Breaking Barriers Forging New Links

New vistas

in collaboration

and innovation

Forces At Work

Demographic Change

Fiscal Constraint

System Maturation

Aging Boom

Service Pressures

Collaborative Models

Aging Boom

Of persons with developmental disabilities:

Longevity Dementia Living in the community Aging caregivers

Service Pressures

More clients Fewer trained staff Attracting / retaining qualified staff Constrained training budgets Risk

Collaborative Models

Range of activity extends from cooperation to amalgamation

The system knows how to engage in innovative / collaborative ventures

A New Reality

Aging and Developmental Disabilities

Front Line Experiences

Unexplained Changes in Functioning

Incongruence Between Programs Offered and People’s Needs

Confusion, Frustration

Finding Direction

Ontario Partnership On Aging And

Developmental Disabilities

OPADD

What Is OPADD Trying to Do?

Vision

That older adults with a developmental disability have the same rights to support and services as all older adults

Principles

Choice Access Creative options Individualized

planning

Local Solutions for Local Problems Cross sector linkages at the

agency level Participation of planning bodies Agencies retain autonomy Enrich capacity to support people

with developmental disabilities as they age

What OPADD Has Done Provincial symposium and 4

regional workshops Established a provincial cross

sector body to guide Ongoing support to local groups Developing models for transition

planning

The Next Five Years

Building bridges between:

Services for older adults

Services for people with developmental disabilities

Planning Groups

Support existing regions and local groups that have initiated collaborative projects

Stimulate new cross sector planning groups

Information and Education

Information exchanges Interactive web site Quarterly E-zine Links with educational institutions

to explore shifts in curriculum

Expand the Perspective

Support national and international conferences on aging and developmental disabilities

Winnipeg 2004 Somewhere 2006

Policy

Inform policy-makers about innovation and gaps in the system

Foster informed policy-making that supports realization of our vision and principles

Legislative Constraints Innovation requires

stepping outside of the silos

Dialogue between service providers and policy makers provides a means to explore possibilities

Ontario Projects Today

Cross Sector:

Research Planning Pilot Projects Protocols

Stories of Innovation

Outcomes = Continuum

Aging in place Support adjustments Long term care home

North West OntarioNW ADD Committee:

Evolved from 2000 Symposium

Cross sector training

Close ties with academic sector

Developing demographic profile

South West Ontario

CLL home for people w/dementia Middlesex exploring cross sector dialogue Huron Trillium Partnership – protocols & handbooks Exploration of Huron Perth cross sector committee

ElderHome Projects Features:

Independent living Maintain existing social relationships

in the community Provide a unique set of optional and

specialized supports Prevent or delay long term care

placement

GTA

GTA working group to

become localcommittee of

OPADDin January 2005

Central East OntarioCE Cross SectorTraining Committee:

Growing newknowledge throughcross sector trainingevents

South East Ontario Strong ties to

academic community

Meetings January 2005 to explore re-establishment of regional process

Champlain Ottawa

Strong leadership fromdevelopmentalservices coordinatingnetwork to establish across sector regionalprocess

How Partnerships are Created

Necessity is the

parent

of collaboration

The Story of Learning

Increased admissions of people with Down Syndrome

No two alike Behaviour varied among individuals Wanted to understand what this

meant

Asked Reena for Information

Huge information package shared with medical and nursing staff

Invited to workshop an aging and developmental disabilities

Joined OPADD Joined the Transition Task Force

Cross Sectors

Cummer Lodge: Attends care

conferences Provides in-home

visits Meets with family

Reena:

Sends staff to tour Cummer Lodge

Provides staff support during the transition process

Family Barriers Fears of re-institutionalization Aging of family

caregivers may limit their capacity for involvement

Wait rather than plan in advance crisis

Developmental Services Provider Barriers Fears of re-

institutionalization Strong bonds with

clientele Need to maintain

connection with people in the client’s support circle

Transition Planning Success Factors

Done well in advance Involves the client’s

support circle Addresses feelings of

caregivers and clientele

Multi-disciplinary approach

Ensure plan shaped to client’s needs

Outcomes Planned transitions -> planned

allocation of resources

Developmental services can allocate resources to other clientele on their waiting lists

Long term care system can provide appropriate support

New Horizons

Cross sector working relationships

Innovation Collaboration System

effectiveness

The Story Continues