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Carers NSW Inc Level 18 Roden Cutler House 24 Campbell Street Sydney NSW 2000 Phone: 02 9280 4744 Fax: 02 9280 4755 Email: [email protected] Website: www.carersnsw.asn.au Commonwealth Carer Resource Centre 1800 242 636 * *Free call except from mobile phones. Mobile calls at mobile rates. An Australian Government Initiative Carers NSW Inc Annual Report 2005-2006 © November 2006 All rights reserved. No reproduction without permission. ISBN: 1876637 269 Compiled + Edited : Fran Appleton Design + Print : No Time To Lose Celebrating 30 years of Achievements Carers NSW Inc Annual Report 2005-2006
Transcript
Page 1: Carers NSW Inc Annual Report 2005-2006 Report 2005_2006.pdf · Carers NSW Inc 4 Annual Report 2005-2006 5 Over the past 30 years Carers NSW has grown from a research grant to the

Carers NSW IncLevel 18

Roden Cutler House24 Campbell StreetSydney NSW 2000

Phone: 02 9280 4744 Fax: 02 9280 4755

Email: [email protected]: www.carersnsw.asn.au

Commonwealth Carer Resource Centre

1800 242 636*

*Free call except from mobile phones. Mobile calls at mobile rates.

An Australian Government Initiative

Carers NSW Inc Annual Report 2005-2006© November 2006

All rights reserved. No reproduction without permission.ISBN: 1876637 269

Compiled + Edited : Fran AppletonDesign + Print : No Time To Lose

Celebrating 30 years of A

chievements

Carers NSW Inc Annual Report 2005-2006

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1

Our Vision, Purpose, Roles and Values

30 Years of Achievements by Carers NSW

President’s Report

Board of Management

Friends of Carers NSW

Organisation Chart

Acting Chief Executive Officer’s Report

Volunteers

Young Carers: 10 years and still counting

Progress Report from the Business Plan 2005-2006

Acknowledgments

Partnerships & Committees

Financial Statements

01

02

06

08

10

11

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14

16

18

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28

29

Contents Our visionGovernments and communities recognise, value and support carers

Our purposeTo lead change and be the voice of carers

Our role• Education and training for carers, service providers

and communities

• Emotional support, counselling and individual advocacy for carers

• Information, publications, resource development and delivery

• Policy development, research and advocacy

• Sector development and systemic change

• Service innovation, development and evaluation

Our valuesRespect

We respect the right of carers and the people they support to make choices and determine their own lives.

Diversity

We value the diversity of people and communities and are respectful of, and responsive to, these differences.

Privacy

We respect the privacy of individuals in line with good practice.

Involving carers

We actively involve and listen to carers. Their views guide our policies, advocacy and services.

Indigenous culture and heritage

We respect and value Indigenous cultural heritage and are committed to self-determination for, and reconciliation with, Indigenous people. We acknowledge that Indigenous people are the traditional owners and custodians of our land.

Innovation and learning

We pride ourselves on being innovators and have a commitment to ongoing learning that helps us find better ways to achieve our goals.

Quality and professionalism

As an organisation, we aim for quality, productivity and professionalism in all we do.

Valuing our people

Our effectiveness is dependent on our Board, staff and volunteers and we are committed to their ongoing development and wellbeing.

Future orientation

We are committed to action that results in an improved and more sustainable future – in the health and community care systems and for carers and those they support.

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Carers NSW Inc Annual Report 2005-20062 3

30 Years of Achievements by Carers NSW

1991Arrangement made with IDEAS to use their 088 line to enable carers in country areas to make contact with the Carers Association without cost to the caller.Carer Support Groups increase in number across NSW.The Association moves from Surry Hills to larger premises in Fitzroy Gardens, Kings Cross.

1976Clare Stevenson forms a Carers Committee within the Council on the Ageing.

1980Carers Association of NSW becomes an independent body.

1981Carers Association of NSW becomes a registered charity.

1985Carers Pension becomes available and the Home and Community Care Program (HACC) is established.

1987Funding received through the HACC Program and part-time staff appointed. Volunteers continue to form the core of the Association.

1989Carers Association of NSW becomes an incorporated body.Inaugural Clare Stevenson Memorial Lecture held - now an annual event.

1990First annual Carers NSW Conference held in Sydney.

1992-93Federal budget funds the Carers Information Kit which is distributed throughout NSW by the Association and later published in 11 community languages.Commonwealth Respite for Carers Program is funded.Inaugural National Carers Week celebrations and activities are held.

1993Plans for a national body, the Carers Association of Australia, take shape. Resource Manual for Carer Support Groups produced.

1994Development of the ATSI Carer Support Kit.Facilitation of the NSW Carers Coalition an alliance of state and regional service providers who have influenced government policy and practice.

1995The Association sponsors Ngara (to hear and to listen) Aboriginal Carer Support Service in Western Sydney.NESB Research Project funded to look into the issues faced by NESB carers in the Western Sydney Area regarding current services, information and availability of language specific resources.NESB Carer Support Kit Program commences.The Association moves from Kings Cross to larger premises in York Street, Sydney.

1996Funding received to implement the Young Carers Project.Carers Directories of Services covering 16 regional areas launched.Telegroupcounselling (TGCs) piloted under the Action Research Counselling Project.

1997NSW Carer Resource Centre established.Inaugural Carer Support Worker Conference held in Sydney. The Carers Association of NSW renamed Carers NSW.

1998Telegroupcounselling commenced with Young Carers.Carers NSW awarded for work with rural carers of persons with a mental illness.Participated in first International Conference for Carers held in London.

1999Carer Profile (to explore

the concept of carer assessment across

NSW) developed.Successful lobbying

during State Election resulted in the first NSW

Care for Carers Plan. Carer Checklist funding

received to educate general practitioners

about carers.

2000After many years of lobbying the Taxation Department, tax deductibility on donations was attained.HACC receives a fair increase in the State Budget.Work with hidden carers continues with projects such as Koori Carer Yarning, Connections (for carers of children with disabilities in remote locations), After Hours Carers’ Line.Carers NSW moves again to larger premises in Castlereagh Street, Sydney.

2001A joint venture with Carers

NSW and the Salvation Army’s Salvo Care Line

provided a free after hours Telephone Counselling

and Support Service for carers.

Multicultural Carers Alliance formed.

2002Carers Mental Health Project commenced.Carers NSW wins the International Best Practice Award at the Third International Carers Conference in Washington DC for three of its innovative projects.

2003Peak Body Status granted to

Carers NSW.Carers NSW invited to sit on

panel on Intergenerational Caregiving in Washington DC.

Friends of Carers NSW, a group of people with special expertise who assist Carers

NSW with professional advice from time to time in an

honorary capacity, initiated.National Carers Counselling

Program begins.Planning begins to train staff

of residential aged care facilities in carers’ issues

and to support and inform carers with palliative care

responsibilities.

2004Improving support for ageing parent carers.Carers NSW increasingly being asked to provide carer representation to assist with policy and service development.Inaugural Carers NSW Conference for Health professionals funded by NSW Health.Inaugural Young Carers Summit.

2005-2006Carer Life Course

Framework (a model which illustrates

carers information and support needs) is

launched as part of the Carers Mental Health

Project.Carers NSW expands its regional presence to set up offices and

staff in the Area Health Service Regions of

Greater West, North Coast and South East

Sydney/Illawarra.

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Carers NSW Inc Annual Report 2005-20064 5

Over the past 30 years Carers NSW has grown from a research grant to the Council on the Ageing through to the peak organisation it is today, representing all carers across NSW.

30 Years of Achievements by Carers NSW

1976 Budget: $34,000 (equivalent to approximately $300,000 today)

Staff: 3 (part of the Council on the Ageing)

Volunteers: 1

Location: Argyle Place, Sydney

Key Activities: n Research n Lobbying

2006 Budget: $4,431,231

Staff: 41

Volunteers: 55 (including Board members)

Location: Moved from Castlereagh Street to Roden Cutler House, Campbell Street, Sydney

Key Activities:

n Researchn Policy development

and analysisn Carers News and Young

Carers Newslettern Individual support

and advocacyn Information and referral

(Commonwealth Carer Resource Centre)

n Libraryn Carer Support Kitn Carers Weekn Community developmentn Aboriginal Carer Supportn Multicultural Carer Supportn Young Carer project

n Regional Mental Health Program

n National Carer Counselling Program

n Website – Carers NSW and Young Carers

n Education and Training – Palliative Care Project, Residential Aged Care, Disability Services, Mental Health, Health professionals

n Marketing and corporate partnership development

n National collaboration as part of the Network of Carers Associations

n State Conference

1986 Budget: $4,800

Staff: 0 paid staff

Volunteers: 17 (including Board members)

Location: Argyle Place, Sydney Moved to Albion Street, Surry Hills in 1989 Then to the Fitzroy Gardens, Kings Cross in 1991

Key Activities: n Lobbying n Carers News (newsletter) n Support and advocacy for individuals

1996 Budget: $726,499

Staff: 14

Volunteers: 23 (including Board members)

Location: York Street, Sydney, moved to Castlereagh Street, Sydney in 2000

Key Activities: n Research n Lobbying n Carers News n Individual support and advocacy n Information and referral n Library n Carer Support Kit n Carers Week n Community development n Aboriginal Carer Support n Young Carer Project n State Conference

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Carers NSW Inc Annual Report 2005-20066 7

Change has been the defining feature of this year. There has been change at national, state and organisational level. In this climate, I am very grateful for the energetic, enthusiastic and supportive participation of all Board members and their clear commitment to the

fact that Board membership extends beyond simply attending monthly meetings. Everyone has been active representing carers and Carers NSW on a range of other internal and external committees and working parties. The life of a Carers NSW Board member is very busy!

One of the directions of the Board’s work this year has been the significant emphasis on membership of the internal Board committees – Marketing, Governance, Finance and Research and Policy. Major work has been done by all of these committees to update and further professionalise their work as well as to advance all of the matters in each of their domains.

We were sorry to lose the passion and enthusiasm of Board member Francesca Seychell, who stood down in July and the connection with our history when Joan Bullock resigned in February. Joan had been with Carers NSW since its formation and will be greatly missed. Fortunately we have had the fresh input of Dulcie Flower and Christine Rowell who were co-opted to the Board after the AGM.

Nationally, we contributed to the National Review of Community Care, I completed my term as President of Carers Australia and Pam Webster was appointed our new national representative. She moved directly into the role of Vice President.

To assist CEO Joan Hughes, Kathy Wood was appointed Deputy CEO in October, with the enthusiastic and unanimous support of the Board. Later Kathy took on the role of Acting CEO when Joan was seconded as CEO of Carers Australia for an initial term of three months from February 2006. This secondment was subsequently extended and in June, Joan notified the Board that she had been offered the position permanently from July 2006. While we were very sad to lose Joan, the Board is delighted that her knowledge and expertise will still be used in the service of carers nationally.

The Board has also recognised how fortunate we have been to have Kathy Wood, who has brought her own personal style and vast experience with carers and with our organisation to the top job. We are especially grateful for the fact that she has managed to merge the roles of Acting CEO and Deputy CEO and to support the Board, staff and volunteers through this unsettled time.

We have made very good connections with political leaders in NSW. During Carers Week, John Della Bosca, Minister for Ageing and Minister for Disability Services, launched our Male Carers Report and he also attended our AGM, hosted at the Town Hall by Counsellor Shayne Mallard. This was a wonderful occasion. Joan Hughes delivered the Clare Stevenson Lecture and Averil Fink gave the preamble. Life memberships went to former Board member Muriel Foster and young carer volunteer, Niall Quinlan.

President’s Report

Last year Joan and I attended a round table meeting with Premier Morris Iemma and following this, he announced a review of the NSW Carers Statement. Carers NSW has been working since then with the Government and other stakeholders to develop a much broader NSW Carers Policy.

The Board also invited members of the State Opposition to address us, detailing their commitment to carer issues. We were pleased that NSW Leader of the Opposition, Peter Debnam, Shadow Minister for Health, Jillian Skinner, and Shadow Minister for Mental Health and Community Services, Gladys Berejiklian, were also able to join us for a special lunch to thank all staff for their hard work and especially their contribution towards our move to new premises.

Our move was flagged last year, as our needs had outstripped our office space. Long-standing staff member, Jan Treharne, led a committee of Board and staff members to supervise the whole process. This involved a great deal of work until the move took place at the end of March.

Board members Laraine Toms, Sara Graham and Pam Webster contributed a huge amount of work under considerable time pressure to our application for the Family and Carer Support Services Component of the NSW Mental Health Program. As a result, the Government has committed funding to enable us to extend our work and expertise related to carer support in the area of mental health into three vast regional areas. This will mean more staff located in the regions and more changes for Carers NSW.

Work by the Marketing Committee, chaired by Vice President Laraine Toms with consultant Carol McCormack and Acting CEO Kathy Wood, led to a most wonderful donation of $200,000 as well as other smaller donations. Media exposure of carer concerns and needs, supervised by consultant Leigh White, has been the best ever. Several of our increasing number of enthusiastic Friends of Carers NSW helped us in a range of areas with their professional expertise and knowledge.

I feel very fortunate to have had these years with Carers NSW. We have made great gains for carers, but many still lead very difficult lives and we know that there is much to be done. Thanks to all our members for your ongoing support.

Louise Gilmore President

“Last year Joan and I attended a round table meeting with Premier Morris Iemma and following this, he announced a review of the NSW Carers Statement.”

“Change has been the defining feature of this year. There has been change at national, state and organisational level.”

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Carers NSW Inc Annual Report 2005-20068 9

Dulcie Flower joined the Board as a Co-opted Member in November 2005. Dulcie is a Torres Strait Islander. She is a registered nurse and educator who has worked in Aboriginal health for many years. She has represented Aborigines and Torres Strait Islanders on many committees and advisory groups, including the Ministerial Advisory Committee, National Diabetes Strategies Group. In 2004 she was elected to the Board of Directors of the Aboriginal Medical Service Co-op Ltd Redfern.

Sara Graham, a former carer, has been a member of the Board of Carers NSW for seven years and is co-chair of its Policy and Research Committee. She has served on the NSW Home and Community Care State Advisory Committee and currently serves on the Aged Care Working Group of the Council on the Ageing (NSW). She is a founder member of the Advance Care Directive Association (Inc). She is an Honorary Research Associate at the University of NSW. Her research interests include the evaluation of community support services.

Sarah Lawrance joined the Board as a Co-opted Member in November 2005. Her career has spanned 20 years of commercial experience in large and small businesses in the public and private sectors. She currently works in the financial sector managing alliance relationships. Her skills include: people management, effective communication, financial management and business development.

Christine Rowell joined the Board as a Co-opted member in November 2005. Christine trained as a school teacher and taught in WA and NSW. She worked in the travel industry from the mid 70s until the mid 80s then worked for AFS Intercultural Programs, principally working with volunteers in the selection and placement of young Australians participating in AFS. In 1993 Christine graduated with an MBA from Macquarie Graduate School of Management. She joined CanTeen in 1994 and was Chief Executive Officer for nine years. Christine is a Fellow of the Australian Institute of Company Directors and has a keen interest in corporate governance in community businesses.

Jennifer Webb is a former carer with a nursing background. She has been a volunteer with community organisations for some years, especially in a Dementia specific daycare centre and a general carer support group. Her interest is in support for long-term carers. She has been a Board Member of Carers NSW for 11 years.

Pam Webster has been a Carers NSW Board Member since 2000. She is the chair of the Governance Committee, co-chair of the Policy and Research Committee and a member of the Finance Committee. In November 2005 she was elected as the Carers NSW representative on the Board of Carers Australia. Pam worked in health and welfare areas for over 22 years in management, research, evaluation and policy development. She represents Carers Australia on the National Arthritis and Musculoskeletal Conditions Advisory Group.

Board of Management

Louise Gilmore President

Louise Gilmore is a family carer, a journalist and author of The Carers Handbook. She is employed as a lecturer at a college of natural therapies. She has been a member of Carers NSW for 12 years and President of the Board of Management for seven years. She is a member of the Carers NSW Finance, Marketing and Governance committees and an ex-officio member of the Research and Policy Committee. Louise was the New South Wales representative on the Board of Carers Australia for seven years and served three years as national President.

Laraine Toms Vice President

Laraine Toms is a carer. She currently coordinates and lectures in the Carer Advocacy Course at the NSW Institute of Psychiatry. Laraine chairs the Marketing Committee and is a member of the Policy & Research and Governance Committees. She is co-chair of the NSW Mental Health Priority Taskforce. Laraine represents Carers NSW on various state and federal government working parties.

John King Honorary Treasurer

John King worked as a Chartered Accountant with Price Waterhouse, now PricewaterhouseCoopers, for his entire professional career. Since his retirement he has worked in a voluntary capacity to provide financial expertise to the Brain Foundation and Sydney Day Nurseries Association and has been the Hon. Treasurer at Carers NSW since early 2002. He has been chair of the Finance Committee since February 2005.

Felicity Purdy Honorary Secretary

Felicity Purdy has worked with children and adults with disabilities, their families and their services for more than 30 years and is a former carer herself. She holds a number of voluntary and advisory positions concerned with severe disability and has been a member of Carers NSW Board for seven years. She is a member of the Policy & Research, Governance and Finance Committees and the Young Carers Advisory Committee.

Michelle Dellagiacoma is a carer. She is a strategic planner with State Government. Michelle is a Board Member of the Cabinet appointed Disability Advisory Council; a member and advocate on a number of parent groups; a coordinator of the NSW branch of the Association of Children with a Disability; and the founding member/facilitator of a family support group.

Averil Fink has a long association with many community organisations, including Council on the Ageing, Beehive Industries and Meals on Wheels, and is on the Board of the Retirement Villages Association. She has been involved with carer associations for more than 28 years. Averil cared for her husband who died of a brain tumour in 1997. She received life membership of Carers NSW in 2000.

The Board of Management is responsible for strategic and policy directions of Carers NSW to ensure it achieves its aims for carers. It reviews standards, policies and procedures in accordance with the constitution, and is financially and legally accountable for use of funds. There are 12 board members, including four office bearers, with provision for up to three co-opted members. Sub-committees and working parties meet regularly to work on relevant issues. The Board Working Parties for 2005-2006 are Finance, Marketing, Policy and Research and Governance.

Members of the Board of Management for 2005-2006 are:

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Carers NSW Inc Annual Report 2005-200610 11

Organisation Chart - Carers NSW - as at 30 June 2006Friends of Carers NSW

Friends of Carers NSW help by giving time and skill, not money. They assist in strategy development and decision making by supplementing the knowledge of the staff and Board. This might be through the provision of legal advice, or ideas on how to raise our profile and increase our networks. Friends do not play an active role in day-to-day operations but act as honorary consultants to the Board.

Friends of Carers NSW are drawn from a wide range of sectors, including the Arts, Financial Services, Health, Legal and Media. Carers NSW is extremely grateful to the following Friends of Carers NSW:

• Dr Tom Acheson, Director of the Hornsby Ku-ring-gai

Care Association

• Emeritus Professor Peter Baume, Chancellor,

The Australian National University

• Ms Jennifer Bott, CEO of the Australia Council for

the Arts

• Professor Tony Broe, Professor of Geriatric Medicine,

University of NSW/Prince of Wales Hospital

• Ms Anne Deveson AO, writer, broadcaster and

documentary film-maker

• Dr Ian Fitzpatrick, retired medical practitioner

• Mr Michael Ftzpatrick, solicitor and barrister

• Mrs Patricia Harrison, client advisor/stockbroker

• Professor Ian Hickie, executive director of the Brain

& Mind Research Institute, Sydney University and

consultant to the National Depression Initiative

beyond blue

• Ms Robin Hughes AO, producer, writer, director and

interviewer

• Mr Paul Livingston, entertainer and writer

• Ms Julie McCrossin, radio broadcaster and television

presenter

• Mr Ross McLuckie, solicitor

• Mr Charles G. Mendel, solicitor

• Mr Richard Ottley, solicitor

• Ms Vivienne Pusey, manager, aged care services

• Ms Robin Stonecash, senior lecturer and consultant

• Mr Chris Taylor, accountant and financial planner

• Emeritus Professor Ian W. Webster AO, physician,

Professor of Public Health and Community Medicine,

University of NSW

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Carers NSW Inc Annual Report 2005-200612 13

Carers NSW has undergone significant changes in the past year following rapid growth and change.

Most importantly has been the secondment in February, and ultimate appointment, of Joan Hughes to the position of CEO of Carers Australia.

Joan led Carers NSW for 13 years and saw it grow from a staff of 3 to a staff of nearly 50. She built important relationships not only with carers, but with government, politicians and service providers across the aged, disability, mental health and health sectors - culminating in securing our funding status as the peak body for all carers in NSW in 2003. Whilst we are sad to farewell her as CEO of Carers NSW, Joan’s leadership, reputation, understanding and passion for the carer movement makes her a popular choice and she is well placed to take the network of State/Territory Carers Associations into a strong and successful future in her new role with Carers Australia.

We also initiated a consultation process to decide on the future management and staffing structure of Carers NSW in order to position ourselves for ongoing effectiveness in our work with, and for, carers. The result was the development of a report outlining what we want to change and how we will do it. Whilst there have been some delays, we have begun implementing these changes across the latter part of this year.

We also moved premises at the end of March as we had outgrown our office in Castlereagh Street. We are now located nearby in Roden Cutler House, and, following the inevitable ‘settling in’ difficulties, are now enjoying the additional space.

Our submission to the Centre for Mental Health in December 2005 to provide support, advocacy, education and training to carers and their families was successful. We will be setting up offices in 3 of the 8 Area Health Service regions in NSW – North Coast, Greater West and South Eastern Sydney/ Illawarra. This will result in a greater regional presence for Carers NSW and we look forward to working in close partnership with the Area Health Services, carer networks, families and carers, other NGOs and the Centre for Mental Health.

There have been important shifts in program delivery at the national level. Carers NSW has worked closely with Carers Australia and other State/Territory Associations over many years – but this year has seen the consolidation of that relationship and the development of a strategic vision for national program delivery following a review of the role and functions (part of the wider Community Care Review) of the Commonwealth Carer Resource Centres and the National Carer Counselling Program.

Our policy and lobbying activities have increased in line with our Strategic Directions 2005 - 2010. Whilst there is always more work to do to improve the lives of carers, the person they support and their families, Carers NSW has been pleased to see the development of a NSW Family and Carer Mental Health Program and a 10 year Disability Plan. Both acknowledge the key role of carers and their families, but we must remain vigilant in ensuring that in implementing these plans - resources and supports are targeted to the specific needs of carers and their families throughout their caring journey.

The State Government committed to a review of the 1999 NSW Carers Statement. A discussion paper has subsequently been written but we continue to await its release for consultation. This delay places NSW behind most of the other States and Territories who have variously developed whole of government carer policies, charters and/or legislation. We look forward to the progression of this most important milestone for carers in our State.

We also celebrate 30 years as an incorporated association and 10 years since the inception of the Young Carer program. (See pages 2 and 3 for some of the highlights across the years.)

Acting Chief Executive Officer’s Report

Staff movements

This year we have said goodbye to some longstanding staff – Joanne Mulligan, Kerry Jack and Jan Treharne. We have also farewelled Tim Marchant, Leigh Etherden, Gill McCardle, Carol Barker, Sue Wildman, Adam McLean, Kerrie Saunders. We subsequently welcomed Jainnari Smith (our first Aboriginal Traineeship), Viola Zhang, Jane McCarthy, Anne Louie, Sherry Carol, Wendy Melia, and Tricia Dearden.

We continue to be fortunate with the social work students who have worked with us on placement and we thank Rebecca Elias , Mike Gibbs, Bei Wang and Anna Kevrekian.

Acknowledgments

Managing the changes over these past 12 months could not have been done without the extraordinary dedication of the Board, staff and volunteers. This dedication I sincerely believe, is built on a commitment to our main purpose – which is to lead change and be the voice of carers.

However as we celebrate 30 years as an incorporated association and re-position ourselves for the future, we need to be careful that, as an organisation, we retain what is of value from the past whilst embracing the opportunities and excitement of the challenges that lie ahead. The organisation is about to undertake significant growth along with the appointment of a new CEO. Achieving the balance of integrating the best of the past with the hard decisions that will build a strong future will not always be easy, but will be assisted if we remain accountable to carers across NSW and to our members.

I would like to thank the Board, staff and volunteers who have supported me during my time as Acting CEO. I understand now what I perhaps never fully realised – that it is possible to achieve at the top, primarily because of the support and commitment from those around you.

Kathy WoodActing Chief Executive Officer

“Carers NSW has been pleased to see the development of a NSW Family and Carer Mental Health Program and a 10 year Disability Plan. Both acknowledge the key role of carers and their families”.

“Joan led Carers NSW for 13 years and saw it grow from a staff of 3 to a staff of nearly 50.”

Joan Hughes CEO, Carers NSW 1993-2006

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Carers NSW Inc Annual Report 2005-200614 15

Volunteers

Jessica Barnard Young Carer Camp leader

Clem Barrack Carers News mailout

Mary Bobokis Young Carer Camp leader

Cindy Bond Young Carer Camp leader

Gaylia Brcin Carers News mailout

Kylie Brown Young Carer Camp leader

Anthea Brumerskyj Young Carer Camp leader

Delia Collier Preparation of kits and other information, filing

Nina Crown Membership updates Financial – accounts, donations, Carers News mailout, Data entry

Andrew Ellis Young Carer Camp leader

Lucia Erbeni Young Carer Camp leader

Amber Figura Young Carer Camp leader

Carmen Foley Carers News mailout

Jean Foxover Carers News mailout

Colin Goddard Young Carer Camp leader

Alex Good Young Carer Camp leader

Wendy Hine Carers News mailout

George Johnpulle Carers News mailout

Caroline Jones Carers News mailout

Bronwyn Kelly General support

Ian Kirkham Preparation of kits, photocopying, brochure management/maintenance, Fact Sheets management/maintenance, Carers News mailout

Michael Koutzoumis Young Carer Camp leader

Irene Lam Carers News mailout

Barbara Lee Carers News mailout

Narelle Mackander Young Carer Camp leader

Bart Madden Young Carer Camp leader

Hamish Mitchell Young Carer Camp leader

Aimee Moscatelli Young Carer Camp leader

Sonya Nader Young Carer Camp leader

Heidi Newbery Young Carer Camp leader

Helen O’Doherty General assistance, kit preparation, Carers News mailout

Stephen Parker Young Carer Camp leader

Mary Pilkington Young Carer Camp leader

Katherine Pitkethly Young Carer Camp leader

Niall Quinlan Young Carer Camp leader

Ben Rowe Young Carer Camp leader

David Shin Young Carer Camp leader

Marie Shipway Preparation and distribution of kits and other items Photocopying Fact Sheets

Elaine Stansfeld Carers News mailout, general assistance, preparation and distribution of kits

Mary Stathis Preparation and distribution of kits and other items

Betty Stojic Carers News mailout

Matt Wade Young Carer Camp leader

Jodie Sykes Young Carer Camp leader

Without our volunteers, Carers NSW could not exist as it does. This year’s dedication and commitment has been outstanding and we sincerely thank each and every one of our volunteers.

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Carers NSW Inc Annual Report 2005-200616 17

In 2005 the Australian Government Department of Families, Community Services and Indigenous Affairs (FaCSIA) provided funding to further develop services for young carers across Australia. The Young Carer ‘At Risk’ Program was launched throughout Commonwealth Carer Respite Centres to assist and prevent young carers prematurely exiting formal education due to caring responsibilities. Carers Australia developed the first national young carer information resources for young carers, their families and teachers, together with the first national young carer website. Carers NSW utilised the FaCSIA funding to employ a third project worker to oversee development of the Carers NSW Interactive Young Carer Website. This medium created the opportunity for young carers to communicate with other young carers online, and assists hidden young carers to reach out for support on a regular basis.

Perhaps the most significant progress in the last 10 years has been young carer recognition by both state and federal governments, coupled with continuous funding for Carer Associations to support young carers. FaCSIA define a young carer as a child or young person under the age of 26 caring for someone with a long-term physical illness, mental illness, disability, drug or alcohol problem. It is estimated that there are around 347,700 Australians, under the age of 25, providing care to a family member who has a long-term illness or disability. Approximately 90,000 of these young carers live in NSW (ABS, 2003).

At present, the project employs four project workers and has 1,540 young carers registered with the program. Volunteers continue to play an integral part in the project, with up to 20 volunteer leaders contributing their time and energy at any one time to ensure the continued success of our young carer activities.

We continue to support young carers by providing:

• Camps

• Quarterly newsletters & monthly e-news bulletins

• Talk-link (Telephone group counselling)

• Face-to-face counselling

• Telephone support/information/referrals

• An interactive young carer website

• Support to regional young carer networks

• Community awareness, training and education

In the words of a young carer..

** For more information about the Carers NSW Young Carer

Project, visit HYPERLINK http://www.youngcarersnsw.asn.au

References:

Data from the 2003 ABS Disability, Ageing and Carers:

Summary of Findings (SDAC)

Young Carers Project 1995-1998, Carers NSW (1998)

CNSW Young Carer Project Final Report, Carers NSW (2001)

Young Carer Newsletter, Carers NSW (2003-2006)

CNSW Young Carer Website www.youngcarersnsw.asn.au

“I recently went on a Young Carer’s camp. I just wanted to say thank you for such an awesome camp. I had the best time. The camp was great, I loved all the activities and I enjoyed the Chat Groups. Thank you for considering and accepting me to go on this camp. It helped a lot to get away for a few days and to be with kids in the same situation as myself.

(Young Carer Website, 2006)

“I care for my mum who is deaf, has a hip replacement and a spinal condition. I help mum most of the time with cooking her dinner, making cuppers for her and cleaning the house. I also help with mum’s hearing dog Annie by keeping it in training, washing her and feeding her, as my mum is unable to bend down or lift Annie. I have also learnt to sign, which is a form of communication for mum. We share a love of music, by feeling the vibration and signing the words we create a close bond.”

Young Carer 11 years (Young Carer Website, 2006)

Young Carers: 10 years and still counting

In 2006, the term ‘young carer’ is met with acknowledgment and recognition from government funders, service providers, educators, parents and young carers themselves. The journey of the Young Carer Project at Carers NSW demonstrates how the desire to support young carers shifted from a long-term vision in 1995 to a reality in 2006.

In 1995, committed volunteers began the process of identifying young carers and their needs. Young carers were offered the opportunity for peer support and respite from their caring role in the form of recreational camps. There were loose estimates that there may have been 10,000 young carers under the age of 15 years in NSW. The number of young carers aged between 16 and 18 was unknown.

The research and service provision for young carers undertaken between 1995 and 1998 under the guidance of Patricia Dunn set the groundwork for the Carers NSW Young Carer Project to secure funding from the NSW Department of Ageing and Disability in the year 2000. This crucial milestone allowed the project to expand its work, not only in the provision of young carer activities and services, but also in its capacity to network, guide and educate other service providers about the needs of young carers. The project was able to employ one full-time project officer and identify approximately 500 young carers. Financial assistance was also provided by local Rotary Clubs and this valuable support continues today.

In 2003, the project secured ongoing and increased funding from the NSW Carers Program (administered by the Department of Ageing, Disability and Home Care). These funds led to the employment of an additional project worker and launched the first of three subsequent yearly statewide camps for young adult carers in 2004. This was the first known endeavour to support carers aged 18-25 years within a peer support model in Australia. The first National Young Carer Summit was held in Sydney the same year, with representatives from government departments, Carer Associations and young carers from around Australia in attendance. This signalled the beginning of a national approach to achieve positive outcomes for young carers across the country. Each state and territory was allocated federal funding for a Young Carer Program and the Australian National Young Carer Action Team (ANYCAT), comprising young carers and young carer workers, was established.

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Carers NSW Inc Annual Report 2005-200618 19

Policy and Research

Submissions

Home and Community Care Inquiry

Carers NSW made a submission to the HACC Program and Home Care Service Inquiry being conducted by the Public Accounts Committee of the NSW Parliament Legislative Assembly. They include recommendations for improving access to the HACC program for carers and targeting specific groups of carers that are in need of support.

Fit for the Future Discussion Paper

Carers NSW was invited to comment on the NSW Health publication “Fit for the Future”. Our submission included recommendations and an emphasis on a preventative health focus, strengthening of primary and continuing care in the community and better support and inclusion of carers as part of the health team.

PADP Policy Discussion paper

Carers NSW was invited to comment on the NSW Health discussion paper on the Program for Appliances of Disabled People (PADP) about the critical nature of the program for family carers. Our submission included recommendations around ease of access for carers and in relation to the need for increased funding and better administration of the program.

Primary Care Health Policy paper

Carers NSW developed a comprehensive submission on the consultation draft of the NSW Integrated Primary and Community Health Policy. Recommendations included a focus on the value of taking carers’ interests and needs into consideration within the values and operating statements of the policy.

Pre-Budget Submission

Carers NSW constantly monitors and analyses the issues raised by carers in all its service, project and training work. It also surveys its membership on a regular basis to ensure that the main issues for carers are appropriately represented. This submission, with its emphasis on greater investment in general community services, emotional support and recognition, reflects the needs identified by carers.

Carer Card Proposal

Improving financial outcomes for carers is one of the top priorities for Carers NSW. We recognise that the state government is limited in what it can do in this regard. However the Carer Card Proposal is one step that NSW can take towards improving financial outcomes for carers and increasing their ability to participate in community life.

Research

Male Carer Research

In July 2005 Carers NSW published a report entitled “The Social and Emotional Circumstances of Male Carers”, the first research of its kind ever undertaken by the organisation. It was an indicative study exploring an area in which almost no work has been done in Australia. The report was launched by the Minister for Community Services, the Hon. John Della Bosca, during Carers Week in October 2005.

Carers Mental Health Project – Final Evaluation Report (2001-2004)

Published in March 2006, this report evaluates the impact on carers’ health and wellbeing of the education and support programs offered to carers through the Carers Mental Health Project and highlights the successes and challenges of setting up a complex project in two regional areas of NSW. The report was written by Dr Deanna Pagnini, independent consultant to Carers NSW funded by NSW Health through the Centre for Mental Health.

Progress Report from the Business Plan 2005-2006

KRA 1 Policy Development, Research and AdvocacyGoals• The contribution of carers is better recognised and their needs and issues are high on the policy agenda• A NSW Carers Policy has been adopted by government• Government is allocating more resources to meet carer needs through coordinated carer support• More appropriate supports and interventions are available to different carer populations throughout their caring

experiences and life stages• Carers are better represented in health and community care systems and policy processes

Priority Work Achieved Not Ongoing

• Implement the Carers NSW Marketing/ Media Plan •Represent carers’ needs and issues on key committees:

• NSW Health Carers Advisory Group (developing NSW Carer Policy) •• Aged & Community Care Liaison Group (Federal) •• Ombudsman’s Roundtable (Home Care and other issues) •• NSW Health Palliative Care Advisory Group •• NSW Cancer Institute Oncology Group (Palliative Care) •• Disability Council •• DADHC Planning for Later Life Forum •Action recommendations of Carers Coalition Ageing Carers Project through work with government and other key stakeholders: •

Develop 3 year Carers Week Plan for NSW with DADHC and other key stakeholders •Work with the NSW Govt and other key stakeholders to review the 1999 NSW Carers Statement and develop a NSW Carers Policy •

Implement Carers NSW Carer Participation and Representation Policy •Actively contribute to the National Policy Action Plan through work with Carers Australia and other State and Territory Carer Associations. •

Work with key research organisations to further develop the research agenda for carer issues in NSW: •

Progress key submissions and papers:• Review of the Mental Health Act, Carer Card proposal, lobbying plan state election, budget

submission•

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Carers NSW Inc Annual Report 2005-200620 21

Priority Work Achieved Not Ongoing

Start planning for biennial Statewide conference for health and community care professionals in 2007

Complete project for carers of people with acquired brain injury and spinal cord injury (CLIC)

Finalise Male Carer Action Plan for organisation •Deliver education to health and community care professionals across NSW and to carers •Complete palliative care education project to health and community care providers in the Illawarra and Central Coast regions and commence Stage 2

Implement Family Carer Awareness Education (Uniting Care Residential Aged Care) •Represent Carers NSW in key committees and forums •Determine options and priorities for integrating Carers NSW various education programs and priorities in preparation for restructure

• Develop Discussion Paper •Contribute to the development of the National Carer Competencies to be incorporated in to the Community and Health Services Industry Training Package

Determine future direction for Carers NSW RTO status (in conjunction with 3.8) •Implement and expand the range of programs for young carers: •• Target CALD and ATSI Young Carers Services •• Develop strategies to address gaps in services delivery (Drug & Alcohol, Young Adult

Carers)•

• Review/update current education/training resources •• Develop marketing strategy for Young Carer Services •• Assist in the implementation of a National Young Carers Summit 2006 in conjunction with

Carers Australia•

Work in partnership with Greater West Area Health Service to implement the Koori Yarning Indigenous Carer project

Build key relationships that assist Carers NSW to influence support for indigenous carers •Build key relationships to promote better outcomes for multicultural carers •

KRA 3 Sector Development and Systemic ChangeGoals• Carers NSW has an improved relationship with the

disability sector• The health, community care and residential care

sectors are more inclusive and responsive to the needs of carers

• Carer support is enhanced and better integrated as part of mental health service delivery

• Young Carers have improved access to services and support is appropriate to their needs

• Indigenous Carers have improved access to services and support that is appropriate to their needs and their communities

• Carers from culturally and linguistically diverse backgrounds have improved access to services and support is culturally appropriate

Progress Report from the Business Plan 2005-2006

KRA 2 Direct Services and Programs for CarersGoals• The number of new carers and ‘hidden’ carers contacting Carers NSW is increased• Responses to carer contacts are timely, culturally appropriate and sensitive to the whole of the care situation• The number of carers accessing services is increased• Service quality is continuously improving based on good practice models and carer feedback• Carers are accessing more education and training programs• New and improved resources are available to carers and their use and impact is monitored

Priority Work Achieved Not Ongoing

Contribute to development of a national carer services model to be determined by the national review of Commonwealth Respite Centres, Commonwealth Carer Resource Centres, Carelink in the context of the Community Care Review

Develop better links & communication processes between units and key functions in Carers NSW to improve carer support & service provision

• Service 1800 number – information, support, counselling and referral •Update and maintain current information to carers and service providers – website, fact sheets, brochures

Write and publish Carers News •Contribute to national education work •Review existing support provided to carer support groups •Research, write and distribute e-bulletin to health and community care professionals •Implement and evaluate continuation of Stage 2 of Mental Health Project •Implement Stage 3 Family & Carer Mental Health Program •

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Carers NSW Inc Annual Report 2005-200622 23

KRA 4 Organisational Development – our people, processes and systemsGoals• Quality improvement processes are in place and contributing to the development of practice, management,

governance and people• Staff, volunteers and board members are skilled to fulfil their roles and remain committed and fulfilled in their work• Funding of Carers NSW is secure and growing and diversification of the funding base provides for stability and

sustainability of the organisation for the longer term• Carers NSW is structured in a way that reflects strengthening its policy and systemic work• Carers NSW has strengthened its organisational support functions – IT, communication and data collection

Priority Work Achieved Not Ongoing

Further strengthen the effectiveness of the governing board •Realign allocation of resources to reflect the priorities, goals and functions of the organisation

Move premises •Ensure that Occupational Health and Safety Procedures are up to date •Ensure all staff receive high quality orientation, support and adequate supervision and development

Maintain and update Policies and Procedures Manual

• Contract consultant to update Policies and Procedures •• New Federal and State privacy laws incorporated

– continue implementation plan•

• Develop and operationalise across the organisation an intranet based Policies and Procedures Manual

Progress Report from the Business Plan 2005-2006

Education and Training

Education and Training Provided to Carers

The education and training provided to carers included:

• Carers in Action: learning how to be heard

• Services and Support for Multicultural Carers

• Loss and Grief (Multicultural Carers)

• Supporting Aboriginal Carers

• 14 Principles of Coping (carers of a person with a mental illness/ disorder)

• 8 Stages of Healing (carers of a person with a mental illness/ disorder)

• SMILES Program (young carers of a person with a mental illness/ disorder)

• Supporting and educating carers in palliative care

Education and Training Provided to Service and Health Providers

The education and training provided for service and health providers included:

• Carers in the Health System

• Services Supporting Carers

• Services and Support (Multicultural Carers)

• Supporting Aboriginal Carers

• Supporting Young Carers

• Enhancing Relationships with Carers (Area Mental Health staff)

• Community and Health Industry Professionals (CHIPS): Enhancing Relationships with Carers of People with a Mental Illness

• SMILES facilitator training

• Supporting and Educating Carers in Palliative Care

• Carer Sensitive Counselling

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Carers NSW Inc Annual Report 2005-200624 25

Carers NSW would like to sincerely thank the members listed below, and those who chose not to be acknowledged, for their generosity during 2005-2006.

Mr R Barrett

Ronda Goodwin

Mrs P Hookham

Mr Firdes

Mrs F Calabria

Miss D Reynolds

Stephanie Wright

Norma Bond

Mr Chisesi

Frank Coghlan

William Hamnett

Mr E Dunkley

Harries-Evans

Patricia Hawking

Joyce Goddard

Diana Carman

Margaret Walls

Desmond Ayres

Dale Chapple

Mrs S Foufas

John Mitchell

Leonie Swan

Mrs V Kenny

Irmingard Keck

June Dalglish

Vicki Mayhew

Geoff Penney

Joan Geldard

Mrs M Juske

Janice Ho

Anne Hirst

Mr N Kringas

Mr P Van Schaik

Beryl Dignum

Mrs D Matlak

Mrs D Owens

Mr C Morgan

Mr K Underwood

Ms E Perkins

Matt O’Shea

Ann McCarthy

Mrs P Cleggett

Mr B Stewart

Mrs L Searles

Mrs V Lovell

Mrs E M Casson

Mrs P Anderson

Miss Ollie Gumb

Mrs J Smith-Cameron

Mrs A L Stace

Mr D Rothwell

Miss C Costello

Robyn Gardiner

The Brown Sisters – Coogee

Ms G Hatch

Vilma Kenny

Ms C Croker

Mrs J Calandra

Judith Hedington

Barbara Clegg

Maureen Mara

Cristina Bahamid

Suzanne Logue

Mr D G Rolfe

Cathie Smith

Caroline Yuile

Mrs E Rickard

David Lynch

Mrs P Ha

Anet Minia

Pam McGillivray

Mrs V Feltham

Margaret Devenney

Arthur Blofeld

Mrs F Hanna

Joanne Hickey

Mr A Yeates

Laura Knight

Suzanne Parkes

Mr K. McKenzie

Robyn Smith

Susan Denning

Glenda Dean

Mr A Margules

Mary Ashton

Mary Lemmens

Ann Parry

Mrs Umaram

Newcastle-Hunter District Ladies Golf Association

Mrs G Winton

Women’s Golf NSW

Nick Kringas

Fay Ryan

Fiona Place

Peter Davidson

Caltex (Best Allrounder Award – Kriestienne Thomas)

Stephen Salmon

Marguerite Garland

McDermott Family

Mr & Mrs Smith

Mrs C Ruting

Mr E Comyns

Mrs P Rosenman

Jeanette Lewis

Miss Lynne Dunn

Mrs B Capanna

Judith Douglas

Mr P Louis

Marianne Bush

Mr E Isles

Mrs J O’Farrell

Loris Peek

Dr A Gill

Mr M Cott

Miss R Delfino

Mrs H Phillips

Dr S Bard

Mrs G Churcher

Henry Taylor

Mrs Yelland

Mrs Parsons

Juliet Ooshana

Wagga Wagga Men’s Support Group

Mr K Burrows

Mrs P McAleer

Miss R Mashford

Mr A A Grant

Mr C Stanborough

Thanh Tuong Ho

Thi Minh Ly Tran

Betty Coorey

Pamela Potts

Mrs S Hudspith

Miss K Hanssen

Cheryl Davies

Mr P Grullemans

Miss S Cheung

Mrs Catherine Davies

Mrs Indira Thakorlal

Mr R. Leavold

Mr M. Laybutt

Ms Rhonda Speer

Mrs Dawn Pogson

Ms M. Rawlinson

Mr C.R. Arndt

Mrs I Nicholson

Ms C. Rowell

Mr R Stringer

Elwyn Pattenden

Carol Trimingham

John Ebrill

Patricia Bull

Verna Scalley

Miss E Baxter

Caroline French

Peter Scott

Connie Crampton

Miss R Harrison

Ken Wrench

Ms H McDonald

Mrs B Hadfield

Ms I Vains

Mr W Hamnett

Miss J Rowland

Mrs J O’Farrell

Thelma James

Mrs B Whiteman

The Forsight Foundation for Deaf & Blind

Mr C Piper

Judy Devai

Mrs J Walker

Mrs M Halloway

Mrs B Ancilleri

Michael Brotherton

Ms J Liang

Miss J Sadleir

Mrs P Liddell

Ms D Solomon

Mrs G Gordon

Carl Erle

Mrs I Nicholson

Ruth Clancy

Caroline Yuile

Helen Daly

Mrs M. Batcheldor

Mrs R.A Dawson

Mr J.T. Cameron

Jeanne Doyle

Alan King

Colleen Bisson

Mr R. Podmore

Caroline Yuile

Michel Wagner

Evelyn Gardiner

Roslyn Godlee

Ms M. Crawley

Val Shears

Carolyn Todd

Anne Hirst

Mrs A. Triggs

Acknowledgments

Carers NSW appreciates the great amount of time and effort given by carers and others to support and assist our association. We also acknowledge the following government departments, organisations and people for their financial or in kind support during 2005-2006:

Australian Government Department of Health and Ageing

Australian Governent Department of Families, Community Services & Indigenous Affairs

NSW Department of Ageing, Disability & Home Care

NSW Department of Community Services

Motor Accidents Authority

NSW Department of Health

NSW Department of Health through the Centre for Mental Health

Greg and Jo-anne Bierne

Commonwealth Bank

Macquarie Bank Foundation

Rotary Club of Hawkesbury

Thyne Reid Charitable Trusts

Uniting Care Ageing – Sydney Region

Women’s Golf New South Wales

Steve Abbott

Hoyts Theatres

Paul Livingston

Opera Australia

Consultants

Bernadette Eichner

Sue Greig

Massive Interactive Pty Ltd

Carol McCormack

Deanna Pagnini, PhD

Edwina Pickering

Richard Ottley

Tony Ovadia

Lyla Rogan

Graham Wheeler

Leigh White

Dino Zanella

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Carers NSW Inc Annual Report 2005-200626 27

With all of Carers NSW projects, an advisory, steering or reference group is set up to guide the project work. Carers are always significant members of these committees. The following committees have been in place for the 2005-2006 year:

Carers CoalitionCommunity Options (COPS)COTA NSWCare ConnectSchizophrenia FellowshipNorthcott SocietyBrain Injury AssociationNSW Consumer Advocacy GroupParkinsons NSWCombined Pensioners and Superannuants AssociationPeople with DisabilitiesEthnic Communities CouncilAged and Community ServicesFamily AdvocacyDown Syndrome AssociationMultiple Sclerosis SocietySpastic Centre NSWEpilepsy AssociationARAFMIACRODAlzheimers Australia NSWBenevolent SocietyMeals on WheelsUniting CareInterchangeAids Council of NSW (ACON)Autism Association of NSWSpinal Cord Injuries Australia

Jewish CareAssociation of Genetic Support of Australasia (AGSA)The Accommodation Rights ServiceNCOSSMotor Neurone Disease AssociationNSW Cancer CouncilStroke Recovery AssociationNorthern Sydney Home Nursing ServiceForsight Foundation

Carers Mental Health ProjectMid West Regional Reference GroupMargaret Balsom, CarerParkes Mental Health ServiceCentrelink, OrangeCentrelink, ParkesCentacare ForbesCurran CentreBathurst Mental Health ServiceAnna Della Bosca, CarerLifeline Central WestGrenfell Carer Support Group RepresentativeCentral West Commonwealth Carer Respite Centre & Commonwealth CarelinkAllied HealthBloomfield HospitalErica Pitman, Carers NSWGreater Western Area Health ServiceNSW Central West Division of General Practice LtdGeraldine Sealey, CarerHome and Community CareCentre for Rural & Remote Mental HealthParkes Police Rosanne Ward, Carer

Carers Mental Health Project Statewide Reference GroupNSW Department of Health & AgeingAustralian Government Department of Families, Community Services & Indigenous AffairsAlliance of NSW Divisions (General Practice)Nepean College of TAFEMental Health Association NSWNSW HealthAboriginal Health & Medical Research Council NSWRelationships Australia (NSW)ARAFMI NSWCentacareLifeline AustraliaNSW Consumer Advocacy GroupMental Health Coordinating CouncilSchizophrenia FellowshipNSW Department of Ageing, Disability and Home CareMental Illness Education Australia Centre for Mental HealthEthnic Communities Council of NSW IncCommission for Children and Young PeopleNSW Institute of PsychiatryLaraine Toms, Pam Webster, Carers NSW Board membersNSW Transcultural Mental Health Centre

During this year Carers NSW’s partnerships with other organisations have continued and new partnerships have been formed.

Staff, board members and volunteers represent Carers NSW on various committees, forums and conferences. These provide important opportunities to raise public awareness of carers and ensure their issues are placed on the policy agenda. We also meet regularly with our major funders to alert them to emerging carer issues.

Australian Council on Health Care Standards - Mental Health Community Based Working Party

Indicators of Care

Carers Australia and the Network of Carer Associations - Executive Directors’ Forum

- Services Sub Committee

Carers CoalitionCarers ConsortiumCarers Support Project, Ethnic Child Care, Family & CommunityCommunity Care Coalition - NSWCommonwealth Carer Respite Centres Consultative GroupDepartment of Health and Ageing - Emergency Mental Health Access to Care

Working Group

- Aged & Community Care Liaison Group

Department of Veteran Affairs - State Planning Group

Disability Council of NSW

HACC Forum and HACC Issues HACC State Advisory CommitteeHealth Care Complaints Commission - Consultative Group

Labour Council AllianceMental Health Council of AustraliaMotor Accidents Authority - ‘Carers Linked in Caring’ Project

- Community Participation Project Reference Group

- Review of Attendant Care Guidelines

St George Migrant Resource Centre - Multicultural Carers Project

NCOSS - Chronic Illness Alliance

- Forum of Non-Government Associations

- HACC Issues Forum

- Health Policy Advisory Group

- NSW Aged Care Alliance

- Statewide Gathering Committee

NSW Alliance of Divisions of GP - Population Health Network

NSW Cancer Institute - Cancer Research Strategy Working Group

- Palliative Care Oncology Group

NSW Carers of People with a Mental Illness Advisory CommitteeNSW Department of Ageing, Disability & Home Care - Planning for Later Life Forum

- Primary Care Consumer Group

NSW Ombudsman - Disability Roundtable

NSW Health - Aboriginal Dementia Awareness Project Training

(ADAPT)

- Chronic Aged Community Health Care Health Priority Taskforce

- NSW Carers Program Advisory Group

- Palliative Care Advisory Group

- Sustainable Access Health Priority Taskforce

NSW Health – Centre for Mental Health - Family and Carers Strategic Working Group

- Mental Health Priority Taskforce

NSW Mental Health Implementation GroupOffice of the Protective Commissioner - Community Reference Group

Social Policy and Research Centre - Negotiating Caring and Employment Research

St James Ethics CentreSydney University - Rehabilitation Studies Unit

University of Western Sydney - Carers of People with Cancer Project

- Male Carer Research Project

University of Wollongong (CHSD) - Long Term Care Study Advisory Group

Uniting Care Ageing – Sydney Region

Partnerships and Committees

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Carers NSW Inc Annual Report 2005-200628 29

Financial Statements

Comonwealth Carer Resource Centre Advisory CommitteeAustralian Government Department of Families, Community Services & Indigenous AffairsSutherland Shire Carer Support ProjectNSW Department of Ageing, Disability and Home CareAustralian Government Department of Health and AgeingNSW Health Pam McGillivray, Rural carerNorthern Beaches Neighbourhood CentreCentrelinkBenevolent SocietyPam Webster, Louise Gilmore, Carers NSW Board Members

Multicultural Carers AllianceGreek Welfare CentreSt George Shire Carer Support ProjectItalian Social Welfare Organisation of WollongongCan ReviveSt George Migrant Resource CentreMulticultural Disability Advocacy AssociationMuscular Dystrophy Association of NSWEthnic Child Care, Family & Community Service Co-op LtdEastern Suburbs Multicultural Access ProjectChinese Australian Service SocietyMulticultural Access & Referral ServiceDAISIAustralian Huntington’s Disease AssociationSydney West Area Health ServiceSydney Multicultural Community Service CentreDown Syndrome Association of NSW

Newtown Neighbourhood CentreAutism Spectrum Australia Ethnic Communities’ CouncilHeadway Adult Development Program IncTranscultural Mental Health

Polish Welfare and Information Bureau NSW

National Carer Counselling Program State Reference GroupCentacareCommonwealth Carelink Centre – Central CoastCommonwealth Carer Respite Centre – Far North CoastCommonwealth Carer Respite Centre – South East SydneyAustralian Government Department of Families, Community Services & Indigenous AffairsNSW Department of Ageing, Disability and Home CareAustralian Government Department of Health & AgeingLifeline SydneyNSW HealthRelationships Australia

Young Carers Advisory CommitteeKatherine Armstrong, Young Carer Camp LeaderSean Challenger, Young Adult CarerNicole Cree, Young Carer WorkerUniversity of Western SydneyCarreen Dew, Young Adult CarerPatricia Dunn, Past Camp CoordinatorJohn Friedsam, CanteenJudith Krause, Young Carer WorkerAngei Malak, Young Carer

NSW Department of Ageing, Disability and Home CareMary Myers, Carer Support OfficerHeidi Newbery, Young Carer Camp LeaderTrevor Parkes, Young Adult CarerFelicity Purdy, Carers NSW Board MemberNiall Quinlan, Young Carer Camp LeaderHelen Reese, School Counsellor and TrainerAllison Robb, Young Carer Camp LeaderKathryn Wakeling, Young Carer Camp LeaderRotary Club of Hawkesbury

Young Carers Government Officers GroupCommunity Relations CommissionNSW Department of Ageing, Disability and Home CareNSW Department of Community ServicesNSW Department of EducationAustralian Government Department of Families, Community Services & Indigenous AffairsAustralian Government Department of Health and AgeingNSW Health

Partnerships and Committees

The financial accounts include the balance sheet, a concise statement of income and expenditure general funds and the notes to and forming part of the accounts prepared from the full set of 2005/2006 audited accounts that are available on request or for inspection at the AGM

The following Government Departments have funded Carers NSW for a variety of different programs during 2005/2006: Australian Department of Families, Community Services and Indigenous Affairs

Australian Government Department of Health & Ageing

NSW Department of Ageing, Disability & Home Care

NSW Department of Health Centre for Mental Health

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Carers NSW Inc Annual Report 2005-200630 31

Statement by the Board of Management

In the opinion of the members of the Board of Management:

a) the accompanying income and Expenditure Statement is not misleading and is drawn up so as to present fairly the results of the Association for the financial year ended 30 June 2006.

b) the accompanying Balance Sheet is not misleading and is drawn up so as to present fairly the state of affairs of the Association as at the end of the financial year.

c) At the date of this Statement there are reasonable grounds to believe that the Association will be able to pay its debts as and when they fall due.

The accounts of the Association have been made out in accordance with accounting policies as set out in Note 1.

On behalf of the Board of Management:

President

Hon. Treasurer

Independent Audit Report

TO THE MEMBERS CARERS NEW SOUTH WALES INCORPORATED

We have audited the accompanying Financial Statements comprising of the Statement of Income and Expenditure and Balance Sheet of the Association in accordance with the Australian Auditing Standards.

In our opinion, the Financial Statements are not misleading and present fairly the financial position of the Association as at 30 June 2006 and the results of the operations for the year then ended in accordance with the accounting policies and with the provisions of the Associations Incorporation Act of New South Wales 1984.

ACCRU FELSERS

Chartered Accountants

Michael Kersch

Sydney, 19 October 2006

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Carers NSW Inc Annual Report 2005-200632 33

Statement of Income & Expenditure General Funds For the Year Ended 30 June 2006 2006 2005

$ $INCOME

Consultancy fees & room hire 44,017 4,764

Donations 214,843 26,297

Copyright distributions - 13,575

Interest received 61,932 65,912

Membership subscriptions 29,105 28,421

Newsletter advertising 400 298

NSW Women’s Golf 6,885 6,000

Sale of publications/merchandise 24,411 11,483

Transfer surplus from training activities 4,197 5,219

385,790 161,969

LESS: EXPENDITURE

AGM/Clare Stevenson Lecture/Board meetings 9,368 7,495

Audit fees 500 -

Board expenses, governance 173 532

Consultancies 20,220 -

Election campaign 1,000 11,251

Marketing consultancy & expenses 12,073 1,766

Insurance 250 500

Legal fees - 41

Office rent 70 -

Printing/photocopying/postage 233 401

Promotional materials & P R services 5,266 3,081

Provision for leave accrual on-costs - 15,750

Purchase of resources & library resources 13,982 4,809

Salaries & salary on-costs 6,794 19,407

Subscriptions/Membership 1,000 1,000

Transfer of Operation Deficit from Grants 44,482 41,447

Young Carer activities 3,415 -

118,826 107,480

Surplus/(deficit) for the Year 266,964 54,490

Balance Sheet As at 30 June 2006 2006 2005

Notes $ $

ACCUMULATED FUND

Balance 1 July 2005 588,108 533,618

Surplus/(deficit) for the period 266,964 54,490

Balance 30 June 2006 855,072 588,108

REPRESENTED BY:

CURRENT ASSETS

Cash at bank 123,120 51,737

Sundry debtors 5 73,805 33,570

Cash on hand 500 500

Membership renewals 1,064 -

198,489 85,807

NON CURRENT ASSETS

Office Equipment 13,279 13,279

Less: Provision for Depreciation (12,882) (12,635)

397 644

INVESTMENTS

Cash at call and fixed term deposits 1,757,896 1,215,594

TOTAL ASSETS 1,956,782 1,302,045

CURRENT LIABILITIES

GST payable 71,104 5,789

Membership in advance 7,150 9,167

Sundry creditors 3 263,761 398,428

Grants in advance 4 602,605 105,977

Provision for leave pay 157,090 194,576

1,101,710 713,937

NET ASSETS 855,072 588,108

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Carers NSW Inc Annual Report 2005-200634 35

Notes to and Forming Part of the Accounts For the Year Ended 30 June 2006

2006 2005

$ $

3. SUNDRY CREDITORS

American Express 1,152 862

Auditors Fees 12,100 10,000

Conference expenses 18,556 -

Consultants & contractors 32,510 74,670

Counselling brokerage 124,859 170,108

Equipment - 629

Meeting costs 75 -

Office rent & maintenance, electricity 4,104 11,550

Payroll deductions/recruitment 699 114

Postage, Stationery and Printing 13,854 24,429

PR Promotion & Media Monitoring 3,137 6,125

Regional offices rent 4,064 2,514

Publications & resources 8,195 -

Respite Centre consultative meetings 12,627 8,847

Staff costs, training, entertainment 5,130 1,288

Telephone/Internet 2,810 7,803

Temporary staff 605 -

Training 5,895 1,880

Travel - 289

Workers Compensation - balance payable 13,389 55,000

Young Carer activities - 22,320

263,761 398,428

Notes to and Forming Part of the Accounts For the Year Ended 30 June 2006

1. SUMMARY OF SIGNIFICANT ACCOUNTING POLICIES

These accounts are special purpose accounts prepared in order to satisfy the requirements of the Associations Incorporation Act of New South Wales 1984.

The accounts are prepared on an accruals basis and in accordance with the historical cost convention.

The following specific accounting policies which are consistent with the previous period, unless otherwise stated, have been adopted in the preparation of the Association’s financial statements. The Board of Management has determined that the accounting policies adopted in Note 1 are appropriate to meet the needs of the members.

(a) Grants for the acquisition of fixed assets

Grants for the acquisition of fixed assets and equipment are recognised in the period when the related expenditure occurred. Fixed assets and equipment acquired from Grants received are expensed in the period of acquisition.

(b) Other Grants in advance

It is the policy of the Association to bring Grants Received to account during the period they relate, rather than the period in which they were received. However, certain Grants received during the year and in prior years, did not have an expiration date, or were not fully expended at 30 June 2006. The balance of grants outstanding/grants in advance at 30 June 2006 are listed in Note 4.

(c) Employee entitlements

Provision is made for the Association’s liability for Annual Leave and Long Service Leave arising from the services rendered by employees to year end.

(d) Income Tax

The Association is exempt from paying income tax due to its classification as a charitable institution under S50-5 of the Income Tax Assessment Act (1997).

(e) Depreciation of Fixed Assets Depreciation has been charged on previously capitalised fixed assets at rates assessed to match the costs of the assets over their economic life.

2. AUTHORITY TO FUNDRAISE ‘Carers NSW Inc.’ did not participate in any fundraising activities under the Charitable Fundraising Act 1991 during the financial year ended 2006.

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Carers NSW Inc Annual Report 2005-200636

2006 2005

$ $

4. GRANTS IN ADVANCE

Unexpended grants at 30 June 2006

Department of Ageing, Disability & Homecare - 12,701 - HACC Grant

Department of Ageing, Disability & Homecare - 3,052 - Young Carer grant

Department of Health & Ageing - Palliative Care Project 12,758 24,751 stage 2

Connections & Koori Camps evaluation funds - 17,000

FACS Young Carers Project 6,176 275

Macquarie Bank - Ethics of Caring 100,000 -

Motor Accidents Authority - 941

NSW Department of Health - Peak Funding - 5,059

Salvo Care Line - 1,893

Thyne Reid Foundation 38,792 20,530

Uniting Care Project 25,079 10,936

182,805 97,138

In addition, certain Grants were received prior to their commencement date. These receipts have also been included in Grants in Advance as follows:

Department of Ageing, Disability & Homecare 109,800 - - one-off CALD printing & database

Department of Ageing, Disability & Homecare 70,000 1,840 - Carers Week & Hidden Carers

NSW Department of Health - Family & Carers Mental 240,000 6,999 Health Program

602,605 105,977

2006 2005

$ $

5. SUNDRY DEBTORS

Grant Funds and other outstanding debts not received prior to the end of the financial year for:

Bloomfield Hospital - Training - 435

Books and Publications 16,489 -

Carers Aust - reimbursements 820 78

Centre for Mental Health 4,368 -

Commonwealth Carer Respite Centres 2,883 -

Copyright Association - 13,575

Department of Ageing Disability & Home Care - 219

Greater Western AHS - 2,665

Hunter & New England AHS - 550

MAA - final grant payment 16,500 -

Membership owing 493 -

North Sydney, Central Coast AHS - 1,144

NSW Department of Health - 2,682

Reimbursements re Telstra Talk link programs 3,573 -

Spastic Centre of NSW - 409

The College of Nursing - 77

United Care - quarterly grants outstanding 25,549 -

70,675 21,834

Interest on Investments 3,130 11,736

73,805 33,570

Notes to and Forming Part of the Accounts For the Year Ended 30 June 2006


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