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INTRODUCTION TO
EFFECTIVE HOARDING
INTERVENTION
Erika Woods
Environmental Specialist/ Sanitarian
Barnstable County Department of Health & Environment
Chair: Cape Cod Hoarding Task Force (CCHTF)
508-375-6620
Mission Statement
The Cape Cod Hoarding Task Force’s mission is to raise awareness of compulsive hoarding and to
provide education and support for those affected by hoarding through accessible tools, referrals and
resources. The Cape Cod Hoarding Task Force
(CCHTF) seeks to develop a coordinated response among community agencies to the problem of
hoarding in a sensitive and responsible fashion.
► Hoarding Disorder (HD)
► Definition
► Attributes
► Hoarding vs squalor
► Animal hoarding
► Examine the challenges in addressing hoarding
► Explore tools for assessing hoarding
► Promising programs
► Strategies to address hoarding
Today’s Overview:Hoarding is a Mental Health Disorder as defined in the DSM V (Diagnostic and Statistical Manual of Mental Disorders)
Experts Define Hoarding as:
► The acquisition of, and inability to discard items regardless of the perceived value put on them by others
► Living spaces (are) sufficiently cluttered so as to preclude activities for which those spaces were designed
► Significant distress or impairment in functioning caused by the hoarding (to tenant, others in building, owner, etc). " This definition distinguished hoarding from the collecting of objects generally considered interesting and valuable”
2013 American Psychiatric Association
In order for a diagnosis of hoarding to be given, these symptoms cannot be from another illness/ injury such as:
a traumatic brain injury
Definition
The hallmark of hoarding behavior is
not being able to let go of things.
Individuals tend to want to make sure
items go to a “good home” but won’t
let go.
Research shows that brain is signaling
that they have made the wrong decision even before they make a
decision.
Is there a failure to discard a large volume of items?
Does the clutter make it hard to use rooms for their intended use?
Is there stress or impaired functioning caused by the stress?
Is it Hoarding?
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Value of possessions is in the eyes of the individual saving them
Intrinsic- (aesthetic)
Sentimental
Instrumental
Other- reasons-safety
Not all clutter is hoarding. It could
be due to downsizing or other
issues
► Affects 2-5% of the population.
► Onset- around 13 years old
► Seek help around age 50
► Cleanouts near 100% recidivism rate without
any type of behavioral health treatment
► Study shows individuals more likely to seek help
for other mental health problems than HD.
► Individuals more likely to suffer from chronic
medical conditions and obesity.
► Very often co-occurring mental illness
► Major depression; anxiety
► Very often well educated
► Family history of hoarding is common
HOARDING VS SQUALOR
HOARDING SQUALOR
Hoarding and squalor are not the same
Squalor is defined as filthiness or degradation from neglect: Two forms– domestic and personal
Hoarding is related to the volume of clutter in the home, not the cleanliness
Squalor is often accompanied by hoarding, however the reverse is seldom the case.
Hoarding vs Squalor?
The severe neglect that they bring on themselves usually results in physical
collapse or mental breakdown. Most
individuals who suffer from the syndrome do not get identified until
they face this stage of collapse, due to
their predilection to refuse help from others.[4]
Diogenes syndrome, also known as
senile squalor syndrome, is a disorder
characterized by extreme self-neglect, domestic squalor, social withdrawal,
apathy, compulsive hoarding of
garbage, and lack of shame.
What is Squalor?
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The pathological accumulation of animals was first described in 1981 and animal hoarding was formally defined in the public health literature in 1999 using the following criteria:
► Having more than the typical number of companion animals.
► Failing to provide even minimal standards of nutrition, sanitation, shelter, and veterinary care, with this neglect often resulting in illness and death from starvation, spread of infectious disease, and untreated injury or medical condition.
► Denial of the inability to provide this minimum care and the impact of that failure on the animals, the household, and human occupants of the dwelling.
► Persistence, despite this failure, in accumulating and controlling animals.
Hoarding of Animals Research Consortium
Animal Hoarding
► Air Quality► Ammonia
► Bio-aerosols;
► Fungal spores► Dust particles
► Zoonotic diseases
► Elder, child abuse/
neglect
► Squalor
Animal Hoarding
Animal cruelty laws
Each state in the US has laws prohibiting cruelty to animals and imposing upon caretakers a duty of providing minimal care. Although the laws may differ
somewhat in each state, all states require that owners or caretakers of animals do
the following:
► Provide adequate food and clean, potable water
daily in sufficient quantities to maintain an
animal’s normal body weight.► Provide shelter from the elements that will allow
the animal to stay dry and maintain a
normal body temperature.► Provide a clean, sanitary environment free of animal
feces, urine, and trash.
► Provide veterinary care necessary to relieve
suffering from disease, injury, or illness.
In hoarding situations, some or all of these provisions are likely to be violated
because animal cruelty statutes prohibit keeping animals in squalid situations. This is despite the fact that a competent adult might often be
allowed to live in these conditions unless in violation of a public health or safety
code. Therefore, these animal welfare statutes may provide an additional mode of
intervention for an adult living in squalor.
► Proper Food & Water
► Proper Sanitation
► Proper Comfort► Grooming
► Safety► Proper shelter and protection from the weather
► Proper veterinary care
For help, call local animal control, MSPCA or other local animal welfare agency.
What to look for:
Challenges of working
with individuals
► Insight
► Non-insightful
► Insightful but not motivated
► Insightful & motivated but non-compliant
► Motivation
► Enhancers
► support
► home visitors
► connection to what’s important/ values
► addressing co-occurring illness
Challenges to working with individuals
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► Personality features
► Excessively high standards & perfectionism
► Seeing the narrow categories at the cost of the big picture
► Indecisiveness and procrastination
► Difficulty trusting others
► Difficulty regulating emotions
► Difficulty taking another perspective
► Executive functioning
► Attention
► Perception
► Decision making
► Categorization/ association
► Prospective memory
► Special meaning of possessions
► Beauty/aesthetics
► Memory association
► Utility
► Sentimental
► Comfort
► Safety
► Identity
► Control
► Completeness
► Validation
► Socialization
Assessment of the Situation
Assessment Tools
►HOMES-multi-disciplinary risk assessment
►Uniform Inspection Checklist
►Clutter Image Rating Scale-CIR
►There’s an app for that!
► http://www.bu.edu/ssw/research/hoarding/cirtool
►Readiness to Change Self Assessment
►Many more…
H.O.M.E.S.
• Health
• Obstacles
• Mental Health
• Endangerment
• Structure & Safety
H.O.M.E.S: MULTI-DISCIPLINARY HOARDING RISK ASSESSMENT
► Structural measure through which level of risk can be conceptualized.
► Intended as an initial and brief assessment to
determine nature and parameters of the problem, and to organize a plan.
► Can be used differently depending on needs and resources.
► Other factors are evaluated to gain additional information about capacity to address the problem.
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UNIFORM INSPECTION CHECKLIST
► Resident: Ensure housing is safe, sanitary, and in good repair.
► Inspector:
► Distinction between hazardous vs. housekeeping;
► Document deficiencies in specifics;
► Rate each room.
CLUTTER IMAGE RATING SCALE
► Pictorial scale of 9 photos of 3 key
rooms
► Promotes accuracy of assessment of clutter
► Addresses over and under-reporting
► Available as an I-phone App
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Promising Programs
And Best Practices
Medication
medication alone does not alleviate hoarding behavior
Intervention - cleanout NOT recommended
Cognitive Behavior Therapy (CBT)
The core principles of CBT are identifying negative or false beliefs and testing or restructuring them. Skills training:
Organizing
Decision making
Problem solving
Self Help groups
Buried in Treasures
Harm Reduction
Treatment: There is no “One Size
Fits All”
First, do no harm
► Not necessary to stop all hoarding behavior
► No two hoarding situations are identical, hoarding is a unique
interaction between person, condition, and person’s
environment, and therefore requires a unique plan
► Person who hoards is an essential member of the harm reduction
process
► Change is slow and failures to honor the harm reduction plan are
part of the approach and do not mean the approach is failing
► People who hoard can make positive changes in their lives even
though they continue to hoard
Principles of Harm Reduction for
Severe Hoarding
► An individualized case management plan based on the
client’s stated needs, intake/assessment information, and the risk of subsidy loss, eviction, or condemnation.
► A combination of harm reduction and techniques borrowed
from cognitive-behavioral therapy.
► Weekly or bi-weekly home visits that include
sorting/discarding, non-acquiring exercises, and other skills
critical to managing the clutter. (mental health counseling not always
required)
► Referrals to appropriate community partners for additional
resources.
► Monitoring for one to two years after passing inspection
(when participants allow)
Metropolitan Boston Housing Authority:Hoarding Intervention and Tenancy Preservation
Project-Started to prevent evictions-loss of vouchers
Task Forces
Models of Task Force Intervention:► Education
► Internal/ professional
► Community► Case Consultation
► Direct Intervention
Currently 25 Hoarding Task Forces in Massachusetts
Initiating the response:
Putting it all together
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Design appropriate response based on assessment and factors that
What legal entities are involved
Common code violations
What NEEDS to be done to come into compliance
Communication key to a good outcome
Team approach to response
How do we respond once we
have a general idea of what’s going on?
DO’S:
► Imagine yourself in the hoarding client’s
shoes.
► Match the person’s language.
► Use encouraging language.
► Highlight strengths.
► Focus the intervention initially on safety
and organization of possessions and
later work on discarding.
DON'TS:
► Use judgmental language
► Use words that devalue or negatively judge
possessions
► Let your non-verbal expression say what you’re
thinking
► Make suggestions about the person’s belongings.
► Try to persuade or argue with the person.
► Touch the person’s belongings without explicit permission
ACES:
► Action words:
► Show me► Tell me about
► Curious questioning
► I wonder if…► Help me understand
► Empathetic Statements
► I understand you are worried about…► I can understand how hard this is.
► Statements of concern
► I worry that…► I’m concerned that…
Preparing to Sort
► Three pile system
► Keep, maybe, discard
► Short intervals to start (5-10 minutes)
► Use a timer
► Keep individual focused
► Set SMART Goals
► Specific, Measurable, Achievable, Realistic, Timely
► Give homework
► Post goals for individual to see
► Use visual cues for where items belong (or don’t belong)
► Set sorting “guidelines”
► Find out what will help the individual relax-music, tea etc.
Imminent Risk
•Clear egress path 24”
•Remove items from top of stove
•Remove items from near heating system
Must be corrected to
pass inspection
• Reduce clutter by 25%
• Egress paths 36”
• Stacks no higher than 4’
Not required but may improve
quality of life
•Clear bed for sleeping
•Put sheets/ towels in linen closet
Tiered Approach
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Room Mapping
Helpful Tools
Let’s Practice
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Mary is a 44-year-old, single woman with a history of depression
and anxiety. Her home is filled with books, newspapers, and other items collected over the past 28 years. She saves things just in
case she will need them later; they may become important. The
piles have become so stacked and unstable that she has trouble opening the door to her bedroom. Lately, Mary sleeps on a chair
in the living room because her bed has become cluttered with
miscellaneous books, newspapers and years’ worth of mail. She
has failed the Section 8 housing inspection due to egress violations and fire hazards in her home. In order to pass inspection, she has
been told that she will need to significantly reduce the number of
books, papers, and other items in her home. Mary is angry about the need to downsize and does not see any problem with owning
books and newspapers since they possess valuable information.
However, Mary does fear the potential for homelessness if she continues to fail inspection.
CASE ONE
Daniel is a 53-year-old man and he lives alone with a physical disability. His family is very concerned because he has fallen while walking with a cane several times in recent months. His last fall resulted in hospitalization for a broken leg. His home has become filled with canned food, computer parts and other items. Daniel plans to use these items when his health improves. Despite these piles getting significantly worse since his divorce 7 years ago. The majority of the food in the refrigerator has spoiled and begun to attract flies. The computer parts are obsolete and rendered useless. The hospital social worker made a recommendation for him to move to a rehabilitation center until his home is cleaned and de-cluttered. Daniel refused the rehabilitation placement and insisted on returning home. Although, he does not think it is necessary, as a compromise, a referral was made for hoarding intervention services.
CASE TWO
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CASE THREE
Elizabeth is a 79-year-old, frail elder who walks with a cane and has begun to have memory-related issues. The inside of the small home that she owns is filled with clothing, old photographs, knick-knacks, and food. Although, she no longer wears the majority of the clothing, the pieces hold sentimental value, as do the photographs that she has collected throughout her life. Elder Protective Services was called because a neighbor is concerned about her safety due to the appearance of her home from the outside. The roof is missing shingles and presents a potential problem for a leak. Items have begun to pile up on her front porch making it a challenge for any possible repairman or visitor to enter her home. Elder Services have offered to pay for Elizabeth’s home to be “cleaned-out” but she is unwilling to let strangers come in to make decisions about what will be thrown away. Each of these items has significant meaning and if they did not then she would not have held on to them.
RESOURCES
Cape Cod Hoarding Task Force
www.hoardingcapecod.org
info@hoardingcapecod
MassHousing
www.masshousing.com/hoarding
International OCD Foundation
https://iocdf.org/
CIR app for iphone, ipad etc
Erika A. Woods, BCDHE
508-375-6620