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August 2013 PLUS Health care reform and people with HIV

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Health care reform and people with HIV/AIDS Courtney Mulhern-Pearson August 3, 2013
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Page 1: August 2013 PLUS Health care reform and people with HIV

Health care reform and people

with HIV/AIDS

Courtney Mulhern-PearsonAugust 3, 2013

Page 2: August 2013 PLUS Health care reform and people with HIV

SAN FRANCISCO AIDS FOUNDATION 2

1

2

3

What does health care reform do?

What’s going on in California?

What can you do now?

Page 3: August 2013 PLUS Health care reform and people with HIV

SAN FRANCISCO AIDS FOUNDATION 3

Status quo = access to care crisis

The Current Crisis

42-59% of low-income people living

with HIV not in regular care

Impossible to obtain individual insurance and

few insured through

employer system

Medicaid/ Medicare are lifelines to care,

but disability standard means they

are very limited

Demand for Ryan White care and

services > funding

29% of people living with HIV

uninsured

Page 4: August 2013 PLUS Health care reform and people with HIV

SAN FRANCISCO AIDS FOUNDATION 4

Ryan White program not keeping pace with need

Sources: “Estimated Number of Persons Living with AIDS,” Centers for Disease Control and Prevention, http://www.cdc.gov/hiv/topics/surveillance/resources/reports/2007report/table12.htm; Ryan White Appropriations History, Heath Resources and Services Administration, ftp://ftp.hrsa.gov/hab/fundinghis06.xls. Inflation calculated using http://www.usinflationcalculator.com; www.cdc.gov/hiv/surveillance/resources/reports/2009report/pdf/table16a.pdf; “Funding, FY2007-FY2010 Appropriations by Program, hab.hrsa.gov/reports/funding.html

Page 5: August 2013 PLUS Health care reform and people with HIV

What does HCR actually do?

• Individual mandate: U.S. Citizens and Legal Residents must maintain health insurance coverage.

• Addresses Affordability: Provides subsidies for lower income people; Exemptions for hardship; Out of pocket caps on coverage

• Expands Coverage and creates a standard package of Benefits, including free preventive services

• Provides Consumer Protections

What does health care reform actually do?

Page 6: August 2013 PLUS Health care reform and people with HIV

New Insurance Options

Improves Medicaid (~ 60% of currently uninsured people with HIV):

• Expands eligibility to everyone below 138% FPL regardless of disability status

• provides essential health benefits (EHB); same package as traditional Medi-Cal in CA

• allows for free preventive services

Creates Private Insurance Marketplaces (~ 30% of current uninsured people with HIV):

• Federal subsidies up to 400% FPL• Called Covered California• eliminates premiums based on health/gender• provides EHB • supports outreach, navigation and enrollment• Allows for Basic Health Plan – not this year

New insurance options

Page 7: August 2013 PLUS Health care reform and people with HIV

Who is left out?

Undocumented immigrants:• Barred from state-based exchanges• Not eligible for non-emergency Medicaid • Eligible for restricted “emergency” Medicaid• Eligible for services through community health centers and/or

safety-net providers, Ryan White, Healthy San Francisco

Legally present immigrants:• Still face 5 year waiting period for Medicaid services

– California has chosen to move legally present immigrants into the marketplace with full wrap-around

• Can purchase with subsidies in Marketplace

Medically Fragile and perpetually out-of-care

Who’s left out?

Page 8: August 2013 PLUS Health care reform and people with HIV

Ryan White – Challenges for PLWH and their Providers

• Ryan White program (RW) – patient centered comprehensive HIV care

• Payer of last resort : RW can’t pay for services that can be provided under other coverage

• HCR expanded coverage means transitions – Transitions to new plans, providers, pharmacies – Once in new coverage, may need continued access

to some RW services:• Those not offered by other coverage: specific

types of case management, adherence, linkage to housing

• Help with costs: out of pocket and premium costs for care and medications

Challenges for people with HIV and their providers

Page 9: August 2013 PLUS Health care reform and people with HIV

“A Bridge to Health Care Reform” July 2011

• Low Income Health Program (LIHP) Partial and temporary county – based Medicaid expansion: Health PAC in Alameda– Ends December 31, 2013– State forgot to plan for people with HIV

• Alameda and LA finish PLWH transition 07/08, 2013

– Eligibility & delivery system varies by county• Eligibility range from 25% FPL to 200% FPL

– Met goal: serves > 550,000 uninsured Californians• Medi-Cal managed care expansion: moved most from

fee-for-service into Medi-Cal managed care plans

“A bridge to health care reform”

Page 10: August 2013 PLUS Health care reform and people with HIV

What Will Health Care Reform Bring in 2014?

• Medi-Cal (California’s Medicaid program) expansion

• A state run Marketplace - Covered California

• Transitions for people with HIV and providers:– From LIHP and RW to Medi-Cal expansion and Covered

California

– Considerations: Continuity of care with providers and pharmacy and integration (RW services working with new forms of coverage) strategies

What will change in 2014?

Page 11: August 2013 PLUS Health care reform and people with HIV

Covered California

• Limited, standardized plan offerings• Open enrollment October, 2013 - March 31, 2014• Assistance with enrollment and trouble shooting• Not clear how many HIV providers are in plan

networks• Most people with HIV will need assistance with

costs– Planning beginning for wrap around programs

• HIV - small population; “issues not on front burner”– Won’t get all we need/want in first year of development

Covered California

Page 12: August 2013 PLUS Health care reform and people with HIV

CA Assisters Program

• Assisters: entities and people who will be compensated for enrolling individuals in plans– Applications should be out soon– Training begins in August, 2013

• Navigators: entities that will outreach to specific populations that are uninsured after initial enrollment

The assisters program

Page 13: August 2013 PLUS Health care reform and people with HIV

Assisting with Cost in New Coverage

• State Office of AIDS beginning to plan for assistance with out of pocket and premium costs in Covered California

• Current programs OA Health Insurance Premium Payment Program (OAHIPP)and others pay only premiums– Programs not working well now– Need program development and

improvement• ADAP pay co-pays for ADAP drugs only• Need wrap around for primary care costs

Help with cost in new coverage

Page 14: August 2013 PLUS Health care reform and people with HIV

• Planning and funding services for new environment• Individual transition planning and assistance • Legal aid/benefits counseling for new systems• Does RW funding support outreach, linkage, engagement and retention in

care?

• HIV Services sustainability • Non-medical and prevention providers planning for sustainability

• Strategic partnerships • Medical settings sustaining coordinated care model

• CHC alignment, Medi-Cal managed care, Managed/Accountable Care structures, partnerships with community based organizations

• One planning model: SF Health Care Reform Task Force• Helping clients and providers transition and integrate• Recommendations, provider road map & client education templates

The role of local communities

Page 15: August 2013 PLUS Health care reform and people with HIV

Role of Individuals and Support Groups

Understand current health care coverageWhat services do you depend on and where do they come

from? Begin to consider your options in new environment

What changes are coming in your area and how do they affect you

Begin conversation with your HIV providers including about how they expect to offer services after 2014

Read and save information you receive Ask if you don’t understand materials Each one, teach one

Role of individuals and support groups

Page 16: August 2013 PLUS Health care reform and people with HIV

Health Care Reform Planning

“If we wait for governments, it’ll be too little,

too late. If we act as individuals, it’ll be too

little. But if we act as communities, it might

just be enough, just in time.”

Transition network

Health care reform planning

Page 17: August 2013 PLUS Health care reform and people with HIV
Page 18: August 2013 PLUS Health care reform and people with HIV

Resources

State HCR Information -www.statereforum.org

Enroll America

www.enrollamerica.org Center for Budget and

Policy Priorities - www.cbpp.org

Treatment Access Expansion Project – www.taepusa.org

Kaiser Family Foundation – www.kff.org

Families USA – www.familiesusa.org

National Health Law Program – www.nhelp.org

NASTAD – www.nastad.org

Health Resources and Services Administration –www.habhrsa.gov

Resources

Page 19: August 2013 PLUS Health care reform and people with HIV

CA Resources

Covered California – www.coveredca.com

Health Access - www.health-access.orgWestern Center on Law and Poverty –

www.wclp.orgNational Senior Citizens Law Center –

www.nsclc.orgHealth Consumer Alliance –

www.healthconsumer.org

California resources

Page 20: August 2013 PLUS Health care reform and people with HIV

Contact

Courtney Mulhern-Pearson, San Francisco AIDS Foundation

415.487-8008 [email protected]

Contact

Page 21: August 2013 PLUS Health care reform and people with HIV

SAN FRANCISCO AIDS FOUNDATION 21

sfaf.org1035 Market Street, Suite 400 | San Francisco, CA 94103


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