eBULLETIN December, 2013 ARDSI CALCUTTA CHAPTER Providing Dementia Care & Service since 1999 --------------------------------------------------------------------------------------- September 2013 marked the second global World Alzheimer’s Month™, an international campaign to raise awareness and challenge stigma. World Alzheimer's Month in 2013 followed the theme ‘Dementia: a journey of caring’. Associations focused their campaigns on advocacy and awareness with information provision, Memory Walks, media appearances and free memory screenings taking place across the globe. On World Alzheimer's Day™ (21 September), ADI (Alzheimer’s Disease International) published the 2013 World Alzheimer Report which looked at the issue of long-term care. The report was launched with three roundtable events in Washington DC, London and Beijing. The World Alzheimer Report 2013 ‘Journey of Caring: An analysis of long-term care for dementia’, reveals that, as the world population ages, the traditional system of “informal” care by family, friends, and community will require much greater support. Globally, 13% of people aged 60 or over require long- term care. Between 2010 and 2050, the total number of older people with care needs will nearly treble from 101 to 277 million. Long-term care is mainly about care for people with dementia; around half of all older people who need personal care have dementia, and 80% of older people in nursing homes are living with dementia. The worldwide cost of dementia care is currently over US$600 billion, or around 1% of global GDP. The report which was researched and authored by Prof Martin Prince, Dr Matthew Prina and Dr Maëlenn Guerchet on behalf of the Global Observatory for Ageing and Dementia Care which is hosted at the Health Service and Population Research Department, King’s College London. Recommendations •Governments around the world should make dementia a priority by implementing national plans, and by initiating urgent national debates on future arrangements for long-term care •Systems should to be in place to monitor the quality of dementia care in all settings – whether in care homes or in the community •Autonomy and choice should be promoted at all stages of the dementia journey, prioritising the voices of people with dementia and their caregivers •Health and social care systems should be better integrated and coordinated to meet people’s needs
Transcript
eBULLETIN
December, 2013
ARDSI CALCUTTA CHAPTER Providing Dementia Care & Service since 1999
--------------------------------------------------------------------------------------- September 2013 marked the second global World Alzheimer’s Month™, an international campaign to
raise awareness and challenge stigma.
World Alzheimer's Month in 2013 followed the theme ‘Dementia: a journey of caring’. Associations
focused their campaigns on advocacy and awareness with information provision, Memory Walks, media
appearances and free memory screenings taking place across the globe.
On World Alzheimer's Day™ (21 September), ADI (Alzheimer’s Disease International) published the 2013
World Alzheimer Report which looked at the issue of long-term care. The report was launched with
three roundtable events in Washington DC, London and Beijing.
The World Alzheimer Report 2013 ‘Journey of Caring: An analysis of long-term care for dementia’,
reveals that, as the world population ages, the traditional system of “informal” care by family, friends,
and community will require much greater support. Globally, 13% of people aged 60 or over require long-
term care. Between 2010 and 2050, the total number of older people with care needs will nearly treble
from 101 to 277 million.
Long-term care is mainly about care for people with dementia; around half of all older people who need
personal care have dementia, and 80% of older people in nursing homes are living with dementia. The
worldwide cost of dementia care is currently over US$600 billion, or around 1% of global GDP.
The report which was researched and authored by Prof Martin Prince, Dr Matthew Prina and Dr
Maëlenn Guerchet on behalf of the Global Observatory for Ageing and Dementia Care which is hosted at
the Health Service and Population Research Department, King’s College London.
Recommendations
•Governments around the world should make dementia a priority by implementing national plans, and
by initiating urgent national debates on future arrangements for long-term care
•Systems should to be in place to monitor the quality of dementia care in all settings – whether in care
homes or in the community
•Autonomy and choice should be promoted at all stages of the dementia journey, prioritising the voices
of people with dementia and their caregivers
•Health and social care systems should be better integrated and coordinated to meet people’s needs
•Front-line caregivers must be adequately trained and systems will need to be in place to ensure paid
and unpaid carers receive appropriate financial reward in order to sustain the informal care system and
improve recruitment and retention of paid carers
•Care in care homes is a preferred option for a significant minority – quality of life at home can be as
good, and costs are comparable if the unpaid work of family caregivers is properly valued
•The quality of care in care homes should be monitored through the quality of life and satisfaction of
their residents, in addition to routine inspections, as care homes will remain an important component of
long-term care.
To read the full report log on to: http://www.alz.co.uk/research/world-report-2013
Highlights of ARDSI Calcutta activities from September 2013 to November 2013
World Alzheimer’s Awareness Month 2013
Week 1:
Setting: Dementia Daycare Center
Activity: Sharing understanding of experiencing Dementia in our community
Participants: Persons with Dementia, Professional Caregivers and family members
Week 2
Setting: ARDSI Calcutta Dementia Daycare
Activity: Seminar with doctors / social workers and Governor of West Bengal, Sri M K Narayanan
Participants: General public/ Media/ Families & Friends with dementia/Social Organizations
95 years old member of our dementia daycare presents an
art work made by all members of the daycare
Governor of WB enjoying a light moment with members, staff and
volunteers of ARDSI Calcutta Dementia daycare.
Week 3
Activity: Awareness sessions / training sessions & talk shows
17th September- Awareness with Calcutta Metropolitan Institute of Gerontology students
21st September – Caregivers journey of Caring workshop with family and professional caregivers
Week 4
25th September Awareness with All India Women’s Conference members
25th September submission of Memorandum to Governor, West Bengal
1. Help us educate the public about dementia through conducting awareness campaigns
and making West Bengal a Dementia friendly State
2. Funding Day Care facilities for dementia patients across the State
3. Allocating at least 5 beds for dementia care in every hospital, initially medical colleges
under Dept. of Neurology or Geriatric medicine
4. Recommending to the Indian Medical Council as well as State Medical Council and
Indian Nursing Council to include dementia care as a subject in the medical, nursing and
paramedical curriculum.
5. Finally, provide us a land in Kolkata or its suburbs to set-up a dementia hub that will
be a one stop service center for people with dementia and their families. Medical as
well as psycho-social intervention along with training of caregivers will be offered in this
hub. In the whole of Kolkata as well as state of West Bengal, there is no such facility.
In reply to our Memo above, the Governor's Secretariat has directed the Health & Family Welfare Department to set up plans to develop Dementia Infrastructure in the State of West Bengal.
October month in Kolkata was the celebration of Durga Puja. Members of ARDSI Calcutta Dementia
Daycare center along with the staff toured the city pandals to offer their prayers.
The month of November started with the staff exchange program between ARDSI Calcutta and Southern
Cross Care, WA. Early November, Nilanjana Maulik, Secretary of ARDSI Calcutta visited Perth and made
presentation to the SCC board of the activities and programs and visited daycare centers and residential
care facilities. She also visited the facility in Broome where she interacted with the aboriginal clients.
End November, Janet Farrell, Manager of High Care & Dementia Services, SCC visited ARDSI Calcutta
and participated in Daycare, home care and awareness programs.
Nilanjana Maulik was also invited to present at the launch of ComAge at the ASCA 2013 at Melbourne.
The main objectives of this organization will be to promote and disseminate learning, experience and
best practice in aged care service design, development, provision and assurance throughout the
Commonwealth with the purpose of improving the quality of life for older citizens in Commonwealth
countries, in particular by:
•Effecting close links between members of the Aged Care sectors in Commonwealth countries and
facilitating professional contacts between providers, governments, suppliers to the sector, academic
institutions and students.
•Encouraging the creation of national professional Aged Care service associations in Commonwealth
countries where none exist.
•Fostering high standards of professional education in Aged Care services.
•Promoting high standards of professional conduct amongst providers
•Fostering high standards of practice in all areas of Aged Care including retirement housing, residential
care, nursing care, assisted living, community care, dementia care, allied health services, palliative and
end of life care.
•Holding and supporting international conferences.
•Facilitating the dissemination of knowledge and information about housing and services for the
ageing.
•Fostering high standards of quality in service delivery, wherever appropriate by professional means,
and to that end encouraging suitable regulatory legislation and its implementation in member nations.
•Promoting and supporting staff exchanges between providers and facilitating the migration of
professional Aged Care staff between member countries.
•Supporting the development of common Aged Care and housing qualification standards throughout
Commonwealth member states.
•Liaising and building partnerships with similar associations or allied health professional groups such as
the IFA and IAHSA within and outside the Commonwealth to assist in attaining the aforementioned
objectives.
Alzheimer’s and Related Disorders Society of India (ARDSI), Guwahati Chapter hosted the XVIIIth National
Conference of ARDSI at Guwahati, Assam on the 29th and 30th November, 2013. 5 staff and 2 members
of the ARDSI Calcutta Executive Board participated in the conference.
Our humble appeal for support continues. The limitations of finances remain perpetual and formidable
obstacles for our society. We will appreciate if you could support the urgent cause of tackling dementia
through our awareness, training, care-giving and research work.
Caring for this affected population is a joint effort of all those who can still reason and remember. We
truly believe you share the same thought and will join us in our mission.
Please note that Cheque or draft should be in favour of "ARDSI Calcutta Chapter” for our awareness,
training and care-giving programs and "ARDSI Calcutta Research Fund" for our research work.
For donations via bank transfer to ARDSI Calcutta Chapter within India
Send it to – Account Name: ARDSI CALCUTTA CHAPTER
A/C No. 10598348576 at SBI, Hazra Road Branch, Kolkata
IFS Code: SBIN0001649
For donations via bank transfer to the research fund
Send it to– Savings Account Name: ARDSI CALCUTTA RESEARCH FUND
A/c No. 32861811671 at SBI, Ballygunge Branch, Kolkata
IFS code is: SBIN0000018.
For donations via bank transfer from abroad to ARDSI Calcutta Chapter
Send it to– Savings Account Name: ARDSI CALCUTTA
A/c No. 11000018154 at SBI, Ballygunge Branch, Kolkata
Swift code is: SBININBB328.
ALZHEIMER’S & RELATED DISORDERS SOCIETY OF INDIA (ARDSI), CALCUTTA CHAPTER
REGISTERED & ADMINISTRATIVE OFFICE:
15/3C NASKARPARA LANE, KOLKATA 700031, WEST BENGAL
