Date post: | 09-Jun-2015 |
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Health & Medicine |
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Prof dr Jan A.M. Kremer, Radboud University Nijmegen Medical Centre @JKNL #IVFworldwide [email protected]
The Individual Formerly Known As Patient TIFKAP
Inspiration
Inspiration 1: Clayton Christensen
•Sustaining innovations make good things better•Disruptive innovations make things more affordable and simple•Disruptive innovations are not good for current organizations, but are good for mankind
Inspiration 2: Clay Shirky
• The power of organizing without organizations
• Spectacular developments of internet 2.0 and its social consequences
• Web 2.0 is a platform of virtual communication & participation
• Consumers are the new producers in agile and fluent networks
Inspiration 3: Prince
• The Artist Formerly Known As Prince (TAFKAP)
• Patient comes from the Latin word Patientia: patience, suffering, endurance
• The Individual Formerly Known As Patient (TIFKAP)
How did I get involved?
• Gynaecologist (1996)• Reproductive Medicine• IVF team Nijmegen
• 1 of 6 couples• 16.000 IVF treatments• 1 of 38 children
Heyendael Castle, 2001
What do you think of our IVF care?
Patient centredness
From paradigm shift to dream
Patient-centredness
•Being respectful of and responsive to individual patient preferences, needs and values; and ensuring that patient values guide all clinical decisions. (Institute of Medicine, 2001)
•One of the dimensions of Quality of Care:4. Timeliness5. Equity of access6. Patient centeredness
1. Safety2. Effectiveness3. Efficiency
• Stress and IVF Chris Verhaak, Jesper Smeenk• Online prevention of stress/anxiety Angelique van Dongen• Shared decision making in SET/DET Arno van Peperstraten• Guideline implementation Selma Mourad• Guideline development Elvira den Breejen• Patient education via wiki’s Tom van de Belt• Patient-centredness questionnaire NL Inge van Empel• Patient-centredness questionnaire EU Eline Dancet• Patient-centredness improvement Dana Huppelschoten
• Virtual IVF Clinic Wouter Tuil• Health Communities Annemijn Aarts
Patient-centredness research in Nijmegen
Virtual IVF Clinic
1. General information 1.0interviews, education leaflets, PDA
2. Personal Health Record (PHR)test results, pictures, letters, reports
3. Communicationchat and forum (P2D & P2P)
Evaluation Virtual IVF Clinic
•9 years successful•> 4000 patients online, •> 100.000 forum items•Patients are the motor of this innovation•More trust, less complaints, better culture•Less consultations, marketing benefits, prizes
Next step: Health Social Networks
•We have organized Healthcare from the institution of the provider•We should organize Healthcare from the network of the patient
•MijnZorgNet (MyCareNet): the social network of Dutch healthcare
Connect patients and professionals
1. Private health communitiesCommunities of a professional team with their patients (members-only)
2. Personal health commutiesCommunity of the patient (personal information and communication about this information)
Modern medicine
The new doctor:•from god to guide•from host to guest (Don Berwick)
The new patient:•from passive object to active subject•from patient to person (TIFKAP)
The new healthcare organization:•from better/expensive, to simple/affordable•from physical centre to virtual community
The Individual Formerly Known As Patient
In conclusion
• Modern patients are changing from passive objectives to active subjects.
• Helped by the new possibilities of Web 2.0, they grow into the role of co-producers of their own care.
• We should anticipate on these developments and invest in web tools that can really help these TIFKAP’s.
We are quite disappointed in your website: no blogs, no wikis, no twitter, no
PHR, no HC, no PHC…
…how static & top-down.
As modern care consumers, we want more than just being
treated!
Prof dr Jan A.M. Kremer, Radboud University Nijmegen Medical Centre @JKNL #IVFworldwide [email protected]
The Individual Formerly Known As Patient TIFKAP