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Merle Spriggs & Lynn Gillam. 2016. Bioethics; 30(9): 706-713. This is the accepted version of the following article: Spriggs, M., and L. Gillam. 2016. Body Dysmorphic Disorder: Contraindication or ethical justification for Female Genital Cosmetic Surgery in adolescents. Bioethics 30(9): 706-713 which has been published in final form at https://doi.org/10.1111/bioe.12278 BODY DYSMORPHIC DISORDER: CONTRAINDICATION OR ETHICAL JUSTIFICATION FOR FEMALE GENITAL COSMETIC SURGERY IN ADOLESCENTS ABSTRACT: Is Female Genital Cosmetic Surgery for an adolescent with Body Dysmorphic Disorder ever ethically justified? Cosmetic genital surgery (specifically labioplasty) for adolescent girls is one of the most ethically controversial forms of cosmetic surgery and Body Dysmorphic Disorder is typically seen as a contraindication for cosmetic surgery. Two key ethical concerns are (1) that Body Dysmorphic Disorder undermines whatever capacity for autonomy the adolescent has; and (2) even if there is valid parental consent, the presence of Body Dysmorphic Disorder means that cosmetic surgery will fail in its aims. In this paper, we challenge, in an evidence-based way, the standard view that Body Dysmorphic Disorder is a contraindication for genital cosmetic surgery in adolescents. Our argument gathers together and unifies a substantial amount of disparate research in the context of an ethical argument. We focus on empirical questions about benefit and harm, because these are ethically significant. Answers to these questions affect the answer to the ethical question. We question the claim that there would be no benefit from surgery in this situation, and we consider possible harms that might be done if treatment is refused. For an adolescent with Body Dysmorphic Disorder, the most important thing may be to avoid harm. We find ourselves arguing for the ethical justifiability of cosmetic labioplasty for an adolescent with Body Dysmorphic Disorder, even though we recognize that it is a counter intuitive position. We explain how we reached our conclusion.
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Page 1: BODY DYSMORPHIC DISORDER: CONTRAINDICATION OR ETHICAL ...

Merle Spriggs & Lynn Gillam. 2016. Bioethics; 30(9): 706-713.

This is the accepted version of the following article: Spriggs, M., and L. Gillam. 2016. Body Dysmorphic Disorder: Contraindication or ethical justification for Female Genital Cosmetic Surgery in adolescents. Bioethics 30(9): 706-713 which has been published in final form at https://doi.org/10.1111/bioe.12278

BODY DYSMORPHIC DISORDER: CONTRAINDICATION OR ETHICAL JUSTIFICATION FOR FEMALE GENITAL COSMETIC SURGERY IN ADOLESCENTS

ABSTRACT: Is Female Genital Cosmetic Surgery for an adolescent with Body

Dysmorphic Disorder ever ethically justified? Cosmetic genital surgery (specifically

labioplasty) for adolescent girls is one of the most ethically controversial forms of

cosmetic surgery and Body Dysmorphic Disorder is typically seen as a

contraindication for cosmetic surgery. Two key ethical concerns are (1) that Body

Dysmorphic Disorder undermines whatever capacity for autonomy the adolescent

has; and (2) even if there is valid parental consent, the presence of Body

Dysmorphic Disorder means that cosmetic surgery will fail in its aims. In this paper,

we challenge, in an evidence-based way, the standard view that Body Dysmorphic

Disorder is a contraindication for genital cosmetic surgery in adolescents. Our

argument gathers together and unifies a substantial amount of disparate research in

the context of an ethical argument. We focus on empirical questions about benefit

and harm, because these are ethically significant. Answers to these questions affect

the answer to the ethical question. We question the claim that there would be no

benefit from surgery in this situation, and we consider possible harms that might be

done if treatment is refused. For an adolescent with Body Dysmorphic Disorder, the

most important thing may be to avoid harm. We find ourselves arguing for the

ethical justifiability of cosmetic labioplasty for an adolescent with Body Dysmorphic

Disorder, even though we recognize that it is a counter intuitive position. We explain

how we reached our conclusion.

Page 2: BODY DYSMORPHIC DISORDER: CONTRAINDICATION OR ETHICAL ...

Merle Spriggs & Lynn Gillam. 2016. Bioethics; 30(9): 706-713.

This is the accepted version of the following article: Spriggs, M., and L. Gillam. 2016. Body Dysmorphic Disorder: Contraindication or ethical justification for Female Genital Cosmetic Surgery in adolescents. Bioethics 30(9): 706-713 which has been published in final form at https://doi.org/10.1111/bioe.12278

Keywords: Female Genital Cosmetic Surgery; Labioplasty; Body Dysmorphic

Disorder; Ethics; Bioethics; Adolescent.

INTRODUCTION

Female Genital Cosmetic Surgery is controversial even for adults, but the

controversy and complexity increases when adolescents request cosmetic genital

surgery. In the context of Female Genital Cosmetic Surgery and cosmetic surgery

generally, a preoccupation with perceived defects or flaws in appearance, referred to

as Body Dysmorphic Disorder, is typically seen as a strong contraindication. The

reasons are essentially ethical: firstly, that Body Dysmorphic Disorder undermines

autonomy to such an extent that the person wanting cosmetic surgery does not have

the capacity to make a valid informed choice, because their perception of reality is so

skewed; and secondly, that surgery will do more harm than good, because the

fixation of one aspect of bodily experience will soon be replaced by another one,

leading to more distress, not less. This second reason is based on an assumption

about an empirical matter, namely that performing genital cosmetic surgery on

someone with Body Dysmorphic Disorder will not improve it, and so would not result

in overall benefit. Beyond these issues lies the as-yet unasked empirical question of

the effects of being refused treatment. There are possible harmful effects here that

also need to be included in the ethical analysis. Answers to these empirical

questions affect the answer to the overall ethical question of whether Female Genital

Cosmetic Surgery for an adolescent with Body Dysmorphic Disorder could ever be

ethically justified. This is not the open-and-shut issue that it might first appear.

Page 3: BODY DYSMORPHIC DISORDER: CONTRAINDICATION OR ETHICAL ...

Merle Spriggs & Lynn Gillam. 2016. Bioethics; 30(9): 706-713.

This is the accepted version of the following article: Spriggs, M., and L. Gillam. 2016. Body Dysmorphic Disorder: Contraindication or ethical justification for Female Genital Cosmetic Surgery in adolescents. Bioethics 30(9): 706-713 which has been published in final form at https://doi.org/10.1111/bioe.12278

In this paper, we combine thorough examination of the empirical evidence with

ethical analysis starting from a neutral position; and on this basis, we argue that

genital cosmetic surgery for an adolescent with Body Dysmorphic Disorder may be

ethically justified. We recognize that this is a counter-intuitive position and we

explain how we reach this conclusion. We challenge, in an evidence-based way, the

typical view that Body Dysmorphic Disorder is a clear contra-indication for genital

cosmetic surgery in adolescents.

OVERVIEW OF CURRENT HEALTH LITERATURE ABOUT COSMETIC

LABIOPLASTY

Almost every article written on Female Genital Cosmetic Surgery makes the claim

that increasing numbers of women and girls are seeking genital cosmetic surgery.

The main procedure being performed in under 18s is reduction of the labia minora

(labioplasty) for large or protruding labia minora. This trend has been observed in the

United Kingdom1 and in the United States, where, in 2013, labioplasty had a 44%

increase compared to 2012.2 The highest number of procedures in the United States

was in 19-34 year olds (51%) and 3.1% occurred in females 18 and under.3 In

Australia, Medicare data shows that the rate of FGCS has more than doubled over

the past decade with the biggest increase among 15 to 24 year olds. However,

actual numbers will be higher because available data are for surgeries done in the

1 R. Deans, L.M. Liao, N.S. Crouch & S. M. Creighton. Why are Women Referred for Female Genital

Cosmetic Surgery? Med J Aust 2011; 195: 99-99: 99. 2 American Society for Aesthetic Plastic Surgery. 2014b. Americans Spent Largest Amount on

Cosmetic Surgery Since the Great Recession of 2008 [Press release]. Available at: http://www.surgery.org/media/news-releases/the-american-society-for-aesthetic-plastic-surgery-reports-americans-spent-largest-amount-on-cosmetic-surger#.VP4eMpTaVIU.email [Accessed 21 Dec 2015]. 3 American Society for Aesthetic Plastic Surgery. 2014a. 2013 Cosmetic Surgery National Data Bank

Statistics. New York. Available at: http://www.surgery.org/sites/default/files/Stats2013_4.pdf [Accessed 21 Dec 2015].

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Merle Spriggs & Lynn Gillam. 2016. Bioethics; 30(9): 706-713.

This is the accepted version of the following article: Spriggs, M., and L. Gillam. 2016. Body Dysmorphic Disorder: Contraindication or ethical justification for Female Genital Cosmetic Surgery in adolescents. Bioethics 30(9): 706-713 which has been published in final form at https://doi.org/10.1111/bioe.12278

public health care system and hence rebated by Medicare, but many procedures are

done privately.4 Labioplasty is performed mainly by gynaecologists, plastic and

cosmetic surgeons and some urologists.

Reasons for increasing rates

In the literature, three main reasons why women and girls are requesting labioplasty

are reported.5 These are:

Functional / physical discomfort. This is discomfort that can occur during sexual

intercourse, during exercise such as bike riding, and also physical discomfort

caused by some clothing.

Appearance concerns. Women and girls may feel that they are not normal or

they may simply not like the way that they look.

Psychological and emotional distress

Of course it is not always easy to clearly distinguish these: all three may be tangled

up together in what a patient feels and thinks, or says to a doctor. Also, it is possible

that some patients may believe that dissatisfaction with genital appearance would

not be regarded as a good enough reason to access surgery, so they may

4 V. Braun. Female Genital Cosmetic Surgery: A Critical Review of Current Knowledge and

Contemporary Debates. J Womens Health 2010; 19: 1393-1407; Deans et al., op. cit. note 1; K. Hagan. 2012. Genital Surgery on the Rise: Doctors, The Age Available at: http://www.theage.com.au/national/health/genital-surgery-on-the-rise-doctors-20121214-2bfde.html (Accessed 21 Dec 2015).

5 L.M. Liao, N. Taghinejadi & S.M. Creighton. An Analysis of the Content and Clinical Implications of

Online Advertisements for Female Genital Cosmetic Surgery. BMJ Open 2012; 2(6): e001908; L.M. Liao & S.M. Creighton. Requests for Cosmetic Genitoplasty: How Should Healthcare Providers Respond? Br Med J 2007; 334: 1090-1092; L.M. Liao, L. Michala & S. M. Creighton.. Labial Surgery for Well Women: A Review of the Literature. BJOG 2010; 117: 20-25.

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Merle Spriggs & Lynn Gillam. 2016. Bioethics; 30(9): 706-713.

This is the accepted version of the following article: Spriggs, M., and L. Gillam. 2016. Body Dysmorphic Disorder: Contraindication or ethical justification for Female Genital Cosmetic Surgery in adolescents. Bioethics 30(9): 706-713 which has been published in final form at https://doi.org/10.1111/bioe.12278

emphasise physical difficulties to add ‘legitimacy’ to requests for surgery.6 For these

reasons, the real motivations behind increasing rates of labioplasty cannot be

identified with certainty.

CONCERNS ABOUT THE ETHICS OF PERFORMING LABIOPLASTY

How autonomous are women’s decisions?

In terms of the ethics of cosmetic labioplasty, some authors take the view that the

decision to have labioplasty (at least in adults) is an individual decision; a matter of

autonomy.7 Others argue that it involves broader social issues and that there is a

need for a broader debate. Their position is that various social phenomena, such as

the effect of pornographic images propagated as the ideal, negative representations

of women’s genitalia, disease mongering and coercive influences undermine the

autonomy of women’s decisions.8 Further, some suggest that there is a ‘vicious

cycle’ which compounds the undermining of autonomy in relation to women’s

attitudes and decisions about genital appearance and surgery. The claim is that

providing surgery narrows the view in the general public of what is ‘normal’ genital

appearance, which in turn increases the demand for surgery even more, which then

further undermines the ‘development of other ways’ to help women and girls deal

with appearance concerns.9 The ethical status of women’s choices is one of the

major debates around Female Genital Cosmetic Surgery.

6 R. Bramwell, C. Morland & A.S. Garden. Expectations and Experience of Labial Reduction: a

Qualitative Study. BJOG 2007; 114: 1493-1499: 1496.

7 B. Kelly & C. Foster. Should Female Genital Cosmetic Surgery and Genital Piercing be Regarded

Ethically and Legally as Female Genital Mutilation? BJOG 2012;119: 389-392: 391. 8 Braun, op. cit. note 4; L.M. Liao & S.M. Creighton. Female Genital Cosmetic Surgery: A New

Dilemma for GPs. Br J Gen Pract 2011; 61: 7-8. 9 Liao & Creighton 2007, op. cit. note 5, p.1091.

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Merle Spriggs & Lynn Gillam. 2016. Bioethics; 30(9): 706-713.

This is the accepted version of the following article: Spriggs, M., and L. Gillam. 2016. Body Dysmorphic Disorder: Contraindication or ethical justification for Female Genital Cosmetic Surgery in adolescents. Bioethics 30(9): 706-713 which has been published in final form at https://doi.org/10.1111/bioe.12278

Lack of evidence for effectiveness

Lack of evidence for ‘clinical effectiveness’ is another issue that gets a lot of

attention, although ‘clinical effectiveness’ is not clearly defined in the literature. The

empirical literature focuses on anatomical outcomes and surgical techniques rather

than outcomes and effectiveness. It does not adequately document risks and there

is a lack of long-term outcome data.10 Key authors in this field who set out to

conduct a systematic review of the empirical data, found that the available literature

was ‘extremely rudimentary and precluded the use of recommended methodology.’

They conclude that ‘[m]edically nonessential surgery to the labia minora is being

promoted as an effective treatment for women’s complaints, but no data on clinical

effectiveness exists’.11 Their claim is that this lack of evidence and follow-up, as well

as lack of information on risks, undermines the possibility of informed consent.12

These authors do not give a specific definition of ‘clinical effectiveness’, except to

say that it is something other than patient satisfaction. Interestingly, the literature

reports a high degree of consumer satisfaction. In the clinical literature, labioplasty is

described as a ‘simple surgical procedure’13 with a ‘low incidence of complications’14

and the potential to produce physical and psychological benefits.15 It is not clear why

10 L. Michala, S. Koliantzaki & A. Antsaklis. Protruding labia minora: abnormal or just uncool? J

Psychosom Obstet Gynaecol 2011; 32: 154-156; M.P. Goodman. Female Genital Cosmetic and Plastic Surgery: A Review. J Sex Med 2011; 8: 1813-1825; C. Iglesia, L.Yurteri-Kaplan & R. Alinsod. Female Genital Cosmetic Surgery: A Review of Techniques and Outcomes. Int Urogynecol J 2013; 24: 1997-2009; Liao & Creighton 2011, op. cit. note 8; J. Reddy & M. Laufer. Labiaplasty: Surgical correction in adolescents. The Female Patient 2011; 36(4): 50-53. 11 Liao, Michala & Creighton, op. cit. note 5, pp.20-22. 12 Ibid: 23. 13 Reddy & Laufer, op. cit. note 10, p.53. 14 A. Lynch, M. Marulaiah & U. Samarakkody. Reduction Labioplasty in Adolescents. J Pediatr

Adolesc Gynecol 2008; 21: 147-149: 149. 15 F. Lista, B.D. Mistry, Y. Singh & J. Ahmad. The Safety of Aesthetic Labiaplasty: A Plastic Surgery

Experience. Aesthet Surg J 2015; 35: 689-695.

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Merle Spriggs & Lynn Gillam. 2016. Bioethics; 30(9): 706-713.

This is the accepted version of the following article: Spriggs, M., and L. Gillam. 2016. Body Dysmorphic Disorder: Contraindication or ethical justification for Female Genital Cosmetic Surgery in adolescents. Bioethics 30(9): 706-713 which has been published in final form at https://doi.org/10.1111/bioe.12278

clinical effectiveness for a cosmetic procedure could not be characterized by

consumer satisfaction. Nevertheless, Liao et al express concern that the two are

being confused.16

Concerns about genital cosmetic surgery specifically in adolescents

Some professional bodies recommend against labioplasty until growth is complete,

because further growth may lead to the need for further genital operations. Growth

is thought to be complete around 18 years – but that isn’t known for sure.17

Remarkably, there is a lack of knowledge about the development of the external

female genitalia, particularly the labia minora. Influential authors in the field report

that there are ‘surprisingly few descriptions of normal female genitalia in the medical

literature’ and ‘[d]etailed representations of female genitals are rare’.18 There is also

no information on normal variations and changes of the labia minora during

adolescence.19

Ethical authority for consent to labioplasty is also seen as a problem. Adolescents,

even when they have adult-level cognitive capacity, are generally held to lack

maturity. This is seen to reduce their capacity for autonomy, bringing the validity of

their consent into question. Despite an increasing focus and weight being given to

adolescent autonomy, there is still ‘recognition’ that adolescents are not as

competent as adults in making decisions about things that ‘could affect their health

16 Liao, Michala & Creighton 2007, op. cit. note 5. 17 Royal College of Obstetricians & Gynaecologists Ethics Committee. 2013. Ethical opinion paper:

Ethical Considerations in relation to female genital cosmetic surgery. Available at: https://www.rcog.org.uk/globalassets/documents/guidelines/ethics-issues-and-resources/rcog-fgcs-ethical-opinion-paper.pdf [Accessed 21 Dec 2015). 18 J. Lloyd, N.S. Crouch, C.L. Minto, L.M. Liao & S.M. Creighton. Female Genital Appearance:

‘Normality’ Unfolds. BJOG 2005.112: 643-646: 643-644. 19 Michala, Koliantzaki & Antsaklis, op. cit. note 10.

Page 8: BODY DYSMORPHIC DISORDER: CONTRAINDICATION OR ETHICAL ...

Merle Spriggs & Lynn Gillam. 2016. Bioethics; 30(9): 706-713.

This is the accepted version of the following article: Spriggs, M., and L. Gillam. 2016. Body Dysmorphic Disorder: Contraindication or ethical justification for Female Genital Cosmetic Surgery in adolescents. Bioethics 30(9): 706-713 which has been published in final form at https://doi.org/10.1111/bioe.12278

for the rest of their lives.’20 However, if parental consent is sought, either alone or in

addition to the adolescent’s consent, there are ethical concerns about the ethical

legitimacy of parent consenting for a procedure that is not considered medically

necessary. Such a decision arguably exposes the adolescent to unjustified risk of

harm, and may thus violate the Harm Principle, or fall outside the Zone of Parental

Discretion.21

Adolescents are also regarded as more vulnerable to outside pressures than adults.

Puberty is a time when peer opinion and influences have the greatest impact.22 Then

there is the question of who or what is being treated in these circumstances. In the

literature, there is some evidence that it is mothers who are identifying concerns

about their daughter’s appearance,23 in which case it may be the mother’s concerns

about appearance that are driving labioplasty. Boraei and colleagues wonder

whether the issue is ‘the child not coming to terms with pubertal body changes’ or,

perhaps it is the ‘child’s or mother’s poor self-esteem’ that is being treated.24

ALTERNATIVE FORMS OF MANAGEMENT

Education and reassurance about the normal range of appearance is recommended

in the literature. This is thought to be of particular value, because of the lack of

20 S. Boraei, C. Clark & L. Frith. Labioplasty in Girls Under 18 years of Age: An Unethical Procedure?

Clin Ethics 2008; 3: 37-41: 40. 21 D.S. Diekema. Parental Refusals of Medical Treatment: The Harm Principle as Threshold for State

Intervention. Theor Med Bioeth 2004; 25: 243-264; AUTHOR (2); AUTHOR (1).

22 P.K. Jothilakshmi, N.R. Salvi, B.E. Hayden & B. Bose-Haider. Labial Reduction in Adolescent

Population—A Case Series Study. J Pediatr Adolesc Gynecol 2009; 22: 53-55; Michaela et al. op. cit. note 10. 23 Deans et al. op. cit. note 1; S.K. McQuillan, Y.L. Jayasinghe & S.R. Grover. Audit of referrals for

labial appearance concerns at the Royal Children's Hospital Melbourne: From 2000 onwards. J Pediatr Adolesc Gynecol 2014; 27: e60. 24 Boraei, Clark & Frith, op. cit. note 20, p.40.

Page 9: BODY DYSMORPHIC DISORDER: CONTRAINDICATION OR ETHICAL ...

Merle Spriggs & Lynn Gillam. 2016. Bioethics; 30(9): 706-713.

This is the accepted version of the following article: Spriggs, M., and L. Gillam. 2016. Body Dysmorphic Disorder: Contraindication or ethical justification for Female Genital Cosmetic Surgery in adolescents. Bioethics 30(9): 706-713 which has been published in final form at https://doi.org/10.1111/bioe.12278

knowledge about diversity in female genital appearance.25 A good example of this

kind of education is the Labia Library developed by Women’s Health Victoria.26 Also

suggested are existing evidence-based services for ‘resolving personal or

relationship dissatisfaction and distress’. This is in response to a view that women

and girls may seek surgery in the expectation or hope that it will repair a failing

relationship or psychological distress.27

Psychiatric treatments such as Cognitive Behavioural Therapy (CBT), serotonin

reuptake inhibitors (SRIs) and antipsychotic medications have been suggested.28

Also proposed is intervention at the sociocultural level where distress is

‘socioculturally learned’ rather than ‘a natural response to physiology.’29 However,

this suggestion is obviously intended as a preventative measure, rather than a way

to deal with an individual experiencing distress.

LABIOPLASTY IN THE PRESENCE OF BODY DYSMORPHIC DISORDER

Those who think that female genital cosmetic surgery is ethically dubious in general,

are likely to think it is much worse if Body Dysmorphic Disorder (BDD) is also

present. Genital cosmetic surgery is expected to be particularly problematic when

25 Lloyd et al. op. cit. note 18, p.645. 26 Women’s Health Victoria. 2013. The Labia Library. Available at: labialibrary.org.au [Accessed 21

Dec 2015]. 27 Lloyd et al. op. cit. note 18, p.645. 28 U. Buhlmann, H. Glaesmer, R. Mewes, J.M. Fama, S. Wilhem. E. Brahler & W. Rief. Updates on

the Prevalence of Body Dysmorphic Disorder: A Population-Based Survey. Psychiatry Res 2010; 178: 171-175; D.J. Castle, S. Rossell & M. Kyrios. Body Dysmorphic Disorder. Psychiatr Clin North Am 2006; 9: 521-538; C.E. Crerand, W. Menard & K.A. Phillips. Surgical and Minimally Invasive Cosmetic Procedures Among Persons with Body Dysmorphic Disorder. Ann Plast Surg 2010; 65: 11-16. 29 V. Braun. Petting a Snake? Reflections on Feminist Critique, Media Engagement and 'Making a

Difference'. Fem Psychol 2012; 2: 528-535: 532.

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Merle Spriggs & Lynn Gillam. 2016. Bioethics; 30(9): 706-713.

This is the accepted version of the following article: Spriggs, M., and L. Gillam. 2016. Body Dysmorphic Disorder: Contraindication or ethical justification for Female Genital Cosmetic Surgery in adolescents. Bioethics 30(9): 706-713 which has been published in final form at https://doi.org/10.1111/bioe.12278

people have this condition. It is generally viewed as a contraindication; something to

be screened against when considering a request for labioplasty.30

What is Body Dysmorphic Disorder?

According to the fifth edition of the Diagnostic and Statistical Manual of Mental

Disorders, BDD is characterised by: ‘preoccupation with one or more perceived

defects or flaws in physical appearance that are not observable or appear slight to

others’; ‘repetitive behaviours’ such as mirror checking or comparing one’s

appearance with that of others; and ‘the preoccupation causes clinically significant

distress or impairment in social, occupational, or other important areas of

functioning.’31

Body Dysmorphic Disorder is not the same as and does not include Body Identity

Integrity Disorder (apotemnophilia) which involves the desire to have a limb

amputated. The two disorders have sometimes been confused, most notably after

reports appeared in 2000 of a Scottish surgeon who amputated the healthy limbs of

two patients (at their request) and were said to be suffering from BDD.32

30 Crerand, Menard & Phillips, op. cit. note 28; M.P. Goodman, G. Bachmann, C. Johnson, J.L.

Fourcroy, A. Goldstein, G. Goldstein & S. Sklar. Is Elective Vulvar Plastic Surgery Ever Warranted, and What Screening Should be Conducted Preoperatively? J Sex Med 2007; 4(2): 269-276; Iglesia, Yurteri-Kaplan & Alinson, op. cit. note 11.

31 American Psychiatric Association. 2013a. Diagnostic and Statistical Manual of Mental Disorders.

5th ed. Arlington, VA: American Psychiatric Association: 300.7 (F45.22). 32 G. Seenan. 2000. Healthy Limbs Cut Off at Patients’ Request. The Guardian 1 February. Available

at http://www.theguardian.com/society/2000/feb/01/futureofthenhs.health [Accessed 4 June 2016]; F. Tomasini. Exploring Ethical Justification for Self-Demand Amputation. Ethics & Medicine 2006; 22: 99-115: 114 endnote 1; T. Elliot. Body Dysmorphic Disorder, Radical Surgery and the Limits of Consent. Med Law Rev 2009; 17:149-182: 149; A. Bridy. Confounding Extremities: Surgery at the Medico-Ethical Limits of Self-Modification. J Law Med Ethics 2004; 32: 148-158: 149.

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Merle Spriggs & Lynn Gillam. 2016. Bioethics; 30(9): 706-713.

This is the accepted version of the following article: Spriggs, M., and L. Gillam. 2016. Body Dysmorphic Disorder: Contraindication or ethical justification for Female Genital Cosmetic Surgery in adolescents. Bioethics 30(9): 706-713 which has been published in final form at https://doi.org/10.1111/bioe.12278

The difference between BDD and Body Integrity Identity Disorder (BIID) is made

clear in DSM-V. The focus for BDD is appearance, whereas the ‘driving desire’ of

BIID to have a limb amputated is ‘to correct an experience of mismatch between a

person’s sense of body identity and his or her actual anatomy’.33 For those with

BIID, ‘the concern does not focus on the limb’s appearance, as it would in body

dysmorphic disorder.’34 Furthermore, BIID is not included in DSM-5. In this paper,

we are discussing only dissatisfaction with appearance. It is important to make this

point, because some earlier ethical discussions have used the term BDD to refer to

situations in which the patient actually has BIID.35 BIID is ethically as well as

psychologically different from BDD, not least because it involves complete removal

of functioning body parts, causing significant disability. BDD only involves minor

changes in appearance – the body part is not removed.

Why is Body Dysmorphic Disorder a contraindication for cosmetic surgery?

First, there is a concern about surgical risk when there is lack of benefit. It is thought

that the presence of BDD in cosmetic surgery will lead to poor outcomes. The worry

is that surgery will not fix the problem; that new appearance preoccupations will

develop.36 Second, BDD is standardly viewed as undermining autonomy and the

capacity to make decisions. In other words, the desire for surgery is bizarre or

irrational so there must be something wrong with that person’s decision making

capacity.37 The standard view is that if there is BDD, then it would be clearly wrong

33 K.A. Phillips, S. Wilhelm, L.M. Koran, E.R. Didie, B.A. Fallon, J. Feusner, & D.J. Stein. (2010). Body

Dysmorphic Disorder: Some Key Issues for DSM-V. Depress Anxiety 2010; 27: 573-591:583. 34 American Psychiatric Association 2013a. op. cit. note 31, 300.7 (F45.22) 35 Elliot, op. cit. note 32. 36 Crerand et al. op. cit. note 28. 37 Elliot, op. cit. note 32.

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Merle Spriggs & Lynn Gillam. 2016. Bioethics; 30(9): 706-713.

This is the accepted version of the following article: Spriggs, M., and L. Gillam. 2016. Body Dysmorphic Disorder: Contraindication or ethical justification for Female Genital Cosmetic Surgery in adolescents. Bioethics 30(9): 706-713 which has been published in final form at https://doi.org/10.1111/bioe.12278

to do labioplasty.38 Instead of surgery, psychiatric intervention is seen to be the more

appropriate response.

But is cosmetic surgery so clearly wrong in this situation? Ethics involves questioning

everything and challenging even apparently settled questions. When we asked

ourselves if it is wrong to do labioplasty for an adolescent with BDD, having in mind a

real individual young person in a real situation, a number of considerations pushed

us to think the other way.

CHALLENGING BODY DYSMORPHIC DISORDER AS A CONTRAINDICATION

FOR LABIOPLASTY

(A) Challenging the benefit / risk assessment

Not all cosmetic surgeries are the same

Labioplasty is not necessarily comparable to other cosmetic surgeries for which BDD

may be a contraindication. It is easier for patients to describe some appearance

concerns, the outcome they want and for the surgeon to understand their

expectations.39 Good examples are patients requesting reduction mammoplasty or

pinnoplasty (surgery to pin back prominent ears). These surgeries tend ‘to lead to

an overall decrease in preoccupation’ and to have good satisfaction ratings.40 We

suggest that labioplasty fits this category. The usual issue is that one or both labia

minora are seen to be too large, and the desire is to have them trimmed so that they

38 Crerand et al. op. cit. note 28; M.H. McGrath & S. Mukerji. Plastic Surgery and the Teenage

Patient. J Pediatr Adolesc Gynecol 2000; 13: 105-118.

39 D. Veale, I. Naismith, E. Eshkevari, N. Ellison, A. Costa, D. Robinson, L. Abeywickrama, A. Kavouni

& L. Cardozo. Psychosexual Outcome after Labiaplasty: A Prospective Case-Comparison Study. Int Urogynecol J 2014; 25: 831-9; 838. 40 D. Veale. Outcome of Cosmetic Surgery and ‘DIY’ Surgery in Patients with Body Dysmorphic

Disorder. Psychiatr Bull 2000; 24: 218-220: 219.

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Merle Spriggs & Lynn Gillam. 2016. Bioethics; 30(9): 706-713.

This is the accepted version of the following article: Spriggs, M., and L. Gillam. 2016. Body Dysmorphic Disorder: Contraindication or ethical justification for Female Genital Cosmetic Surgery in adolescents. Bioethics 30(9): 706-713 which has been published in final form at https://doi.org/10.1111/bioe.12278

do not protrude beyond the labia majora. It is relatively straightforward for a patient

to indicate what tissue they see as excess, and what they want done about it. The

issue is not the precise shape or curve of the labia, and once they no longer

protrude, their appearance would presumably not be noticeable anyway. Just as

with reduction mammoplasty and surgery to pin back the ears, we suggest that ‘the

patient can usually describe the problem that concerns them and their desired

outcome and the cosmetic surgeon can understand their expectations.’41 In contrast,

a procedure such as rhinoplasty where the desired change and the result is more

subjective, is associated with more dissatisfaction.42

The effects of being refused treatment

The stakes are high when an adolescent’s request for genital cosmetic surgery is

denied. People with BDD have a ‘markedly high’ rate of ‘completed suicide’

compared to the general population.43 A prospective observational study of

suicidality in BDD cites a completed suicide rate of approximately 45 times higher

than the general population.44 Added to this, the Diagnostic and Statistical Manual

(DSM-5) notes that the most common age of onset is 12-13 years and those with

onset before 18 ‘are more likely to attempt suicide’.45

If a young person really has BDD, being refused treatment is very likely to be

traumatic, and hence increase the already high risk of suicide. So why not do a

simple procedure to avoid trauma, and at least not escalate suicide risk? The harm

41 Ibid: 220. 42 Veale et al. op. cit. note 39, p.838. 43 K.A. Phillip & W. Menard. Suicidality in Body Dysmorphic Disorder: A Prospective Study. Am J

Psychiatry 2006; 163: 1280-1282; 1280. 44 Ibid: 1281. 45 American Psychiatric Association 2013a, op. cit. note 31, p. 300.7 (F45.22)

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Merle Spriggs & Lynn Gillam. 2016. Bioethics; 30(9): 706-713.

This is the accepted version of the following article: Spriggs, M., and L. Gillam. 2016. Body Dysmorphic Disorder: Contraindication or ethical justification for Female Genital Cosmetic Surgery in adolescents. Bioethics 30(9): 706-713 which has been published in final form at https://doi.org/10.1111/bioe.12278

(distress in a person already at increased risk of suicide) done by refusing surgery

may be much greater than any harm or risk from the surgery.

When evaluating the effect of being refused treatment, an essential consideration is

alternative forms of management and whether these could effectively ameliorate the

distress and other negative effects. An important aspect of this is whether

alternatives to surgery are even acceptable to adolescents requesting cosmetic

labioplasty, let alone effective to any degree. Education and reassurance about the

wide range of ‘normal’ female genital appearance and referral to other specialists are

all part of good practice. We are not arguing against those things. Our concern is

for an adolescent with BDD who does not respond to these practices. There is a

distinction that can be made between what is considered ‘normal’ and ‘abnormal’,

and what a particular adolescent likes or dislikes. The mere fact that something is

normal (in the statistical sense), does not mean that an adolescent will therefore like

it. It is not inconsistent for her to say ‘It may be normal, but I don’t like the look of it,

and I want it changed’. So, for some, education and reassurance may have little

effect.

Other forms of management suggested include psychiatric treatments. These

include medications such as SRIs and antipsychotics and talking therapies such as

Cognitive Behavioural Therapy and psychosexual counselling. These treatments

require the co-operation of the patient and they are likely to be resisted by patients

‘who see the problem as physical.’46 In addition, waiting lists and costs can be

obstacles with the result that some of these options may not always be readily

46 Bramwell, Morland & Garden, op. cit. note 6, p.1498.

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Merle Spriggs & Lynn Gillam. 2016. Bioethics; 30(9): 706-713.

This is the accepted version of the following article: Spriggs, M., and L. Gillam. 2016. Body Dysmorphic Disorder: Contraindication or ethical justification for Female Genital Cosmetic Surgery in adolescents. Bioethics 30(9): 706-713 which has been published in final form at https://doi.org/10.1111/bioe.12278

accessible when needed, especially in countries where health insurance programs

are absent or inadequate.

The questionable quality of evidence about outcomes is a concern with Female

Genital Cosmetic Surgery, but we argue that poor quality of evidence is a significant

issue also when considering alternative forms of management, especially if there is

BDD. Body Dysmorphic Disorder is an understudied psychiatric condition.47

According to Castle, funding bodies view BDD as a trivial issue and for that reason, it

is difficult to get funding for research.48 In terms of treatment, there is only weak

evidence for Cognitive Behavioural Therapy and SRIs as a treatment for BDD – the

best that can be said is that they ‘appear to be effective’ or they are potentially

effective.49

Research on treatment for BDD is ‘scarce’,50 and there is virtually no adolescent

specific evidence.51 In addition to this, we know that psychotropic drugs have

significant side-effects. Side effects experienced by adolescents include ‘increased

appetite, sedation, tics, self-harm and suicidality’.52 In addition, side effects or even

the fear of side effects can lead to patients stopping treatment altogether. For

47 Castle, Rossell & Kyrios, op. cit. note 28, p.535. 48 D. Castle. Ugliness is in the Eye of the Beholder. Workshop presentation, Cosmetex 2015, The Cosmetic Surgery and Medical Expo. Melbourne, Australia. 49 Crerand et al. op. cit. note 28, p.16; G. Krebs, C. Turner, I. Heyman & D. Mataix-Cols. Cognitive

Behaviour Therapy for Adolescents with Body Dysmorphic Disorder: A Case Series. Behav Cogn Psychother 2012; 40: 452-461. 50 S. Wilhelm, K.A. Phillips, J. Fama, J. L. Greenberg & G. Steketee. Modular Cognitive-Behavioral

Therapy for Body Dysmorphic Disorder. Behav Ther 2011; 42: 624-633: 315. 51 Krebs et al. op. cit. note 49; D. Mataix-Cols, L. Fernandez de la Cruz, K. Isomura, M. Anson, C.

Turner, B. Monzani, J. Cadman, L. Bowyer, I. Heyman, D. Veale & G. Krebs. A Pilot Randomized Controlled Trial of Cognitive-Behavioral Therapy for Adolescents with Body Dysmorphic Disorder. J Am Acad Child Adolesc Psychiatry 2015; 54: 895-904. 52 R.J. Hilt, M. Chaudhari, J.F. Bell, C. Wolf, K. Doprowicz & B.H. King. Side Effects from Use of One

or More Psychiatric Medications in a Population-Based Sample of Children and Adolescents. J Child Adolesc Psychopharmacol 2014; 24:83-89:88-89

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Merle Spriggs & Lynn Gillam. 2016. Bioethics; 30(9): 706-713.

This is the accepted version of the following article: Spriggs, M., and L. Gillam. 2016. Body Dysmorphic Disorder: Contraindication or ethical justification for Female Genital Cosmetic Surgery in adolescents. Bioethics 30(9): 706-713 which has been published in final form at https://doi.org/10.1111/bioe.12278

instance, obesity which is a common side effect of antipsychotic medications is

recognised as a primary reason that people cease to comply with treatment.53

Overall, then, it is not clear at all that any of these alternatives are preferable to

surgery in terms of effectiveness in dealing with the distress being experienced by an

adolescent with BDD.

Evidence that labioplasty eliminates Body Dysmorphic Disorder

The author of a recent study of psychosexual outcomes after labioplasty suggest that

‘a diagnosis of BDD is not a contraindication’ for labioplasty.54 In fact, it can eliminate

BDD which would presumably eliminate the accompanying suicide risk. In that study

of women aged between 18-60 years, nine out of 49 women wanting labioplasty met

the diagnostic criteria for BDD prior to surgery, but only one retained the diagnosis at

follow-up 3 months later. The woman who did not lose the diagnosis started out with

two preoccupations. Although her primary preoccupation with her genitals went

away after having the labioplasty, she retained the BDD diagnosis because she still

had a preoccupation with her nose.55 Four women in the study were able to be

followed up in the long term and they ‘continued without a diagnosis of BDD’.56

The participants in this study were adult women, but there is no obvious reason to

believe that the situation would be significantly different for adolescents. Labioplasty

for an adolescent with BDD could be compared to puberty- suppression treatment for

an adolescent with Gender dysphoria: in the latter case, the benefit that comes from

53 P.J. Weiden, J.A. Mackell & D.D. McDonnell. Obesity as a Risk Factor for Antipsychotic

Noncompliance. Schizophr Res 2004; 66:51-57. 54 Veale et al. op. cit. note 39, p.838. 55 Ibid: 837. 56 Ibid.

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Merle Spriggs & Lynn Gillam. 2016. Bioethics; 30(9): 706-713.

This is the accepted version of the following article: Spriggs, M., and L. Gillam. 2016. Body Dysmorphic Disorder: Contraindication or ethical justification for Female Genital Cosmetic Surgery in adolescents. Bioethics 30(9): 706-713 which has been published in final form at https://doi.org/10.1111/bioe.12278

the relief of distress may make us wonder if it really matters if the surgery is not

‘medically necessary’ in any physical sense. For BDD, a condition ‘with strikingly

high suicidality rates in adolescents, with a reported 21% to 44% of patients

attempting suicide,’57 there is a point at which the distress a condition causes

becomes medically significant.58 As it is with Gender Dysphoria, one major goal of

treatment is surely reduction in or resolution of distress.

We take the position that ‘medical necessity’ should be interpreted broadly, and

should include reduction of psychological distress just as much as restoring physical

function. There are disputes about what constitutes treatment, enhancement, health

and disease59 and disagreement about whether medicine has a single overarching

end (health) rather than ‘multiple (and sometimes) conflicting ends’.60 Our

understanding of medical necessity fits well with the WHO definition of health.61 This

is not controversial. There are many accepted uses of drugs and procedures where

there is no strict physical necessity. For example, aiding a woman in childbirth,

contraception, sterilization, laser surgery for short-sightedness.

Concern about new appearance preoccupations developing

What of the worry that after surgery, new appearance preoccupations will develop?

Firstly, it is important to note this outcome would not necessarily be disastrous. It

simply puts the adolescent approximately back where they were, having BDD but

57 Mataix-Cols et al. op. cit. note 51, p.895. 58 AUTHOR 59 R. Wachbroit. 2001. Concepts of Health and Disease. In The Concise Encyclopedia of the Ethics of

New Technologies. R. Chadwick, ed. San Diego, California: Academic Press: 229-233. 60 G. Dworkin. 1998. The Nature of Medicine. In Euthanasia and Physician-Assisted Suicide. G.

Dworkin, R.G. Frey & S. Bok eds. Cambridge: Cambridge University Press:6-16:12-13. 61 World Health Organization (WHO). 2003. WHO Definition of Health. Available at:

http://www.who.int/about/definition/en/print.html [Accessed 9 June 2016].

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Merle Spriggs & Lynn Gillam. 2016. Bioethics; 30(9): 706-713.

This is the accepted version of the following article: Spriggs, M., and L. Gillam. 2016. Body Dysmorphic Disorder: Contraindication or ethical justification for Female Genital Cosmetic Surgery in adolescents. Bioethics 30(9): 706-713 which has been published in final form at https://doi.org/10.1111/bioe.12278

with a different pre-occupation. At this point, a different approach can be taken, now

that there is reason to believe that surgery will not be effective. This does not mean

that trying surgery in the first instance was wrong, especially given that the

alternative is drugs, or having to wait six months for Cognitive Behavioural Therapy,

with the risk of the patient committing suicide in the meantime. The possibility that a

condition may reappear after surgery, is not in itself a good reason not to do the

surgery in the first place.

(B) Challenging autonomy-based concerns

Autonomy-based concerns about BDD and labioplasty are not convincing. First of all,

it is not clear that people with BDD lack autonomy because:

(a) Autonomy should be assessed according to the way a person reasons rather

than the content of their choice. The content of the choice is relevant only in so

far as ‘content’ refers to psychological considerations, e.g. content becomes

relevant only if the choice is unintelligible or lacks understanding.62

(b) Autonomous choices do not have to be good choices. They do not have to be

prudent or palatable – but they do need some minimal amount of rationality.63

(c) A person who is choosing autonomously, is able to critically reflect and make

decisions backed by reasons. If questioned, they are able to defend their choices

in terms of their own values.64 In principle, there is no reason to think that people

with BDD would be unable to do this.

62 AUTHOR: 234 63 AUTHOR: 235 64 AUTHOR: 235

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Merle Spriggs & Lynn Gillam. 2016. Bioethics; 30(9): 706-713.

This is the accepted version of the following article: Spriggs, M., and L. Gillam. 2016. Body Dysmorphic Disorder: Contraindication or ethical justification for Female Genital Cosmetic Surgery in adolescents. Bioethics 30(9): 706-713 which has been published in final form at https://doi.org/10.1111/bioe.12278

(d) People who make autonomous decisions have what Gerald Dworkin calls

‘procedural independence’.65 This means that they are not subject to influences

which seriously affect their ability to critically reflect (they are not brainwashed,

manipulated or coerced) and they are aware of influences on their deliberations.

Again, people with BDD would in principle meet this requirement.

There seems to be nothing about having BDD that is incompatible with autonomy.

Furthermore, a standard strategy for dealing with people requesting labioplasty who

are thought to have BDD, is to talk to them.66 Conversation or what Jay Katz refers

to as the ‘imposition of dialogue’ 67 assists with the rationality requirement and it

assists with procedural independence. Conversation is a way to clarify

misconceptions and misunderstandings and helps patients to act with an awareness

of the influences on their thinking.68 In other words, conversation helps with

assessing autonomy in the first instance, but also in promoting autonomy, e.g. by

getting patients to engage in self-reflection and reflection with others.

A second reason that autonomy-based arguments fail against BDD in relation to

labioplasty for adolescents is that it is not clear how applicable autonomy concerns

are for adolescents. We are not assuming that the adolescent is a mature minor

making her own decision about labioplasty. Therefore, the question of her capacity

for autonomous decision-making is not the issue. We are assuming that parents will

65 G. Dworkin. 1988. The Theory and Practice of Autonomy. Cambridge: Cambridge University Press. 66 Women’s Health Victoria. 2013. Women’s Health Issues Paper No. 9: Women and Genital

Cosmetic Surgery. Melbourne, Victoria. Available at: http://whv.org.au/static/files/assets/ca7e9b2f/Women-and-genital-cosmetic-surgery-issues-paper.pdf [Accessed 12 June 2016]. 67J. Katz. 1984. The Silent World of Doctor and Patient. London: Collier, Macmillan Publishers: 123. 68 AUTHOR: 238; Katz, op. cit. note 68.

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Merle Spriggs & Lynn Gillam. 2016. Bioethics; 30(9): 706-713.

This is the accepted version of the following article: Spriggs, M., and L. Gillam. 2016. Body Dysmorphic Disorder: Contraindication or ethical justification for Female Genital Cosmetic Surgery in adolescents. Bioethics 30(9): 706-713 which has been published in final form at https://doi.org/10.1111/bioe.12278

be the ultimate decision-makers and their autonomy is not in question. Our focus is

on the comparative harms and benefits of labioplasty for an adolescent with BDD, on

the basis that parents and doctors together will be seeking the decision that

promotes the wellbeing of the adolescent by maximising benefits and minimising

harms.

CONCLUSION

Our argument about avoiding harm can be stated in a form very similar to Bayne &

Levy’s set of premises, which they used to justify a more extreme ‘medically non-

necessary’ form of surgery, namely limb amputation for BIID.69

(i) Adolescents with BDD who want labioplasty may endure serious suffering.

(Distress, suicidality);

(ii) Labioplasty will – or is likely to – secure relief from this suffering. (Empirical

research.70);

(iii) This relief cannot be secured by other less drastic means. (Lack of evidence for

alternative treatments.);

(iv) Securing relief from this suffering is worth the cost of labioplasty, i.e. the effect on

the person of the surgery, and the physical consequences of that. (Labioplasty is

a simple surgical procedure with low risk, and no on-going physically disabling

effects).

So we find ourselves pushed to arguing in favour of cosmetic labioplasty for

adolescents who have BDD. Initially, we did feel uncomfortable about this, as it is not

69 T. Bayne & N. Levy. Amputees by Choice: Body Integrity Identity Disorder and The Ethics of

Amputation. J Appl Philos 2005; 22:75-86: 82. 70 Veale et al. op. cit. note 39.

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Merle Spriggs & Lynn Gillam. 2016. Bioethics; 30(9): 706-713.

This is the accepted version of the following article: Spriggs, M., and L. Gillam. 2016. Body Dysmorphic Disorder: Contraindication or ethical justification for Female Genital Cosmetic Surgery in adolescents. Bioethics 30(9): 706-713 which has been published in final form at https://doi.org/10.1111/bioe.12278

what we expected and is certainly counter-intuitive, at least to us. However, we have

reflected that this outcome shows the power of ethical reasoning. If pursued

thoroughly, using the available evidence and working from first principles, it is similar

to the scientific method, in that it leads to a logical conclusion, regardless of what

one might have expected at the outset.

As we have shown, the answers to empirical questions and the quality of evidence

play a crucial role in answering the ethical question of whether Female Genital

Cosmetic Surgery for an adolescent could ever be ethically justified. For an

adolescent with BDD, the most important thing may be to avoid harm and a simple

surgical procedure may be the answer to that.


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