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“Grassroots and Coali.ons: U.lizing Partnerships to Amplify

Your Voice” JessicaN.Bateman,MS

Manager,Pa4ent&ResearchAdvocacyAmericanUrologicalAssocia4on

JordanEndico@,JDManager,HealthPolicy&AdvocacyAmericanAcademyofHospice&Pallia4veMedicine

• Addressanddiscusshowmedicalassocia5onsandorganiza5onscanpartnerwithotherorganiza5onsforsuccessfulgrassrootsefforts;•  Iden5fypoten5albenefitsofjoiningacoali5on;•  Iden5fykeyconsidera5onstoassessbeforejoiningacoali5on;• Discussstrategiesforsuccessfulcoali5onmanagementand;• Provideexamplesofvariouscoali5onstructures.

This session will:

About the American Urological Associa.on

Foundedin1902andheadquarterednearBal5more,Maryland,theAmericanUrologicalAssocia5onisaleadingadvocateforthespecialtyofurology,andhasmorethan22,000membersthroughouttheworld.TheAUAisapremierurologicassocia5on,providinginvaluablesupporttotheurologiccommunityasitpursuesitsmissionoffosteringthehigheststandardsofurologiccarethrougheduca5on,researchandtheformula5onofhealthpolicy.

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About the American Urological Associa.on

• Advocacypartnershipswithpa5entsandphysicianorganiza5onsarekeyinadvancinglegisla5vepriori5es.

•  TheAUAisaleadingadvocateforthespecialtyofurologyandmaintainsaconsistentpresenceinWashington,DC,workingwithlawmakersandregulatorstopromoteandpreservetheinterestsofurologists.

What is a Coali.on?

Acoali5onisaunionofpeopleandorganiza5onsworkingtoinfluenceoutcomesonaspecificissueorproblem.

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BenefitsofCoali5ons• Coali5onsoffergreatercredibilitythansingleorganiza5ons.• Allowssmallergroupstohavealargervoice.• Createsaforumforsharinginforma5on.• Bycombiningresourcesandworkingtogether,oneunitbecomesmorepowerfulandthelikelihoodofsuccessincreases.• Gainaccesstothecontacts,connec5ons,andrela5onshipsofpartnermembers.

Key Considera.ons: Your Organiza.on’s Structure

• Areyourorganiza5on’sgoalssimilarandcompa5bletothecoali5on’s?• Willjoiningthecoali5onenhanceyourprobabilityofachievingyourgoals?• Doespar5cipa5oninthecoali5onelevateyourprofile?• Doesbenefitoutweighthecost?

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Key Considera.ons:

The Coali.on’s Structure • Whatisthecoali5on’sreputa5onofactuallygeYngthings

done?•  Isthecoali5onworkingonaspecificlegisla5veissuethatisspecificallyrelevanttoyourorganiza5on’smissionandgovernmentrela5onsstrategyandobjec5ves?• Whatisthe5mecommitmentofthecoali5onandcanyourealis5callypar5cipate?• Whataretheguidelinesofwhocanjointhecoali5on?

Key Considera.ons: How does the Group Reach Consensus? • Considersize•  Largergroupstendtouseapercentage,smallergroupstendtorequireunanimousagreement

• Considermission(narrowvs.broad)

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Key Considera.ons: What is the cost?

•  Isthereacosttojoinandwhatisthecoststructure?• Willthebenefitsofjoiningbegreaterthanthecosts?• Whomanagesthecommitmentoforganiza5onsanddetermina5onofcost(governancestructure)?

Key Considera.ons: Coali.on’s Resources

• Visibility• Websiteandadministrator•  Listserve–howwilltheorganiza5oncommunicate•  Socialmediaplaaorms• Newslecers,eventsandworkshops

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TheDefenseHealthResearchConsor4um

Defense Health Research Consor.um

TheDefenseHealthResearchConsor4um•  Over30members• Mission–tocallontheHouseandSenateAppropria5onsCommiceestocon5nuesupportforseveraldozenmedicalresearchprogramsattheDepartmentofDefense.• Meetsadhoc•  Emailupdates• Websiteandsocialmediapresence•  Duesare5eredbasedonrevenue($250-$3,000)•  Decisionsareunanimous(beginningwithexecu5vecommicee)•  PaidfirmorganizesCapitolHillmee5ngsandsign-onlecers

One Voice Against Cancer •  50members(allpa5entadvocacyorganiza5ons)•  Mission–todeliveraunifiedmessagetoCongressandtheWhiteHouseontheneedforincreasedcancer-relatedappropria5ons.

•  Annualdues,5eredbasedonrevenue($1,000-$5,300)•  Consensusismajority•  Managingorganiza5ondistributessign-onlecersandorganizesCapitolHillmee5ngs

•  Monthlymee5ngsbyphoneorinperson(includesendofyearstrategicplanningsession)

•  Organize2fly-insperyear•  Guestspeakers,briefingsandnetworkingevents• Websiteandsocialmediapresence

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Alliance of Specialty Medicine •  13organiza5ons(na5onalmedicalsocie5esrepresen5ng

specialtyphysicians)•  Consensusisdeterminedby70%agreement• Mission–Dedicatedtothedevelopmentofsoundfederalhealthcarepolicythatfosterspa5entaccesstothehighestqualityspecialtycare•  Convenesweekly•  Annualduesbasedonrole($45,000=AdvisoryCouncilrole)•  Highreturnoninvestment

Alliance of Specialty Medicine •  Greatreputa5ononCapitolHill

•  Opportunitytopar5cipateinpolicyroundtables,mee5ngswithHHSSecretary•  Submitwricentes5monyathearings•  Largeannualfly-in(2.5days)withhighprofilespeakers•  Lobbyingfirmmanagessignonlecersandlegisla5vemee5ngs

AboutAAHPM

•  Fornearlythreedecades,theAmericanAcademyofHospiceandPallia5veMedicinehasbeenthehomeandonlyna5onalmedicalspecialtysocietyforhospiceandpallia5vemedicineprofessionals.

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AboutAAHPM

•  Over5,000members– Prac5ceseYngs:hospice,academic,communityhospital,clinicalprivateprac5ce,governmentfacility/VA,other

AAHPMandCoali5ons

•  Hospiceandpallia5vemedicineisanewerspecialty,andwith5,000membersAAHPMisasmallervoiceonourown

•  Despitethenewnessoftheprofession,thereareaplethoraoforganiza5onsinthefield

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OtherOrganiza5ons

•  Otherorganiza5ons:– Na5onalHospiceandPallia5veCareOrganiza5on– CentertoAdvancePallia5veCare– CentertoTransformAdvancedCare– Hospice&Pallia5veCareNursesAssocia5on– AmericanCancerSociety– Otherorganiza5onsforphysicianassistants,socialworkers,chaplains,painmedicine,oncology,andaddi5onalpa5entorganiza5ons

Compe5ngVoices

•  Individually,theadvocacypriori5esoftheseorganiza5onscanclash.– Someemphasizethepallia5vecareaspect,whileothersfocusmoreonhospiceandend-of-life.

•  ConflictcanalsoresultinseveralsimilarbillsinCongress,andvoicescompe5ngwithlawmakers

ImportanceofCoali5ons

•  Toraiseourimpact,AAHPMpar5cipatesintwocoali5ons:– Pa5entQualityofLifeCoali5on•  Morefocusedonpallia5vecareandqualityoflife

– Na5onalCoali5onforHospiceandPallia5veCare•  Inclusiveofhospiceandend-of-lifecare

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WorkwithCoali5ons

•  BoththePQLCandNCHPCholdmonthlycalls,alongwithaddi5onalsubcommiceecallsfordifferentissuessuchasadvocacy,communica5on,andregulatoryissues.

•  Makedecisionswhetherornottoendorselegisla5onasacoali5on

•  Excellentchannelofcommunica5onforprovidingupdatesonotherpriori5es

ResultsofCollabora5on

•  Pallia5veCareandHospiceEduca5onandTrainingAct(PCHETA),H.R.1676/S.693.

PCHETA

•  TherootsofPCHETAinCongressbeganwiththePallia5veCareTrainingActin2004,andupdatedtothecurrentPCHETA5tlein2012.

•  Inthe113thCongress,theAmericanCancerSocietyCancerAc5onNetworkhadacompe5ngpallia5vecarebill,thePa5ent-CenteredQualityCareforLifeAct.

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PCHETA

•  Forthe114thCongress,AAHPMandACSCANu5lizeconnec5onsforgedthroughthePQLCtoworkoncombiningthetwobillsunderPCHETA.– NewprovisionswereaddedfromACSCAN’sbill,andthelegisla5onwasreintroduced.

•  Thebilldidnotpass,butgarnered234cosponsors,with89Republicans.Ahearingwasalsoheldonthemeasureforthefirst5me.

PCHETASupportedbyover50organiza4ons,including:Alzheimer’sAssocia5onAmericanCancerSocietyAmericanHeartAssocia5on/AmericanStrokeAssocia5onAmericanGeriatricsSocietyAmericanAcademyofPhysicianAssistantsHospiceandPallia5veNursesAssocia5onVisi5ngNurseAssocia5onsofAmericaNa5onalAssocia5onofSocialWorkersNa5onalHospiceandPallia5veCareOrganiza5onCatholicHealthAssocia5onoftheUnitedStates

VirtualLobbyDay

•  In2016,AAHPMbegandoingaVirtualLobbyDaywithalltheotherorganiza5onsinthePa5entQualityofLifecoali5on.– Thegoalbeingtoselectonedaytoencouragememberstocontacttheirlegislatorsthroughsocialmedia,email,orcalls.

•  Lowcost,everyonehasaccesstosocialmedia,andcanelevateyourissues.

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2017VirtualLobbyDay

•  WeaskedmemberstotweettheHouseEnergy&CommerceCommiceeleadersandaskforamarkup,andusetheAAHPMLegisla5veAc5onCentertosendemails.– Over8millionimpressionsonTwicerbynearly800par5cipants– Over200individualac5vi5esonLAC– Addednearly20cosponsors

2017VirtualLobbyDay

OtherAvenuesforCollabora5on

•  AMA–HouseofDelegates•  Mul5specialtycogni5vecarecoali5onworkingonphysicianpaymentissues

•  CouncilofMedicalSpecialtySocie5es•  ChoosingWisely®campaign•  StateHPCOs;StatePainPolicyAc5onNetwork•  Individualorgsasitmakessense(e.g.NHPCO,AGS,ASCO)

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Formoreinforma4on:jendico@@aahpm.orgjbateman@auanet.org

Thank you!