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PATH To Real Person-Centered Solutions Arc of Illinois Webinar February 11, 2020 Kish Pisani, Executive Director Illinois Association of Microboards and Cooperatives
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Page 1: Arc of Illinois Webinar - thearcofil.org · Wife Driver Mom Cook Sister Referee Advocate Daughter Coach Learner Dog Mom Friend ... Centered Planning Tools Microboards and Cooperatives

PATH To Real Person-Centered

Solutions

Arc of Illinois WebinarFebruary 11, 2020

Kish Pisani, Executive DirectorIllinois Association of Microboards and Cooperatives

Page 2: Arc of Illinois Webinar - thearcofil.org · Wife Driver Mom Cook Sister Referee Advocate Daughter Coach Learner Dog Mom Friend ... Centered Planning Tools Microboards and Cooperatives

Wife DriverMom CookSister RefereeAdvocate DaughterCoach LearnerDog Mom Friend

Executive DirectorIllinois Association of Microboards & Cooperatives

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Live Stream….

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Our PATH for this webinar….

Person Centered Planning

Tools

Microboards and

Cooperatives

Your PATH

What is IAMC

Page 5: Arc of Illinois Webinar - thearcofil.org · Wife Driver Mom Cook Sister Referee Advocate Daughter Coach Learner Dog Mom Friend ... Centered Planning Tools Microboards and Cooperatives

What is the Illinois Association of Microboards & Cooperatives (IAMC)?

Our mission is to promote and facilitate the development of Microboards and Cooperatives for the benefit of individuals with disabilities so that they may live fulfilling lives as valued members of their communities.

We carry out this mission by providing information, advocacy, support and training that will assist persons with disabilities and their families/friends to create alternatives that will allow the persons to live self-directed lives through the use of person-centered planning, community supports, and resource management.

Page 6: Arc of Illinois Webinar - thearcofil.org · Wife Driver Mom Cook Sister Referee Advocate Daughter Coach Learner Dog Mom Friend ... Centered Planning Tools Microboards and Cooperatives

What is the Illinois Association of Microboards & Cooperatives (IAMC)?

Our vision is every person empowered to live a quality life, included in and valued by their communities.

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8

Everyone. Has unique gifts and talents to share.

Everyone deserves dignity, respect and the opportunity for choice with responsibility..

Everyone deserves the right to live in the home of their choice and to have control over their own environment.

Everyone deserves the opportunity to try, to fail, to learn from unsuccessful attempts, and to try again.

Everyone has something to say and deserves the right to be heard by their own means of expression.

Everyone deserves the opportunity to make meaningful contributions to their community through income-producing work, volunteering

Page 9: Arc of Illinois Webinar - thearcofil.org · Wife Driver Mom Cook Sister Referee Advocate Daughter Coach Learner Dog Mom Friend ... Centered Planning Tools Microboards and Cooperatives
Page 10: Arc of Illinois Webinar - thearcofil.org · Wife Driver Mom Cook Sister Referee Advocate Daughter Coach Learner Dog Mom Friend ... Centered Planning Tools Microboards and Cooperatives

First…..

How to Build a PATH

Start with a solid foundation….

Page 11: Arc of Illinois Webinar - thearcofil.org · Wife Driver Mom Cook Sister Referee Advocate Daughter Coach Learner Dog Mom Friend ... Centered Planning Tools Microboards and Cooperatives

Person-Centered Thinking is….

Ø Everyday way of thinkingØ Puts the person first (let’s change the language)Ø Focus on a person’s gifts and talents – and acknowledges a

need for supportØ Impacts now and….Ø Foundation for the future and action plans

NOT about functioningNOT about programs or program basedNOT about letting a person “get their way”

Page 12: Arc of Illinois Webinar - thearcofil.org · Wife Driver Mom Cook Sister Referee Advocate Daughter Coach Learner Dog Mom Friend ... Centered Planning Tools Microboards and Cooperatives

Person-Centered Planning is

A process that uses creative facilitation tools to assist a focus person in development a plan on how they wish to live, work, and contribute to their community while making a plan to make it happen.

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Person-Centered Planning is NOTØ A one-shot meetingØ A form to completeØ Program basedØ A quick fixØ A guarantee for successØ A mandateØ An IEPØ A Personal PlanØ All about outcomes and measurementØ All about barriers and risk factorsØ About daily living skills

NOT

Real

Page 14: Arc of Illinois Webinar - thearcofil.org · Wife Driver Mom Cook Sister Referee Advocate Daughter Coach Learner Dog Mom Friend ... Centered Planning Tools Microboards and Cooperatives

Person-Centered Planning asks….

HOW CAN THIS PERSON SHOW UP IN COMMUNITY LIFE AS A VALUED FRIEND

AND CONTRIBUTING CITIZEN?

Real

Page 15: Arc of Illinois Webinar - thearcofil.org · Wife Driver Mom Cook Sister Referee Advocate Daughter Coach Learner Dog Mom Friend ... Centered Planning Tools Microboards and Cooperatives

Dr. Martin Luther King, Jr. said –

“I have a dream.”

He did not say –

“I have an annual plan and quarterly goals and objectives.”

Page 16: Arc of Illinois Webinar - thearcofil.org · Wife Driver Mom Cook Sister Referee Advocate Daughter Coach Learner Dog Mom Friend ... Centered Planning Tools Microboards and Cooperatives

Person-Centered Planning is not Centered on the SYSTEM!

”Official” Personal Plan in Illinoisü 11 pages of blah, blah, blahü No mention of hopes or dreamsü System Goalsü Outcomes ü Barriersü Positive remarks on life skills

(yay, he can microwave pizza)

Real

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Person-Centered Planning Approaches or Methods

Service-Defined Plans

Ø Individual Education Plan (IEP)Ø Family Support PlanØ Individual Service Plan Ø Treatment Plan Ø Personal Plan (Illinois through ISC, when selected from PUNS list)

Yes, these tools are required, but what if…..

Page 18: Arc of Illinois Webinar - thearcofil.org · Wife Driver Mom Cook Sister Referee Advocate Daughter Coach Learner Dog Mom Friend ... Centered Planning Tools Microboards and Cooperatives

Person-Centered Planning Approaches or Methods

MAPS (Making Action Plans)

Circles of Support/Relationship

PATH (Planning Alternative Tomorrows with Hope)

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Circles of Relationship

Page 20: Arc of Illinois Webinar - thearcofil.org · Wife Driver Mom Cook Sister Referee Advocate Daughter Coach Learner Dog Mom Friend ... Centered Planning Tools Microboards and Cooperatives

Circles of Relationship

Page 21: Arc of Illinois Webinar - thearcofil.org · Wife Driver Mom Cook Sister Referee Advocate Daughter Coach Learner Dog Mom Friend ... Centered Planning Tools Microboards and Cooperatives

Circles of Relationship

Page 22: Arc of Illinois Webinar - thearcofil.org · Wife Driver Mom Cook Sister Referee Advocate Daughter Coach Learner Dog Mom Friend ... Centered Planning Tools Microboards and Cooperatives

Circles of Relationship

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Circles of Relationship

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Circles of Relationship”INNER CIRCLE” NEAREST & DEAREST

Circles of Relationship ”INNER CIRCLE”NEAREST & DEAREST

Page 25: Arc of Illinois Webinar - thearcofil.org · Wife Driver Mom Cook Sister Referee Advocate Daughter Coach Learner Dog Mom Friend ... Centered Planning Tools Microboards and Cooperatives

Circles of Relationship”INNER CIRCLE” NEAREST & DEAREST

Circles of Relationship ”INNER CIRCLE”NEAREST & DEAREST

FRIENDS

Page 26: Arc of Illinois Webinar - thearcofil.org · Wife Driver Mom Cook Sister Referee Advocate Daughter Coach Learner Dog Mom Friend ... Centered Planning Tools Microboards and Cooperatives

Circles of Relationship”INNER CIRCLE” NEAREST & DEAREST

Circles of Relationship ”INNER CIRCLE”NEAREST & DEAREST

FRIENDS

CLUBS, TEAMMATES, ORTHERS IN IDD COMMUNITY, CO-WORKERS

Page 27: Arc of Illinois Webinar - thearcofil.org · Wife Driver Mom Cook Sister Referee Advocate Daughter Coach Learner Dog Mom Friend ... Centered Planning Tools Microboards and Cooperatives

Circles of Relationship”INNER CIRCLE” NEAREST & DEAREST

Circles of Relationship ”INNER CIRCLE”NEAREST & DEAREST

FRIENDS

CLUBS, TEAMMATES, ORTHERS IN IDD COMMUNITY, CO-WORKERS

PAID-DOCTORS, DSPs, STAFF, CAREGIVERS, BARBER, SUPPORT STAFF, TEACHERS

Page 28: Arc of Illinois Webinar - thearcofil.org · Wife Driver Mom Cook Sister Referee Advocate Daughter Coach Learner Dog Mom Friend ... Centered Planning Tools Microboards and Cooperatives

Circles of Support

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Circles of Support

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Circles of Support

The Star Raft TM

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Circles of Support

Page 32: Arc of Illinois Webinar - thearcofil.org · Wife Driver Mom Cook Sister Referee Advocate Daughter Coach Learner Dog Mom Friend ... Centered Planning Tools Microboards and Cooperatives

MAPS (Making Action Plans)

A (graphic) planning process for people and organizations that begins with a story – the history.

Page 33: Arc of Illinois Webinar - thearcofil.org · Wife Driver Mom Cook Sister Referee Advocate Daughter Coach Learner Dog Mom Friend ... Centered Planning Tools Microboards and Cooperatives

MAPS (Making Action Plans)

MAPS asks:

What gifts can you bring that express

your highest potential and build your community?

Page 34: Arc of Illinois Webinar - thearcofil.org · Wife Driver Mom Cook Sister Referee Advocate Daughter Coach Learner Dog Mom Friend ... Centered Planning Tools Microboards and Cooperatives

MAPS (Making Action Plans)

1. Hear the STORY2. Honor the DREAM3. Recognize the NIGHTMARE4. Name GIFTS-5. Say WHAT IT TAKES to receive the Gifts6. Agree on Action

Page 35: Arc of Illinois Webinar - thearcofil.org · Wife Driver Mom Cook Sister Referee Advocate Daughter Coach Learner Dog Mom Friend ... Centered Planning Tools Microboards and Cooperatives

MAPS (Making Action Plans)

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Why the Imagery?Ø Not about art, but about communicationØ We don’t think and dream in wordsØ Recording and sharing uses more of our

brainsØ Think back in history days!Ø What do you remember most, individual

words or imagery?Ø Think about historyØ Does NOT mean words can’t be used

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Why the Imagery?

Page 38: Arc of Illinois Webinar - thearcofil.org · Wife Driver Mom Cook Sister Referee Advocate Daughter Coach Learner Dog Mom Friend ... Centered Planning Tools Microboards and Cooperatives

Why the Imagery?

Page 39: Arc of Illinois Webinar - thearcofil.org · Wife Driver Mom Cook Sister Referee Advocate Daughter Coach Learner Dog Mom Friend ... Centered Planning Tools Microboards and Cooperatives

Why the Imagery?

Page 40: Arc of Illinois Webinar - thearcofil.org · Wife Driver Mom Cook Sister Referee Advocate Daughter Coach Learner Dog Mom Friend ... Centered Planning Tools Microboards and Cooperatives

PATH (Planning Alternative Tomorrows with Hope)

PATH is a creative planning tool that uses both process and graphicfacilitation to create a shared vision of a positive future for individuals,families, teams and whole organizations

Page 41: Arc of Illinois Webinar - thearcofil.org · Wife Driver Mom Cook Sister Referee Advocate Daughter Coach Learner Dog Mom Friend ... Centered Planning Tools Microboards and Cooperatives

PATH (Planning Alternative Tomorrows with Hope)

PATH draws on people’s capacities to imagine different futures, & to think backwards from a future possibility & tell fruitful stories about how that possibility might come to be.

Page 42: Arc of Illinois Webinar - thearcofil.org · Wife Driver Mom Cook Sister Referee Advocate Daughter Coach Learner Dog Mom Friend ... Centered Planning Tools Microboards and Cooperatives

PATH (Planning Alternative Tomorrows with Hope)

Identify a North Star and focus on the future

Then…

Backtrack on how to get there using circle members, strengths, and next steps

Page 43: Arc of Illinois Webinar - thearcofil.org · Wife Driver Mom Cook Sister Referee Advocate Daughter Coach Learner Dog Mom Friend ... Centered Planning Tools Microboards and Cooperatives

PATH (Planning Alternative Tomorrows with Hope)

Page 44: Arc of Illinois Webinar - thearcofil.org · Wife Driver Mom Cook Sister Referee Advocate Daughter Coach Learner Dog Mom Friend ... Centered Planning Tools Microboards and Cooperatives

PATH (Planning Alternative Tomorrows with Hope)

Ø A PATH is not a Service PlanØ A PATH is not defined or limited by an agency, school or

program

Page 45: Arc of Illinois Webinar - thearcofil.org · Wife Driver Mom Cook Sister Referee Advocate Daughter Coach Learner Dog Mom Friend ... Centered Planning Tools Microboards and Cooperatives

PATH (Planning Alternative Tomorrows with Hope)

“When it is thoughtfully undertaken, it offers a broad view of the person’s vision for their own life, a vision sometimes developed in collaboration with friends and family members, especially when people have great difficulty communicating”

– Dave & Faye Wetherow

Page 46: Arc of Illinois Webinar - thearcofil.org · Wife Driver Mom Cook Sister Referee Advocate Daughter Coach Learner Dog Mom Friend ... Centered Planning Tools Microboards and Cooperatives

PATH (Planning Alternative Tomorrows with Hope)

PATH asks:

What can happen because of you and your allies that will

make your life better and build your community?

Page 47: Arc of Illinois Webinar - thearcofil.org · Wife Driver Mom Cook Sister Referee Advocate Daughter Coach Learner Dog Mom Friend ... Centered Planning Tools Microboards and Cooperatives

PATH (Planning Alternative Tomorrows with Hope)

Page 48: Arc of Illinois Webinar - thearcofil.org · Wife Driver Mom Cook Sister Referee Advocate Daughter Coach Learner Dog Mom Friend ... Centered Planning Tools Microboards and Cooperatives

Implementing

Person-Centered Solutions

Person-Centered Thinking & Planning

Person-Centered ToolsCircles of Support. | MAPS | PATH

Person-Centered Organizations

• Microboards• Cooperatives• Supported Decision Making• Supported Living• Employment – Supported, Customized, Competitive

Page 49: Arc of Illinois Webinar - thearcofil.org · Wife Driver Mom Cook Sister Referee Advocate Daughter Coach Learner Dog Mom Friend ... Centered Planning Tools Microboards and Cooperatives

Implementing

Ø Customized Employment – Discovery ProcessØ Creative Housing Ø Supported Decision MakingØ Sibling SupportØ Long-Term PlanningØ Estate Planning

Page 50: Arc of Illinois Webinar - thearcofil.org · Wife Driver Mom Cook Sister Referee Advocate Daughter Coach Learner Dog Mom Friend ... Centered Planning Tools Microboards and Cooperatives

Implementing

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Implementing

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IAMC’S Person-Centered Solutions

NOT A ”PLACE”

Page 53: Arc of Illinois Webinar - thearcofil.org · Wife Driver Mom Cook Sister Referee Advocate Daughter Coach Learner Dog Mom Friend ... Centered Planning Tools Microboards and Cooperatives

Microboards What is a Microboard?Ø A formalized Circle of SupportØ Serves one personØ Small (Micro) Board of Directors

created to support the person with the disability

Ø A non-profit corporation (not charity)

Ø A think tank

Page 54: Arc of Illinois Webinar - thearcofil.org · Wife Driver Mom Cook Sister Referee Advocate Daughter Coach Learner Dog Mom Friend ... Centered Planning Tools Microboards and Cooperatives

Microboards What is a Microboard?

Ø Serves one personØ Small (Micro) Board of DirectorsØ A non-profit corporation (not

charity)Ø A think tank

Who’s “On” the Microboard?

Think back to Circles of Support!Ø The person with a disability (focus person)Ø FamilyØ FriendsØ Former teachers/employersØ Co-workersØ Most Microboard members are developed from PATH

Page 55: Arc of Illinois Webinar - thearcofil.org · Wife Driver Mom Cook Sister Referee Advocate Daughter Coach Learner Dog Mom Friend ... Centered Planning Tools Microboards and Cooperatives

Microboards What is a Microboard?

Ø Serves one personØ Small (Micro) Board of DirectorsØ A non-profit corporation (not

charity)Ø A think tank

What does a Microboard do?

ØMicroboard members share their status in the community with the individual by serving on their board.

ØMicroboard members develop a deep knowledge of the individual’s needs, desires, wishes and dreams.

ØMicroboards form a commitment with the individual and their family they support to carry out their work in ways that promote inclusion and self-determination.

ØMicroboards serve as a safeguard for quality supports and fiscal accountability.

Page 56: Arc of Illinois Webinar - thearcofil.org · Wife Driver Mom Cook Sister Referee Advocate Daughter Coach Learner Dog Mom Friend ... Centered Planning Tools Microboards and Cooperatives

Microboards What is a Microboard?

Ø Serves one personØ Small (Micro) Board of DirectorsØ A non-profit corporation (not

charity)Ø A think tank

Page 57: Arc of Illinois Webinar - thearcofil.org · Wife Driver Mom Cook Sister Referee Advocate Daughter Coach Learner Dog Mom Friend ... Centered Planning Tools Microboards and Cooperatives

Microboards What is a Microboard?

Ø Serves one personØ Small (Micro) Board of DirectorsØ A non-profit corporation (not

charity)Ø A think tank

Page 58: Arc of Illinois Webinar - thearcofil.org · Wife Driver Mom Cook Sister Referee Advocate Daughter Coach Learner Dog Mom Friend ... Centered Planning Tools Microboards and Cooperatives

Microboards What is a Microboard?

Ø Serves one personØ Small (Micro) Board of DirectorsØ A non-profit corporation (not

charity)Ø A think tank

IAMC’s Role

Ø Start with PATH pre-facilitation coaching and facilitationØ Microboard development – select membersØ Train board members-board developmentØ Assist with bylaws, Board Development, non-profit applicationØ IAMC “member” benefits like Zoom, other resourcesØ Attend meetings

Page 59: Arc of Illinois Webinar - thearcofil.org · Wife Driver Mom Cook Sister Referee Advocate Daughter Coach Learner Dog Mom Friend ... Centered Planning Tools Microboards and Cooperatives

Microboards What is a Microboard?

Ø Serves one personØ Small (Micro) Board of DirectorsØ A non-profit corporation (not

charity)Ø A think tank

Options with Waiver Funding (HCBS) Home and Community Based Services

Home Based Waiver

Go through agency to provide Personal Support WorkerSelf-Directed – you do the hiring, coordination

Page 60: Arc of Illinois Webinar - thearcofil.org · Wife Driver Mom Cook Sister Referee Advocate Daughter Coach Learner Dog Mom Friend ... Centered Planning Tools Microboards and Cooperatives

Microboards What is a Microboard?

Ø Serves one personØ Small (Micro) Board of DirectorsØ A non-profit corporation (not

charity)Ø A think tank

Options with Waiver Funding CILA (Community Integrated Living Arrangement) Funding

1. Agency CILA – traditional model through an agency

2. Own/Rent your own home and have CILA services come to your home through the agency

Page 61: Arc of Illinois Webinar - thearcofil.org · Wife Driver Mom Cook Sister Referee Advocate Daughter Coach Learner Dog Mom Friend ... Centered Planning Tools Microboards and Cooperatives

Microboards What is a Microboard?

Ø Serves one personØ Small (Micro) Board of DirectorsØ A non-profit corporation (not

charity)Ø A think tank

Can a Microboard be my Service Provider Agency?

If have HBSW – Microboard itself can NOT be provider agency. It can assist in managing PSWs, but not pay the PSWs.

Page 62: Arc of Illinois Webinar - thearcofil.org · Wife Driver Mom Cook Sister Referee Advocate Daughter Coach Learner Dog Mom Friend ... Centered Planning Tools Microboards and Cooperatives

Microboards What is a Microboard?

Ø Serves one personØ Small (Micro) Board of DirectorsØ A non-profit corporation (not

charity)Ø A think tank

Can a Microboard be my Service Provider Agency?• If have CILA funding – Microboard CAN become a licensed

CILA provider. • The microboard will act as the provider of CILA services by

hiring, firing, managing, and paying DSPs. • The process of becoming a licensed CILA provider is quite

cumbersome and complex. • If your microboard does become your CILA provider, you will

own or rent your own home, and it will not be subject to licensing requirements.

Page 63: Arc of Illinois Webinar - thearcofil.org · Wife Driver Mom Cook Sister Referee Advocate Daughter Coach Learner Dog Mom Friend ... Centered Planning Tools Microboards and Cooperatives

Cooperatives What is a Cooperatives

Ø Sometimes called: “Self Directed Support Corporations”

Ø Not-for-Profit organizationØ Created by three or more

unrelated individuals or their families who come together to share services

Page 64: Arc of Illinois Webinar - thearcofil.org · Wife Driver Mom Cook Sister Referee Advocate Daughter Coach Learner Dog Mom Friend ... Centered Planning Tools Microboards and Cooperatives

Cooperatives

80% of the Board of Directors must be individuals with disabilitiesWhat does a Cooperative do?

Ø Plan activities for members to have fun together - like movie nights, bowling, etc. plan activities for members to explore jobs – like visiting a pizza parlor, grocery store, vet clinic, etc. to learn about jobs there.

Ø Hire someone who can help members find jobs in the community (if the Cooperative has money)

Ø Coordinate members who have Home Based Support Services to share Personal Support Workers so that everyone has regular workers and substitute workers when needed.

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Cooperatives

A Cooperative brings together individuals who use services and their families, empowering them to direct and control the services they need.

Page 66: Arc of Illinois Webinar - thearcofil.org · Wife Driver Mom Cook Sister Referee Advocate Daughter Coach Learner Dog Mom Friend ... Centered Planning Tools Microboards and Cooperatives

Cooperatives

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Cooperatives

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Cooperatives

IAMC’s Role

Ø Help organizeØ Facilitate an

organizational PATHØ Assist with bylaws, Board

Development, 501c3 application

Ø Support along the way!

Page 69: Arc of Illinois Webinar - thearcofil.org · Wife Driver Mom Cook Sister Referee Advocate Daughter Coach Learner Dog Mom Friend ... Centered Planning Tools Microboards and Cooperatives

Your PATHWhat we do –

Ø PATH + MAPS + CIRCLE FACILITATIONØ Organizational PATHØ Microboard DevelopmentØ Cooperative DevelopmentØ PresentationsØ Monthly WebinarsØ Training

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Your PATH

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Become a PATH + MAPS Facilitator

ü Educatorsü Parentsü Siblingsü Advocatesü Friendsü Case Managersü Therapistsü Coaches

PATH + MAPS Facilitator Training is for:

Anyone interested in learning a creative, dynamic, exciting, visual and transformative tool for authentic and real Person-Centered Planning

Page 72: Arc of Illinois Webinar - thearcofil.org · Wife Driver Mom Cook Sister Referee Advocate Daughter Coach Learner Dog Mom Friend ... Centered Planning Tools Microboards and Cooperatives

Become a PATH + MAPS Facilitator

Page 73: Arc of Illinois Webinar - thearcofil.org · Wife Driver Mom Cook Sister Referee Advocate Daughter Coach Learner Dog Mom Friend ... Centered Planning Tools Microboards and Cooperatives

Contact Information

Kish Pisani

[email protected]: 630-632-1965

www.iambc.org

@qualitylives

@IllinoisAMC

@illinoisamc


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