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“…bringing research based treatments into the lives of individuals with autism.” Dr. Fred Volkmar Director of the Yale Child Study Center. “Leveraging Technology to Meet the Growing Demand for Autism Services” Jamie Pagliaro Co-Creator & EVP of Rethink Autism, Inc. March 2012 1 in 88. - PowerPoint PPT Presentation
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“…bringing research based treatments into the lives of individuals with autism.” Dr. Fred Volkmar Director of the Yale Child Study Center
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Page 1: “…bringing research based treatments into the lives of individuals with autism.”  Dr. Fred Volkmar

“…bringing research based treatments into the lives of individuals with autism.”

Dr. Fred VolkmarDirector of the Yale Child Study Center

Page 2: “…bringing research based treatments into the lives of individuals with autism.”  Dr. Fred Volkmar

“Leveraging Technology to Meet the Growing Demand for Autism Services”

Jamie PagliaroCo-Creator & EVP of Rethink Autism, Inc.

Page 3: “…bringing research based treatments into the lives of individuals with autism.”  Dr. Fred Volkmar

March 20121 in 88

Page 4: “…bringing research based treatments into the lives of individuals with autism.”  Dr. Fred Volkmar

U.S Department of Education (2010)

Page 5: “…bringing research based treatments into the lives of individuals with autism.”  Dr. Fred Volkmar

Child Count in 1999-2000 Child Count in 2008-2009

Age 3-5 631 1,389Age 6-11 2,408 5,974

Age 12-17 1,338 5,028Age 18-21 329 961Age 6-21 4,075 11,963Age 3-21  4,706 13,352

IDEA Part B - Children with Autism in Michiganfor 1999-2000 and 2008-2009(Child Count by Age Group)

~3x

Page 6: “…bringing research based treatments into the lives of individuals with autism.”  Dr. Fred Volkmar

What the research is telling us…

National Research CouncilCurriculum Areas: Functional communication Social instruction Play and leisure Cognitive and academic skills Challenging behavior Generalization and maintenance

*For more information see Educating Children with Autism (2001)

Page 7: “…bringing research based treatments into the lives of individuals with autism.”  Dr. Fred Volkmar

What the research is telling us…

NationalEstablished treatments – beneficial outcomes 11 treatments identified Majority developed in the behavioral literature

(e.g., Applied Behavior Analysis) Examples: • Comprehensive behavioral treatment• Joint attention intervention• Antecedent interventions

*For more information go to www.nationalautismcenter.org

Page 8: “…bringing research based treatments into the lives of individuals with autism.”  Dr. Fred Volkmar

Michigan State University: ASD-Michigan Project (2011)

Most educators did NOT use effective strategies regularly.

Many students do NOT have access to the curriculum offered other students.

Educators have low expectations for students with ASD.

One-third of the 194 Michigan teaching professionals responding said their students with ASD wouldn’t meet any 

grade-level achievement standards.

Page 9: “…bringing research based treatments into the lives of individuals with autism.”  Dr. Fred Volkmar

The Challenges faced by Schools & Service Providers…1. How to standardize the delivery of research-based

educational services for all children with autism?

2. How to provide training & support across multiple staff, families and geographic locations?

3. How to cost-effectively manage the increased demand for autism services?

Page 10: “…bringing research based treatments into the lives of individuals with autism.”  Dr. Fred Volkmar

The Costs…

Out-of-district placements $60,000-$120,000 per year Once students leave, they rarely come back

Page 11: “…bringing research based treatments into the lives of individuals with autism.”  Dr. Fred Volkmar

The Costs…

Costly related services & extra staff support $40-$100 per hour Layered into IEP’s with no plan to fade Required to benefit from special education?

Page 12: “…bringing research based treatments into the lives of individuals with autism.”  Dr. Fred Volkmar

The Costs…

Staff burnout The “hidden” costs of turnover Recruiting, training, increased supervision

Page 13: “…bringing research based treatments into the lives of individuals with autism.”  Dr. Fred Volkmar

Who We Are…

MissionTo make research-based educational treatment

tools accessible, affordable and easy-to-usefor parents and professionals.

Page 14: “…bringing research based treatments into the lives of individuals with autism.”  Dr. Fred Volkmar

Bridget Taylor, Psy.D., BCBA-D, Chair Rethink Autism - Senior Clinical Advisor

Peter Gerhardt, Ed.D. Organization for Autism Research

Patricia Wright, Ph.D. Easter Seals, National Autism Director

Michael Alessandri, Ph.D. Director, University of Miami - CARD

Bill Jenson, Ph.D. Professor, University of Utah

Fred Volkmar, M.D. Director, Yale Child Study Center

Catherine Lord, Ph.D. Cornell Medical Center

Louis Vismara, M.D. Co-Founder, M.I.N.D. Institute, UC-Davis

Maurice Feldman, Ph.D., BCBA-D Professor, Brock University

Nicolette Bainbridge Brigham, Ph.D. Director at TRIAD, Vanderbilt University

Scientific Advisory Board

Page 15: “…bringing research based treatments into the lives of individuals with autism.”  Dr. Fred Volkmar

• Parents/Individuals Nationwide Worldwide – 26 countries• Professionals

100’s of school districts nationwide, and virtual schools Department of Defense – military base schools worldwide Health Net - behavioral health subsidiary (MHN) Medicaid coverage through waiver program in two states

Web-based EducationalTreatment Platform

Page 16: “…bringing research based treatments into the lives of individuals with autism.”  Dr. Fred Volkmar

Example MI Partners Michigan Autism Alliance: Health Insurance Bill

ConsumerLink Networt: 500+ children in Wayne Co.

Henry Ford Health Center: Parent Training Model

Statewide Autism Resources & Training Center: Pilot

Detroit Public Schools: Pilot

Page 17: “…bringing research based treatments into the lives of individuals with autism.”  Dr. Fred Volkmar

• Key Components Comprehensive curriculum

Web-based EducationalTreatment Platform

Page 18: “…bringing research based treatments into the lives of individuals with autism.”  Dr. Fred Volkmar
Page 19: “…bringing research based treatments into the lives of individuals with autism.”  Dr. Fred Volkmar

• Key Components Comprehensive curriculum Individualized assessment tool

Web-based EducationalTreatment Platform

Page 20: “…bringing research based treatments into the lives of individuals with autism.”  Dr. Fred Volkmar
Page 21: “…bringing research based treatments into the lives of individuals with autism.”  Dr. Fred Volkmar

• Key Components Comprehensive curriculum Individualized assessment tool Behavior intervention planning

Web-based EducationalTreatment Platform

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Page 23: “…bringing research based treatments into the lives of individuals with autism.”  Dr. Fred Volkmar
Page 24: “…bringing research based treatments into the lives of individuals with autism.”  Dr. Fred Volkmar

• Key Components Comprehensive curriculum Individualized assessment tool Behavior intervention planning Staff & parent training modules

Web-based EducationalTreatment Platform

Page 25: “…bringing research based treatments into the lives of individuals with autism.”  Dr. Fred Volkmar
Page 26: “…bringing research based treatments into the lives of individuals with autism.”  Dr. Fred Volkmar

• Key Components Comprehensive curriculum Individualized assessment tool Behavior intervention planning Staff & parent training modules Data tracking & progress reporting

Web-based EducationalTreatment Platform

Page 27: “…bringing research based treatments into the lives of individuals with autism.”  Dr. Fred Volkmar
Page 28: “…bringing research based treatments into the lives of individuals with autism.”  Dr. Fred Volkmar
Page 29: “…bringing research based treatments into the lives of individuals with autism.”  Dr. Fred Volkmar

• Key Components Comprehensive curriculum Individualized assessment tool Behavior intervention planning Staff & parent training modules Data tracking & progress reporting Ongoing professional support

Web-based EducationalTreatment Platform

Page 30: “…bringing research based treatments into the lives of individuals with autism.”  Dr. Fred Volkmar
Page 31: “…bringing research based treatments into the lives of individuals with autism.”  Dr. Fred Volkmar

Comprehensive Video-Based Autism Curriculum

1200+ video-based ABA* exercises Research-based WITHOUT the jargon Featuring children with autism

Provides the TOOLS to teach!*Applied Behavior Analysis

Page 32: “…bringing research based treatments into the lives of individuals with autism.”  Dr. Fred Volkmar
Page 33: “…bringing research based treatments into the lives of individuals with autism.”  Dr. Fred Volkmar

Comprehensive Video-Based Autism Curriculum

Point of diagnosis through adolescence Covers the full spectrum Benefits children with other disabilities

Based on INDIVIDUALIZED needs!

Page 34: “…bringing research based treatments into the lives of individuals with autism.”  Dr. Fred Volkmar

Comprehensive Video-Based Autism Curriculum

WINNER of the 2011 Education Innovation SummitBest in Class Curriculum Award

WINNER of the 2011 CODiE AwardBest Instructional Solution for Special Needs Students

WINNER of the 2011 Interactive Media AwardBest in Class EducationBest in Class Healthcare

Page 35: “…bringing research based treatments into the lives of individuals with autism.”  Dr. Fred Volkmar

Comprehensive Video-Based Autism Curriculum

The FIRST & ONLY Autism Curriculum aligned with the

Common Core State Standards

(www.corestandards.org)

Page 36: “…bringing research based treatments into the lives of individuals with autism.”  Dr. Fred Volkmar

Staff Performance GeneralizationSample in Public School – Western U.S.

(Cardinal & Jenson, 2011)

Page 37: “…bringing research based treatments into the lives of individuals with autism.”  Dr. Fred Volkmar

Student Skill AcquisitionSample in Public School – Western U.S.

Student 1 Student 2 Student 3 Student 40

10

20

30

40

50

60

70

80

90

100

BaselineOverall Average Performance

(Cardinal & Jenson, 2011)

Page 38: “…bringing research based treatments into the lives of individuals with autism.”  Dr. Fred Volkmar

What users are saying…“Since we met, we received our devices and the virtual curriculum. The other teacher as well as myself have been using it everyday since November 23rd...

...The program is beyond words, especially when one takes into account it centralizes and breaks it down, as no two communication styles are the same (as is the case in my classroom). Thank you for inquiring, we are happy with the program, just could have used this 5 years ago.”

Christopher O'BrienSelf-contained Teacher

Page 39: “…bringing research based treatments into the lives of individuals with autism.”  Dr. Fred Volkmar

What users are saying…

“We could not be more pleased with the rethink autism program and the quality of customer care service. As the sole curriculum or as a supplementary resource, rethink autism is well worth the cost!” 

Dr. Steven G. CaponegroDirector of Special Services

Page 40: “…bringing research based treatments into the lives of individuals with autism.”  Dr. Fred Volkmar

What users are saying…

“Thanks Robin! It was great to speak to you also! I always get reenergized when I talk to your people!  I love that! Thanks for reaching out to me and to us-we love Rethink!!!!” Catherine PerisonBehavior Intervention Specialist

Page 41: “…bringing research based treatments into the lives of individuals with autism.”  Dr. Fred Volkmar

For More Information:

www.rethinkautism.com

Contact:

Jamie [email protected] ext. 205


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