardMedicalSchool,Boston,MA
Jonathan S. Abramowitz, PhD
UniversityofNorthCarolinaatChapelHill,ChapelHill,NC
Thröstur Björgvinsson, PhD
TheHoustonOCDProgram,Houston,TX
Dennis S. Charney, MD
MountSinaiSchoolofMedicine,NewYork,NY
James Claiborn, PhD
SouthPortland,ME
Vladimir Coric, MD
YaleUniversity,NewHaven,CT
Darin D. Dougherty, MD
MassachusettsGeneralHospital,Boston,MAOCDInstitute,McLeanHospital,Belmont,MA
Jeanne Fama, PhD
MassachusettsGeneralHospital,Boston,MA
Jamie Feusner, MD
UniversityofCaliforniaatLosAngeles,LosAngeles,CA
Members of the IOCDF Scientific Advisory Board (SAB) are among the best clinicians and investigators in the United States who treat and/or conduct research on OCD and related disorders. SAB members are involved in the IOCDF in multiple ways including participation on a Grant Review Committee to review OCD research proposals submitted for possible grant funding, participation as speakers in the Annual Conference, participation as faculty for the Behavior Therapy Training Institute, and contributing articles to the quarterly newsletter. In addition, much of the new material on our website was contributed by members of our SAB, led by the Chair of our Clinical Advisory Committee – Bradley Riemann, PhD from Rogers Memorial Hospital. Thank you to Dr. Riemann and all of our SAB members for their help this year. Below is a list of the rest of our SAB membership for 2010:
SCIENTIFIC ADVISORY BOARD
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Contributions 23%Dues 13%Conferences 19%Combined Federal Campaign 7%In-Kind Contributions 8%BTTI Fees 1%Literature 0.3%Grant Income 27%
Research and Education 80%Fundraising 5%General and Administrative 15%
Not VisibleInterest and Dividends 0.03%Misc. 0.01%
Contributions 23%Dues 13%Conferences 19%Combined Federal Campaign 7%In-Kind Contributions 8%BTTI Fees 1%Literature 0.3%Grant Income 27%
Research and Education 80%Fundraising 5%General and Administrative 15%
Not VisibleInterest and Dividends 0.03%Misc. 0.01%
FINANCES
1817
SupportandRevenue
Expenses
InternationalOCDFoundation,Inc.StatementsofActivitiesYearsEndedDecember31,2010and2009
2010 2009 Temporarily Temporarily Unrestricted Restricted Total Unrestricted Restricted TotalSupport and Revenue
Contributions 302,220 $525,576 $827,796 $288,232 $187,233 $475,465
Dues 174,881 - 174,881 189,195 - 189,195
Conferences 252,691 - 252,691 187,100 - 187,100
Combined Federal Campaign 96,395 - 96,395 72,100 - 72,100
In-kind contributions 103,606 - 103,606 110,346 - 110,346
Grants - 206,600 206,000 54,108 72,500 126,608
Behavior Therapy Institute fees 16,925 - 16,925 33,600 - 33,600
Literature 3,200 - 3,200 3,211 - 3,211
Net realized and unrealized investment
gains (losses) - - - (2,296) 2,999 703
Interest and dividends 360 79 439 2,069 186 2,255
Miscellaneous income 105 - 105 1,397 - 1,397
Grant income 348,639 (348,639) - 299,673 (299,673) -
Total support and revenue 1,299,022 (383,016) 1,682,038 1,238,735 36,755 1,201,980
Expenses
Research and education 1,104,592 - 1,104,592 1,093,206 - 1,093,206
Fundraising 70,017 - 70,017 55,860 - 55,860
General and administrative 210, 263 - 210,263 160,594 - 160,594
Total expenses 1,384,872 - 1,384,872 1,309,660 - 1,309,660
Change in Net Assets (85,850) 383,016 297,166 (70,925) (36,755) (107,680)
Net Assets, Beginning of Year 485,667 - 485,667 556,592 36,755 593,347
Net Assets, End of Year $399,817 $383,016 $782,833 $485,667 - $485,667
BOARD OF DIRECTORS AND STAFF
2010IOCDFStaffExecutive DirectorJeffSzymanski,PhD
Program DirectorMichaelSpigler,MCHES
Finance ManagerPamelaLowy
Program CoordinatorMarissaKeegan
Web DeveloperFranHarrington
Administrative AssistantVictorSulkowski
Public Relations/Media ConsultantsTeakMedia
Legal CounselKathleenF.Bornhorst
AuditorsMillerWachmanLLP
2010BoardofDirectors President DianeDavey,RN
Vice President ChristinaVertullo
TreasurerMichaelStack,CFA
SecretaryDeniseEganStack,LMHC
DirectorsJeffBellSusanBDailey MichaelJenike,MDJoyKantThomasLamberti,Esq.PattiPerkins,JDFrancesSydneyCarterWaddell
International OCD Foundation PO Box 961029
Boston, MA 02196 617.973.5801
www.ocfoundation.org
