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12/1/2017 1 INTRODUCTION TO EFFECTIVE HOARDING INTERVENTION Erika Woods Environmental Specialist/ Sanitarian Barnstable County Department of Health & Environment Chair: Cape Cod Hoarding Task Force (CCHTF) [email protected] 508-375-6620 Mission Statement The Cape Cod Hoarding Task Force’s mission is to raise awareness of compulsive hoarding and to provide education and support for those affected by hoarding through accessible tools, referrals and resources. The Cape Cod Hoarding Task Force (CCHTF) seeks to develop a coordinated response among community agencies to the problem of hoarding in a sensitive and responsible fashion. Hoarding Disorder (HD) Definition Attributes Hoarding vs squalor Animal hoarding Examine the challenges in addressing hoarding Explore tools for assessing hoarding Promising programs Strategies to address hoarding Today’s Overview: Hoarding is a Mental Health Disorder as defined in the DSM V (Diagnostic and Statistical Manual of Mental Disorders) Experts Define Hoarding as: The acquisition of, and inability to discard items regardless of the perceived value put on them by others Living spaces (are) sufficiently cluttered so as to preclude activities for which those spaces were designed Significant distress or impairment in functioning caused by the hoarding (to tenant, others in building, owner, etc). " This definition distinguished hoarding from the collecting of objects generally considered interesting and valuable” 2013 American Psychiatric Association In order for a diagnosis of hoarding to be given, these symptoms cannot be from another illness/ injury such as: a traumatic brain injury Definition The hallmark of hoarding behavior is not being able to let go of things. Individuals tend to want to make sure items go to a “good home” but won’t let go. Research shows that brain is signaling that they have made the wrong decision even before they make a decision. Is there a failure to discard a large volume of items? Does the clutter make it hard to use rooms for their intended use? Is there stress or impaired functioning caused by the stress? Is it Hoarding?
Transcript
Page 1: Cape Cod Hoarding Task Force

12/1/2017

1

INTRODUCTION TO

EFFECTIVE HOARDING

INTERVENTION

Erika Woods

Environmental Specialist/ Sanitarian

Barnstable County Department of Health & Environment

Chair: Cape Cod Hoarding Task Force (CCHTF)

[email protected]

508-375-6620

Mission Statement

The Cape Cod Hoarding Task Force’s mission is to raise awareness of compulsive hoarding and to

provide education and support for those affected by hoarding through accessible tools, referrals and

resources. The Cape Cod Hoarding Task Force

(CCHTF) seeks to develop a coordinated response among community agencies to the problem of

hoarding in a sensitive and responsible fashion.

► Hoarding Disorder (HD)

► Definition

► Attributes

► Hoarding vs squalor

► Animal hoarding

► Examine the challenges in addressing hoarding

► Explore tools for assessing hoarding

► Promising programs

► Strategies to address hoarding

Today’s Overview:Hoarding is a Mental Health Disorder as defined in the DSM V (Diagnostic and Statistical Manual of Mental Disorders)

Experts Define Hoarding as:

► The acquisition of, and inability to discard items regardless of the perceived value put on them by others

► Living spaces (are) sufficiently cluttered so as to preclude activities for which those spaces were designed

► Significant distress or impairment in functioning caused by the hoarding (to tenant, others in building, owner, etc). " This definition distinguished hoarding from the collecting of objects generally considered interesting and valuable”

2013 American Psychiatric Association

In order for a diagnosis of hoarding to be given, these symptoms cannot be from another illness/ injury such as:

a traumatic brain injury

Definition

The hallmark of hoarding behavior is

not being able to let go of things.

Individuals tend to want to make sure

items go to a “good home” but won’t

let go.

Research shows that brain is signaling

that they have made the wrong decision even before they make a

decision.

Is there a failure to discard a large volume of items?

Does the clutter make it hard to use rooms for their intended use?

Is there stress or impaired functioning caused by the stress?

Is it Hoarding?

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Value of possessions is in the eyes of the individual saving them

Intrinsic- (aesthetic)

Sentimental

Instrumental

Other- reasons-safety

Not all clutter is hoarding. It could

be due to downsizing or other

issues

► Affects 2-5% of the population.

► Onset- around 13 years old

► Seek help around age 50

► Cleanouts near 100% recidivism rate without

any type of behavioral health treatment

► Study shows individuals more likely to seek help

for other mental health problems than HD.

► Individuals more likely to suffer from chronic

medical conditions and obesity.

► Very often co-occurring mental illness

► Major depression; anxiety

► Very often well educated

► Family history of hoarding is common

HOARDING VS SQUALOR

HOARDING SQUALOR

Hoarding and squalor are not the same

Squalor is defined as filthiness or degradation from neglect: Two forms– domestic and personal

Hoarding is related to the volume of clutter in the home, not the cleanliness

Squalor is often accompanied by hoarding, however the reverse is seldom the case.

Hoarding vs Squalor?

The severe neglect that they bring on themselves usually results in physical

collapse or mental breakdown. Most

individuals who suffer from the syndrome do not get identified until

they face this stage of collapse, due to

their predilection to refuse help from others.[4]

Diogenes syndrome, also known as

senile squalor syndrome, is a disorder

characterized by extreme self-neglect, domestic squalor, social withdrawal,

apathy, compulsive hoarding of

garbage, and lack of shame.

What is Squalor?

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The pathological accumulation of animals was first described in 1981 and animal hoarding was formally defined in the public health literature in 1999 using the following criteria:

► Having more than the typical number of companion animals.

► Failing to provide even minimal standards of nutrition, sanitation, shelter, and veterinary care, with this neglect often resulting in illness and death from starvation, spread of infectious disease, and untreated injury or medical condition.

► Denial of the inability to provide this minimum care and the impact of that failure on the animals, the household, and human occupants of the dwelling.

► Persistence, despite this failure, in accumulating and controlling animals.

Hoarding of Animals Research Consortium

Animal Hoarding

► Air Quality► Ammonia

► Bio-aerosols;

► Fungal spores► Dust particles

► Zoonotic diseases

► Elder, child abuse/

neglect

► Squalor

Animal Hoarding

Animal cruelty laws

Each state in the US has laws prohibiting cruelty to animals and imposing upon caretakers a duty of providing minimal care. Although the laws may differ

somewhat in each state, all states require that owners or caretakers of animals do

the following:

► Provide adequate food and clean, potable water

daily in sufficient quantities to maintain an

animal’s normal body weight.► Provide shelter from the elements that will allow

the animal to stay dry and maintain a

normal body temperature.► Provide a clean, sanitary environment free of animal

feces, urine, and trash.

► Provide veterinary care necessary to relieve

suffering from disease, injury, or illness.

In hoarding situations, some or all of these provisions are likely to be violated

because animal cruelty statutes prohibit keeping animals in squalid situations. This is despite the fact that a competent adult might often be

allowed to live in these conditions unless in violation of a public health or safety

code. Therefore, these animal welfare statutes may provide an additional mode of

intervention for an adult living in squalor.

► Proper Food & Water

► Proper Sanitation

► Proper Comfort► Grooming

► Safety► Proper shelter and protection from the weather

► Proper veterinary care

For help, call local animal control, MSPCA or other local animal welfare agency.

What to look for:

Challenges of working

with individuals

► Insight

► Non-insightful

► Insightful but not motivated

► Insightful & motivated but non-compliant

► Motivation

► Enhancers

► support

► home visitors

► connection to what’s important/ values

► addressing co-occurring illness

Challenges to working with individuals

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► Personality features

► Excessively high standards & perfectionism

► Seeing the narrow categories at the cost of the big picture

► Indecisiveness and procrastination

► Difficulty trusting others

► Difficulty regulating emotions

► Difficulty taking another perspective

► Executive functioning

► Attention

► Perception

► Decision making

► Categorization/ association

► Prospective memory

► Special meaning of possessions

► Beauty/aesthetics

► Memory association

► Utility

► Sentimental

► Comfort

► Safety

► Identity

► Control

► Completeness

► Validation

► Socialization

Assessment of the Situation

Assessment Tools

►HOMES-multi-disciplinary risk assessment

►Uniform Inspection Checklist

►Clutter Image Rating Scale-CIR

►There’s an app for that!

► http://www.bu.edu/ssw/research/hoarding/cirtool

►Readiness to Change Self Assessment

►Many more…

H.O.M.E.S.

• Health

• Obstacles

• Mental Health

• Endangerment

• Structure & Safety

H.O.M.E.S: MULTI-DISCIPLINARY HOARDING RISK ASSESSMENT

► Structural measure through which level of risk can be conceptualized.

► Intended as an initial and brief assessment to

determine nature and parameters of the problem, and to organize a plan.

► Can be used differently depending on needs and resources.

► Other factors are evaluated to gain additional information about capacity to address the problem.

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UNIFORM INSPECTION CHECKLIST

► Resident: Ensure housing is safe, sanitary, and in good repair.

► Inspector:

► Distinction between hazardous vs. housekeeping;

► Document deficiencies in specifics;

► Rate each room.

CLUTTER IMAGE RATING SCALE

► Pictorial scale of 9 photos of 3 key

rooms

► Promotes accuracy of assessment of clutter

► Addresses over and under-reporting

► Available as an I-phone App

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Promising Programs

And Best Practices

Medication

medication alone does not alleviate hoarding behavior

Intervention - cleanout NOT recommended

Cognitive Behavior Therapy (CBT)

The core principles of CBT are identifying negative or false beliefs and testing or restructuring them. Skills training:

Organizing

Decision making

Problem solving

Self Help groups

Buried in Treasures

Harm Reduction

Treatment: There is no “One Size

Fits All”

First, do no harm

► Not necessary to stop all hoarding behavior

► No two hoarding situations are identical, hoarding is a unique

interaction between person, condition, and person’s

environment, and therefore requires a unique plan

► Person who hoards is an essential member of the harm reduction

process

► Change is slow and failures to honor the harm reduction plan are

part of the approach and do not mean the approach is failing

► People who hoard can make positive changes in their lives even

though they continue to hoard

Principles of Harm Reduction for

Severe Hoarding

► An individualized case management plan based on the

client’s stated needs, intake/assessment information, and the risk of subsidy loss, eviction, or condemnation.

► A combination of harm reduction and techniques borrowed

from cognitive-behavioral therapy.

► Weekly or bi-weekly home visits that include

sorting/discarding, non-acquiring exercises, and other skills

critical to managing the clutter. (mental health counseling not always

required)

► Referrals to appropriate community partners for additional

resources.

► Monitoring for one to two years after passing inspection

(when participants allow)

Metropolitan Boston Housing Authority:Hoarding Intervention and Tenancy Preservation

Project-Started to prevent evictions-loss of vouchers

Task Forces

Models of Task Force Intervention:► Education

► Internal/ professional

► Community► Case Consultation

► Direct Intervention

Currently 25 Hoarding Task Forces in Massachusetts

Initiating the response:

Putting it all together

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Design appropriate response based on assessment and factors that

What legal entities are involved

Common code violations

What NEEDS to be done to come into compliance

Communication key to a good outcome

Team approach to response

How do we respond once we

have a general idea of what’s going on?

DO’S:

► Imagine yourself in the hoarding client’s

shoes.

► Match the person’s language.

► Use encouraging language.

► Highlight strengths.

► Focus the intervention initially on safety

and organization of possessions and

later work on discarding.

DON'TS:

► Use judgmental language

► Use words that devalue or negatively judge

possessions

► Let your non-verbal expression say what you’re

thinking

► Make suggestions about the person’s belongings.

► Try to persuade or argue with the person.

► Touch the person’s belongings without explicit permission

ACES:

► Action words:

► Show me► Tell me about

► Curious questioning

► I wonder if…► Help me understand

► Empathetic Statements

► I understand you are worried about…► I can understand how hard this is.

► Statements of concern

► I worry that…► I’m concerned that…

Preparing to Sort

► Three pile system

► Keep, maybe, discard

► Short intervals to start (5-10 minutes)

► Use a timer

► Keep individual focused

► Set SMART Goals

► Specific, Measurable, Achievable, Realistic, Timely

► Give homework

► Post goals for individual to see

► Use visual cues for where items belong (or don’t belong)

► Set sorting “guidelines”

► Find out what will help the individual relax-music, tea etc.

Imminent Risk

•Clear egress path 24”

•Remove items from top of stove

•Remove items from near heating system

Must be corrected to

pass inspection

• Reduce clutter by 25%

• Egress paths 36”

• Stacks no higher than 4’

Not required but may improve

quality of life

•Clear bed for sleeping

•Put sheets/ towels in linen closet

Tiered Approach

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Room Mapping

Helpful Tools

Let’s Practice

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Mary is a 44-year-old, single woman with a history of depression

and anxiety. Her home is filled with books, newspapers, and other items collected over the past 28 years. She saves things just in

case she will need them later; they may become important. The

piles have become so stacked and unstable that she has trouble opening the door to her bedroom. Lately, Mary sleeps on a chair

in the living room because her bed has become cluttered with

miscellaneous books, newspapers and years’ worth of mail. She

has failed the Section 8 housing inspection due to egress violations and fire hazards in her home. In order to pass inspection, she has

been told that she will need to significantly reduce the number of

books, papers, and other items in her home. Mary is angry about the need to downsize and does not see any problem with owning

books and newspapers since they possess valuable information.

However, Mary does fear the potential for homelessness if she continues to fail inspection.

CASE ONE

Daniel is a 53-year-old man and he lives alone with a physical disability. His family is very concerned because he has fallen while walking with a cane several times in recent months. His last fall resulted in hospitalization for a broken leg. His home has become filled with canned food, computer parts and other items. Daniel plans to use these items when his health improves. Despite these piles getting significantly worse since his divorce 7 years ago. The majority of the food in the refrigerator has spoiled and begun to attract flies. The computer parts are obsolete and rendered useless. The hospital social worker made a recommendation for him to move to a rehabilitation center until his home is cleaned and de-cluttered. Daniel refused the rehabilitation placement and insisted on returning home. Although, he does not think it is necessary, as a compromise, a referral was made for hoarding intervention services.

CASE TWO

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CASE THREE

Elizabeth is a 79-year-old, frail elder who walks with a cane and has begun to have memory-related issues. The inside of the small home that she owns is filled with clothing, old photographs, knick-knacks, and food. Although, she no longer wears the majority of the clothing, the pieces hold sentimental value, as do the photographs that she has collected throughout her life. Elder Protective Services was called because a neighbor is concerned about her safety due to the appearance of her home from the outside. The roof is missing shingles and presents a potential problem for a leak. Items have begun to pile up on her front porch making it a challenge for any possible repairman or visitor to enter her home. Elder Services have offered to pay for Elizabeth’s home to be “cleaned-out” but she is unwilling to let strangers come in to make decisions about what will be thrown away. Each of these items has significant meaning and if they did not then she would not have held on to them.

RESOURCES

Cape Cod Hoarding Task Force

www.hoardingcapecod.org

info@hoardingcapecod

MassHousing

www.masshousing.com/hoarding

International OCD Foundation

https://iocdf.org/

CIR app for iphone, ipad etc

Erika A. Woods, BCDHE

[email protected]

508-375-6620


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